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statistics
Do y'all pay attention to 5 year survival rates? I went on the computer yesterday, and I've driven myself totally crazy. Now I'm depressed and shaking so much I couldn't sleep at all last night. I think mine said 47% 5 year. Also am I the only one on here who has had the big C in the nasal cavity and the eye region. I feel…
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peg tube and diarrhea
Hello all Hope everyone is doing well. My father has been on pegtube for several months. He has been experiencing diarrhea and has also not seen much increase in weight. The doctors are waiting on scans post surgery as he still has a lot of swelling from his mandibulectomy and reconstruction. Any advice? Thougts?…
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Cardboard taste ---soo early on- any advise
Ok I have been reading the posts but of course didnt think it would happen to me - 14 treatments 20 more to go- Yikes ==Yes taste buds gone ...harder to eat, anything else then salt water/baking soda and magic mouthwash to make things taste better???? Boy oh boy is has only been a few days of this and HATE it.... I really…
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Help...Need suggestions
My mom has stage 4a BOT cancer. Due to the size of the t0umor, surgery is not an option. She started her rad treatment on Tuesday and also had her 1st dose of cisplatin. They gave her anti nauseau meds before the chemo...They also gave her anti nauseau pills for at home with a schedule of how to take them. She also is in a…
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New clinical trial for recurrent head and neck cancer
Hi All, Just wanted to let you know that Pat's oncologist, Dr. Antonio Jimeno of the University of Colorado Cancer Center, has just initiated a new clinical trial for recurrent head and neck cancer that has not responded to conventional treatment. I know not many of you are from anywhere near Colorado, but I have to say…
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Long Term Survivor Rates
Hey Everybody Larry (Cajun) was asking for a reference on long term survivor rates. The National Cancer Institute has a publication from 2001. NCI SEER (Survelliance, Epidemology, and End Results program). Easily found if you google the title. Chalpter 2 is on Head and Neck and has a lot of statistics, based on sex, race,…
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Kent cass PMed me ....
Just wanted to let evetyone knowbas i see he hasnt responded to the ABP! Very odd but he responded to me via PM so i know he checked the board. Maybe computer issues?! I have been having trouble responding on board n creating new threads But he is with us on the boards! And fave me some great feedback and support
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anyone with Tonsil CA .. not have chemo?
Just curious. Always confusing to remember who was diagnosed with what. not that it matters to me, as everyone's love, advice and support is amazing and so comforting. Mom diagnosed with Right SCC of Tonsil after tonsillectomy. Originally there was no origin as her PET was clean. mets to one lymph node which was removed.…
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Checking In
Hi all: Been globe trotting again. I went last weekend to my great nephew's high school graduation (the grandson of my brother that passed away in Oct.) and then came home on Sunday and left Monday for Hilton Head! My best friend's older son owns a condo there and she and her husband were going and another couple was…
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How long until first post chemo-radiation CT?
From your experiences, how long after completed course of chemo-radiation treatment was your first CT... or any test to check effects of the completed treatment? I am getting different timelines from different medical professionals... from 3 weeks of completion to 3 months of completion. I am into fifth week of six-weeks…
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Interesting side effects
We have been talking about serious side effects of radiation years after the end of treatment. Has anyone experienced unusual ones which are not so serious? Buzz lost his whistle but gained long, dark, curly eyelashes! He looks like he is wearing mascara. Karen
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All Clear
I had MRI's done last week of my head and neck. Went to the doc today and got the "all clear". Won't be getting a PET/CT for another couple months but for now everything looks great! Much thanks and gratitude to everyone here for all the support that got me through. Life is good. Bob
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wrong decision? =(
after reading through the boards and talking to other H&N patients... i felt it was best for my 107 lb mother to get feeding tube first week of treatment. was very happy to hear to GI doc who did the procedure say that i was a very smart daughter and he agreed. rad/onc doc then told us several hours after installation that…
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Painful lump in vein used for IV
I was wondering if anyone had a lump developed in their veins. I had surgery almost 3 weeks ago and I have this painful lump a few inches up from were the IV was placed. I think it has actually been moving upward in my arm. Can this be dangerous?
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I have ants in my pants
I am getting a bit antsy being my husband has 5 days left of treatment. Just wanted to know, has anyone been told by the radiologist/oncologist at the end of treatment that they beleive they got all the cancer. I was wondering do we have to wait 2 months before we know anything. I am tired of the waiting game and my nerves…
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tests and scan questions
Okay Y'all, I have a few questions and I'm new here. I just posted about 5 days ago for the first time. here goes: 1. does scar tissue light up on PET scan? 2. Can scar tissue and inflammation grow or get bigger over time? 3. What are dead cells, and is that good or bad? 4. are PET scans reliable months after surgery and…
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Finally finished with my initial work-ups at UNCCH surgery/treatment plan starts.....
I have a great report: The CT of my neck came back with the primary 90% identified. My chest CT came back clean (thanks god). My surgery was supposed to be both tonsils and a small affected area of the right BOT removed and a neck dissection. Now that the my team of ENT, Radiation oncologist and Chemo oncologist have…
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Things that sting (and go bump in the night?)
My husband, Buzz is 3 months post treatment. Some foods still sting but we discovered Hidden Valley Ranch Dip mix. Mixed with sour cream and thinned with milk, it is much more tolerable than any dressings he has tried. It seems every salad dressing has vinegar and/or lemon juice in it and he can't tolerate them. Also…
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Every day is gloves on and keep swinging.
I was diagnosed with scc of the nasal/septum area in dec 2009,since then i've had my nose removed with a sub total rhynectomy,reconstruction using skin and bone,vein from my left arm,have had nodes removed from my neck,survived radiation treatment in may/june 2010,several operations to keep shaping my nose with more to…
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The day after the big day!
First, thank you all sooo much for the prayers and well wishes! I'm home now, got out at about 11am this morning. Surgery went well, took all of my right lymph nodes and didn't have to take my jugular. I'm cut from behind my right ear to about my thyroid area, but he did a wonderful job and it doesn't look too bad! I don't…
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update
Hi everyone. I've been so focused on the counseling practice I have little time to wander these boards, but I have a bit of news I wanted to share. I had my 12 month PET scan Monday and last night I got the word from my ENT, "I think we got this thing cured ... ". I blogged it on my website and posted the mp3 of his voice…
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SCARED TO DEATH PLEASE HELP ME!!!
Hello My name is breanna. I am a 22 year old female. I smoked cigarettes for about 3 years and I smoked weed for about 3 years after. I am here Because I am scared to death. I have a right tonsil that is extremely larger than the other. I have seen many doctors who dont take me seriously AT ALL. this has been going on for…
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Dry mouth sore throat
I am having a problem with dry mouth and sore throat. I have tryed biotene dry mouth spray it works for a little while but I need something that will last several hours. If I go to the store by the time I get inside I am looking for water and at night I spray my mouth before I go to bed and I have to get several times a…
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Hi..I'm new to this forum
I thought I will give you all my story. I was first diagnose with tongue cancer in 1995. I have no known risks factors but I guess that does not matter. I had my first surgery in January of 1995 and had to go back in in February because the margins were still not clear. I was cancer free until 2009, since then I have had 5…
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Tomorrow's the big day
Well, here I go, hopefully into the final round of this crazy game with my nasty cancer. Tomorrow morning I have my neck dissection.....I'm nervous, not so much about the surgery, I kind of know what to expect from that, this isn't my first (never had a neck dissection but had full exploratory on my abdomen and that's some…
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Medical Disability
I applied for SSI medical disability for my husband in April. He is stage 4a - T2N2Mo. We got a letter within 30 days stating he was approved and within 2 weeks we got a letter stating how much and when we will receive the funds. I have my fingers crossed that he will be back to work soon, but I filed just in case things…
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An update on my Father
Well, Thursday May 5th, my father had surgery on his neck. After his surgery we were told that he may be able to leave on Tuesday May 10th. However, after the meds. wore off from surgery, he was pretty lethargic to say the least. He had 3 drainage tubes coming from his neck, and being that he had his jugular vein removed…
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Im tired
I had 2 neck dissections with lyphnodes removed on one side, and 95% of my tongue removed and replaced with my thigh. Along with chemo and radiation. Now i have a knot on my tongue that i can not explain. I went to my oncologist and he was in surgery and i saw someone else and he called my doctor in the operating room and…
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Headaches?
Hi all, I have been getting intense, skull splitting headaches in the past couple of months. I completed chemo (cisplatin), radiation and a partial next dissection about a year ago. I have visited multiple different specialists and -ologists. Can't seem to find a lot of help for this. Have any of you had similar…
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Just wondering
Hi all: Anybody out there heard anything lately about Jim (delnative). I was just wondering. I looked briefly on lung c board but didn't see anything. I remember his telling us the beast had returned but don't remember seeing anything lately about how he's doing, treatment, etc. Just wondering. Jan (basketcase)