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Taste
Sitting here eating my blow of oatmeal and just amazed at how good it taste, and to think I use to hate this stuff, boy how things change after treatment. My wife makes it for me in the morning to take to work and in the evenings for me right before I go to bed. Trying to fatting me up I guess. You know it taste good when…
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Goalie
So, what was the score? Did you bring home the gold? Any color would be gold in my book, back in the game 1 year post treatment! How many CSN friends were you able to meet face to face, even with barbeque sauce in your faces! Hope that the weekend went well.
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Please help with Excess Mucus or Phlegm
Does anyone have any suggestions on how to control the excessive amount of Mucus or Phlegm ? It is mostly when I lay down but sometimes when I am sitting or standing. Its like it is constantly flowing down the back of my throat, very thick and constantly flowing, very aggravating and drives me crazy. Also how long does…
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Facebook
Hello my CSN friends. I believe, I have never posted my name. If anyone wants to friend request me on facebook, here is my name. Crystal Rowan - Houston, Texas.
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Dry eyes and burning smell during treatments
Hi, I finished the second week of rads and I'm getting really dry eyes on one side. Did anyone experience this? I could also swear that I smell something burning every time I start my radiation treatments. It does go away halfway through though. I'm wondering if my mind is playing tricks on me. Thank you.
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another list of side effects
******************************************************************************************* please read !!!!! No one will develope all of these symptoms. Every patient is different and treatment is custom tailored to each individual by their doctor(s). The effects you experience can vary depending on how and where primary…
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peg tube/eating problems
Finished my 7 weeks of radiations and 3 chemos on April 18, 2011. I've been with a peg tube from the beginning. I cannot seem to eat a complete meal yet. My taste buds are still altered but getting better. Any suggestions for bland diets as spices flare up the taste buds. I can't have peg removed until I am off the…
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peg tube/eating problems
Finished my 7 weeks of radiations and 3 chemos on April 18, 2011. I've been with a peg tube from the beginning. I cannot seem to eat a complete meal yet. My taste buds are still altered but getting better. Any suggestions for bland diets as spices flare up the taste buds. I can't have peg removed until I am off the…
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Another question.....this time about our thyroid
Is it common to have issues with our thyroid after radiation to the head and neck area? I am asking because I have been experiencing a lot of side effects that seem common for someone with thyroid issues, also cancer treatment so it's so hard to tell. For example my vision issues, sore muscles, fatigue, being cold, shaking…
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just new here
i just started my chemo on Oct 03 (which is once every 3 weeks) and radiation(for 7 weeks), im stage 2 NPC cancer, but when they did my bloodwork, my chemo doc told me i have elevated liver, im scared if its metasticize there, u think its possible, i need some advise...
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Anti-depressants anyone?
After discussion with my H&N Nurse Practitioner today, we come to the conclusion that I am exhibiting signs of depression. The chemo MD gives me a script for Effexor. I have an appointment with a social worker and eventually a psychosocial nurse. Anyone took anti-depressants through treatment? Taking them now? Do you…
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PEG
Seems like the majority of people either start out with a PEG or get one after a few weeks. I would like to know how many people are able to make it through without one. Personally, I am only on week three, I have lost a lot of my taste and have a moderate sore throat on the side that is getting most of the radiation, my…
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freaking out
Hi I am a 33 year old female. I am a pack a day smoker and I have been having ear.fullness for almost a year now. Within the last month I have had a sore throat and it feels like its just a post nasal drip raw feeling on my right tonsil same side as my ear fullness. I went to ENT about 6 months ago he ran a cf on my sinus…
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SSI
Just a gripe. I had to go on disability through my employer provided insurance. Now its bad enough to have to explain to the insurance folks why you can't work (and it is humbling), but they also required that I apply for SSI. I understand why the insurance campany wants that because they will then reduce my payments by…
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surgury tomorrow
For those who are familiar with my mom's story. We decided to go with the surgury. I called Sloan Kittering and they had told me that in my mom's case if she is a candidate for the surgury like her doctor said it is the best treatment option for her and delaying it it's not such a good idea. they also said to fax them over…
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Another SSI ?
I started receiving temporary SSI in Feb 2011. How long does it last. Also i am still on Oxycontin and i dont think i will be coming off any time soon. If i stay on it do i qualify for pemanent SSI? Thanks David
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John (aka THE SKIFEN) cheats
You have to put the fish picture back up and remove Sherry. I have a hard time saying something nasty to you with her pic up there. She's a sweetheart compared to the low life you are and thats not fair....otherwise I'm placing a nun up as my avatar. Think I'll do that anyway. cheater cheater cheater Denny PS Give her a…
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NOT A GOOD FEELING THE DAY BEFORE NECK CT AND ENT VISIT
Let's all hope you give me a good ribbing tomorrow afternoon about worring too much, but I just do not have a good feeling about the outcome. The swollen area in my gum / tissue near and around my wisdom tooth looks a little larger. It really is painless unledd you push on it pretty hard. Of course every little pain or…
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Caregiver
To all Caregivers: When I first wrote this it was 3 paragraphs of me thanking my wife for all she has endured and apologizing to her for putting her thru it. I read it, my water started running from my eyes, then I erased it and went and found my wife and told her everything and how I appreciate her. So to all you…
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JIM "DEL NATIVE"
Has anyone heard from Jim?? I always worry about our CSN friends who do not check in regularly. Thanks Mike
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CURE - Imaging Tests - Vitamin Supplements - Antioxidants
There are a few pretty good articles on many of the differences that people ask about between, MRI, CT and PET scans this month in CURE Magazine. Picture of Health, page 28.... Also an article on vitamin supplements and antioxidants.... Some antioxidants might actually neutralize the cancer killing molecules. Anyways, some…
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Set Back ?
Finished treatments on Sept. 02, 2011. Felt good for 8 straight days. Yesterday afternoon (5 PM) started feeling a little weak and kind of sick. By 9:30 last night felt very weak and felt sick to my stomach. Woke up at 5 AM getting sick in bathroom and running a fever. Mucus is running again today. Here I am at 3:45 PM and…
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luv4lacrosse
Just wanted to say that Im praying for you today. Hope its a short wait for a great report!!!!!!!!!
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Got my treatment plan today, salivary function gone forever?
Brief history, lymph under my L jaw swollen in J/Aug, FNAB confirmed squamous cell and I got the call Sept2/11 from my ENT, I'll never forget that phone call. Last Thurs Sept 22/11, I had a L tonsillectomy, multiple endoscopies, and a PEG inserted. No primary could be found while I was under, L tonsil sent to pathology. I…
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If food gets stuck
I have been carrying on a conversation with Hondo and it reminded me of something that almost happened to me that those of you with "sticking food" syndrom might want to know. I was in the hospital recently and had a tube but at that time was still trying to eat - SEE ALPHA MALE SYNDROM - when suddenly I could not breath…
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pain meds
My teeth started to go bad a long time ago even though I looked after them dutifully, brushing, trays , mouthwash etc. one by one they started breaking off and became very painful. An oral surgeon decided they all needed to be removed but we ran into a brick wall with the insurance company, he prescribed vicodin 5/500 one…
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Apple Co-Founder Steve Jobs as died of Pancreatic Cancer
Hey Guys I just seen this on facebook and other sites that Steve Jobs as died of Pancreatic Cancer. http://www.apple.com/stevejobs/ http://www.cnn.com/2011/10/05/us/obit-steve-jobs/index.html RIP Steve Jobs.
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lilwriter
Just wondering how you are doing?
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UPDATE
I went to my Chemo Doctor yesterday and she put me on liquid Megestrol Acetate to try to help me gain some weight but as long as I am unable to swallow very well it’s hard to eat very much I am still on the med’s for saliva but it has not helped yet. Has anyone been on or know about Megestrol Acetate ? Robert
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Lelia's Husband Don Ruben
Passed away unexpectedly on 9-15. Don was a lawyer and, among other things, specialized in drug laws. One of the last things he did (and while he was in treatment for H&N) was an interview with the staff attorney at Drug Policy Alliance: Don Ruben Interviews Tamar Todd I knew Don only through Lelia, but I know enough that…