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Head and Neck Cancer

Acinic Cell Carcinoma
Has anyone had acinic cell carcinoma go to the lung? I had a parotid tumor removed in August 2009. My biopsy and frozen path were both benign, but my final pathology came back malignant. Acinic cell carcinoma was the diagnosis. I had clean margins so I was sent to an ENT at The Emory Clinic in Atlanta. First saw him every…
if it returns
Thank all of you who replied to my personal thoughts of "should I find out or would it be better not knowing" Your replies answered, and again thank you for your personal thoughts. What would we all do without this great network of friends.
if the cancer doesn't kill you , my job will
is there anyone out there with this? My family ,my wife is my support she is fantastic. I found out last week my employer walmart is trminating me because i have cancer and can't go back for full duty, i was released for light duty but thats not good enough for them. I will loose my insurance for my wife and myyself , they…
NED!!
Hi everyone!! It's been a while since I've had a chance to post. Between trying to heal and chasing kids, I have little freetime...I do however try to get on a read everyone's posts when I have a quiet minute or two. Just wanted to update that as of last week, I have been dancing with NED. Originally after treatment, I had…
Widening the Mouth
Has anyone been able to widen their mouth after jaw surgery? My oncology dentist told me he can't get a drill in my mouth to fill a small cavity. I use tongue depressors in my mouth but I can't seem to get past using six sticks.
Hard to eat
After jaw cancer surgery, has any one had trouble eating. I have to puree all my food as everything sticks to the roof and sides of my mouth and I can't swallow.
WATER ?????
Is there anything better than water to try to get food down the water seems thin and washes away any lubrication I have in my mouth I don’t need any thing with acid in it last week I tired ½ Ruben sandwich with tomato soup as long as I took small bites cut with fork I could get it down with the soup the last two days it…
My newspaper article
One year ago today found me not at my desk at the Ashland Times-Gazette but in another universe; in a Linear Accelerator receiving the first of my 35 radiation treatments. I was battling Stage 4 tongue cancer. After a summer of not feeling well, I was diagnosed by my local ENT who advised me to have treatment at the Ohio…
If it returns
Close to two months now since my last treatments of rad (35 rto the neck&35 to the lung with 8 chemo) it was a tough set of treatments for a 78 yr. old male and the side affects are many.For the last several days I've been wondering what I should do if it comes back. For one it was said to me "you can'nt have any more rads…
Any thing better to drink than water?
Hi, I drink a lot now because of the lack of saliva.But I find that drinking water doesn't really sooth the throat as much as it used to because it tends to make it less moist or "dry" it by giving me the feeling that it's clearing the throat of moist mucus. I'm not sure if what I said makes sense. But I sometimes feel…
NED!!!
I am overjoyed and thrilled to post I am NED again! I went to the James yesterday with tears in my eyes as it was exactly one year ago that my treatments started. My fave nurse was in the waiting room, which was crammed with people, and saw me across the room and came over and hugged and kissed me. She was amazed at how…
GlennaM - Thoughts & Prayers - Chemo Begins
Thoughts and Prayers to my Abi-Normal sista from a different mista as another sista from and even different mista says. Glenna is finally getting the ball rolling today with her frist chemo session in the new War. Thinking of you Glenna, we are all with you, be strong, stay positive, stay focused, and kick azz. Love ya...…
PET/CT Results
Hi All, Went for follow up today to review my PET/CT results. Here is the impression of the radiologist: No evidence of residual tumor. There is resolution of the abnormal activity both in the primary tumor site in the right side of the nasopharynx and in a right cervical lymph node. I am so relieved and grateful. I…
Excess mucus- when does it start to subside?
It's driving hubby insane. Thanks!
You know you're jaded when
I just had a couple of pretty good days and I'm so jaded that I think I will have to pay for this big time. I am off of the 'poison chemo pill' for two weeks and today is day 6 of that. I feel a bit more energetic, my tongue and mouth soreness is down quite a bit, and some of my taste is returning. I even enjoyed a premium…
Back from Mazatlan
Had a great time and very relaxed. DIDN"T DO ANYTHING OTHER THAN SIT ON THE BALCONY AND WATCH THE PEOPLE AND THE OCEAN. Did get a shock when I went to purchase Ensure, over $18.00 (dollars not pesos) and six pack. Buying a juicer to take advantage of all the fresh fruits and veggies for my next trip.
It's Back
I am almost certain that my vocal cord cancer has returned. I am in need of some short success stories (say 50-100 words), where a returned cancer has been successfully treated. And I have a easy definition for success. A treatment which produced six-months of freedom from major symptoms. How's that for a chellenge. If…
Hello again......I'm back ;)
I've finaly done something I've been telling myself to do, for waaay too long. I first joined this group back in the summer of 08, after completing my treatment for stage four, base of tongue, squamus cell cancer. I kept in touch until the summer of 09, when low & behold, my computer was hit by a virus, followed quickly by…
Response to chemotherapy
I want to share my recent chemotherapy story, as to me at least, the beneficial response is remarkable. I had my second throat cancer about a year ago, treated with radical surgery. My follow up PET was negative at six months, but things began to change pretty rapidly after that. I got a persistent post nasal discharge and…
CDC - MSNBC - Recommend Boys for HPV Vaccine
I saw this on a news station the other day.... So glad that the subject is getting more and more attention....hopefully people like Michele Bachmann saw it as well, but then again. CDC - MSNBC - Recommend Boys for HPV Vaccine And again, a reference that; An estimated 50 percent to 80 percent of men and women are infected…
Vocal Cord Biopsy Next Week
I was treated with radiation only for vocal cord cancer last summer. I am almost positive that it has returned. My voice has suddenly gone done hill. And there is a little new pain in the throat. My ENT says she cannot get a clear view of the area in an office visit. I'm having a biopsy next week. For vocal cord biopsy, it…
Cisplatin or Decadron? hiccups won't give up...
I started chemorad this week on Wednesday. One big dose of Cisplatin and given 3 drugs to combat nausea which included Decadron. 3 rads done so far. It is day 4 today (Saturday) and I have uncontrollable hiccups. I was given Maxeran yesterday instead of Stemetil. It helps a little, so does Gavisocon, but is there anything…
The ability to eat
Has anyone here who underwent head and neck treatments been able to return to completely normal eating? I'm well over 12 months out of rad and chemo and still cannot swallow anything other than pudding or very thin mashed potatoes........I can do broth but nothing solid at all...... My throat is 1cm and dilation has been…
Neck Dissection pain and cold weather. How does the cold effect you?
To all of you who have had neck dissections. Does the cold weather bother you? It seems to really bother my husband when the weather starts getting cold? How does it effect you? Vsudd
Bone scan
Since i had cancer and chemo/rads i have had arthritis in my joints especially my hands feet and back. I went and had x rays and they all came back ok. On Thursday they are going to do a bone scan. The arthritis doctor is talking about giving me a small dose of prednisone to take every day and to take me off oxycotin.…
The end of treatment is in sight
Next week is my final week of radiation and 8 infusions of Eurbitux. My observations so far are that other than losing most of my sense of taste. I can taste a few things but not very well. I have also lost a good part but not all of my saliva. I can swallow pretty well and can eat things like clam chowder with potatoes…
Magic Mineral Broth
Last Saturday my sister and I went to a presentation put on by Healing Journeys. I got to meet Rebecca Katz, my favorite cancer chef. She cooked and prepared the food that we had for lunch. Talked about FASS (Fat, acid, salt, sweetner) and had people taste her food as it was getting prepared, reasons for why she adds…
HOW LONG DOES IT TAKE ???
On a average how long does it take to get your saliva, taste, trouble swallowing back? I am 11 mouths past treatment and have tried all the Med’s I have read in everyone’s post’s My Doctor said I may have to live with it if I could get 75% I would be happy I know everyone is different. Also is there anything someone has…
frustrated and stressed
It is time for Jim's PET but the scheduling computers have been down all week so they can't schedule it. argh! On top of that the lump under Jim's tongue is still there and I am getting nervous. We see the ENT again in two weeks so he can check it. Jim is also going backwards in recovery. The first month after treatment he…
NED Baby
Clean bill of health for my husband.Back to work with no restrictions!!!! AAaaawww yeah!! I am so proud of my Buddy : )

Head and Neck Cancer

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