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Rude Awaking
As my husband called it, he had a rude awakening this weekend. My husband attempted to help a friend and did a side job, replacing drywall. When he got home Sunday evening, he was aching to the core and took a shower and went to bed. Monday morning rolled around and he was soooo sick, he vomitted all day and was bed bound.…
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side effect improvement 1 year post treatment
Quick background: Squamous cell carcinoma of the Nasopharynx, Treatment started with the removal of 8 Lymph nodes in the neck, 5 weeks of radiation and 5 weeks of Cisplatin, then 3 months of 5Fu. October will be 1 year since my last treatment. I'm curious if anybody who had similar treatment had improvements with their…
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Another NED
I just had my year and a half ( almost ) exam and my Dr. said everything looks good. This was my first appt after switching to every 3 mos instead of every 6 weeks. After waiting 3 months I was jonesing to get in there and get checked out. The scope was a little more uncomfortable than usual because my doc was having a new…
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Help! Buzz is having fainting espisodes
Buzz has had 3 fainting episodes. With the first one, he fell and hit his head. Called 911 and he went to the hospital. We were told it was a vagal reaction. Went home. Had another episode on Saturday. He looked awful and his b/p was initially undetectable. When he did not improve, I called 911 again. Another ER visit.…
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Ulnar nerve
Anyone have a confirmed problem with an Ulnar nerve that can be linked to the H&N rads? I have a pre-C history with such a problem, as a Neurosurgeon confirmed some 10-years ago, No Op was done due to previous Ops on my throat, and the scarring, etc. Over the course of months to follow the problem faded away, in terms of…
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"Choosing an Imaging Test"
In the Fall issue of CURE magazine. (free to us cancer folk) This question comes up a lot and this article provides good insight. Choosing an Imaging Test
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Apart From the Side Effects of Radiation Post
I post this separately as I'm not sure if this is from radiation, chemo, or neither. I am two and a half years post treatment from SCC of tonsil and neck and really have but one complaint. Like many of you I still have a lack of saliva and some tooth decay but my most serious complication is a lack of sleep. I can honestly…
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Needle biopsy tomorrow
Well the day has come and we will be going for my hubbys needle biopsy tomorrow. Does anyone know if they test some samples right then?
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BOT / Neck Dissection surgery
First off, I want to send my heartfelt thanks to all who post on this board. While I have never posted before, I've visited often during my journey w/head and neck cancer and all the advice and knowledge presented here has been spot on and heartfelt. Here I found honest answers that doctors seem to try and gloss over.…
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Erbitox
Saw the oncologist today. He wants to do three infusions of Erbitox one week apart because Jim could not withstand the third chemo. Has anyone taken this drug and what side effects did you experience. He gave us a drug facts sheet that has some scary side effects listed but said most people only get the rash. Any help on…
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Eight Year Survivor - Can I answer questions for ANYONE?
I have been out of treatments for 8 and 1/2 years from state 4 head & neck cancer. I went through Chemo-Radiation-Surgery-Staph Infection. Even after 8 years my throat is still getting better and my silva glands continue to get better as well. I am one of the VERY FEW who DID NOT have a feeding tube. It would be my…
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Buzz's cancer is back. What to do?
Buzz's base of tongue cancer has spread to his left neck only 9 months after the end of treatment. We suspected this for some time as the previous 2 scans showed activity in the right neck and tongue. The cancer is not curable but treatable. Our options are limited. The only chemo our oncologist can offer is more of the…
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What is new mixed groundglass & mild FDG uptake?
These were words used by the Rad/Ocologist report of my latest PET-CT. He doesn't want to see me until January when we will do another PET-CT. Under the section Tumor Status he states NED. New words/terms that I'm hoping someone can share their knowledge before I email him for a explanation. Thanks & Well Wishes Ed
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guess what i ate?
Just have to share this with people who will understand how exciting it is......i ate a whopper! it took me a while and a lot of water but i ate it! it tasted so good id have eaten two if it would have fit in my belly. Just a little past four months since treatment. What a difference the littlest things can make! Hope…
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Ideas for column?
I work as a receptionist at a small newspaper here in Ohio. I had a chat with our editor on Friday and he is going to perhaps let me write a column about my cancer journey. He wants me to give him a rough idea of where I want to take it. My thoughts were before diagnosis ( I was misdiagnosed for months), after diagnosis…
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Need prayers - update
My mother was had a PET 6 months ago of the chest for possible lung cancer. Came back suspicious with a bright mass in both lungs. She refuses the biopsy as she says she is too old for treatment and she is afraid. She is 80. Now she is hospitalized with pancreatitis. GI says they want to do a scope to check for gallstone…
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newly diagnosed adenoid cystic carcinoma
I am 23 years old and was recently diagnosed with Adenoid Cystic Carcinoma (left parotid gland) less than a month ago. I had a parotidectomy and will soon begin radiation treatment for 6 weeks, 5 days a week. I am not sure what side effects to expect, and the doctor believes I won't be effected much, but I have read about…
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Tired?
Good morning everyone. Quick question. I just finished a round of cisplatin and 5fu and I am just so tired. I have been wanting to sleep for the last three days. Is this to be expected or should I be a little concerned? I can get up and do a few things like eat and shower but then become so drained. I am hoping this…
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Wow - Does THIS Explain Our Food Network Addictions?
Just read a blurb about Roger Ebert - famous film critic and H&N survivor (didn't realize Siskel died of brain cancer). He talks of obsession with foodin the hospial (when he could no longer eat), especially root beer. His wife says, turns out he was not getting enough nutrition in his tube, and the food fantasies were his…
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Glutamine thanks
It may be psychosomatic but I feel the Glutamine mouth wash is very effective. Reading up on it I see the logic of why it works,although when it dries in your mouth it leaves it all white good for a fright LOL. Got ahead of myself beginning of last week thought I only had a week and a half to go but as of Monday I still…
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HPV Article-Men's Health
Fairly extensive article from Men'sHealth magazine... http://www.menshealth.com/health/sex-cancer
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Cancer Survivors Day 2011
Didn't know if any of you had your treatment at the James in Columbus and were going to their event from 1-5 on Sunday, the 18th? I will be there with bells on! Nancy aka toughcookie
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Video from MSN on Head and neck cancer
video
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I tasted my first food today, sliced tomatoes!
Hi everyone, finished 35 rads and 3 Chemo's 4 weeks ago for SCC with unknown primary. Did not think that I would ever taste anything again. After reading posts here about trying different foods I had a small piece of everything on the food bar at work, was about to give up when I tasted the tomato, the taste faded fast but…
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"Cheeseburger in paradise"
(Jimmy Buffett reference) Can anyone remember getting a special diet in the hospital after surgery or other treatment? For me, after the biopsy, a very kind lady brought me lots of chocolate pudding, but I assume that was part of the diet for someone who'd had part of their tongue sliced and diced. And after the surgery,…
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Saw My Nephew Today
HI all: Quick note before off to bed and leave for FL in the morning. Did see Brian this afternoon before coming to friend's house. His eyes were wide open and he had just had another surgery! Apparently the muscle in the right leg (this is the one that was the worst) hadn't taken or something so they went into pull some…
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My hisband was just diagnosed with squamous cell carcinoma of the tongue
He says he isn't extremely upset, but I am. I had colo-rectal cancer 9 years ago. This is scary. Any words of advice? He hasn't had the CAT scan yet. It will be scheduled today. Thanks everyone.
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On the Road Again!
Hi all: I'm leeaving later today for Chatt. and then to Destin, FL tomorrow with best friends for a week! I've never been to Destin so really looking forward to it. Plan to see Brian, my nephew this afternoon. Last I heard was what I reported. They may move him to a step down unit soon but because of pneumonia still have…
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No Insurance - Never Give Up
Hello Everyone, I was reading my 1st question posted on CSN.(10/12/2010) At the time I didn't realize just how good the advice I received really was but reading it today really made me 'think twice." 1.Glenna M suggested that Connie apply for financial assistance at a good cancer center and to apply for medicaid. (Glenna,I…
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Heartburn
It seems that each time I have the 5FU pump, this is the second time for me, and will have it removed tomorrow, I get heartburn...any suggestions as to what I can take or do to alleviate? Linda