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Therabite
Has anyone used a therabite before? I measured my opening of my jaw before i used it and it was 15mm after i used it it was 25mm pretty good I've only used it for 2 days since seeing the consultant. Who is very pleased with me think he is just glad to see me doing well! Anyway the therabite is good but the jaw only stays…
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OT: How Are You Trying To Enjoy Fall?
Another change of seasons and I cannot believe summer is gone and we are well into Aumtun now. Just wondered what every one likes to do and what they look forward to doing in fall and what you have been doing to have a little fun and try to enjoy life's moments. I realize we are all in various stages of treatment and…
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43% through Radiation - Video
I have completed 13 of 30 radiation treatments and thought that those that will be having radiation in the future would like to see a vidoe of what it is all about. It's more boring than anything, but not knowing gave me a lot more anxiety than knowing. Everyone on this discussion board is incredible, helping me, and…
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Medigap insurance
Had my first cancer in 1998 (base of tongue treated with radical neck dissection and radiation). Lots of speech disability persisted for years post treatment. Lost my health insurance when that company went bankrupt. No one would then underwrite me, of course. I was 45 at the time. I eventually qualified for Social…
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struggling with the way i look
hi guys im new to this was diagnosed with mucoidepidermiod carcinoma just 10 weeks ago just out of hospital nearly 3 weeks and now home. i had to have my eye cut under it and down my face near my nose and lip split. but now left with scars. they had to split my jaw to get at the tumour but physically im doing good…
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I just want to stuff my face!
Just a small **** session. I hope you all don't mind. I am so tired of being hungry! I just want to stuff my face. I miss my pizza, my nachos, my cheesecake and my wine. Argh! I am a little over 2 months out from radiation and just completed my 5 th chemo session. My taste has started to come back but food isn't as…
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Mask Question
I know I've read that a lot of you couldn't wait to get rid of the mask as a reminder..but I have been trying to explain to my neice what one looks like, did any of you take a picture or have a picture I can share with her. Thanks, Linda
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Adenoid Cystic Carcinoma - after radiation, how soon do you feel better, tastebuds return?
I had 33 days of radiation, it fried, my mouth, taste buds esophagus, and throat. The last two weeks of treatment were awful. I never had to have a feeding tube, but did need several IV's. Today is my 5th day post treatment, and am wondering when taste buds will return, when my throat won't be so sore. When I will be able…
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Elevated Potassium Levels
Hi everyone! I'd like to pose a situation and see if anyone else has experienced this. I am 13 weeks post rad for tonsil cancer and things are progressing well. Like many here, I subsisted on many bottles of Ensure and Boost for quite a while. Last week I began experiencing significant back pain to the extent I could not…
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One yr ago
Hello everyone,I haven`t posted for a while but I do read the posts alot. Just to give you guys a little background;I am 46 yrs old-live in NJ and went to Memorial Sloan Kettering for treatments.DX with Tonil cancer and spread to lympnode in neck. I had tonsils removed and 35 rads and three rounds of cisplatin. Ended…
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I want to pass along some good and bad news.
Hey All I just wanted to pass along some good news and some bad news. I guess I start with the good news last Thursday I went for my year PET scan and monday I found out the PET scan came back clean. Then today I had a breathing test then (which the breathing test came back clean so not breathing problems) I met with my…
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Help....sings of throat cancer
I am looking for sings of throat cancer.If anyone can help??? My brother is having trouble and we cant find out what is going on..he flles like there is a lump in his throat( not a phyical lump) and it has been going on for 4 weeks.Real dry mouth.doc gave an antibioctic with no help.If anyone has had this or knows what it…
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I see nothing!
I see nothing... NED... you are cancer free! That is what the doctor said about my husband's 2 month out PET scan! We both feel like a 500lb weight has been lifted off of our shoulders. It looks like all the prayers of our friends and family worked! Now we can concentrate on trying to minimize and manage the side effects…
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A few days in the hospital
Got sick last Saturday, dizzy, out of breath, and some chest pain, Sunday was worse and went to emergency room. They took me right in and started running tests, EKG's etc, they took some blood and a doctor came and did a finger rectal exam, it showed blood in the stool, my stools have been very dark lately. They also told…
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Needles
For some reason the left side of my face feels like thousands of needles poking me, from the Jaw bone up to my eye. It’s not hurting just a funny feeling anyone else have that before Thanks Hondo
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Strange Day
What an ususual day. This morning, I was horribly constipated (from the chemo drug) and my anxiety level got so high, I went into the E room. They gave me a delightful enema of molasses and milk and then soap and water. Let me tell you, that is not something I want to do anytime again in the near future. Wow! That was…
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Is it just me ??
Or is anybody else noticing how truly slow this discussion board is in navigating from one discussion post to another ?? I've seen some topics that are still available to discuss since 2007. Is there no one deleting old posts that bog down the system/server ?? I would participate much more if I didn't have to wait soooo…
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Stoppers 4 question
I have been wanting to get Jim some Stoppers 4 and it is very reasonable however, I would buy in quantity to save shipping cost. My question is, "Does it have a flavor." Jim hates the taste of Biotene and all the other sprays and mouth rinses. I do not want to buy a bunch and he won't use it. Debbie
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Getting brave
Ok folks I'm getting brave and I'm making a short trip to Mexico this week to check out the work my wife has had done on what was supposed to be our retirement home (federal laws and disability insurance rules have killed that for us). She has been down there for three weeks enjoying the weather and beach. My only concern…
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Coping after treatment
Hi everyone I am Jan 53 years of age and I am Scottish ..I was told i had cancer of the right tonsil, back of toungue, and soft pallete in Feb 2011 I was newly married to my Canadian hubby on the 7th Jan and i had planned to move there to live with him so my life like everyones was turned upside down ..my husband had to…
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Why having a positive attitude and keeping stress down is important! How do you do it?
This might be a subject that has already been posted in the past. I thought I'd start a new one for new members or those that weren't aware of it so it's at the top of the board again. These kinds of studies seem to be replicating the same results, depression and stress is bad for patients with (or who had) cancer. So if…
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C.T. Scan yesterday
They injected dye prior to scan, said it would be warm feeling. This scan was for neck and lung.When returning home several hrs later I noticed swelling on both sides of lower jaw Probley the two glands--swelling has gone down a little this morning--has anyone had this swelling after neck scan? Will see Dr. Monday. If the…
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Juicing
My wife started juicing a lot of different stuff for me on the advice of my heart doctor. At first when he told me it will make you feel a lot better I just rolled my eyes up at him and said yep more crap you want to give me. Well I have been on it for about two weeks now and I can say I do feel a lot better and find I…
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New jaw bone?
Surgery removed about 40% of my right jaw bone and I am having difficulty because my whole jaw structure is moving to the right making chewing increasingly difficult. Recent consult at UCSF provided a solution to take a piece of my lower leg bone (fibia) and some tissue and skin and use it to replace my jaw bone. Pretty…
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free pegtube supplies
Having pegtube removed this week Have feeding bags and all soft supplies for feeding cleaning to include Hperdermic (large) for washing out tube sealed gause square ect,will ship to you at no cost from Wa.ST. About two to three week supply here and a month plus supply that was shipped to Calif.Heading there Friday and will…
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Cant seem to shake off this feeling
Hi everyone Posted yesterday that I had been for my follow up check up with my consultant and he was happy with everything ...I feel I should be happy but I still have this anxious feeling in my head ...I am from Scotland UK and live alone while i wait for my canadian hubby to get the paper work done so he can come and…
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5FU and cisplatin what to expect & my updatek
Hi everyone! Well I am now 16 days post radiation and I feel like I actually doing ok. I can taste some savory foods like tomatoes, cinnamon, oats and coffee. Decided not to drink too much coffee because it upsets my stomach. I figure I would try a little food everyday. I can only get down a few bites for now. The mucous…
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Possible neuropathy with a PET scan scheduled
My husband's last cisplatin treatment was August 22nd. He never experienced neuropathy but he had kidney issues with increased creatinine levels which still aren't totally under control. His doctor has him scheduled for a PET scan tomorrow morning but he is now saying he feels "weird" like pins and needles. Could the…
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Flu shot reminder
During the 2009 H1N1 pandemic I was just finishing radiation and was terrified of catching the flu. Flu shots were in short supply for the H1N1 virus and you had to stand in line for hours to get a shot on a first come first serve basis. What an irony I thought, the cancer hasn't killed me but this damn flu is going to get…
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Visit to consultant
Hi Everyone Was so worried this morning as it was time for my second follow up appointment with my consultant .He checked out my neck looked down my throat with a scope and had a look at my tonsil with that wooden stick the press your toungue down with and said he was happy with everything and i have to go back in 6 weeks…