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TPF Induction Chemo to being tomorrow a.m. and I am freaked? Anyone with advice for a newbie here?
I have to have four days, 24 hour of TPF Induction Chemo beginning tomorrow. Need some advice desprately as I am so upset. I have already had SCC Sage IV in my tongue removed and now a tumor growing around my larnyx, trachea, carotid artery, thyroid and esophagaus. This is what they feel will help shrink the tumor so as to…
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Ear pain
I had 2 neck dissections and 95% of my tongue removed and replaced with my thigh. Plus chemo and radiaion. Also several surgeries on my tongue to try and shape it right for speaking and eating. My left ear hurts really bad but the doctor says he can see nothing wrong with it. He thinks its just nerve damage from the…
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early pet scan? scary
Because my husband is having an early check-up with his ent surgeon for a chylothorax complication, they are going ahead with his first pet scan. He'll just be 2 months out of radiation/chemo treatment. I seem to recall some discussion here that early scans had shown some spots "light up" that were residual from radiation…
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To NPC fighters
Hi, im new so im gonna let it all out. I first got diagnosed við NPC in my neck and a primary tumor in my nasal cavity, when i was 17, in 2006. I got 4x cisplatin and a few other drugs, cant remember the names, and then the 40+ radio therapy. To this day the doctors cant find anything in the primary area witch they think…
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Should i worry
I saw my oncologist last Friday because of severe pain in my ear on the side where i had cancer in my tongue and lymphnodes. He told me he thinks i have temporomandibular joint disorder. He ordered a ct just in case. I was sick and throwing up all day Thursday and Friday. When i turned on my cell phone today my oncologists…
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Swellig of Mouth, any suggestions?
I am 6 mo post treatment for stage 3 tonsil with lympnodes removed. Healing seems to be going as well as expected with the usual side effects many of you talk about on this board. The real problem I am having is swelling of the mouth,and throat. THis comes and goes, but yesterday it started and never seem to subside. Today…
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A WEIGHT GAINING smoothie
Hi, I wanted to give everybody a smoothie I came up with that helps you maintain weight or gain weight. You can drink it or tube feed it by thinning it a bit 1 can ensure plus 350 2 scoops protein powder 120 2 tbls peanut butter 240 2 tbls flax seed oil 240 4 tabls cott cheese 100 4 oz apple sauce 100 Blend all this really…
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tonsils cam e out this morning
The stories are true about the pain being severe for adult tonsillectomies. I am in the most pain I have ever been in, but my Dr finally found the narc that works for me: hydrocodne. Thank god too, I will post more as I get to feeling better. Keep me in you guys' prayers, Mike
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Your personal expiration date 11-21-20xx?
Chromosone technology that could predict how long you have left to live has been in the mainstream media for several weeks now and the common question by news people is, "Would you really want to know when"? Everyone always answers absolutely not! I was wondering if we collectively were any different for obvious reasons. I…
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new ENT
My husband and I just got back from Fl last Sat. We went to a new ENT today and he put the scope down his nose and said "I see something that concerns me and I want to do a biopsy in 2 weeks" He said that my husband has a infection in his throat and wants him on antibiots for 2 weeks. So now we are worried again. Does it…
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again
Well, the doctors here at MUSC in Charleston, SC said my mother's biopsy was positive for recurrence. this after biopsy in same area showed negative for cancer in March. OMG!! The area is now along the eye muscle so they say they need to remove her entire left eye. We're so upset that we didn't go to MD Anderson in the…
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A bit worse for wear, but I'm back
Hello, all. Some of you may recall that in February I had what was supposed to be my final PET scan after surviving Stage III HPV-related SCC of the right tonsil, and that the scan showed that I now have HPV-related SCC of the right lung. This is the first time I've logged on since then, so here's the latest. On Monday I…
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Last day of Chemo
Today is my husbands last day of chemo and tomnorrow is his last day for rads. Now, he can get a break and start the healing process. I have posted in the past about my husband not eating. He is still not doing well with the eating thing. No peg tube. He only drinks one protein shake a day and the last ferw days he has…
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Prayers requested
Hi all: Basketcase checking in here. About to leave for Chatt./Lexington KY in a few hours for a wedding. I have a dear friend, Tamara, who found out in April her mom has leukemia and they found out yesterday the chemo is not working and will stop it and call in hospice as they think her mom has days/weeks. Tamara of…
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Opinions, please, from the experts here...
Hi all...my husband had his last chemo today - and as a reminder: tonsil cancer, stage II (although originally we were told stage IV) HPV positive. He was originally scheduled for three rounds of cisplatin. Received the entire first one, the second one was reduced to half because of low wbc and today, even though numbers…
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Immunotherapy...
Well we got the results of Neil's biopsy. Seems like the 2 rounds of chemo didn't touch his cancer. Onc told us that he does not believe more chemo would do any good. They still want to do radiation with immunotherapy. The word he used is "untreatable". Neil still wants surgery if at all possible, this lymphnode is really…
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Results are in "What do we have in common"
Hi there everyone, I've been a bit absent for a while, just getting on with this wonderful thing called LIFE. I have tallied up all the response to "What do we have in common" remember the questions a lot of you answered, well 58 of you did and here is the percentages from the questions Responses were from 22 Females, and…
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Interesting site!
Just thought I would pass this along! www.drinkyourmeals It may be a benefit to anyone on a feeding tube etc. It was started by a head & neck patient. Ton's of interesting & healthy recipies for all.
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Burning Water and Disappearing Gum Lines?
Hi everyone, tomorrow I will get the 29th of 33 radiation treatments. No Chemo for me. My Doctor did not recommend a feeding tube so I've been inhaling the ensures. After about the 20th treatment I have had to take a swig of Mary's Magic 10 minutes before drinking one. I've heard folks say on this board that it is…
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Some happiness post cancer treatment
Hey everyone...I hadn't planned to come on again so soon, but I am just so happy right now and I had to share it with you all. last year was a weird year, I gave birth to my third child, got diagnosed with cancer, had major surgery, then went through 30 radiation treatments (nursing my son through it all, with careful help…
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When do you stop waiting for the other shoe to drop?
I will have reached my two year survival for NPC in September and have bounced back physically fairly well after the hard treatment.I have three wonderful children and a fantastic husband,but I find it hard to face any ailment however small without great worry and stress.It has been raining here for seven days and I have…
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How common is it for the thryoid in the neck fails?
Hi Guys as you guys know that I came on the board while back asking about thick mucus with blood in it after hacking it up. Well I went to see my ENT doctor (yesterday) and he was feeling around my neck by the larynx and I told him that starting to hurt lately and he said it could be a thyroid problem. So my ENT doctor…
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send prayers
Okay my family here, We go tomorrow for the results of my mother's 2nd biopsy( her name is Pauline)....please,please pray for good results! I'm also going to look into other places for a 2nd and 3rd opinion.
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pet scan isssues
How much faith do y'all's doctors have in these PET scans? What do they tell you about false positives after cancer treatment? It seems like most on here have many PET scans...like they are the gold standard. I'm just curious. i thought the radiation works in your body for quite a while afterwards.
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Not Sure Yet?
Hi,Iam getting CatScan;today.I,have 3 small masses on parotid. If,they grew,hopefully ENT will biopsy&see what this is. My masses Are not visable . Pat
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Neck masses
Thought I had TMJ,told that yrs ago.Gland would swell many yrs ago,while eating. Worse,lately. Oral Surgeon,sent me for MRI,last Friday.Just been told several masses on both neck glands. Any thoughts? Thanks have good week; Pat
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Calling Kent Cass Where are you
Anyone seen, heard, or posted to Kent in a while I am starting to get a little worried Hondo
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Questions about strange happenings
I've completed 1 chemo and 8 rads of my 7 week course (3 rounds cisplatin/35 rads) and so far I think I'm doing well. However, I had a strange thing happen and I'm hoping someone else has experienced something similar??? I have bilateral metastasis to the neck nodes. Two nodes in particular (one on each side) are larger.…
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going back to work
whew, Just a reminder .... for people starting back to work after treatment. It's a lot easier to overdo than you think it is. Case in point, I started back to work 3 weeks ago, and i was working in my yard in the afternoons. Then bam, I started feeling exhausted all the time. So then for about 3 days i went to work, then…
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How "public" are you about your illness or its after-effects?
I'd like to hear how others have dealt with the issue of being totally private versus being more public. In my case, I'm a local band (meaning: financially vastly unsuccessful) musician, so I have a bit more "high profile" to begin with. It's my theory that people generally like their musicians at least a bit quirky or…