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Bored
I,m getting bored with my diet, for the last two months I,ve lived on liquid feed and water. I know I won't be able to taste it but can I have Luke warm sweet coffee through the tube, I hadn,t seen any postings on beverages. I miss the energy surge in the mornings but I don't want to upset my stomach.
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Thrush?
how can I get rid of blisters in my throat and roof of mouth. I,ve been to my doc twice and the medication he prescribe isn't any good. I also have a white coat growing on my tongue like curd. what causes thrush. I,m on OSMOLITE 1.5 bottle through PEG tube. I,ve not had anything by mouth for a couple of months. saliva is…
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NPC and Dry Mouth Recovery
Hello! So the background info... I am a 28 year old female with nasopharyngeal carcinoma. I discovered it with two pea-sized bumps on my neck. They kept getting bigger but doctors didn't think anything of it. Finally, a year after the discovery, a biopsy was conducted, and the pathology reports indicated that the growths…
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fluid in lung UPDATED
Jim has not been feeling well for a few days. I thought he was just down from not being able to fish because of the weather. This morning around six he woke me saying he was in extreme pain in his chest. Exray showed fluid in his left lung. We are waiting for the oncologist's nurse to call so they can work him into the…
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What are your thoughts on this article about unfair expectations of positivity?
The following links are to an article about unfair expectations of positivity. The first link is the article, the second link is the comments section where some interesting insight is posted. The article addresses a topic that deserves consideration as patients deal with the aftermath of diagnosis and treatment. Link to…
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Mouth dryness at night with teeth pain
I'm into the second week of radiation treatment for my NPC. I notice my breathing that air exhaled out of my nose with some escaping through the mouth. This cause the mouth to be open at night to allow the air to escape. I noticed this cause my whole mouth and tongue to be dry. Had to wake up and drink water to wet. But…
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lymphedema
I am 6 weeks post radiation treatment after rhinectomy. The swelling around my eyes is especially bad, my whole face not AS bad. My ENT said the other day that it was lymphedema and could be treated with facial massages. Does anyone have any info to give me a little clue? Does anyone else get non-answers from your medical…
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Hiccups
Hi Everybody - sorry to post maybe a low level issue - but had first rad Mon, chemo/rad Tues/ and 3rd rad today - I now have developed hiccups that started this morning and are still going on - I read some of the past threads and posts back in 2009 - and they did experience this and I have read some studies on line from…
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It's that te again
Good morning and hope all of my CSN buds had a happy Thanksgiving. I have a scan later this morning and could use some good MOJO. Hope to post some good news in a day or so. Best Mike
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Cora arrived!
So our sweet baby girl arrived a little earlier than expected yesterday. My water broke yesterday morning at 2:30 am & she was born at 4:15pm. She was only 36 weeks & 5 days which is preterm so she is being monitored in the NICU until her breathing is under control. She was a very healthy weight of 6lb 10 oz & has a head…
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Thick saliva management inquiry
Happy Thanksgiving everyone!!!! I am thankful to have finished my treatment two days ago, thankful to have found this network and interact with all the survivors . Since my last radiation treatmen, I noticed my mouth kept on producing thick mucous or saliva. It has been producing before the last treatment but seems like…
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Interesting article
This is a study by Harvard and Dana-Farber Cancer Institute. http://www.medicalnewstoday.com/articles/269206.php Hope everyone had a safe and terrific Thanksgiving. Joe
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New Lump
Went to the radiation doc today and found a lump on side of neck,the doctor said it was probably just from my thyroid gland nodule,Is asking me to keep close eye on it,If it gets any bigger to call him then,Would consider doing a ultra sound or something like that,Has anyone had this?I am a little over 7 mos. post now.Is…
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Very discouraged
So discouraged after reading post of what is it like when treatment ends. I honestly do not see how I can get through this. I have only 8 rad treatments done so far, 1 failed g-tube surgery, 2 failed attemts at replacing it (it was closed up). My mouth sores are so bad they are now on the back of my throat and both sides…
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I know it has been a bad year
for a lot of us. But we all will make it through. But as horrible as it has been, we all have something to be thankful for. I know it is hard right now but think hard and you will find that the Lord has given us blessing throught this ordeal Stay positive, pray lots, and enjoy that you are here. Sandy
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One case Boost VHC
Hi all! I had just ordered a case of Boost VHC to replenish the case that was getting low here. Before we even opened it, Pat started eating more solid foods. Is there anyone out there in need of a case of Boost VHC? I will mail it, and I'm not looking for anything in return, just want it to go to somebody that can use…
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Survivor here
Hi all. I have not been here for some time. Dx 2009 right tonsil scc 34 rx 3 cisplatin did it tough like everyone. Weight all back. Saliva 80%. Savoury all back. Sweet 80% back. Considered cured and living a wonderful life. There is hope and life xxxx. Can taste chocolate sometimes x. Just wanted to say hi x
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1 Year Ago....
Oh what a difference a year makes! Last year, I was near the end of my treatments for stage 3 tonsil cancer. You all know how I was feeling. Today, I am past the treatments and doing so much better! I am back to work, I have most of my energy back, and my appetite is back. I am having some minor issues with throat swelling…
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Petscan is good! yay!
Had my follow up petscan last week, 3 months after my last chemo/rad treatments. Yay, came back negative for anything! Doctor says I'm in remission, they won't call it a cure until after a few years of good check ups. He doesn't need to see me for 3-4 months. The biggest discomfort I have right now is the temporary trache…
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Help! - New PEG tube
I just got a new PEG tube today - my old one was leakng. This one is bigger (24) and shorter - AND DOESN'T have a clamp. What do I do? How do I "feed" without everything coming out? First try - what a mess! Of course, Doc's office is closed for the weekend.
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Happy Thanksgiving!
Just wanted to stop by and say hello to my family here at CSN. I haven't been posting much lately, I know. I could say that I've been busy and I have... but I think losing my mom to lung cancer in August hit me a bit harder than I'd anticipated. I've still been visiting every couple days, happy to see the old-timers doing…
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1 Year out....
Thursday the 28th (Thanksgiving Day this year) is Kreg's 1 year mark since he completed treatment. He went to his treatment center today for his 1 yr check-up and still CLEAN!! We have a lot to be thankful for this year....was tough last year at this time. But, we got through it and now he can actually EAT some turkey!!…
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Happy Thanksgiving
On this Thanksgiving Eve, Marcia, myself and of course Socrates would like to wish all of you a Happy Thanksgiving. We have a much to be thankful for. To the victors, continued NED's. To those in the midst of the battle, continued victories and future NED's. And to those we have lost to this beast, prayers and peace to the…
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Happy Thanksgiving to all my CSN "Buds"
Hi all: Gobble Gobble! Hope everyone out there has a great Thanksgiving. And let me take this moment to say how thankful I am for all of you! Will check in later as must see to last minute details before my sister and her crew get here for Thanksgiving! Love to all and God Bless! Jan (Basketcase)
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Day of thankfulness!
I want you all to know that I am extremely thankful for each and every one of you. This is my safe place where I can ask, vent, or just give news and you all really UNDERSTAND me! You all know how I feel. I am so appreciative of you all....I owe finishing my treatments to you all for the encouragement and the push forward.…
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Swallow
I have completely lost my swallow. I cant burp or vomit nothing comes past my throat up or down. I,ve had swallowing tests with the speech therapist but the liquid pools in my throat and comes up again. The onc said I had a swollen throat a week ago but before that I could get a trickle down. has anyone had this problem 4…
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Don't read if offended by prayer!
I feel like the Lord would like for me to say a prayer over this forum and if you are a Christian or not, you can read it and believe in it with me. The Bibile says, "Truly, I say to you, whatever you bind on earth shall be bound in heaven, and whatever you loose on earth shall be loosed in heaven. Again I say to you, if…
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TO ALL OF THE NEWBIES
i am not much of a regular here anymore, but lurk around. I am typing this as I'm getting my chemo. Although I am on pallattive care, and have been battling the beast since July of 2010, find solace and encouragement that YOU CAN DO THIS!! Your new family here at CSN will get you through your journey, just as others here…
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Heading into a year NED
I am not going to post a feel good post because every time I do I get hit with a hammer over the head right after I post it. 12/10 will be a year for me. Quick story- small world- someone I work with is 8 weeks post treatment for tonsil cancer 28 lymph nodes removed" I ask him" how do you feel" he say " great" no side…
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Magnesium Citrate
So, I've been constipated for 7 days now with barely any relief. It's a terrible feeling. I feel my whole body being tainted by all the junk in my guts at the moment. Yesterday the doctor prescribed me Lactulose to take every 2 hours until movement - but nothing happened. The doctors and nurses were amazed that I had taken…