NED but.....

Cathelen72

Hi everyone. So I just hand my first PET and MRI since completing treatment in early november for NPC and it came back NED but the scans showed calcification on the left side of my thyroid. Now we are going to do an ultrasound and biopsy to determine if I need to worry about my thyroid having cancer. Has any one gone through a similar issue?

longtermsurvivor

My thyroid was fried by radiation
It shows mostly atrophy on scans now. Here's the argument for this being no big deal. You have developed calcifications without a discrete mass in the thyroid. This happened during treatment for NPC. Think of the odds this related to treatment for your NPC. Now think of the odds this is cancer and just happened to come up at the time you were being treated for an unrelated cancer.

The odds are strongly in favor of this being related to your treatment, not a second malignancy.

Best

jim and i

No experience but I am
No experience but I am praying for a benign result.

Debbie

Ingrid K

jim and i said:

No experience but I am
No experience but I am praying for a benign result.

Debbie

mine were classified as "nodules" and no big deal
Cathelene: I had the same that longtermsurvivor says above-- thyroid fried during radiation...Just did an ultrasound 2 wks ago and they said what I had were "nodules", which they said were pretty normal for my age group (56), and nothing to be concerned about. They had put me on the Synthroid (sp?) a few months ago, and have been gradually increasing the dosage. I am hoping you have the same good outcome.

Skiffin16

Agree with LTS on the Odds
More than likely very high odds that it's residual related to rads from treatment.

Most have damage from the rads and many eventually either are or will go on some form of meds such as Synthroid or another synthetic hormone medication.

In your case with calcification, I have no knowledge other than a high probability of residual damage.

Best,
John

ratface

Skiffin16 said:

Agree with LTS on the Odds
More than likely very high odds that it's residual related to rads from treatment.

Most have damage from the rads and many eventually either are or will go on some form of meds such as Synthroid or another synthetic hormone medication.

In your case with calcification, I have no knowledge other than a high probability of residual damage.

Best,
John

I have one also
Found a thyroid nodule with me also. It's only a big deal because we fear the worst. They did a FNA and it turned to be nothing to worry about. I'm also on synthroid for a fried thyroid. The odds are with you on this one.

Cathelen72

Thank you!
Thank you all for your replies. I am not too worried now. My fingers are crossed for good results.

Catherine

Pam M

Cathelen72 said:

Thank you!
Thank you all for your replies. I am not too worried now. My fingers are crossed for good results.

Catherine

Crossed My Fingers, Too
Best wishes from another member of the Synthroid gang (Levothyroxine branch).