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Checking in and asking for prayers
Hi All, Haven't posted in a while but have been trying to keep up with everyone. I am thankful for and pray for all of you daily. Sweet, I am sorry to read you are dealing with health issues. Will send extra prayers for you and all that are having difficulty now. Pats 2 year scope looked fine. Two year PET is October 12.…
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So Tired
Well, it's week four of my chemo by pill. This is the second week at maximum dosage and it is kicking my butt. I am extremely fatigued and I get winded easily. And, my tongue is so sensitive that I had to change to a kid's toothpaste and I can't eat anything hot or spicy. And, the worst part is that diet Coke hurts to…
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Pain Meds
I know everyone is different. I just would like to get a general idea when everyone was able to stop taking pain meds. My husband is a little over 4 months out and is still in pain and very weak. He takes 2 morphines a day and 2-4 vicodins. The radiation doctor told him a month ago that he would be feeling much better.…
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Vision changes anyone?
Has anyone experienced an effect on their eye sight after radiation? I had more rads on my left side than on my right as that is where my three tumors were found. Now it seems even with my glasses on my left eye is out of focus. Maybe it's because I'm going to be 40 in six months and has nothing really to do with treatment?
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seems like sliding backwards
Jim is 6 weeks out and all of a sudden is sliding backwards. Sore throat has returned with a vengence, much worse than 4 weeks out. Lossing weight again and extreme tiredness. He was walking to mail box and taking trash out; Able to stay up all day and actually read a book in a week. Yesterday he slept all afternoon…
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Gum to exersise the tounge
After weeks of using the tounge exersises that wife found on website she came home with sugarless gum (I really hate chewing gum) but tried it for several days and found that chewing really gave the tounge a work out, made the throat hurt a little more than usual but seemed to help with eating things like eggs over hash…
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Not happy Drs got wires crossed
My husband went back to work yesterday following the word of his onc. This morning his ent Dr called me and asked why he was working so soon after finishing radiation. He wants to see him and do an assesment before Vaughn is back to work and says he should be off at least another month before returning to work. I tried to…
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loss of hearing after chemo
Just finished 8 chemo and lost 90 percent of hearing in both ears.Dr.said it would be at least 3 mo. before its known if this is perm.Has any one had this problem?
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Jevity vs others for peg
As some of you know I am now using my peg for 100% (no cancer, dealing with long term after affects) of my nutrition but I am also still not as educated as I should be about this pesky little life saver. I have been reading about Jevity on the board for quite a while and assumed it was the "Cadillac" of nutrition so I…
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New plan for Dad
Dad saw the oncologist today and this was a little more positive. His doctor has talked with another droctor in the practice and they developed a plan. Dad will start carbo/taxol this Friday. He will have 3 rounds and then off a week. They will do 3 cycles tnat then another CT. The doctors are pretty sure this will control…
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I is baaack
Sorry for my 2 week AWOL stint they stuck me in hospital. Gagging on NGT so much I nearly burst a vessel, Could not get enough nutrition in or H2O so on a drip.Shoot out of Hospital 0530hrs to miss traffic every morning for Radiation except the day they actually put me under to try PEG by endoscope. No go need surgery had…
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New to throat cancer and am not sure I can do this.
Went to doctor for lump on left side of neck and was told it was most likely brachial cyst or cleft - could be removed or not but if not it would get bigger. Went to another ENT because did not like the first. Needle biopsy done and nothing difinitive found. Asked for PET Scan in case it was cancer - told no less than 1%…
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I Hate It When Doctors......
I haven't seen this addressed before, but I have seen a couple of posts with outrageous behavior by doctors. So let's start a list to see what we have seen and/or heard from doctors, nurses, technicians, etc. I hate it when doctors/nurses, etc.: 1) Don't talk to you directly but talk to your caregiver (or driver) like…
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CNN article on oral cancer and HPV
Wasn't sure if everyone saw this article on CNN's website today on oral cancer and HPV. http://thechart.blogs.cnn.com/2011/10/03/increase-in-oral-cancers-linked-to-hpv/?hpt=hp_t2 (Not sure if the link I copy/pasted in will work but it is on CNN's home page today). Suzanne
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Face Hair
Help I finished radiation on Sept.02, 2011. I did not have any other procedure. The radiation was on my left and right lymph-nodes and my tonsils. 39 treatments. I can only grow facial hair on the left side of my face? Why would that be? Will it ever return? The right side after 2 or 3 days is very light. Please give best…
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Buzz has a neck abcess
Has anyone heard of developing an abcess as a result of a necrotic (dead)lympth node? Buzz's biopsy of the abcess area was negative but he has several other areas in his neck and tongue which are suspicious. The oncologist thinks the cancer is back. We cannot procede with another biopsy until the infection clears. (after 6…
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Superthread discussion.
An explaination: If there are no posts to it, I can easily bump it by posting to it and editing my own post. If you post to it, I cannot do that. This thread takes me A LOT of time to maintain and honestly, I am thinking about not doing it anymore. I'm not getting pissy, it's just a lot of maintenance and when some one…
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catching a cold post rads
Does it take longer to get better after radiation? My husband goes back to work on monday and this morning he woke up with a terrible cough. He says he feels like he has a chest cold.
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Movie: 50/50
Anybody have thoughts on the new movie just released based on a true cancer story? I saw the cast (including the patient/writer) on Anderson. He described it as a comedy, yet poignant. Not sure we're gonna see it cause there's not much funny about cancer right now in our lives. Just curious if you guys have seen it or what…
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And the scope says - NED!
Jim is now 1.5 years out from diagnosis and 13 months post-treatment. Had a scope done today at his ENT's office with the terrific fancy scope that really gives a great picture for all to see. The doctor said that although the HUGE place where the HUGE tumor was is still pale from healing, the tissue looks normal and…
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juicing
Are any of you or have any of you done any juicing to help with the treatment? just wondering..I would like to try with my mother.
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Update and questions for the experts
Good Morning! Many hello's, well wishes, and blessings to you all. Update: Dad is now 3 months out (June 24th) from radiation and had his last chemo session in August. We were so blessed to celebrate his 65th birthday this past month and he seemed to be doing pretty well. He had a CT scan, blood work, and swallow test this…
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Those who have or had a PEG...
The stitches were out 4 days ago. I have one of those Foley urinary catheters as my PEG, size 14 I think (ink is wearing off). The Foley is the standard tube they use now for most PEGs from what I see in the hospital and nursing homes. When I use to do home care over 10y ago, I saw the clear ones with a ring at the base…
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How ??
How is it possible to have a secondary without a primary? Now that the secondary has been treated and I have been thru hell will they find the primary? One more question. I completed my treatments , which consisted on 39 radiation treatments, I cant get another pet scan until the end of November because the insurance…
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On Edge
My husband is very tense these days. The littlest things are aggravating him. It started about 2-3 days after he got the all clear. I guess everything is finally catching up to him. I told him to go to his GP and see what they can give him. He is no fun right now.
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Another Platelet Question
Last month before my infusion day, my bllod work showed my platelets @ 115 , today they are @ 83, so the onco nurse doesn't think I'll have my 3rd infusion ( was supposed to be final all day infusion session) next monday. Has any one here experienced low platelet counts that slowed your treatments? Thanks, Linda
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Squamous
Hi everyone This message board has really been a blessing to me. I have sat in front of my lap top for hours reading and learning a lot about what I can expect. I am 48 yr old married male I am 5' 9" and weigh 165 lbs. I was diagnosed with squamous cell on 6/20/11. The cancer was on my left lymph-node. The doc said it was…
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Hands shaking
Hi, Has anyone experienced hands shaking and body twitching (only when he is sleeping the body twitching) Currently receiving carboplatin 5fu decadron rengal and zofran for tonsil and lymph cancer This is the second round Chemo Thanks for your help Michelle
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Real Estate vs Cancer
Real Estate = Location, location, location Cancer = Attitude, Attitude, Attitude Don't let the SOB beat you down.
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HNC SUPERTHREAD. Excellent for people new to CSN. Answers to FAQ. Please do not bump or post to t
**THIS THREAD IS UPDATED AT LEAST EVERY SUNDAY. I WILL ALWAYS KEEP IT ON THE FIRST PAGE. THANK YOU FOR NOT POSTING TO IT** HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. Help for some Frequently Asked Questions. Head and Neck Superthread. ***PLEASE DO NOT POST OR ADD TO THIS THREAD**** There is a separate thread for…