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luv4lacrosse
Just wanted to say that Im praying for you today. Hope its a short wait for a great report!!!!!!!!!
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Got my treatment plan today, salivary function gone forever?
Brief history, lymph under my L jaw swollen in J/Aug, FNAB confirmed squamous cell and I got the call Sept2/11 from my ENT, I'll never forget that phone call. Last Thurs Sept 22/11, I had a L tonsillectomy, multiple endoscopies, and a PEG inserted. No primary could be found while I was under, L tonsil sent to pathology. I…
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If food gets stuck
I have been carrying on a conversation with Hondo and it reminded me of something that almost happened to me that those of you with "sticking food" syndrom might want to know. I was in the hospital recently and had a tube but at that time was still trying to eat - SEE ALPHA MALE SYNDROM - when suddenly I could not breath…
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pain meds
My teeth started to go bad a long time ago even though I looked after them dutifully, brushing, trays , mouthwash etc. one by one they started breaking off and became very painful. An oral surgeon decided they all needed to be removed but we ran into a brick wall with the insurance company, he prescribed vicodin 5/500 one…
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Apple Co-Founder Steve Jobs as died of Pancreatic Cancer
Hey Guys I just seen this on facebook and other sites that Steve Jobs as died of Pancreatic Cancer. http://www.apple.com/stevejobs/ http://www.cnn.com/2011/10/05/us/obit-steve-jobs/index.html RIP Steve Jobs.
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lilwriter
Just wondering how you are doing?
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UPDATE
I went to my Chemo Doctor yesterday and she put me on liquid Megestrol Acetate to try to help me gain some weight but as long as I am unable to swallow very well it’s hard to eat very much I am still on the med’s for saliva but it has not helped yet. Has anyone been on or know about Megestrol Acetate ? Robert
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Lelia's Husband Don Ruben
Passed away unexpectedly on 9-15. Don was a lawyer and, among other things, specialized in drug laws. One of the last things he did (and while he was in treatment for H&N) was an interview with the staff attorney at Drug Policy Alliance: Don Ruben Interviews Tamar Todd I knew Don only through Lelia, but I know enough that…
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Checking in and asking for prayers
Hi All, Haven't posted in a while but have been trying to keep up with everyone. I am thankful for and pray for all of you daily. Sweet, I am sorry to read you are dealing with health issues. Will send extra prayers for you and all that are having difficulty now. Pats 2 year scope looked fine. Two year PET is October 12.…
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So Tired
Well, it's week four of my chemo by pill. This is the second week at maximum dosage and it is kicking my butt. I am extremely fatigued and I get winded easily. And, my tongue is so sensitive that I had to change to a kid's toothpaste and I can't eat anything hot or spicy. And, the worst part is that diet Coke hurts to…
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Pain Meds
I know everyone is different. I just would like to get a general idea when everyone was able to stop taking pain meds. My husband is a little over 4 months out and is still in pain and very weak. He takes 2 morphines a day and 2-4 vicodins. The radiation doctor told him a month ago that he would be feeling much better.…
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Vision changes anyone?
Has anyone experienced an effect on their eye sight after radiation? I had more rads on my left side than on my right as that is where my three tumors were found. Now it seems even with my glasses on my left eye is out of focus. Maybe it's because I'm going to be 40 in six months and has nothing really to do with treatment?
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seems like sliding backwards
Jim is 6 weeks out and all of a sudden is sliding backwards. Sore throat has returned with a vengence, much worse than 4 weeks out. Lossing weight again and extreme tiredness. He was walking to mail box and taking trash out; Able to stay up all day and actually read a book in a week. Yesterday he slept all afternoon…
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Gum to exersise the tounge
After weeks of using the tounge exersises that wife found on website she came home with sugarless gum (I really hate chewing gum) but tried it for several days and found that chewing really gave the tounge a work out, made the throat hurt a little more than usual but seemed to help with eating things like eggs over hash…
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Not happy Drs got wires crossed
My husband went back to work yesterday following the word of his onc. This morning his ent Dr called me and asked why he was working so soon after finishing radiation. He wants to see him and do an assesment before Vaughn is back to work and says he should be off at least another month before returning to work. I tried to…
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loss of hearing after chemo
Just finished 8 chemo and lost 90 percent of hearing in both ears.Dr.said it would be at least 3 mo. before its known if this is perm.Has any one had this problem?
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Jevity vs others for peg
As some of you know I am now using my peg for 100% (no cancer, dealing with long term after affects) of my nutrition but I am also still not as educated as I should be about this pesky little life saver. I have been reading about Jevity on the board for quite a while and assumed it was the "Cadillac" of nutrition so I…
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New plan for Dad
Dad saw the oncologist today and this was a little more positive. His doctor has talked with another droctor in the practice and they developed a plan. Dad will start carbo/taxol this Friday. He will have 3 rounds and then off a week. They will do 3 cycles tnat then another CT. The doctors are pretty sure this will control…
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I is baaack
Sorry for my 2 week AWOL stint they stuck me in hospital. Gagging on NGT so much I nearly burst a vessel, Could not get enough nutrition in or H2O so on a drip.Shoot out of Hospital 0530hrs to miss traffic every morning for Radiation except the day they actually put me under to try PEG by endoscope. No go need surgery had…
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New to throat cancer and am not sure I can do this.
Went to doctor for lump on left side of neck and was told it was most likely brachial cyst or cleft - could be removed or not but if not it would get bigger. Went to another ENT because did not like the first. Needle biopsy done and nothing difinitive found. Asked for PET Scan in case it was cancer - told no less than 1%…
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I Hate It When Doctors......
I haven't seen this addressed before, but I have seen a couple of posts with outrageous behavior by doctors. So let's start a list to see what we have seen and/or heard from doctors, nurses, technicians, etc. I hate it when doctors/nurses, etc.: 1) Don't talk to you directly but talk to your caregiver (or driver) like…
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CNN article on oral cancer and HPV
Wasn't sure if everyone saw this article on CNN's website today on oral cancer and HPV. http://thechart.blogs.cnn.com/2011/10/03/increase-in-oral-cancers-linked-to-hpv/?hpt=hp_t2 (Not sure if the link I copy/pasted in will work but it is on CNN's home page today). Suzanne
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Face Hair
Help I finished radiation on Sept.02, 2011. I did not have any other procedure. The radiation was on my left and right lymph-nodes and my tonsils. 39 treatments. I can only grow facial hair on the left side of my face? Why would that be? Will it ever return? The right side after 2 or 3 days is very light. Please give best…
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Buzz has a neck abcess
Has anyone heard of developing an abcess as a result of a necrotic (dead)lympth node? Buzz's biopsy of the abcess area was negative but he has several other areas in his neck and tongue which are suspicious. The oncologist thinks the cancer is back. We cannot procede with another biopsy until the infection clears. (after 6…
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Superthread discussion.
An explaination: If there are no posts to it, I can easily bump it by posting to it and editing my own post. If you post to it, I cannot do that. This thread takes me A LOT of time to maintain and honestly, I am thinking about not doing it anymore. I'm not getting pissy, it's just a lot of maintenance and when some one…
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catching a cold post rads
Does it take longer to get better after radiation? My husband goes back to work on monday and this morning he woke up with a terrible cough. He says he feels like he has a chest cold.
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Movie: 50/50
Anybody have thoughts on the new movie just released based on a true cancer story? I saw the cast (including the patient/writer) on Anderson. He described it as a comedy, yet poignant. Not sure we're gonna see it cause there's not much funny about cancer right now in our lives. Just curious if you guys have seen it or what…
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And the scope says - NED!
Jim is now 1.5 years out from diagnosis and 13 months post-treatment. Had a scope done today at his ENT's office with the terrific fancy scope that really gives a great picture for all to see. The doctor said that although the HUGE place where the HUGE tumor was is still pale from healing, the tissue looks normal and…
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juicing
Are any of you or have any of you done any juicing to help with the treatment? just wondering..I would like to try with my mother.
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Update and questions for the experts
Good Morning! Many hello's, well wishes, and blessings to you all. Update: Dad is now 3 months out (June 24th) from radiation and had his last chemo session in August. We were so blessed to celebrate his 65th birthday this past month and he seemed to be doing pretty well. He had a CT scan, blood work, and swallow test this…