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Calories
I have to monitor the calories I take in , does anyone have or can recommend a good program that will allow me to do this. I have to maintain my weight and I know that thru the course of rads getting adequate nutriants, protein, and hydration is vital to my well being. The nutritionist I see recommended using beneprotein…
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Nephew Update
Hi all: First, want to thank all of my csn buds for your prayers for my nephew Brian. Second, please continue to pray for him. He was taken from the nursing home/rehab and admitted to the hospital yesterday to determine his weight loss. It wasn't an emergency moving; just that they don't have the capabilities and equipment…
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Base of Tongue Cancer - Throat Cancer
Throat Cancer - Base of Tongue Tumor with 1 lymph node involved.
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I'm not a cancer survivor, sorry. My mom is ill.
Hi there. Sorry to interrupt if this is -as probably- only for cancer survivors. If so, please dismiss my comment. My mother, a clever, vital woman of 63, has been diagnosed a few weeks ago - today is October 28, 2011) with a grade III anaplastic astrocythome tumor on her brain. One day she was in her italian language…
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how long have you survived after recurrance or second primary or metastasis after first treatment wa
would like to hear from anyone who experienced any of those 3....also how long after completing first treatment did you experience that?
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Sweetblood was right
You have to love the Social Security Administration. Last week I received a notice to go for another SSA doctor appointment and in the same stack of mail was another letter cancelling the appointment. Today I check my on-line banking account and find a rather large deposit had been made by SSA so I assume I am approved for…
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PET coming, Jim depressed
Jim's follow up PET is set for Monday, Nov. 7 and he is very depressed. Monday morning he said he had a bad feeling about the results. This worries me because I do too. The lump under his tongue which is about the size of a large pea is worrying me. Could the cancer have gotten that big in such short time? It looks like…
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1st PET post treatment
We go tomorrow to dr to find out what the PET scan showed. Now I suddenly realize, I expect they'll tell us cancer/no cancer, but I really don't know what else to even think, what type of questions I could/should ask, etc. Any suggestions, info would be appreciated. I LOVE THIS SITE and ALL THE HELP!!
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Day 1 - Phase 2
Well the day has finally arrived, I will be having my first radiation treatment tonight @ 7:30, the machine of choice is a rapidArc, supposedly takes less time , 10 mins from start, getting me positioned, mask on, to finish. I told my sister and neice to time from the moment I walk in the door to the moment I walk out. Had…
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Gaggin ~ Not Cancer Related ~ Tampa Bay Grouper - Updated
Gag grouper that is.... A few photo's of gag grouper that my buddy Josh and I caught yesterday. With the grouper season closing again on the 16th of November, and finally a very nice day forecasted. Josh and I had a chance to take the HEWES (my boat) out in Tampa Bay under the Skyway Bridge and dig up a few nice fat…
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What to do on days you feel like Crap
Work-up this morning and sure wish I would have stayed sleeping because I feel so bad. No energy to get up or do anything but just stay in bed and waste this beautiful sunshiny day away. I did manage to go outside and sit in the sunshine for a while, the weather is about 65 degree and the Sun was at it peek. But even that…
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PET scan - cortisone injection
Well, Bob went in today for his first post-treatment PET scan. The technician asked if he'd had any recent treatments. Bob said, well, I just got a cortisone injection in my shoulder last week. The tech said, oh, then that will light up like a Christmas tree. Argghhh I asked the ortho before he gave the injection if it…
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It takes a long time to heal. I was not prepared for the post treatment.
Silly me, I thought after treatment my husband would be back to work in like 2 months.. HAHAHAAHA!!!! What was I smoking.. Kidding!!! I really did, four months out my husband seems to feel like crap every other day. but, more so now, ever since he did that side job and was sick for a week and yes lost more weight. He was…
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Checking In
Hi all: Haven't posted in awhile but have kept up with everybody! Been on the road a bit. My sister came down last Wed. and we went to see our 93 year old aunt in Albany, GA then over to our brother's in Thomasville and had a nice visit with him and his wife and got to see my niece and one of her little ones the one was…
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Recovery - Base of Tongue, Right Tonsil
My husband is now in recovery for Base of Tongue, Right Tonsil cancer (HPV positive) not a smoker or drinker. He had his last treatment on August 29th (7 weeks external beam radiation, with 3 chemotherapy treatments of cisplatin). It has been 8 weeks out of treatment, and he is slowly improving. The treatments were not a…
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Living 6 months at a time! Can you say NED!!! :)
Hello, Everyone, haven't really posted in a while. Since, I am still battling with alot of depression; I am trying to stay away from the cancer boards and trying to think positive. I feel that thinking about cancer everyday doesn't help. Plus I'm dealing with normal life issues like relationship stuff so that doesn't help…
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erectile dysfunction drugs and head and neck cancer
I googled the ed drug in regard to head and neck cancer and found this VERY interesting so wanted to share the link! I know the study at Johns Hopkins started in 2009 but it does not look like it is ongoing and I can't find any results. They do have current trials with cialis and multiple myeloma so there must be some…
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Any suggestions to help me get through this? Encouraging words?
It's the calm before the storm. I've done 9 rads out of 35. My next Cisplatin is next Wed, hopefully no hiccups this time, will be on Zantac and Lorgactyl on top of the usual anti-nausea cocktail the first 3 days. I'm losing my taste and trying to eat is a chore, but I do it, and I'm drinking supplements in between and…
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Dentist appointment
Just had my teeth cleaned 3 months post neck dissection. Good report but I didn't get anything out of the treasure box. Well, I guess I did, new toothbrush and more Biotene. My backround with the dentist, as a child had horrible experiences, as an adult, I had my kids visit first and if all went well then I would go. I…
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Acinic Cell Carcinoma
Has anyone had acinic cell carcinoma go to the lung? I had a parotid tumor removed in August 2009. My biopsy and frozen path were both benign, but my final pathology came back malignant. Acinic cell carcinoma was the diagnosis. I had clean margins so I was sent to an ENT at The Emory Clinic in Atlanta. First saw him every…
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if it returns
Thank all of you who replied to my personal thoughts of "should I find out or would it be better not knowing" Your replies answered, and again thank you for your personal thoughts. What would we all do without this great network of friends.
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if the cancer doesn't kill you , my job will
is there anyone out there with this? My family ,my wife is my support she is fantastic. I found out last week my employer walmart is trminating me because i have cancer and can't go back for full duty, i was released for light duty but thats not good enough for them. I will loose my insurance for my wife and myyself , they…
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NED!!
Hi everyone!! It's been a while since I've had a chance to post. Between trying to heal and chasing kids, I have little freetime...I do however try to get on a read everyone's posts when I have a quiet minute or two. Just wanted to update that as of last week, I have been dancing with NED. Originally after treatment, I had…
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Widening the Mouth
Has anyone been able to widen their mouth after jaw surgery? My oncology dentist told me he can't get a drill in my mouth to fill a small cavity. I use tongue depressors in my mouth but I can't seem to get past using six sticks.
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Hard to eat
After jaw cancer surgery, has any one had trouble eating. I have to puree all my food as everything sticks to the roof and sides of my mouth and I can't swallow.
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WATER ?????
Is there anything better than water to try to get food down the water seems thin and washes away any lubrication I have in my mouth I don’t need any thing with acid in it last week I tired ½ Ruben sandwich with tomato soup as long as I took small bites cut with fork I could get it down with the soup the last two days it…
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My newspaper article
One year ago today found me not at my desk at the Ashland Times-Gazette but in another universe; in a Linear Accelerator receiving the first of my 35 radiation treatments. I was battling Stage 4 tongue cancer. After a summer of not feeling well, I was diagnosed by my local ENT who advised me to have treatment at the Ohio…
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If it returns
Close to two months now since my last treatments of rad (35 rto the neck&35 to the lung with 8 chemo) it was a tough set of treatments for a 78 yr. old male and the side affects are many.For the last several days I've been wondering what I should do if it comes back. For one it was said to me "you can'nt have any more rads…
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Any thing better to drink than water?
Hi, I drink a lot now because of the lack of saliva.But I find that drinking water doesn't really sooth the throat as much as it used to because it tends to make it less moist or "dry" it by giving me the feeling that it's clearing the throat of moist mucus. I'm not sure if what I said makes sense. But I sometimes feel…
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NED!!!
I am overjoyed and thrilled to post I am NED again! I went to the James yesterday with tears in my eyes as it was exactly one year ago that my treatments started. My fave nurse was in the waiting room, which was crammed with people, and saw me across the room and came over and hugged and kissed me. She was amazed at how…