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Big day Monday
Next week is a big week, especially Monday. PET is at 10:30 am followed by ENT visit to check the knot under Jim's tongue. Wednesday is the radiologist for PET results and Friday is final message therapy for neck lyphaderma. Pray for Jim to rest tonight. He says the nights are worse because he wakes up with dry mouth and…
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Wonder if I'm that weak or can others share similar stories
Love this site don't post very often but read and cry and learn everyday. BOT 3 and 35 with peg tube now 7 weeks out of last radiation and I still can't eat. I see others that did this without a peg and I am even now brought to my knees with pain when I try to swallow most foods. I can swallow fine everything works fine it…
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Trying something new
I have been tube feeding for over a year using Ensure. While I have been keeping my weight around 158 I wasn't gaining and I have been tired all of the time. I didn't want to bother my wife with trying to fix special blends because I thought it would be too much trouble. However she finally insisted I try blending foods so…
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To Dilate or not to Dilate?
Hi Everyone - my husband Sam and I are new to this site. He was diagnosed with Stage 4 Throat cancer in May; had a growth surgically removed that was just above his vocal chords and had some in his lymph nodes - no surgery there. He finished with his chemo and 37 RAD treatments 2 month ago and although his spirits are…
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Teeth
Finally, I have my full set of false teeth in my mouth. had the remainder of them surgically removed a few weeks ago. Had to complete my second round of HBO, Oral surgeon that removed the teeth said the gums had healed well. Aspen Dental docs fitted the teeth and now it's all go. Feels really strange though having my mouth…
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Is this normal? 2 parts
Wondering what you think about this... 1. I'm 11 rads in and now the left back side of my tongue is sore which makes sense because the bulk of the IMRT is focused on my L lymph and tonsil area. However, I woke up this morning and it feels like something is in my throat every time I swallow. It feels lower down my throat.…
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Twitchy Lips and Earlobe Lumps
Yes..I know it sounds like a punk band from the 70's but... does anyone else have these (very minor I will admit, but would like to get rid of) issues and knows how to make them go away. 1. Twitchy Lips My lips feel like they are vibrating or twitching almost all of the time. 2. Ear Lobe Lumps I cannot put earrings in my…
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Week 2
Week 2 of rads starts this evening @ 7:30, so far feeling good and eating well, all though I expect from everything I have read on this site that can change on any day. Linda
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Sleeping all the time
I have a question for those of you who have used the pain patch. Did you sleep a lot? Dad is on his 7th patch and all he wants to do is sleep. The oncologist said it would make him sleepy, but I worry that he is sleeping to much. His tumor has already responed to the chemo and the doctor says it feels much smaller. But, it…
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mucus????
How long does the mucus problun last?? I have it bad when I get up It takes a hour to get It up then it is all through the day. I have took a head cold with draining??? Has anyone goy amy sugestions ???? Wishing everyone well. Robert
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Second Round
I have been off of the pill chemo for two weeks now and I have to start taking it again today. I have been able to enjoy some good food and an occasional beer since my mouth/tongue soreness have pretty much gone. I suppose some or all of that will start to come back soon now that I am on another four week course of the…
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Extranodal extension/extracapsular spread? No radiation?
My husband (now known as FrankenBob since the incision of his neck dissection a few weeks ago looked slightly worse than Frankenstein's neck) had extranodal extension in one of the cancerous lymph nodes. Another node positive but contained. Cancerous lymph nodes are bad enough, but the extranodal extension (AKA…
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Vaccinating boys with Gardasil
Just thought I'd let you all know, I took my two sons (13 and 16) in to be vaccinated for HPV. I had some interesting expereinces: first the nurse in reception was surpised to see boys on the schedule for Gardasil vaccines. She inquired as to why I was vaccinating my sons. I told her something she obviously did not…
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hello people any Divers
here. Did you have any trouble returning. Did you fill in your medical truthfully the truth now I will be able to tell LOL I am nt telling my body the onco said because they could not put a PEG in I will be fighting weight loss and low energy for the next 12 months. I am not telling my body because this is where I plan to…
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Erbitux
Let's just say my reaction to erbitux has been "enthusiastic." After my loading dose, I had a modest rash. After two doses life was getting uncomfortable. After three doses, my face is literally peeling off. How anyone could say this rash looks like acne is a mystery to me. I look like I've been under the heat lamp for…
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Raw honey to help reduce radiation induced mucositis and maintain weight...
(Dawn, I apologize if this info is already in the superthread, but please add it if it's not and you think it would benefit) A helpful member on CancerCompass recommended I drink slippery elm tea with raw honey in it every day as I progress through rads. I haven't found the tea yet, but I bought some raw honey the other…
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SLOW page and FB question
so is there a page on Facebook that people frequent for this group? I figured if so, it would be a place to check out info and not have to spend forever waiting for things to load. I'm limited in my internet time while at work (duh, I'm supposed to be working), but during breaks I like to see what's up, etc. If I could…
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Calories
I have to monitor the calories I take in , does anyone have or can recommend a good program that will allow me to do this. I have to maintain my weight and I know that thru the course of rads getting adequate nutriants, protein, and hydration is vital to my well being. The nutritionist I see recommended using beneprotein…
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Nephew Update
Hi all: First, want to thank all of my csn buds for your prayers for my nephew Brian. Second, please continue to pray for him. He was taken from the nursing home/rehab and admitted to the hospital yesterday to determine his weight loss. It wasn't an emergency moving; just that they don't have the capabilities and equipment…
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Base of Tongue Cancer - Throat Cancer
Throat Cancer - Base of Tongue Tumor with 1 lymph node involved.
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I'm not a cancer survivor, sorry. My mom is ill.
Hi there. Sorry to interrupt if this is -as probably- only for cancer survivors. If so, please dismiss my comment. My mother, a clever, vital woman of 63, has been diagnosed a few weeks ago - today is October 28, 2011) with a grade III anaplastic astrocythome tumor on her brain. One day she was in her italian language…
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how long have you survived after recurrance or second primary or metastasis after first treatment wa
would like to hear from anyone who experienced any of those 3....also how long after completing first treatment did you experience that?
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Sweetblood was right
You have to love the Social Security Administration. Last week I received a notice to go for another SSA doctor appointment and in the same stack of mail was another letter cancelling the appointment. Today I check my on-line banking account and find a rather large deposit had been made by SSA so I assume I am approved for…
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PET coming, Jim depressed
Jim's follow up PET is set for Monday, Nov. 7 and he is very depressed. Monday morning he said he had a bad feeling about the results. This worries me because I do too. The lump under his tongue which is about the size of a large pea is worrying me. Could the cancer have gotten that big in such short time? It looks like…
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1st PET post treatment
We go tomorrow to dr to find out what the PET scan showed. Now I suddenly realize, I expect they'll tell us cancer/no cancer, but I really don't know what else to even think, what type of questions I could/should ask, etc. Any suggestions, info would be appreciated. I LOVE THIS SITE and ALL THE HELP!!
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Day 1 - Phase 2
Well the day has finally arrived, I will be having my first radiation treatment tonight @ 7:30, the machine of choice is a rapidArc, supposedly takes less time , 10 mins from start, getting me positioned, mask on, to finish. I told my sister and neice to time from the moment I walk in the door to the moment I walk out. Had…
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Gaggin ~ Not Cancer Related ~ Tampa Bay Grouper - Updated
Gag grouper that is.... A few photo's of gag grouper that my buddy Josh and I caught yesterday. With the grouper season closing again on the 16th of November, and finally a very nice day forecasted. Josh and I had a chance to take the HEWES (my boat) out in Tampa Bay under the Skyway Bridge and dig up a few nice fat…
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What to do on days you feel like Crap
Work-up this morning and sure wish I would have stayed sleeping because I feel so bad. No energy to get up or do anything but just stay in bed and waste this beautiful sunshiny day away. I did manage to go outside and sit in the sunshine for a while, the weather is about 65 degree and the Sun was at it peek. But even that…
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PET scan - cortisone injection
Well, Bob went in today for his first post-treatment PET scan. The technician asked if he'd had any recent treatments. Bob said, well, I just got a cortisone injection in my shoulder last week. The tech said, oh, then that will light up like a Christmas tree. Argghhh I asked the ortho before he gave the injection if it…
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It takes a long time to heal. I was not prepared for the post treatment.
Silly me, I thought after treatment my husband would be back to work in like 2 months.. HAHAHAAHA!!!! What was I smoking.. Kidding!!! I really did, four months out my husband seems to feel like crap every other day. but, more so now, ever since he did that side job and was sick for a week and yes lost more weight. He was…