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cancer unknown primary

annieoo
annieoo CSN Member Posts: 3
in Head and Neck Cancer #1
anyone else out there?
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Comments

  • ratface
    ratface CSN Member Posts: 1,337 Member
    #2
    There's a whole bunch here
    I wasn't one of them. I have read in my searching that unknown primaries fair a few points higher on the curable statistical scale which is somewhat puzzling. Who would have thought that?
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  • RushFan
    RushFan CSN Member Posts: 224 Member
    #3
    Here.
    I had an unknown primary. For me, good and bad. Good in that after all the scans and biopsies of tonsils / tongue nothing was found. Bad in that I was treated with the kitchen sink...35 rads to all sides of neck and seven concurent chemo treatments...

    Great...that at 16 months post treatment...no evidence of disease!

    If you have questions, this is a great place to find answers.

    Best to you.
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #4
    Hi annieoo
    Yep there are many of us here, how are you and welcome to CSN.

    Hondo
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #5
    Welcome
    Just wanted to welcome you, you have landed in a very good place.

    I can't offer anything on your question, but I can offer my thoughts and prayers.

    Best,
    John
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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #6
    Welcome
    Husband diagnosed with stage four base of tungue cancer end of May. Have no experience with the inknown primary but you are in my prayers. You will find a lot of support and info here.
    Debbie
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  • shoeloy
    shoeloy CSN Member Posts: 70
    #7
    Unknown Primary
    Sounds scary, but there are many of us that are unknown primary.
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  • miccmill
    miccmill CSN Member Posts: 248
    #8
    shoeloy said:

    Unknown Primary
    Sounds scary, but there are many of us that are unknown primary.

    Unknown Primary here
    Glenn had an unknown primary after, what seemed to me, an exhaustive search.

    I can remember not really knowing what to think about that. Was it good? Was it bad? Was it a worse case scenario? It didn't seem to rattle the Drs. who said they'd seen it before and knew what to do.

    The radiation treatment covered a broader area (like the WHOLE area)and Chemo was given.

    Here we are 14 months post treatment and NED. He can eat anything he wants and proved that by eating half my popcorn at the movie theatre in June.
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  • neilswife
    neilswife CSN Member Posts: 27
    #9
    Here too
    My husband has an unknown primary. The Doc that put his port in said that was good news because the origin was so small. We hadn't thought of it that way! Neil finished treatment yesterday. 10 chemos, 36 rads.

    Best of luck to us all!
    Tammy
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #10
    neilswife said:

    Here too
    My husband has an unknown primary. The Doc that put his port in said that was good news because the origin was so small. We hadn't thought of it that way! Neil finished treatment yesterday. 10 chemos, 36 rads.

    Best of luck to us all!
    Tammy

    Congrats Tammy & Neil
    I'm sure he graduated at the top of his class.....

    Best,
    John
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  • Pam M
    Pam M CSN Member Posts: 2,196
    #11
    neilswife said:

    Here too
    My husband has an unknown primary. The Doc that put his port in said that was good news because the origin was so small. We hadn't thought of it that way! Neil finished treatment yesterday. 10 chemos, 36 rads.

    Best of luck to us all!
    Tammy

    Happy Graduation, Tammy
    What a great feeling, huh?
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  • Pam M
    Pam M CSN Member Posts: 2,196
    #12
    Welcome, annieoo
    I didn't, but as you can see SEVERAL folks here started their cancer journey with an unknown primary, and are now doing well. Hope you join their ranks soon - keep us posted.
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  • sweetblood22
    sweetblood22 CSN Member Posts: 3,228 Member
    #13
    me too
    stage 4 unknown primary. still breathing. :)
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