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Updates, additions and delays...
As you know we lost our Bubba (11 year old Boxer) to cancer in December. It was truly heartbreaking and our home felt very, very empty. We have added a baby Boston Terrier to our family..Chloe Noel. We haven't moved yet. Our buyer is causing all sorts of trouble and we are shooting for this coming Friday..it will be our…
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prostate
I know my prostate is not in my neck or head LOL. Some of you might remember that I was diagnosed with prostate cancer last year. Had my 2nd 3 month checkup today. Blood work showed no change. still at 5.5 PSA, doc did the digital job and said there is no change and the risk of prgression is low, another one in 3 months.…
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Johnnybegood Is In The Hospital - UPDATE 1/16
I'm asking again for prayers & good vibes for my daughter, Johnnybegood. She has been hospitalized as her liver enzymes are through the roof & bile duct is blocked. After resuming chemo last week, she had a 24 hr. period of yellow eyes & face. It went away but came back with a vengeance all over. Onc sent her for a CT &…
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Is this normal
Hi guys just asking another question.Tounge is still sore after exploratory surgery but my main question is that my mouth fills with slivia and wondering if this normal? I am always spitting it out but just keeps filling back up plus with my mouth so wet not very thristy or hungry.
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To be Flu shot or Not to be Flu shot?
Hello everyone. It is cold winter flu season. I just had a flu about 3 days ago and it almost gone out of me. However, it made me lost so much weight where I am back to where I was when I just finished my treatment. I've been out for one and half month now. Recovery was doing well until the flu took me all the way back. I…
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radiation where it isn't supposed to be
Is it common to have radiation burns in places where the radiation is not supposed to be going? My radiation should be confined to my neck and lower jaw, but I have burns on my breast and on my back. Not happy about that.
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something happened after the exploratory
Hi guys I posted earlier about how well the exploratory went and it did.Saturday felt good and very hungry but nor sure if I over did it or ate the wrong foods.Sat nite I ate some chicken and washed it down with cranberry juice.The juice stung some but thought well maybe because where pricked and probed was still very…
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Toothpaste
I finally looked into OCF and read about Biotene. It sounds like the "New and Improved" formula doesn't have what we need in it. I can't handle any other mint toothpaste, burns tongue and mouth and lips. What are you using for toothpaste that doesn't burn and has the enzymes that we need in it?
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done with exploratory
Had the exploratory done as far as I can tell everything went good except for the wait. They were running 2-1/2hrs behind.As far as I know my throat is clear I felt pretty good after and most of yesterday then started to notice my throat is hurting slightly when I swallow anything.Am hoping that it from the drugs wearing…
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FAQ about the CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Sore tongue doesn't begin to say it.
I have toncil cancer with at least 2 lymph nodes affected. I am getting 8 doses of chemo and 40 of radiation. I have had 5 chemo treatments and around 18 radiation treatments, so I am in my fifth week starting Monday. My tongue is killing me! Thanks to the radiation, I have thrush and my whole mouth is a sewer. I will lose…
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My neck is shredding
I'm half way through treatment, which means I have 19 rads to go and 3 chemos. Through a batch of different things, I had no rads for all of last week, but I kept on cooking anyway. Last Monday, I had a normal neck. Today I have a neck that has lost a lot of skin, it's shredding, the skin is coming off and it hurts a…
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Feeding tube supply surplus
Hi everyone. I had my PEG taken out for a few weeks now. I have some left over supplies such as the bags that feed the tube and the milks. Any suggestion on what to do with them? Thanks. PM
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getting ready for tounge surgey
I also am due for surgery on I also am due for surgery on Jan 30th.But on the 16th they are doing an exploratory operation .I had a petscan and just had cat scan also.Was seen by my ent doctor and he referred to a surgen that did wanted the cat and wants to the exploratory which I'm not sure why.He did talk about a trac…
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anxiety for nothing
went to see my radiation oncologist for my 4 month check up and was in and out in an hour. i thought he would be sending me for another pet scan but said he thinks i am doing fine and maybe in may when i am scheduled for my next visit schedule the pet scan. soon as i walked in the hospital i felt my heart race and the…
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Diagnosis not good
Have just seen my specialist, my tongue cancer is back but also lung cancer that is non-curable , have been told I could survive for 9 to 12 months, have to undergo 6 courses of chemo cisplatin and 5 FU, has any body had this and what is it like thanks mike
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ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted
CANCER SURVIVORS. Please enroll or check in for year 2013. WE SURVIVED! Read about us and for the newbees, hope this forum brightens your day since a great percentage overcame this dreaded disease. We have 97 folks who registered or checked back in. For those who have not checked in since January 1, 2012, you have been…
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Checking in 14 months post treatment.
Hey Freinds, Just checking in 14 months post treatment, adjusting to my new normal, still struggling with taste and swallow, hearing, and PTSD, but definately feeling better over all. I lurk on here pretty regular but only post when I feel I have something to add. Trying to get where I don't think about cancer every minute…
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Not So Garden Variety Anymore...
Other than side effects, I've been bug free for over a year. Suprisingly, I haven't had a stomach bug or cold since before my diagnosis in Nov. 2012.... That is until yesterday. OMG! I have a cold and I don't ever remember them ever being this debilitating! Is this normal for a simple garden variety cold to knock my socks…
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Alkalol
No, not alcohol! I have had sinus issues since my orbital exenteration and following sinus abcess last year. I have been on antibiotics just about monthly for sinus infections. A few months ago ENT wanted me to try something else so I wasn't on antibiotics so much. Alkalol is an old formulation that is over the counter. I…
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Moh's
You would think that all of the 'c' would have been cooked out of me! Yesterday I had Moh's surgery for skin cancer, just regular old scc. They must think that I am crazy to be happy with garden variety scc and not my rare spindle cells and perineural involvement! Time to heal. Don't forget your regular derm appointments.
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My doggie died...stupid cancer
My sweet Bubba died yesterday. He woke up very sick and was strange all morning. We took him to the vet and his bloodwork came back horrible....they sent him to the 24 hours animal hospital. After an ultrasound and more tests we learned that a tumor in his stomach had ruptured spreading cancer through his body. There was…
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PET Scan
I like Phrannie had an early morning Pet Scan today (6 month) and although it is one of many I went through already it will still play games with my head for 8 days 14 hours and 1 minute until I get the results from my surgeaon. But who's counting? Like anything, you can what if it to death spending precious time worrying…
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Jim update and fishing news
Jim continues to lose energy and his breathing is declining as well. He now gets short of breath and wheezes, especially at night. The cold weather has kept him from fishing which depresses him. He was able to go these last two mornings so his spirits are up and he is smiling. We go to the oncologist on Tuesday afternoon.…
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What a difference
What a difference a week makes. I woke up this morning feeling on top of the world and full of energy. I think this is because I doubled my water intake a week ago as the doc thought my low blood pressure was dehydration. I feel more confident about going out and about, I feel as if a weight has been lifted. I,m hoping…
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Is this normal? Or possibly the new normal ;)
Hi friends! Pat has been out of radiation now for about a month and a half. He seemed to be doing remarkably well, almost, dare I say... finding a "new normal", until yesterday . Starting yesterday, he says he feels like he's just coming out of rads again. He is nauseas, very low energy, drainage...everything he dealt with…
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Anyone have pain a week after the feeding tube was out?
I do not know if this is normal, but it feels like a pulling, stabbing pain when I reach up or accross. It is wierd as I was sore for only 2 days after having the g-tube out last Monday, and then fine until Sunday when wow the pain brought me to my knees a couple of times. I do not know if it is musclular or what but it…
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ROLL CALL & MIA (Missing in Action) threads
Aloha all, There appears to be confusion on where to post an update. There are two rosters. The first is the ROLL CALL roster listing all those who enrolled or checked back in year 2013. If you are listed in this roster, please update your status here or if enrolling for the first time. The MIA thread is a roster of those…
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The war with canker sores -SOLVED- UPDATE!
Hi All, Wondered if anyone is/has battled canker sores after tx. Kreg has been out of tx for a year and has been battling canker sores ever since. He usually has 1 or 2 at a time, but this week he has 3 and they are worse. Really is hard to eat and be comfortable with them. He has tried almost every suggested rememdy out…
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Peg Tube formulas
Radiation and chemotherapy is over but still getting strong nausea that results in throwing up at least once a day. Spoke to oncologist and they said chemo is out of system so it can't be chemo. Then what is it? Been on peg tube from July, still can't swallow, working with therapist but gets exteme nausea which prevents me…