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Head and Neck Cancer

THIRD Recurrence in 3 years
I have been reading this board since early 2009 and know how helpful and kind you are all. My husband was diagnosed with hypopharyngeal cancer in 2009 and went thru standard chemo/rads. Sept 2010 popped up again, same place, and he had radical flap surgery w/neck dissection. All was well until today when he went in for his…
ZOFRAN
Hi All, At what time frame after completion of Chemo and Radiation can you start to wean yourself off the Zofran? Currently taking two 4MG tablets each morning. Completed my 35th radiation treatment on Feb 8th. Thanks, Vickie
when to remove peg tube
Andy has had his peg tube for 10 months. It doesn't cause any problems for us and most days he uses it to get 2 additional cans of food for a calorie/protein/vitamin/mineral boost. He is still in chemo so we are hesitant to remove it since there are days he doesn't have such a great appetitie. It gives us comport to know…
check this out
http://goldenmedical.com.au/dry-mouth-treatment-by-saliwell-gennarino/ might try going bionic hehehe
Docs and the Truth
Saw something on tv today, may have been the Today Show. they were discussing docs who don't tell you the truth and whether or not that is a good or bad thing. I am curious to hear what your docs told you when you were diagnosed. I was stage 4 and my cancer was found by my ENT who is local. I remember he stuck his hand…
My little farewell
Had my checkup again today. All good two years out. In the beginning I didn't think I would be on here saying that. Really makes me realise you just have to live. Simple. Yes I know we have side effects. Just channel that to believing that's how it's always been. Reason why I say that is cause the doc said how's your…
recurrence??
Hi all, I used to come here everyday but got away from it after the first year, no reason, just didn't come. Oh, my cancer was of the lynax and I had 35 rad trmnts in Oct. 2009. I still suffer with the dry mouth and things still gettng stuck in my thorat. My question is: I got a scan back that said HIGHLY SUSPITIOUS FOR…
Bad news yesterday
Well the doctors came into my room to talk to my wife and me after the big tumor board meeting, to tell me that the cancer is inoperable and no radiation could be done, the tumor is growing around my carotid artery and could at any time collapse it or cut into it and basically kill me instantly. How do you take that…
33 year survivor is my cheerleader!
Hi, per comments on a previous thread I thought I'd share this. This survivor had the same cancer as I, SCC primary on the tongue. Hers was first noticed with a lump near her clavicle. She was in surgery the next day. They took 33 lymph nodes, and 18 were positive. They gave her a 1 yr survival rate! She had 3 preschool…
Submandibular Gland Swollen - no one worried but me..
Hey all. I'm glad I managed to stumble my way onto the CSN boards and I have learned alot from reading many posts. My question is to those of you who have been diagnosed with cancer involving the submandibular gland. Can you give me a timeline from when you first noticed the gland was enlarged to what led you or your…
PET scan results show cancer
so the results came back and mom will have another neck dissection like the doctor predicted, the enlarged lymph node on the right side shows cancer. He believes that it comes from the small second primary cancer on the right sidethat she originally had removed back in nov of 2010 together with the tonsil from left side.…
Skiffin16 - NWasen ~ It's A Small World After All...
A bit of interesting destiny.... I added Nancy Wasen (nwasen) on FaceBook earlier today. The first thing I saw on her wall was that she just friended Zack, my nephew. I was WTH, what did I do that my family is showing up on her friends list...thinking some how I was looking at my friends, but they were showing up on her…
squanous cell carsonma
My 90 year dad has been diagnosed with Squanous Cell Carsonma his inner left ear. He has been really good health until about 3 months ago, He is going to start Radiation next week, because the doctors says they can not do surgery on him. He does not want to have his teeth pulled, he only has about 5 or 6 left. Does anyone…
what did u tell me?
Somebody recently told me 3 or 4 things I should discuss with my doctor before leaving the hospital after my trake surgery. One thing had something to do with a mist machine?? I don't remember the other 3. If you see this post can you please give me the info again? I'm truly sorry but I've looked everywhere and can't find…
Has anyone been referred to a neurologist post treatment due to memory loss and stumbling issues
They have (his GP) referred my husband to a neurologist because he has short term memory loss 9 months out, but mostly becuase of his balance issues. They had him stand with his feet together and close his eyes. he was swaying all over the place. I am getting a second tomorrow with his oncologist. When I called her voicing…
Checking In
Hi all: It's finally winter time here in GA; going to 19 tonite! Wanted to update you on a few things. My sister's friend Fred got a good report yesterday. They feel they got it all from the surgery and no further treatment necessary at this time. Unnfortunately, Eddie, on the other hand is not doing well. He had one…
fluid
Has anyone on here had a plueral effusion in the lungs???
Moving ahead....
I wanted to let everyone know that I have decided to take a break for the Survivors Network. I have been actively posting and helping others since my diagnosis in 2008. Time to focus on other things. I will always be available for those diagnosed with my rare form of sinus cancer, Esthesionueroblastoma. Just need a happy…
Questions
Hello everyone. I am fairly new here. Have been reading a lot on the site. Truthfully, I did come here with my second diagnosis but was too freaked out at the time, I did better with the less I knew. There was actually question whether I was treatable at one point. So I am doing things differently than some I see here. I…
trake??
I need to talk with someone whoose cancer has come back. I was told today that my cancer has recurred. Surgery will be to remove my voice box. That I can deal with but I can't deal with the worse part of this, having a trake. Does anyone know anything about this? I want to know the difficuties with this as well as, it is a…
have you had a recurrence??
Hi all, and please forgive me for posting again but I'm extremely scared and can't quit thinking about this stuff again. I orginally had SCC (voice box) and it was treated with 35 rad treatments (Sept/Oct 2009). I'm still dealing with the side effects as I'm sure we are all. So now I have more to deal with. I was told that…
got a tonsillectomy to test why my right tonsil and lymph node was swollen only on one side...waitin
he found nothing that would raise of any concern. but he did see white little bumps or pus on my lymph node. he checked in my nasal and throat and that's all he told my husband. (i was knocked out from the anesthesia and when i woke up the doctor already left) he did tell my husband he still sent in the samples for…
Giving up or denial or both
My mom is 68 and she has had 1 Chemo and 11 Rads. She seems to be in denial,not eating or drinking. So we spend more time at the hospital getting fluids. Potassium low also. Not sure what to do... I am at a loss as to what to do. If she won't do for herself then, it makes it really hard to help someone that won't help…
Using fluoride trays while receiving radiation
I received a reply from long term survivor-Thank You-but decided to post this as new. My surgeon indicated that I needed to have my fluoride trays before starting radiation. While meeting with my Radiologist last week he said that I would not be using them during the time that I was receiving radiation. Receiving radiation…
Anyone get a facial breakout/acne post treatment? How is your wound healing?
I don't usually get adult acne, when I do, it's like one or two pimples. Several days ago, I had 6 pimples pop up. They are different though, and I'm not sure if it's because my skin is really dry and my healing is different due to treatment finishing 2 month ago, they open on their own, crater and scab in the middle. I…
The Epidemiology of the HPV/Head and Neck Cancer connection
Some new data on the rise in HPV positive head and neck cancers and one of the best discussions I've seen about the "why" HPV-linked cancer is increasing. Is it really a traditional STD? If it was, why aren't rates higher for women and gay men? So if it isn't STD related and sexually-transmitted (as other HPV-related…
Sore throat?
I finished treatment Dec12/11 for left tonsil Ca and left lymph involvement. I've had a sore throat the past week, it hurts a little to swallow near the top and down the right side. I vaguely recall this sensation near the end of and shortly after treatment, and I wonder if I've aggravated the area recently by eating all…
Has anyone beat the mucous problem with trachs?
I am at my wits end. I was diagnosed and treated (chemo & radiation) for squamous cell carcinoma in the base of my tongue. I am thankful that I am still in remission but the radiation just keeps on giving. On the recommendation of my doctors, I had all my teeth pulled before beginning radiation to prevent bone necrosis.…
Be My Valentine
Happy Valentine's Day!!! Just a quick note to say Happy Valentine's Day! Today is also my son, Johnny's, 5th birthday! So very awesome to celebrate each and everyday...pink hearts, red roses, and LOTS and LOTS of love! Hugs and blessings to everyone! XXXOOOO Valerie
PET scan comign up today
For those who know me and my mom's story: in about 4 hours my mom is going for the PET scan, please pray. This is a follow up on the CT scan that showed enlarged lymph node on the right side. Will give you updates on the results but we will probably have to wait a couple of days.

Head and Neck Cancer

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