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Ideas for column?
I work as a receptionist at a small newspaper here in Ohio. I had a chat with our editor on Friday and he is going to perhaps let me write a column about my cancer journey. He wants me to give him a rough idea of where I want to take it. My thoughts were before diagnosis ( I was misdiagnosed for months), after diagnosis…
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Need prayers - update
My mother was had a PET 6 months ago of the chest for possible lung cancer. Came back suspicious with a bright mass in both lungs. She refuses the biopsy as she says she is too old for treatment and she is afraid. She is 80. Now she is hospitalized with pancreatitis. GI says they want to do a scope to check for gallstone…
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newly diagnosed adenoid cystic carcinoma
I am 23 years old and was recently diagnosed with Adenoid Cystic Carcinoma (left parotid gland) less than a month ago. I had a parotidectomy and will soon begin radiation treatment for 6 weeks, 5 days a week. I am not sure what side effects to expect, and the doctor believes I won't be effected much, but I have read about…
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Tired?
Good morning everyone. Quick question. I just finished a round of cisplatin and 5fu and I am just so tired. I have been wanting to sleep for the last three days. Is this to be expected or should I be a little concerned? I can get up and do a few things like eat and shower but then become so drained. I am hoping this…
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Wow - Does THIS Explain Our Food Network Addictions?
Just read a blurb about Roger Ebert - famous film critic and H&N survivor (didn't realize Siskel died of brain cancer). He talks of obsession with foodin the hospial (when he could no longer eat), especially root beer. His wife says, turns out he was not getting enough nutrition in his tube, and the food fantasies were his…
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Glutamine thanks
It may be psychosomatic but I feel the Glutamine mouth wash is very effective. Reading up on it I see the logic of why it works,although when it dries in your mouth it leaves it all white good for a fright LOL. Got ahead of myself beginning of last week thought I only had a week and a half to go but as of Monday I still…
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HPV Article-Men's Health
Fairly extensive article from Men'sHealth magazine... http://www.menshealth.com/health/sex-cancer
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Cancer Survivors Day 2011
Didn't know if any of you had your treatment at the James in Columbus and were going to their event from 1-5 on Sunday, the 18th? I will be there with bells on! Nancy aka toughcookie
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Video from MSN on Head and neck cancer
video
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I tasted my first food today, sliced tomatoes!
Hi everyone, finished 35 rads and 3 Chemo's 4 weeks ago for SCC with unknown primary. Did not think that I would ever taste anything again. After reading posts here about trying different foods I had a small piece of everything on the food bar at work, was about to give up when I tasted the tomato, the taste faded fast but…
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"Cheeseburger in paradise"
(Jimmy Buffett reference) Can anyone remember getting a special diet in the hospital after surgery or other treatment? For me, after the biopsy, a very kind lady brought me lots of chocolate pudding, but I assume that was part of the diet for someone who'd had part of their tongue sliced and diced. And after the surgery,…
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Saw My Nephew Today
HI all: Quick note before off to bed and leave for FL in the morning. Did see Brian this afternoon before coming to friend's house. His eyes were wide open and he had just had another surgery! Apparently the muscle in the right leg (this is the one that was the worst) hadn't taken or something so they went into pull some…
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My hisband was just diagnosed with squamous cell carcinoma of the tongue
He says he isn't extremely upset, but I am. I had colo-rectal cancer 9 years ago. This is scary. Any words of advice? He hasn't had the CAT scan yet. It will be scheduled today. Thanks everyone.
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On the Road Again!
Hi all: I'm leeaving later today for Chatt. and then to Destin, FL tomorrow with best friends for a week! I've never been to Destin so really looking forward to it. Plan to see Brian, my nephew this afternoon. Last I heard was what I reported. They may move him to a step down unit soon but because of pneumonia still have…
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No Insurance - Never Give Up
Hello Everyone, I was reading my 1st question posted on CSN.(10/12/2010) At the time I didn't realize just how good the advice I received really was but reading it today really made me 'think twice." 1.Glenna M suggested that Connie apply for financial assistance at a good cancer center and to apply for medicaid. (Glenna,I…
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Heartburn
It seems that each time I have the 5FU pump, this is the second time for me, and will have it removed tomorrow, I get heartburn...any suggestions as to what I can take or do to alleviate? Linda
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Question about difference between PET and other scans
Hi, i got diagnosed at 17 with NPC 5 years ago, then again with mets in bones,liver,lung and spleen almost 4 years ago. I did 10 cycles of carboplatin, gemcitabine and taxol + radio therapy and i was clear until may this year when the doctors spotted a recurrance in the spleen, everything else was clear. I had a…
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H&N Kit?
Hey Guys, I'd like to create a kit for the newly diagnosed H&N brothers and sisters in my area. Like a "You're not alone in this, here are some things that you will probably need soon" basket. Knowing that almost all will receive chemo, chemo/radiation or radiation and will experience some combination of side effects soon.…
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Alkaline Water
This came up in another post. If I am being naughty I can let this post die. I have friends that say I should consider a machine. Does anyone have experience with Alkaline water/machine and/or diet. I am very interested.
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Another nephew update
Hi all: The latest I've heard on my nephew last night was he has developed H4 Flu pneumonia but they're not overly concerned about that and are giving antibiotics. The really good news is he's breathing mostly on his own and they did start exercising one of his legs. Didn't do the other leg as skin grafting was involved in…
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Update on Mom and Dad
Hi guys! I wanted to give you an update on mom. She went to the doctor this morning for a follow up for the blood clot in her leg and lung. The doctor is almost 100% sure both clots are gone. We are waiting to find out if she needs to have the filter removed and how long she will be on blood thinner. She also needs to go…
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4 cycles vs 6 cycles of treatment
hi there.. my dad intend to stop treatment after 4 cycle. just wonder anyone had only 4 cycles and cancer response completely? his last scan shows tumour shrink about 50% thanks
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pascotty
you still out there
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Support Groups
Have any of you attended or are attending a support group for head and neck cancer?
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salty taste
I know that people have talked about salty taste on this site but my question is, Has anyone had it taste like ocean water and make you sick? Also, is there something to rinse with that lessens it? Jim has tried filtered water, bottled water, all brands and they all are very salty. He has also tried cold and room temp. He…
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Rads
Are there SCC's who has chosen no radiation following resection of hard palate or submandibular or other parts of the head, neck, mouth etc.w/good results? Should it always be done? Ramifications if you choose only to have the cancer removed? Dotty
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nose bleed
have any of ya'll gotten a nosebleed after treatment? i finshed treatment last year and cetuximab recently. This morning I had a real severe nosebleed in the nostril on the side of face that had the cancer last year , blood everywhere. My nose has been real stuffed on that side lately , but I didn't think I was blowing it…
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Amifostine - Eythol
I was looking for some other information and came across this on Amifostine... Amifostine - Eythol It still has me a little ticked from a comment that someone made awhile back that related to their MD as stating that Amifostine was outdated and ancient in the cancer treatment arena.... While almost three years (when I had…
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Started Chemo Today and scared
Well, this morning I started my chemo treatments. This is in pill form, so I am alone at home and it to took me a while to even build up the nerve to take the pills. I think the pills are a good thing/bad thing. I was expecting to have infusions and to be around caring nurses and professionals to keep an eye on me for…
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PET Part 1 & 2 (No NED but not bad)
Well the PET scan is over now comes the waiting game, tic toc, tic toc, tic toc, so goes the clock, been there many of times and amny more to go in life. lol Hondo