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Struggling with bloatedness, need help!
Hi, I'm just done with week 4 of chemo rads going into week 5 tomorrow. Week 4 was my second Cisplatin infusion. I can still swallow but I am having great difficulty getting anything in by mouth or tube because of the perpetual feeling of bloatedness. Even drinking water is making me full. Any advice please? Thanks very…
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Pathology report
Hello Friends, so the pathology report came back, all margins were negative for cancer and the cancer showed to be half a centemeter in greatest dimention, so very small. I am happy for those good news.Mom is healing well, it back to eating normal food again. We are waiting for someone from Sloat Kittering to call us back…
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Where in the World Are You
I haven't had this up for awhle and it's getting so many on it that it loads a little slow. But for you new members or relatively new members, this is a Google map that I made up awhile back that has a lot of the CSN H&N forum members/survivors locations. If you would like to be added and aren't already, let me know and…
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Sunday Morning ER Visit
This is not exactly how I had my Sunday planned. My wife had to drive me into a local ER room for one of those 'unmentionable' problems we chemo patients get from time to time. They got me fixed up and gave me a home kit and some instructions on how to perform the 'Foley Shuffle' at home. I also got some more advice on…
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DOCTORS VISIT ??????
I had a checkup with my ENT Doctor yesterday and he told me that I might as well expect to live with day mouth no saliva,mucous trouble swallowing and acid reflux from now on. He said the Evoxac and Salagen helps very few people it is to treat dry mount syndrome not radiation treatment. Also on my insurance I am in the gap…
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Surgeries down, radiation starting...
Hey everyone, Thank you for all the great information you all give out to help others. The information is so helpful for those of us just going through this detour in life. 6 weeks ago I had the TORS surgery on my tonsil, back of tongue, side of tongue and all of the clear margins. Everything came back good, except that…
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34 years ago today
I was just thinking - Jim and I were married 34 years ago today and we never could have imagined where our walk would take us. In retrospect, we definitely would have to say that although we would have preferred cancer not enter our lives (either through Jim or the many loved ones who have had cancer), we are closer today…
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My Fathers PET scan Update
Well, My Father had a radical nex dissection back in June, and then went for 35 radiation treatments with Chemo. It has been 10 weeks since his last radiation treatment, and time for the "After Treatment Scan" if you will. He had his scan this past Tuesday, and finally received the results last night. So far, it didn't…
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Therabite
Has anyone used a therabite before? I measured my opening of my jaw before i used it and it was 15mm after i used it it was 25mm pretty good I've only used it for 2 days since seeing the consultant. Who is very pleased with me think he is just glad to see me doing well! Anyway the therabite is good but the jaw only stays…
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OT: How Are You Trying To Enjoy Fall?
Another change of seasons and I cannot believe summer is gone and we are well into Aumtun now. Just wondered what every one likes to do and what they look forward to doing in fall and what you have been doing to have a little fun and try to enjoy life's moments. I realize we are all in various stages of treatment and…
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43% through Radiation - Video
I have completed 13 of 30 radiation treatments and thought that those that will be having radiation in the future would like to see a vidoe of what it is all about. It's more boring than anything, but not knowing gave me a lot more anxiety than knowing. Everyone on this discussion board is incredible, helping me, and…
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Medigap insurance
Had my first cancer in 1998 (base of tongue treated with radical neck dissection and radiation). Lots of speech disability persisted for years post treatment. Lost my health insurance when that company went bankrupt. No one would then underwrite me, of course. I was 45 at the time. I eventually qualified for Social…
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struggling with the way i look
hi guys im new to this was diagnosed with mucoidepidermiod carcinoma just 10 weeks ago just out of hospital nearly 3 weeks and now home. i had to have my eye cut under it and down my face near my nose and lip split. but now left with scars. they had to split my jaw to get at the tumour but physically im doing good…
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I just want to stuff my face!
Just a small **** session. I hope you all don't mind. I am so tired of being hungry! I just want to stuff my face. I miss my pizza, my nachos, my cheesecake and my wine. Argh! I am a little over 2 months out from radiation and just completed my 5 th chemo session. My taste has started to come back but food isn't as…
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Mask Question
I know I've read that a lot of you couldn't wait to get rid of the mask as a reminder..but I have been trying to explain to my neice what one looks like, did any of you take a picture or have a picture I can share with her. Thanks, Linda
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Adenoid Cystic Carcinoma - after radiation, how soon do you feel better, tastebuds return?
I had 33 days of radiation, it fried, my mouth, taste buds esophagus, and throat. The last two weeks of treatment were awful. I never had to have a feeding tube, but did need several IV's. Today is my 5th day post treatment, and am wondering when taste buds will return, when my throat won't be so sore. When I will be able…
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Elevated Potassium Levels
Hi everyone! I'd like to pose a situation and see if anyone else has experienced this. I am 13 weeks post rad for tonsil cancer and things are progressing well. Like many here, I subsisted on many bottles of Ensure and Boost for quite a while. Last week I began experiencing significant back pain to the extent I could not…
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One yr ago
Hello everyone,I haven`t posted for a while but I do read the posts alot. Just to give you guys a little background;I am 46 yrs old-live in NJ and went to Memorial Sloan Kettering for treatments.DX with Tonil cancer and spread to lympnode in neck. I had tonsils removed and 35 rads and three rounds of cisplatin. Ended…
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I want to pass along some good and bad news.
Hey All I just wanted to pass along some good news and some bad news. I guess I start with the good news last Thursday I went for my year PET scan and monday I found out the PET scan came back clean. Then today I had a breathing test then (which the breathing test came back clean so not breathing problems) I met with my…
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Help....sings of throat cancer
I am looking for sings of throat cancer.If anyone can help??? My brother is having trouble and we cant find out what is going on..he flles like there is a lump in his throat( not a phyical lump) and it has been going on for 4 weeks.Real dry mouth.doc gave an antibioctic with no help.If anyone has had this or knows what it…
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I see nothing!
I see nothing... NED... you are cancer free! That is what the doctor said about my husband's 2 month out PET scan! We both feel like a 500lb weight has been lifted off of our shoulders. It looks like all the prayers of our friends and family worked! Now we can concentrate on trying to minimize and manage the side effects…
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A few days in the hospital
Got sick last Saturday, dizzy, out of breath, and some chest pain, Sunday was worse and went to emergency room. They took me right in and started running tests, EKG's etc, they took some blood and a doctor came and did a finger rectal exam, it showed blood in the stool, my stools have been very dark lately. They also told…
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Needles
For some reason the left side of my face feels like thousands of needles poking me, from the Jaw bone up to my eye. It’s not hurting just a funny feeling anyone else have that before Thanks Hondo
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Strange Day
What an ususual day. This morning, I was horribly constipated (from the chemo drug) and my anxiety level got so high, I went into the E room. They gave me a delightful enema of molasses and milk and then soap and water. Let me tell you, that is not something I want to do anytime again in the near future. Wow! That was…
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Is it just me ??
Or is anybody else noticing how truly slow this discussion board is in navigating from one discussion post to another ?? I've seen some topics that are still available to discuss since 2007. Is there no one deleting old posts that bog down the system/server ?? I would participate much more if I didn't have to wait soooo…
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Stoppers 4 question
I have been wanting to get Jim some Stoppers 4 and it is very reasonable however, I would buy in quantity to save shipping cost. My question is, "Does it have a flavor." Jim hates the taste of Biotene and all the other sprays and mouth rinses. I do not want to buy a bunch and he won't use it. Debbie
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Getting brave
Ok folks I'm getting brave and I'm making a short trip to Mexico this week to check out the work my wife has had done on what was supposed to be our retirement home (federal laws and disability insurance rules have killed that for us). She has been down there for three weeks enjoying the weather and beach. My only concern…
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Coping after treatment
Hi everyone I am Jan 53 years of age and I am Scottish ..I was told i had cancer of the right tonsil, back of toungue, and soft pallete in Feb 2011 I was newly married to my Canadian hubby on the 7th Jan and i had planned to move there to live with him so my life like everyones was turned upside down ..my husband had to…
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Why having a positive attitude and keeping stress down is important! How do you do it?
This might be a subject that has already been posted in the past. I thought I'd start a new one for new members or those that weren't aware of it so it's at the top of the board again. These kinds of studies seem to be replicating the same results, depression and stress is bad for patients with (or who had) cancer. So if…
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C.T. Scan yesterday
They injected dye prior to scan, said it would be warm feeling. This scan was for neck and lung.When returning home several hrs later I noticed swelling on both sides of lower jaw Probley the two glands--swelling has gone down a little this morning--has anyone had this swelling after neck scan? Will see Dr. Monday. If the…