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Tonsil cancer- just diagnosed
My father was recently diagnosed with cancer not sure what stage yet. They found it in both of his tonsils they were two small blooms that are scheduled to be removed on Monday. Can anyone help give us some ideas of what to expect, when we start radiation/chemo (we are not sure which will be the treatment). We are trying…
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60 days post treatment
Hi everyone. I entered this journey with Tonsil cancer, having spread to lymph nodes (StageIV) in Aug. '11 I had Chemo and radiation together. 3X Chemo and 40x Radiation I am now 60 days POST treatment.My last Radiation was 11/11/11 My last Chemo was 10/31/11 I feel good. I really do Strength is returning.I work full time…
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Swelling
My husband finished treatment in Oct for throat cancer. In January he was given the NEC. However, he is still on a feeding tube. They did a swallow study and determined that the swelling was such that it would probably be at least 3 months before he could swallow. He chokes almost every time he even has liquids. Has anyone…
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It hurts when I masticate
Out of the gutter again... Just checking to see if anyone has/had the same as I am in a very paranoid phase at the moment: When I eat I have started having pain in my jaw, just by the bottom of my ear on the left side (where my main radiation was situated). The more I eat the more painful it becomes, like a tiring muscle.…
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Husband went to his neurologist appointment today - Neauropathy
I guess I need to research this a little more. Doc said he has Neuropathy in his feet and legs. He will have an all day test on 2.13.2012 and she is sheduling a Cat Scan. I will talk with him a little more tonight when I get off of work.
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everything changes
Hello everyone, hope everyone is doing the best they could at a very sad time. I have been in your shoes, not the person with the cancer, my husband died 2 weeks from supragottic cancer of the throat. That was 15 months ago with the dx. That was the hardest 15 months of our lives! He got so sick form the cemo and rad…
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When do you "STOP" eating because of Radiation?
Sorry it has been a while since posting. My Dad has had his ups and downs. Certain health issues have come to light, and are being address as long with the SCCHN. Turns out that he has had several serious infections (the doctors think that he has had the infections longer than the cancer). He is being treated for…
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Sweetblood
Are you doing ok and still posting?
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hold on - They said my husband has Ataxia and Neuropathy.
I was wondering if anyone else has the same diagnosis. Is this a progressice disease?
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I will be checking back in
Thanks so very much for all of your thoughtful messages! I just had to right down my thoughts of the past 2 weeks since he has been gone. Every day I say " I love you" don't know if he hears, but don't care. My sister just left, she spent a few hours with me. Was a nice quite visit. When she left she said "It's just you…
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starting week 3 of 7. Chemo again this week
Hello all, Well I've had a rough go of it last few weeks. Cisplatin kicked me in the pants. I have absolutely no appetite. My veins are shot from the Cisplatin, but thank god for great ONC Nurses, they seem to always get an IV site on me. I've gone in for lots of iv fluids, also I broke a rib vomiting. I decided to get the…
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Starting RT Soon
Hi All, I am healing well from my neck dissection and I must applaud my surgeon for leaving such a minor incision. He used dissolving sutures and Super Glue, which I keep picking off daily as it heals. Last Thursday I was fitted for my head mask. That was a weird one, with the hot soft plastic covering your head. Had to…
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My pain meds and pain ?
I take 2 30 mgs of Morphine 2 times a day and up to 6 hydrocodones 10 mgs for pain. All that does is make it almost bearable. My jaw is trashed from radiation. I have a cyst in my jaw bone now and bone deteriation in my jaw. Im only 46 and as time goes by i keep hurting worse. Along with that it seems all my bones are…
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15 MONTH NED
Just saw my ENT Wednesday, and received a NED 15 Mos. post treatment. So far so good. Shooting for the two year mark now. In short, pay NO ATTENTION to survivor rates and %'s. BEST!! Mike
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Reactivating saliva and vaccinations ( Depress immune sys )
Hi to all my compatriots out there. I am really lucky with my new dentist he has dealt with friends with dry mouth and has made me some moulds with small reservoirs to wear at night.He has also mentioned some eye drops from Austria which when drunk can activate saliva with side effects of sweating. These are for short term…
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Carboplatin + Erbitux Side Effects -Round 1, Weeks 1 to 3
Thought I'd post quick update on how my treatment has gone since I was PET diagnosed with my SCC having matriculated to both my left lung and liver. Two years ago I was treated with radiation and erbitux for Stage IV SCC to the valecular region of my throat. My current treatment protocol is for 18 weeks of carboplatin with…
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just wanted to say thanks
This is my first post and I just wanted to say thanks for all the support and help getting me through this Tough time… I was diagnosis with throat cancer back in June 2011, SSC right tonsil stage 4 several lymph nodes involved HPV+, a few weeks later I had my tonsils removed and all my teeth pulled to get ready for…
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hold on - They said my husband has Ataxia and Neuropathy.
I was wondering if anyone else has the same diagnosis. Is this a progressice disease?
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How do you tell the people around you?
I find myself a little lost at how to tell folks what I am going through? I don't want to shock them, but it is always a terrible shock to tell them I have cancer. Tomorrow I am attending a conference with my boss and she said that many folks have been asking about me (word is getting around that something is up). I'm just…
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Finished treatment Dec12/11, how I'm doing now...
I was never given a stage but I think it would be T1N2M0. Primary in L tonsil, L lymph node involvement, HPV+. L tonsillectomy Sept21/11. IMRT 35 and Cisplatin week 1,4,7 mid Oct through to Dec12/11. Looking back, treatment was a blur. I had a followup appt with my RO Jan13/12. My stomach tube was removed, hadn't used it…
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Starting Radiation, what to expect.
My husband is starting radiation tomorrow, 5 days a week for 6 and a half weeks with chemo still once a week. He has stage 4 tonsil cancer. He has been doing chemo Cisplatin, Taxotere and the (FU pump 24-7) for the past 2 months. He also has Parkinsons Disease and is 52 years old. The chemo was just horrible on him making…
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Parotid gland cancer
It will 2 years Feb 5th that I was operated on for parotid gland cancer then I had 33 Rad. treatments then in 2011 the cancer came back only this time it was in my right shoulder blade so I had 14 more Rad. treatments and have had chemo and am still getting small dose of chemo once a month. I am still here today because of…
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Chemo question.
I've been on chemo for 6 weeks. After a CT, I found out that 2 lymph nodes shrank, but the tumor on the base of my tongue enlarged. My docs have offered to add Taxotere to my regimen. They'll take away Erbitux and keep Flourouracil and Carboplatin. Anyone have experience with the new combo? How about with Taxotere? Thanks!
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another neck dissection on opposite side 14 months later
Hello everyone. I need your help and advise,here is my mom's story: 10/30/2010-diognossed with stage 3 tonsil SCC with one lymph node 11/15/10-surgury to remove tonsil and neck dissection, during surgury another small cancer approx. 0.3 cm found on hard palate also removed. 2/17/11-finished radiation, no chemio was…
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50/50... the true stat to live by, an excerpt by Brian Hill, OCF Founder
Well said, thank you Brian... "I deal with lots of doctors as part of my work at OCF. Treatment people from all disciplines and researchers both. I work with the SEER database numbers routinely as we are looking towards the future by reviewing the newly obtained data from the past. Of all these people, one good friend at…
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BOT
A person I know was diagnosed about 1 1/2 years ago with BOT cancer he did not have any surgery but did do the traditional rads and cisplatin. He elected to have a PEG and a Tracheotmy due to some issues with aspiration early on. When I first saw him a year ago he was several months post treatment. I recently saw him and…
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Let's all pray for UN-Matted Nodes!!!!!!
Well, it's probably a question we don't really want to ask our doctors, but I thought this article was interesting!!!!!! It would be great for future newbies who could benefit from lower treatment protocols. The presence of “matted” lymph nodes in persons with oropharyngeal squamous cell carcinoma (SCC)—that is, nodes that…
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GLIOBLASTOMA
SEEKING INFORMATION ABOUT GBM OR GLIOBLASTOMA
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pain meds
I am posting tis to ask for any info on what others are using for pain managment. I was diagnosed with adenoid cycstic carsonoma in sept 03 had radiation and was told I was good to go. Unfortunatly its not turning out that way. In the last 2 and a half years I've had 3 more operations and 5 teeth removed because of…
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PET Scan on 2/1/12
This is my first post. I wish I would have found CSN a long time ago. I am 8 months post radiation and chemotherapy. Was diagnosed on 3/23/11 with SCC base of tongue - stage 2 with no apparent spread. Surgery the next day then seven weeks of radiation with three chemos. during. I experienced the usual hell - had wisdom…