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NED . . Thank God. . =)
Hi Everyone, its been 1 1/2 years since the first diagnosis of my husband. He was diagnosed with Nasopharengeal CA stage II. Today the we have just received our early christmas gift.His second MRI was done last week and it came back as NED. I would like to encourage eveybody here to trust God and dont doubt his power.…
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They say you cant go home again
but I know that does not apply to my CSN home. Its obivous that I have not posted in a long time, although Diane keeps me up on whats going on and her Facebook updates as well.. Well for those that know or rembember me I am doing fine and recently received NED in early November. For those that have not met me I was dx with…
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A little update after long time
Hey dear friends!! I know, I know, I did not post here lately, but to tell the truth I really try to live life without thinking too much about cancer. Especially because my daughter will get another sister/brother - I am 4,5 months pregnant . My dad finished his treatment 14 months ago - he had 35 rads and 7 chemos for…
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Finally some good news for all with mucositis mouth sores
Hello all you great survivors, this is "discouraged" who has been batteling severe pain from a failed g-tube surgery last week and a whole mouth full of ulcers. Yesterday, at a desperate attempt to get a second opinion on what my R/O thought was thrush, I went to my dentist. He agreed with me it was radiation induced…
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Getting the port out
next Monday.....yup, after a year and 3 months, all the mechanical parts of treatment will be gone in less than a week. So....my big question..........does it hurt? I'm nervous, and I have no clue if this is going to be like getting my PEG removed, or if it's numb and there is nothing to feel. Once this thing is gone, my…
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What to expect when treatment completed
I have finished my third and final bout of chemo 5 days ago. I will complete my radiation in 4 days. My question is; I am very tired and weak...can barely lift my arms, legs or move about. What can I expect in regard to the body response to the completion of the treatment? Am I going to get weaker still or how long before…
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Chemo and vein pain
Any of you guys get sore veins where they IV'd you for chemo? Man, the IV I had on Tuesday now has that vein sore from top to bottom in my arm. God bless, Jamie
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So we are heading up back to Mayo
for our first post rad and chemo pet scan...we have it on Monday....I like most everyone here am a little anxious and scared...My throat still hurts and feel swollen...my wife tells me it is just the post rad scaring and I am hoping and praying she is correct...but the question I want to ask...is does the mucus and spit up…
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stoma closed
haven't been on here for awhile, lost the website, I'm a almost 3 year Laryngeal cancer survivior and got my trach out this past 2-13-13, my stoma got smaller but had it in for over 2 years, and then finally got the stoma closed up 9-30-13, I am so overjoyed and blessed, bjw1955
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Constipation
How did you guys manage it? God bless, Jamie
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1 down 34 to go
One radiation treatment down, 34 to go - I finished my first rad treatment today - needed 5 mg valium about 20-30 minutes before putting the mask on - I tried it first but it seemed too tight around the shoulders - so they quick dosed me - then went in laid down, got strapped down, still a little unsure I waved my hand but…
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4 Years
Today it is 4 years I was told I had cancer. Kenedy's assination seems like yesterday, being told I had cancer feels like hours ago. I can still remember sitting in the doctor's parking lot thinking how am I going to tell my wife and kids. With Thanksgiving a few days away will I see the next? Four years later I sit here…
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South Louisiana Food
Well, I'm starting to get bummed about food. I am born and raised in South Louisiana and food is life here - and now I'm starting to totally lose the taste of things. So, I have two questions: With my radiation for tonsil cancer, will I ever be able to eat spicy foods again? Crawfish? Gumbo? Hot sausage? How long into…
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Sinus infection
Anyone else having sinus infections after radiation in that area? I seem to be on a once a month sinus infection here. Calling ENT tomorrow.
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Near the End - What Worked For Us
Happy Thanksgiving to Everyone. This site has been great for us and we appreciate all the advice and inspiration. My husband is near the end - last chemo this week and 2 more rad treatments next week (total of 35). It really has gone by fast. While everyone is different - here are some things that helped him through. 1.…
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bloody phlem
I just coughed up some bloody plem is this a side effect anyone else has had....I am 8 weeks out of radiation....and don't know if this and the coughing and hard to swallow thing are all somewhat common side effect...help
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Nasal or throat cancer?
Hi I am 21 yrs old male And i have been sick for about 5 months. I have persistent nasal block in left side of the nose and it gets worse at night. I can feel mucus draining down from the back of my throt and have recurring sore throat. I get sore throats every 3 weeks or so. i feel tired like i want to sleep and my legs…
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We got another dog....
I've thought for a long time that Lola needs a partner in crime....and started watching the dog pound. They had a German Shepherd there, and I wanted her SO bad I was there for 4 days in a row, but the owner came in and claimed her the day she was supposed to be moved to the adoption side. While we were there, Greg spotted…
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Update, All is Well.
Hi, just wanted to check in with an update and good positive news. Ruben completed treatment in June, (tonsillectomy, G-tube placemnt, 35 rads, 3 concurrent chemo's) and was declared NED approx. 6 weeks later. Progress has been slow, but pretty much steady. Stamina is low, but improving; he's starting to eat with the help…
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Biotene Gum
Anyone use Biotene sugar free gum or other chewing gums recommended by their docs - other than the use of the gum to help stimulate saliva has anyone been informed bhy their docs or their help teams that chewing is a good exercise for jaw movement and swallowing - just wondering - I am going to pose this question to my…
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New to site feeling helpless
Hi everyone, I am new to the site. Feeling a little lost and helpless. Here's my story. About a month ago my husband, who is 51, non smoker and non drinker, went to our PC Dr. with swollen lymph nodes in the left side of his neck. He was put on antibiotics for two weeks. After no change in two weeks our PC Dr. scheduled a…
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NED
20 month CT skan./...BED!!! Feeling good! Ann
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Update
Hello my fellow Warriors and Warriorettes, It's been a while since I posted on the boards. I've popped in now and again to read a few posts and see how you all are doing but my time on the boards has been limited. This was self imposed as I needed to do so for my mental health. While my attitude is positive I found seeing…
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Moving!! Wrapping up a crazy year :)
We are officially moving! Our house sold in 21 days, and we found one that we just LOVE! It's ON the lake (you can have a dock, small boat, but no swimming), so it's not a party lake, but a relaxing lake. Our date is January 3rd. 2013 was tough...so I feel excited and BLESSED to start 2014 off in a new home. For those of…
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Feeding tube and vomiting
Hi. I've been using the feeding tube and pumpled 400 ml wihtin 2 1\2 hour of Boost VHC. Stomach felt OK but when lied down to go sleep, start to feel nauseaed. Had to get up then had a phlegm of sticky milky texture of the Boost in the back of the throat. Tried to gurgled it out and end up vomiting. Any suggestion on how…
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RON IS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
NED NED NED NED ron is ned finally oh thank God and thankyou all who gave us advice and support!!!!!!!!!!!!!!!!!!!!!!!!!! time to restart life. God Bless you ALL thankyou from the bottom of my heart for all your support and prayers. Janet
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Tooth decay post tx
I saw an oral surgeon this week who mentioned info new to me. Thought I would share and also other input. Dental decay post treatment is mentioned here so it is real and important we do what we can to minimize these issues. My impression to date is tooth decay, not jawbone issues, are caused by radiation treatment. He…
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1st check
had first checkup today. camera up nose and down throat. the surgeon said everything has been successful and I was clear of the cancer I had. I now have to go only once a month for a while then yearly. My lack of being able to swallow was because I still have swelling in my throat but I did manage to swallow a little…
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HELP Husband's Recent PET Scan Results
My husband finished his treatments mid august, we found from the PET scan that basically it did nothing he had 6 weeks of eurbitux and 5 gammaknifes. The tumor has not gotten bigger but it didn't shrink either still the same. Also, the cancer showed up now in two of the lymph nodes what does this mean. Can they treat this…
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When did you guys start getting a sore throat?
I am finishing my third week and still no sore throat - trust me, I'm not complaining. I can still eat whatever I want as long as I can tolerate the taste. When did you guys begin to suffer from a sore throat? God Bless, Jamie