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Diode or Erbium-Yag laser treatment on mouth sores..
Has anyone gone through this while going through radiation treatment for Base tongue cancer?? Does it work? is it worth it? Thanks! AG
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Good Day
NED results today.....yeah
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Help! Another problem?
Fiance has peg tube four months now and it has been going well but since this morning whenever I am flushing the tube the flow of water going down is very slow (unusally slow). A 60ml syringe of water usually takes like 15 seconds to go down and as of today a syringe of water takes maybe 2 mins.....is this normal???? ALSO,…
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Visit with ENT
Well went up to Penn State Hershey today to see the ENT, as said I have been having throat and ear pain for a while now, was off and on this past week and noticed some pain also in the right ear once or twice. Had a real good going over. tube through nose into throat, everything looked good, estucheon tubes clear. Soreness…
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Going to visit the doctor tomorrow...Updated
It is the one month check up after the rads were completed. I'm assuming she (doc) will take a look around Pats throat. Hoping and praying for a positive visit!!! Jamie Update: It was a great visit, and yes, a relief to hear the Dr. say the words "everything looks great"! After determining how well he seems to be healing…
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Prayers this week please
Both KTeacher and I have scans this week. Mine was a recurrance next to carotid artery and hers was mets in the cheek. I'll be traveling to Mayo Wednesday. Praying we are both able to bring good news home to family for the holidays. Candi
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Cancer Hurts
I have come to the conclusion that even after you beat cancer it comes back and laughs in your face. Last Thursday a Business Agent I work with, his wife died from it, and now today the Secretary/Treasurer of our local was told he has a brain tumor. They are shipping him to Philly tomorrow. Not diagnosed as cancer and…
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Pet scan colors
Cancer was first seen in my mouth in April. 5 months later after it rapidly grew it was removed by ENT doctor/surgeon. Pathology said it was cancer. Frozen slice biopsy of tissue around tumor removal showed no cancer. I was refered to Cancer Center of Brevard they told me cat scan showed some enlargement in saliva gland…
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a cold!
Or at least so I think, we travelled to Florida last week and my wife brought home a cold, which she promptly gave to me. This is my first illness since treatments (last rad was July of 2012) and I don't recall any of the doctors telling me anything about getting a cold or flu and if there is a challenge getting rid of the…
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Anyone find themselves watching food network 24/7?
I am a foodie.. .my wife and I have travelled the world for good food and boy... do I miss food!! I watch food on TV constantly lol. Soon to be finished with my 6th week of treatment. God bless, Jamie
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An introduction
Hello all- My wife, who is a 36 year old mother, has been recently diagnosed with Squamous Cell Carcinoma of the left tonsil with lymph node involvement. She has had a CT scan a PET scan, needle biopsy, and blood work done. On December 12 we went to Stanford to see their tumor board. The official results are T2 N2B M0 SCC.…
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PET tomorrow~~~~UPDATED
Prayers for a clean pET on Rob tomorrow. 6 month scope also. That's is all I want for Christmas. Sandy Doc scoped and looked at PET images and said all looks great. official pet report in a day or 2. Thanks for all the prayers and MERRY CHRISTMAS. Sandy
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Who has swallowing issues and what do you eat?
Was on a g-tube for 10 months having radiation and chemo at beginning of year and then recovering from the ordeal. My last surgery on my tongue left me with maybe half of it but a good deal of muscle and tissue was taken underneath and floor of mouth so I have a exposed area along my right side of gum line and teeth. My…
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Jaw clenching?
Hi All- Just a quick question. I have not been online in a while, and am praying for a 5 yr clean scan in 2014. Meanwhile, I am clenching my teeth, causing my TMJ to act up. I have taken different medications to no avail. I think it is stress, as I have a lot going on, but was wondering if anyone else has experinced this.…
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On a liquid diet
Now that the mouth soars and getting worse the radiation oncologist has directed me to high calorie liquid intake only - I have a PEG but do not have to use it yet - my question is best time to flush the PEG now - I have been drinking water all day, sucking down milkshake and ensure, when I went to flush and opened the PEG…
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Temperature issue?
Hi Guys, I don't now if I am over-reacting or not (probably), but I thought I would throw it out there. Two nights ago I ran a low fever of 99.1 for about three hours until I took some Tylonal and it went away. Tonight I was feeling a little icky again and checked my temp and it was at 99.1 again. However, by the time I…
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New (and best ever) C-word!
We had an appointment with my rad-onc last week--my annual visit with him. He went through a summary of my current status (ORN, trismus) and upcoming events (neck resecting in April) and then finished by saying that he considers my cancer to be cured! He is the first doctor to say that word to me, and it really hit home…
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scanxiety
Haven't been on here much lately, at least as far as posting. I stop by and check in on everyone frequently. Tomorrow is my scan for my 6 month check up and have been having a lot of anxiety about it. Trying to keep myself busy and my mind busy but haven't been real successful. Would take all the prayers I can get for a…
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woke up on wrong side of bed yesterday
I did a boner yesterday. The appointment had been bugging me for the past few weeks. Scanxiety or just fried....don't really know. I called and cancelled. Got more than alot of grief from family members. My last appointment the doctor told me (onc.) that pretty much nothing more could be done other than follow the…
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Another bullet maybe
Have had a nagging sore throat, more like sore side of mouth and lousy earache for a couple of weeks now, when I put my finger in my mouth and feel the spot that hurts I can make it hurt more. At first thought it was my lousy fitting dentures but have not used them for a few days and still the same. have an appt with ENT…
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1 year anniversary
I have been so busy at work I didn't realize 12/10 was my one year anniversary of my last treatment.getting ready for 1 year tests and all that crap but feelin ok-
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7 rads to go and....
I have been plagued by a terrible gag reflex that now has be basically mute. Talking makes it happen and I have to drink water a million times just to say a few things. To me, it seems to be mostly in my head - like mentally I just can't get past the swollen feeling of my tongue and throat. They don't even hurt very…
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All of the sudden
All of the sudden this weekend the scractchy throat and loss of taste has prevented me from eating like a did a couple days ago - I am only 13 treatments in - and now even soups are not working - I am guessing I will need to start using the PEG tube now for food - so looking for recommendations, help, sorry - don't want to…
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A Light Bulb Just Came On In My Head
Hello All, Those of you that have actually been through this nasty mucus stuuf, please correct me if I'm giving wrong information. I see some of you posting about this strangling, foul tasting mucus & for some reason I didn't remember this until now. The last few times that Ron was hospitalized, he was provided with a…
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Finished 28 of 33 rads I see a peg coming
We have not posted in forever. No excuses just trying to "geter" done. However we read all the posts and you guys have been so wonderful supporting those who need support and giving information straight from real experiences. That is a huge help. Brief update hubby finished 7 weeks of chemo. The deadly Erbitux Rash did go…
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That Time Again
Hi everyone , while I don't post all that often anymore , I still stop by now and then to see how you are all doing . As for me I'm sitting waiting to go into my 6 month CT scan , had my labs earlier this week and all good, see my onco next wed for the checkup ... But still the scanexity ... Even though in 2 weeks I will…
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PET results
As I stated in earlier post Jim had a PET from head to thigh on Tuesday but appointment for results not until January 14, 2014. Imagine our shock when the oncologist called yesterday with results. Nodules in lungs still progressing but slowly, cancer now in chest bones and left jaw bones. and fluid in left lung probably…
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Bonehead klutz move almost killed me this morning!
Hello all, Was doing fine swallowing only 1 1/2 weeks of Rads left, eating my cream of wheat and enjoying it. Thought I would start back taking my vitamins I had to stop for g-tube surgery, so popped a big fish oil capsule in my mouth and then the fun began.... Started to gag as it got stuck somewhere in my throat. Tried…
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INFORMATION FOR ROLL CALL 2014
Am extending my appreciation to all of you who have participated or enrolled in the Roll Call forum. Enrolling is voluntary. Roll call 2014 will be updated from the information posted in the "Roll Call 2013" thread. Someone brought up the 2012 thread and there were some updates listed. Do not repost and I will transfer…