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what to expect at the end of treatment
My husband is just about done with his treatments. What happens next?
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Keep on
Thank you all for your kind words! Yesterday after treatment I came home and simply CRASHED. Sometimes I'm so tired after the radiation, other times not so much. Don't know which of you have to wear the mask for treatment and don't know if any of you ladies are going through perimenopause...but let me tell you sisters,…
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I can't taste anything
Hpv + scc / just received my second chemotherapy and finishing the fourth week of rads. My taste bud must be completely fried as I can't taste anything. Do any of you have suggestions on what I may still be able to taste without burning my mouth. I've been eating a lot of oatmeal and chicken noodle soup....any help would…
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anxiously awaiting
Dad is having his first PET and a second CT as I write this. In a couple of hours we will meet with the oncologist for results. Thanks to everyone for your support....I am asking for prayers and support Again today too. Andrea
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Tongue primary vs. tonsils and feeding tubes
My wife and I were just wondering what is the differences that most of you guys have experienced with tongue primary vs. tonsils. Who has had tongue, what was the treatment? was there surgery, if so, what was the end result? What about feeding tubes both before and/or after any surgeries? My primary is unknown at this…
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Start treatment Monday, 2 May. What can i expect?
Guys, What can I expect hte mask fitting to be like? How long do rads normally take? What is chemo like? What zaps your energy more, the rads or chemo? How long does the rads take to start feeling the effects, when does it start to suck? How long does the chemo take to start feeling the effects, when does it start to suck?…
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Ground Hog Day again?
John, thank you. That perspective fits! I read your post when I got home from treatment today and I have to tell ya it was very uplifting to find your message. Just showing your regard, just showing you care. Thank you. And to all of you. (again) I'll have all of you in my prayers. Man, I sure am one lucky person! Rubytoos
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Spring Is In The Air
Hello Everyone, It's Easter Sunday. For me, that always meant that Spring had sprung! Last year at this time I was in a hospital bed recovering from the surgery of Good Friday to remove 41 lymph nodes and to remove a tumor on the base of tongue. The shock of learning that I had cancer and multiple biopsies lay behind me…
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Do you think it really matters what facility performs your radiation treatment?
My mom is so torn between going back to Mayo for all her treatment or staying here in Peoria, IL and having it done. Staying local would help my sister and I as my dad has cancer too. My sister and I are going to have to take two week turns going back and forth to Mayo to be with my mom and while we are home have the…
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still unable to eat
Went to my doctor yesterday and he showed me pictures of the swelling in my throat caused by the radiation. This is causing swallowing problems and as a result i have not eaten any solids for 7 months. My radiation treaments were completed 6 months ago howvever i was unable to eat a months before my treaments were done. I…
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Biopsy Results Came In
So I had my one year appointment on the 11th of this month. I thought it was going to be a celebration but instead my doctor found something in my nasopharynx during the scope and he wanted to take a biopsy. It was a blow to the gut plus I had to wait like 10 days for the procedure. I had the procedure a week ago today and…
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has anyone just had surgery for mouth cancer
hi my husband has floor of the mouth cancer on the 10th of may he has his op which means he has to have all lower teeth removed the floor of his mouth base of his tongue and part of his jaw bone chipped away he said it is the same op as what is used for tongue cancer with flap built only more work we have had 2 opinions…
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"The Silver Tongued Devil"
(Kris Kristofferson reference) I have been wrestling with ways to eliminate trolls from this site (even though I am not being paid to do so, and so must just be a total nerd). I thought of a number of techno items (and passed these on), but they don't work with creeps. Creeps are like cockroaches and they just multiply.…
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B9
Got the other 5% Friday. All clear B9 NED!!!!! The doc get's his red Porsche. Best to all!!!! Steve
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bleeding in track
Hi my husband had to go to the emergency room this morning because he started bleeding from his track. They took X-rays and did blood work but they said that they could not tell where the bleeding was coming from. They said that we should go Monday to the ENT AND let him look at my husband. Just wondered if this has…
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what induction chemos did you use and which is better induction followed by chemo/radiation or just
My mom has stage 4a base of tongue cancer with metastis to bilateral neck nodes...the oncologist said that she dould go with chemo induction with cisplatin taxotore and fu 5 and then get 7 weeks of radiation with carboplastin chemo at beginning middle and end of rads or just go high dose cisplatin with rad...she said there…
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Alabama
Not cancer but I just drove through some of the areas hit by the tornado (this one was just an EF3)and it really is bad. Pray for them and send help if you can.
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is a feeding tube that goes up ure nose called a peg tube
my husband undergoes surgery on the 10th may he has to have flap rebuilt and floor of the mouth removed nurse told us he will have a feeding tube for a few weeks is this a peg tube she said it will go up his nose any info please
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Jeepman's wife
Hi everyone! First, I would like to say thank you to all for the posts....since receiving our "news" yesterday morning I have been frantically researching on the net. Michael and I are very positive about all this....but still walking on eggshells about what we are about to go thru. It is so good to read all the success…
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Home from NC Again!
Hi all: Basketcase checking in here! I got back home from NC on Thurs. Went up on the 10th so I could ride herd on Charlie's folks while my brother-in-law got settled in his new job and out of the world of unemployment. I had a great time and they let me bring both Rowdy and Sammy so I was glad of that especially with the…
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knot on my tongue again
I noticed a knot on my tongue Saturday and by Friday it had doubled went to the doctor on Friday and my doctor was in surgery they called him and he said send me a picture so the took a picture and sent it to his phone and he told them to biopsy it. They biopsed the wrong part. They biopsed beside the knot. I did not…
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"Please don't tell me how the story ends"
(Kris Kristofferson/Rita Coolidge reference) I have been having some back and forths with my nurses and whomevers, the ladies who call you back to say they don't know the answers but will put you through to someone who does and who then turns out to be an answering machine. I do know, now, that my surgery is out-patient,…
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90 day scan results--Clean
Thank you everyone for your prayers and support. Although I do not write alot on csn i do read all the time and i am moved by the support of everyone. I was diagnosed with stage 4 scc of tonsils 10/20/10. Had tonsils removed 11/01/10 and started radiation and chemo on 12/13/2010 at Memorial Sloan Kettering in NJ. Finished…
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Is this a radiation side effect?
So i have been done with radiation for about 9 months now. I go to get a follow up PET on Wednesday, but what's worrying me is my tongue. I was originally diagnosed with nasal pharyngeal carcinoma but i have been told that it looks all clear at the moment. My tongue however has sore spots on the base of it. The doctor has…
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"A Kodiak-looking fellow, about seven feet tall"
(Jimmy Buffett reference) During what was a busy week for me these days, especially when the week is only two days old, I went in for a CT scan one day, and on that very day was directed as well to get some blood work done. Whoo! I was worn out. That should be the end of my week, eh? GastroPod (aka GI Joe) wanted me in his…
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Michael Douglas!
Apparently he is on Oprah today! Just saying!
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G tube questions
A few weeks ago I had a G-tube put because it was getting to difficult to swallow. I had an open surgical procedure because the PEG tube insertion was unsuccessful. I am 4 weeks out and the incision is healed up well but I still have a lot of discomfort around the tube. It is a large tube (24 French) and is held in with…
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Just got my biopsy results today
I received my news today that the biopsy was, infact, cancer. Squamos cell carcinoma in a right Lymph node on my neck, unknown primary. My wife and I are speechless. I am in great shape and only 41, we just dont get it. We start my treatment at Chapel Hill, NC cancer hospital on 2 May 2011. I will pray for all of you guys…
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Can someone help elaborate on what to expect???
My father goes in for surgery May 5th and ultimately he is terrified. He is getting 4 or 5 lymph nodes taken out of his neck. In addition to that he is getting his tonsils out at the same time to complicate things even more when it comes to eating. Has anyone here had both the neck surgery and their tonsild removed at the…
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SECOND HAND SMOKE EXPOSURE
I have employees who smoke, and can only smoke in a large area, (10,000 sq ft warehouse) My office is 50-75 ft away from where they smoke. If I can smell it,should I be concerned? If I have to go out where they are smoking, I stand 15-20 ft away. Any thoughts?? Best!! Mike