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Adenoid Cystic Carcinoma
Hi there! I'm just wondering how many people on here have been diagnosed with ACC, what kind of treatment you've received, and how long you've lived with this diagnosis. My primary tumor was the submandibular gland in July and it was removed in August. I've got new growth in the parotid now and another near the middle of…
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right side tonsil squamous cell carcinoma spread to one lymph node in right side neck stage 2-3
Hello, I had my operation on 09-012-03 and followed with 35 radiation treatments ending 12-31-03. They removed the right tonsil and the l3 lymph nodes in my neck and throat area plus other tissue in the area. The operation was called a radical neck dissectomy. My throat and mouth are dry requiring me to carry a water…
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Safe to have baby after treatment?
Hello everyone. Need your personal advice or experienced opinion. Is it safe to start having baby after recovering from chemo and radiation therapy for head and neck cancer? Would the treatment affect the health of the fetus due to genetic change or damage from treatments? I am 40 y/o male and 1 month out of treatment.…
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Regaining appetite
My husband had three chemo (cisplatin) and 35 RT to his sinus cavity and neck. Last treatment July 25th. He has a PEG tube and uses it for most of his nutrition (Ensure PLus). He will try to eat a bit in the evenings for supper, but its very little. He says he has no appetite. Any suggestions would be helpful and…
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Merry Christmas - I miss you all!
This January will be my 2 year mark with clear and clean scans / checkups from my stage III throat cancer. There is no way I can express how much I love every day with my family. You spend many days going through treatments looking at the faces of your children, you spend many moments answering question from worried little…
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H&N Cancer, not Esophagus Cancer. Late, not early
Saw the surgeon today. He looked at the PET scan, and its not good. It is head/neck cancer and it extends into the esophagus. More tests are needed to see if is operable. That should be Monday. If it is, he will remove the esophagus, the voice box, and put in a trachea. If not operable, then chemo. Prob not radiation,…
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Wanting my G-tube out!
It is 3 am and my g-tube woke me up again. It starts to hurt, mostly ache or throb around 2 or 3 am. This one has been in place for 3 weeks. The one before that for less than 24 hours. I change positions, prop myself up fiddle with it, etc. I am basically tired of the tortue it has brought me. I am still eating and…
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Scans on Thursday
I have my CT and PET scan on Thursday. I went to the oncologist this morning that I used in 2007 (and have been seeing regularly). He schedued the scans - I should know by the end of the week where I stand. So, now I can enjoy Christmas, instead of waiting for a call. Except for the food part. I still can't eat. But, I did…
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Suction pump
I am a long term NPC survivor and had to get a feeding tube just over 2 1/2 years ago. My swallowing has continued to worsen and now I am looking for a suction machine to help with saliva/secretions that I am having trouble swallowing. I have insurance but there is a high deductible and I have found that it can be more…
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So, I finished today!
Now for the dreaded week 8 and the recovery. I hope I can get back to work pretty quickly. I still have quite a bit of stamina. I never had a feeding tube but it makes eating a challenge at the moment because it hurts like heck to swollow anything. But, I'm sure I will overcome that. Thanks everyone for the support... I'm…
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Esophagus skin sloughing off...
How long does this happen? Also, I don't really have that sore of a throat anymore (maybe because I'm wearing a pain patch), but the food supplements (SPIZ, Carnation Essentials, Ensure, etc) all cause a thick mucousy situation that is hard to clear out. How long does that last? lol Thanks again guys and God bless, Jamie
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Merry Christmas
Just in case you get busy and don't get on during the next week, I just want to say Merry Christmas and Happy (Healthy) New Year to my CSN family. I pray you have a safe and wonderful holiday season. I know many of us are looking forward to the end of 2013 and praying for a much better 2014, I hope it is better for…
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False teeth
For you guys that had to have all of your teeth removed, how long after treatment ended were you able to get dentures? Thanks and God bless, Jamie
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Food taboo for cancer survivors?
Happy Holidays everyone. Well, I am finally having food craving after finishing treatments for three weeks. I want to eat hot dogs, tacos, burritos, sandwiches, soups...etc. However, I was advised by family member to stay away from beef and raw food such as oyster and sushi. Does anyone have a take on this issue from your…
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NED!!!
Scan results are in, NED!! Best Christmas present I could have. They ordered more blood work, they think my thyroid may be fried from the radiation but other than that, all 3 doctors said everything looked great. So blessed, thank God for answered prayers.
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I am Joining the Thyroid Club
Fellow Thyrodians, As you can see, I am trending higher and I will be adding Levothyroxine to my ever increasing pill regiment. Prior to cancer, I only took Prilosec, now I have my own pill box. Oh well, now that I am crossing over who is going to teach me the secret hand shake and where is the club house? Is there a…
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I finally met him
It has been a long journey, I have finally met NED! MRI Tuesday morning, 2 doctor appointments in the afternoon. Cancer is aggressively DYING!!!! It wasn't just my nerve, I never heard the word tumor in September. I just heard the 'c' had returned 6 months after treatment and I guess I just shut down. There was a tumor in…
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Merry Christmas Y'all
Hi all: Just wanted to wish everyone a Merry Christmas. I'm headed to in-laws in a couple of hours. Have now left J0-Ann's and will be able to sub full time starting after Christmas. Already have 3 days in January booked. No more nite or weekend work so I'm excited. I'm grateful I had the opportunity to work at Jo-Ann's…
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Anyone have this happen with insurance and rads?
Had a Christmas surprise after rads today. Two ladies from billing came to see me about Cigna who decided the last week of radiation that I would have to pay $40. each day of radiation which amounts to about $1300. This came as a surprise and we (the Century 21 oncology center), me and my Cigna oncology case manager…
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Stitches keep PEG in place instead of rubber seal - common?
I have a feeding tube. However, instead of a rubber button holding the tube in place on the outside of the stomach, I have stitches that hold the tube to the skin. The problem I have with this recently is that when the stomach wants food, it growls and spasms. The tube get pulls inward then pushes outward like a tug of…
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A CSN 'Twas the Night Before Christmas & The 12 Things of Cancer Such a Pain to Me ~ Sweetblood22 ~
I took the liberty to update and revisit Dawn's poem of a few years ago, and add some of the newbies that have joined the family since then... This poem, was literally, inspired by a dream I had a couple weeks ago: The Night Before Christmas 'Twas the night before Christmas, and all through the place not a CSN member was…
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Partial reversal of aging achieved in mice by restoring mitochondria cellular communication
Not easy, but very interesting read at: http://ge.tt/29tj9ZA1/v/0 . Hope this link is still active, so that you can get the full article. There is also a cancer connection.
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What is best for the neck burn and itch?
I have a cream called Alra which the R/O gave me to use and it is soothing and I apply it 3X a day, but the itching is getting to me. I know I may take benedryl but do not want to as it makes me too sleepy to drive. Any thoughts on what to use for the itching? PJ
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He's Eating Popcorn 26 days post Rads!
Well, it is 26 days post last radiation, 31 days post chemo and 33 days after his PEG tube was placed and he ate today for the first time! We went to the movies and I got some popcorn - he was so hungry for food - he started eating popcorn!!! I started to laugh outloud and then we went to get a burrito. Like everyone says…
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Tongue Problems- tongue doesn't cooperate eating and specking
Tongue Problems It will be 1 year since my husband was dingoes with neck and head cancer and recent PAT scan has showed more cancer so I am busy making all this appointments with university of Chicago, but mean time my husband has develop new problems in his mouth. His right side tongue doesn't cooperate eating and…
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To those receiving rads now
Friends with ongoing rads, This is a little off the beaten path, but did you know you can have your treatment watched by others, i.e. caretaker, It is an experience not for everyone but my wife was glad to see the whole procedure (pre-mask, mask and rad treatment). I am glad I asked as I wanted her to see what all the fuss…
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Chompers
Dental health is a concern of many and it's been discussed here on many occasions. I first saw a post about it and it kind of freaked me out that my teeth may go buh bye several years down the line. I had an extraction prior to treatment and a deep cleaning. I also have some issues with receding gums and bone loss. I went…
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Xanax (sp?)
Hi All, I have a prescription of Xanax .5's of which I take one every day before I have rad treatment. I have two rad treatments left. However, I struggled sooooo hard with the last few treatments, I'm wondering if it is ok for me to take two of those buggers to get me through. Have any of you ever doubled up on your Xanax…
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off topic but need prayers
It has been a bit of a roller coaster ride since my daughter was born 3 weeks ago. Our 2 year old has been sick almost constantly since then which is really unusual for her. So, my hubby & I have been doing what we can to keep the two of them separate. Apparently we did not do a good enough job. My 3 week old started…
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Ear change
Have noticed that my ears are not producing any wax. Usually had to clean them at least once a week and was better after a warm shower. Now after 7 weeks of radiation and 3 rounds of Cemo - nothing. My last treatment was 8 months ago for neck cancer. Any ideas? Anyone have this? I'm seeing my ENT monday and hope to…