-
Is a Small mouth Bass and a Small mouth Hondo the samething?
Dentist visit today: Just give me some dynamite and I can do it my self. Well I guess it is not that bad but beginning to really feel how life with being treated twice for C sucks no matter what you try to do. Today was my first visit to the Cancer dentist in Houston for reconstructing of my teeth, and yep the problem…
-
reirradiation
Well Mom had her first reirradiation yesterday. She started vomiting this morning. She did not have any vomiting last year when she first went through radiation. But, of course this is the 2nd time and she's getting a stronger dose as they're trying to stop/slow down growth of tumor. She really didn't have a recurrence.…
-
radical neck dissection side effects
In addition to radiation and chemo for my tonsil cancer, I had a radical neck dissection. So, a question for other head and neck survivors who had radical neck dissections: - did/do you have much physical discomfort? (7 months after my surgery, and my neck hurts all the time, the scar tissue is still contracting, and at…
-
Acupuncture Strange thing happen today
I started Acupuncture treatment yesterday for the pain and nerve damage in my head and neck, and also hopping it helps with getting my Jaw open just a little more. My doctors at MD Anderson found a local Acupuncture doc here in Lafayette and suggested I try it and see if it gives me any help. OK, I did that, and today I am…
-
CT...
Came back clean on Friday when I visited my ENT. That makes me 2 1/2-years post-tx clean for NPC. And, the after-effects of the 10/7 Operation I went thru have improved substantially, so all is good. It can, and do, happen- and I thank God it's happened to me. Believe kcass
-
OT: Share a Joke of the day or something funny.
As Joe (soccerfreaks) is fond of reminding us, we need hope and humor! I thought I'd start a thread to share some witty jokes or funny stories and stuff that makes us laugh and smile. My Facebook status tonight: Dawn ®™ is not for everyone. Clinical trials show that Dawn®™ may cause nausea, fatigue, and rapid heart beat,…
-
Worried about Recurring Throat Cancer: Oct. 23, 2011
Hello, Last May, I had my five year check up with my throat doctor. Everything looked great and he told me that since everything has looked good, that he didn't need to see me for 2 years unless I had problems. (Five years ago I had squamous cell c. on the vocal chords. I had surgery and that was it. No chemo or radiation.…
-
Hello people
Sorry not posted for a while have been fighting the frustration and do not like winging. Well I could not get a PEG to much damage from previous surgery's ,so had a NGT put in again after 2 weeks in hospital.I had to pull it out 5 days ago and have been drinking vitamised baby nappies ever since (Jevity). Still loosing…
-
Cheek pain after radiation treatment for base of tongue cancer
My mom is three months out from the end of radiation and chemo. She had stage 4A base of tongue cancer that had spread to lymph nodes on both sides of the neck. It was HPV positive. Her petscan in August showed a complete response to therapy and no residual tumors which was great!!! In the past couple weeks she has been…
-
Fear!! Erbitux. Alcohol consumption, fu 5 , Tomotherapy, kids back home
Hi to all. I have St 4 tonsil cancer. Tonsillectomy with neck dissection at University Chicago. Third of 8 weeks induction chemo tomorrow. Then 10 weeks chemo/radiation, week in hospital then 11 days off etc. Thats if they have 5FU which they are short on. I have done well with all treatments so far, always worrying in…
-
Tinitis
I have had it off and on since i had cisplatin. It used to last about one or two minuets. Last night it lasted about 3 hours and was so bad i thought i was going to be sick. I went to bed for relief. This mourning i woke up fine and it started again after i was up about an hour. Now its bad enough where i might go take a…
-
Struggling with bloatedness, need help!
Hi, I'm just done with week 4 of chemo rads going into week 5 tomorrow. Week 4 was my second Cisplatin infusion. I can still swallow but I am having great difficulty getting anything in by mouth or tube because of the perpetual feeling of bloatedness. Even drinking water is making me full. Any advice please? Thanks very…
-
Pathology report
Hello Friends, so the pathology report came back, all margins were negative for cancer and the cancer showed to be half a centemeter in greatest dimention, so very small. I am happy for those good news.Mom is healing well, it back to eating normal food again. We are waiting for someone from Sloat Kittering to call us back…
-
Where in the World Are You
I haven't had this up for awhle and it's getting so many on it that it loads a little slow. But for you new members or relatively new members, this is a Google map that I made up awhile back that has a lot of the CSN H&N forum members/survivors locations. If you would like to be added and aren't already, let me know and…
-
Sunday Morning ER Visit
This is not exactly how I had my Sunday planned. My wife had to drive me into a local ER room for one of those 'unmentionable' problems we chemo patients get from time to time. They got me fixed up and gave me a home kit and some instructions on how to perform the 'Foley Shuffle' at home. I also got some more advice on…
-
DOCTORS VISIT ??????
I had a checkup with my ENT Doctor yesterday and he told me that I might as well expect to live with day mouth no saliva,mucous trouble swallowing and acid reflux from now on. He said the Evoxac and Salagen helps very few people it is to treat dry mount syndrome not radiation treatment. Also on my insurance I am in the gap…
-
Surgeries down, radiation starting...
Hey everyone, Thank you for all the great information you all give out to help others. The information is so helpful for those of us just going through this detour in life. 6 weeks ago I had the TORS surgery on my tonsil, back of tongue, side of tongue and all of the clear margins. Everything came back good, except that…
-
34 years ago today
I was just thinking - Jim and I were married 34 years ago today and we never could have imagined where our walk would take us. In retrospect, we definitely would have to say that although we would have preferred cancer not enter our lives (either through Jim or the many loved ones who have had cancer), we are closer today…
-
My Fathers PET scan Update
Well, My Father had a radical nex dissection back in June, and then went for 35 radiation treatments with Chemo. It has been 10 weeks since his last radiation treatment, and time for the "After Treatment Scan" if you will. He had his scan this past Tuesday, and finally received the results last night. So far, it didn't…
-
Therabite
Has anyone used a therabite before? I measured my opening of my jaw before i used it and it was 15mm after i used it it was 25mm pretty good I've only used it for 2 days since seeing the consultant. Who is very pleased with me think he is just glad to see me doing well! Anyway the therabite is good but the jaw only stays…
-
OT: How Are You Trying To Enjoy Fall?
Another change of seasons and I cannot believe summer is gone and we are well into Aumtun now. Just wondered what every one likes to do and what they look forward to doing in fall and what you have been doing to have a little fun and try to enjoy life's moments. I realize we are all in various stages of treatment and…
-
43% through Radiation - Video
I have completed 13 of 30 radiation treatments and thought that those that will be having radiation in the future would like to see a vidoe of what it is all about. It's more boring than anything, but not knowing gave me a lot more anxiety than knowing. Everyone on this discussion board is incredible, helping me, and…
-
Medigap insurance
Had my first cancer in 1998 (base of tongue treated with radical neck dissection and radiation). Lots of speech disability persisted for years post treatment. Lost my health insurance when that company went bankrupt. No one would then underwrite me, of course. I was 45 at the time. I eventually qualified for Social…
-
struggling with the way i look
hi guys im new to this was diagnosed with mucoidepidermiod carcinoma just 10 weeks ago just out of hospital nearly 3 weeks and now home. i had to have my eye cut under it and down my face near my nose and lip split. but now left with scars. they had to split my jaw to get at the tumour but physically im doing good…
-
I just want to stuff my face!
Just a small **** session. I hope you all don't mind. I am so tired of being hungry! I just want to stuff my face. I miss my pizza, my nachos, my cheesecake and my wine. Argh! I am a little over 2 months out from radiation and just completed my 5 th chemo session. My taste has started to come back but food isn't as…
-
Mask Question
I know I've read that a lot of you couldn't wait to get rid of the mask as a reminder..but I have been trying to explain to my neice what one looks like, did any of you take a picture or have a picture I can share with her. Thanks, Linda
-
Adenoid Cystic Carcinoma - after radiation, how soon do you feel better, tastebuds return?
I had 33 days of radiation, it fried, my mouth, taste buds esophagus, and throat. The last two weeks of treatment were awful. I never had to have a feeding tube, but did need several IV's. Today is my 5th day post treatment, and am wondering when taste buds will return, when my throat won't be so sore. When I will be able…
-
Elevated Potassium Levels
Hi everyone! I'd like to pose a situation and see if anyone else has experienced this. I am 13 weeks post rad for tonsil cancer and things are progressing well. Like many here, I subsisted on many bottles of Ensure and Boost for quite a while. Last week I began experiencing significant back pain to the extent I could not…
-
One yr ago
Hello everyone,I haven`t posted for a while but I do read the posts alot. Just to give you guys a little background;I am 46 yrs old-live in NJ and went to Memorial Sloan Kettering for treatments.DX with Tonil cancer and spread to lympnode in neck. I had tonsils removed and 35 rads and three rounds of cisplatin. Ended…
-
I want to pass along some good and bad news.
Hey All I just wanted to pass along some good news and some bad news. I guess I start with the good news last Thursday I went for my year PET scan and monday I found out the PET scan came back clean. Then today I had a breathing test then (which the breathing test came back clean so not breathing problems) I met with my…