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ORN
Anyone had experience with treatment plans for ORN (osteoradionecrosis)? My husband was diagnosed with this today after getting is CT results. Wondering if anyone else has had experience with treatment plans, etc. Many thanks
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Time frame for scans
Hello to everyone My dad finished chemo on 10-24 and rad on 10-18 for tonsil and lymph. We are doing speech 2x week to start eating again. We go for a scope by the radiologist on 1-4-12. Right now they say there is still a lot of inflammation in the throat and did not want to aggravate or damage it anymore. When should we…
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clinical trials
I thought it would be interesting to share experiences with clinical trials if any of you have participated in one. Hopefully, I won't get many replies because that would mean your initial treatment was successful! Anyhow...Andy is participating in the REO trial at Emory University in Atlanta. It is a combination of…
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Cant talk ???? need advice
I am a year past treatment still cant swallow or produce saliva. Now I can’t talk my voice gives out all I can do is try no one can under stand me what is going on I am wondering what’s next I am about ready to give up, Has any one had this problem ? I don’t know what else to do. Please give me some advice.
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NPC Second round of chemo
Hello Everyone, I was reassured by my rad onco, who came to treating me with some impressive recomendations, That because of where my cancer and its type that Rads were going to be the primary treatment for me with Cisplatin every week to support the treatment. I felt reassured by the tomotherapy machines and Her extensive…
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Tests over and Chemo starts next week
Hi I have gone to MD Anderson all week. Primary tumor is in left tonsil with 3 secondary in left lymph nodes. They a final biopsy on the to tonsil today and will start Chemo for 3 weeks then Radiation for 6. I am not sure why they are not doing Chemo and Radiation at the same time, but am ready to get started. She said I…
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How do I return from caretaker to lover!
Hello Everyone, I don't know how to really write this but I need advice and I don't know where else to turn. Since Connie got sick our relationship changed from what it was before C. Her appearance has changed and she is 30 lbs. under weight. I love Connie but I have been waiting for her to regain her health before sex and…
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Two Christmas's Scan Results
Well, the results were actually pretty good and encouraging. The tumors in my lungs have shrunk as a result of the chemo and they could not find any growths in my face. I guess this is what they call a 'partial remission'. For an extremely rare and dangerous cancer such as this, I consider this to be very good news indeed.…
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Loss of voice and trouble swallowing
So my voice is all but gone, and in the last few weeks I have been having more problems swallowing. My neck is so tight from the neck disection I'm hoping. Has anyone had similure problems and if so what can I do to resolve this. I would really like to be able to speak again and also be able to eat. I am on a feeding tube…
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SCANS FROM YESTERDAY INDICATE NED
My wife came home last night with the "final read" from Radiology. No Evidence of Disease anywhere. There was evidence of a recent aspiration into my right central and right lower lobe of my lung. This makes sense to me as my wife and I were out with "Greg 53" and his wife last Thursday evening for dinner, and between the…
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Infection and (maybe) not cancer
Buzz just received the results of his CT of the neck. It showed the mass to be much smaller with resolution of the abscess he had in September. He still has swelling under his chin and along the muscle on the left side of the neck but this swelling has been attributed to the infection! For now, he no longer will be getting…
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p16 positive
I just found out my removed left tonsil came back p16+ which I understand is a protein marker for HPV and not necessarily mean that HPV is active in me now. I'm in Canada, is the p16 test used in the U.S. to determine HPV positivity? I'm trying to understand if that really means my SCC can be classified in the HPV…
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TIME FOR THE EVRY 90 DAY PANIC ATTACK
Chest CT and Neck CT w/ contrast today at 3pm followed by Onco, Rad and Thoracic Surgeon Appts. next Monday. Of course with my wife's pull, I will know the final results of the scans before I even get home tonight. Great if all clean, sucks if there is something and I have to wait one week for the Appt. to hear the bad…
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More on Fluoride Trays
So I've gone back and gotten some new fluoride trays built. The sets I've had in the past have consistently picked up a nasty coating, or were actually impregnated with residue from the Gel Cam and perhaps food debris. In other words, they got absolutely nasty looking, and nothing I did could get this stuff off. It became…
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First real meal... kind of
Hi, I just had a whole bowl of cocoa krispies with milk.First thing to go down right since my last meal about 2 months ago... Everything burns at one certain spot at the back of my mouth, it feels like its a sore. Will it go away eventually? My last radiation treatment was Nov 10th, and i can feel it getting better slowly…
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Possible email for delnative..ps sorry to be stalking you but we all are worried
I think this may be the right one Twitter J.L. Miller @delnative Delaware News Journal reporter Other jlmiller@delawareonline.com
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Swallow study results
Hello to everyone My dad just had a swallow study today and the therapist said the water did not aspirate into the lungs which is good. His muscles are weak and he is a little anxious about eating..however she said his esphogus is curved. When the liquid goes down it goes down anterior? I am still awaiting the actual…
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I'm about to have a nervous breakdown!
I just got back from my oncology appt. to review my recent PET scan, Head and Neck is great! NED! But my stupid left ovary has something growing on it. I'm just so tired of it. Have to go in for an MRI to see what it is. I'm just shaking right now, I just don't want to go through this again. I know I'm jumping the gun, but…
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Unknown Primary Can it be found?
Hi Friends, I am happy to say I am a Survivor, and have been NED for almost 1 year. I am playing catch-up on doctor visits, and going for a Upper EGD scope tomorrow. I have had an ulcer for years, and it only began to act up when my Ex starting acting up over the holiday. Coincidence? I think not! Anyway, besides the…
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1-year post scans
This past Friday I had my 1-year post CT scan and an ultrasound of my thyroid. The thyroid is severely damaged, mishapen and non-functioning - but there are no nodules or masses. No sign of thyroid cancer. Chill for another 6 months. I won't have the radiology report back from the CT until Wednesday, but upon my untrained…
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Blessed
I have never posted here but feel it's time. I want to say thank you to all for the wonderful information you all share. I feel I know each one of you. My Story: I am 44 and the mother of a 18 year old and 22 year old with a wonderful retired military husband. I was dx in May 2011 with SCC in a knot in my neck. It was the…
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PET Cancelled
Had to Cancelled the PET scan due to some other problems, it was not my normal 6 months scan just a mid scan to check on the aspiration in the lungs. I am still looking at possibly getting a PEG tube like Denny to help go around the issue with have to take everything in through the mouth and getting stuff accidently…
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Throat still sore
Seems like my throat should be getting better by now. I am almost 5 weeks post rads and the side where I got the most rads is still very sore when I swallow anything that has spices or is fizzy, even Ensure burns going down. It is not so bad if I am just swallowing. How long does this normally last? John
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Bump in the road
Just that, a bump, scar tissure, no sign of cancer. Yipee! Took a little longer to get diagnosis because Anthem Blue Cross and Stanford were in negotiations. I only had permission to see the doctor--no blood work, no proceedures. A bump on the scar site, I have no idea if it hurt, I am numb. Bump did not change in 2 weeks,…
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Decided to start some morphine... am I sleeping to much?
They gave me morphine elixir in anticipation of what's to come, it says 1-2mL every 4 hours = 1-2mg. My oral cavity isn't too sore, just the tonsil bed and left side of my tongue, but my rad burns are really sensitive... so I took .5 mL at 830am and soon after I felt really sleepy, napped. Took another .5 mL at 1230 and…
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New Cancer patient
I just found out that I have Head and Neck Cancer. I will go to MD Anderson in two weeks for test and then treatment. I have had two biopsies and have an enlarged lymph node. I have Squamous Cell Carcinoma. They do not know where the primary tumor is. I have two children, full time job and am a bit afraid of the changes…
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Radiation burns
Everyone reacts differently. I have 6 rads left, fortunately so far, my mouth isn't too sore, just the left side of my tongue and the tonsil base, like a mild sore throat. I'm still swallowing my supplements. The mucus isn't that bad and the glands are working overtime trying to survive, perhaps the right parotid being…
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Another Mucoepidermoid Carcinoma
Hi Everyone, I'm really glad I found you all here. Very nice to be able to read about others experiences and learn from it. This is not my first post but my first topic heading. My case is similar to others. Have had a lump on my right neck for almost a year. Showed it to at least four doctors who dismissed it as nothing.…
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Keep us in your Prayers - My moms cancer may be back
My mom had stage IVA Base of tongue cancer that had spread to the lymph nodes in both sides of her neck. It came back as HPV positive. She had 35 rads and 3 cisplatin chemo treatments. During her treatment we lost my dad to his cancer that he had been battling for 3 years. So we have had a rough time since April. She…
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Hondo's scan
I believe Hondo has a scan coming up next week. Praying for a great result and for his anxiety free wait. Blessings to all my CS family Debbie