-
I know you guys are tired of the "How long after" posts...
But I just gotta ask anyway! I have two radtreatments left, THANK YOU GOD! I would like to get a baseline on how long it usually takes a person to start coming off of the Zophran and to stop with the compulsive, funny feeling, swollen throat gagging? Keep in mind, my chemo Dr cancelled my last two chemo treatments because…
-
Not again!
Yep, another clean PET scan! That's 4 in a row now and 1 solid year of clean scans! Thought I'd share the news with all the old gang here and the new as clean scans are a cause for celebration. So, when you're having a cold one tonight (even if it's through a tube), know that you're having one with me and that it's…
-
PET report and doctors visit encouraging
Feel better after oncologist visit. The bad news is the tongue cancer is back on the left side and extends to the left madible. The 15 nodules in the lungs have grown in size. There are a lot of medical terms about abnormal uptake and intense uptake in hilar region, mediastinum and others. I guess I need a medical…
-
CT done....results were expected
Hello everyone, I wasn't sure I wanted to post this time around. But it's been a long journey. I had a very long visit with my primary today. We talked of many things, but mainly quality of life issues for me. I graduated high school with this fellow. Seems like a different lifetime. We've decided to change up my pain…
-
Nasal congestion
I have a flu for over a week now. Getting better but still feel cold in the body that goes to the bones. Worse symptom is nose congestion in which unable to breath at all. Breathing through the mouth make it very dry. Try to blow out the nose but content is very thick and won't come out. Used Neil Neddy pot but not seem to…
-
Swallowing sphincter muscles
www.cedars-Sinai/patient/programs-and.../swallowing disorders.aspx or www.cedars- Sinai then go to swallowing disorders
-
hyperbaric chamber therapy
Does anyone has any take or experience in regard to the hyperbaric oxygen treatment for post cancer treatment. PM
-
Rang the Bell Today
I can't believe it but I will not be going for any more treatments on Monday, I rang the bell today after my last rad treatment. It was and still is a little surreal, these last few days have been hell - voice gone and starting feeding through tube - my mouth and throat just too sore after the last few days of rads. Still,…
-
Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…
-
food stuck
4 months after radiation and seems lie with every meal food is hanging in throat and wont wash down. I am not chocking but it is so uncomfortable that i am afraid to eat
-
Hi Friends
Jan 21, 2014 - 6:27 pm Rachel 13 year suvivor stillNew Rachel 13 year suvivor still here! Its been a year since what could be permibnet Peg tube has been in, still annoying, but handling it is easier! Got to find something to be happy with side effects of Ensurce plus therapeutic Nutrition has seriously affected my BMI in…
-
Updates, additions and delays...
As you know we lost our Bubba (11 year old Boxer) to cancer in December. It was truly heartbreaking and our home felt very, very empty. We have added a baby Boston Terrier to our family..Chloe Noel. We haven't moved yet. Our buyer is causing all sorts of trouble and we are shooting for this coming Friday..it will be our…
-
prostate
I know my prostate is not in my neck or head LOL. Some of you might remember that I was diagnosed with prostate cancer last year. Had my 2nd 3 month checkup today. Blood work showed no change. still at 5.5 PSA, doc did the digital job and said there is no change and the risk of prgression is low, another one in 3 months.…
-
Johnnybegood Is In The Hospital - UPDATE 1/16
I'm asking again for prayers & good vibes for my daughter, Johnnybegood. She has been hospitalized as her liver enzymes are through the roof & bile duct is blocked. After resuming chemo last week, she had a 24 hr. period of yellow eyes & face. It went away but came back with a vengeance all over. Onc sent her for a CT &…
-
Is this normal
Hi guys just asking another question.Tounge is still sore after exploratory surgery but my main question is that my mouth fills with slivia and wondering if this normal? I am always spitting it out but just keeps filling back up plus with my mouth so wet not very thristy or hungry.
-
To be Flu shot or Not to be Flu shot?
Hello everyone. It is cold winter flu season. I just had a flu about 3 days ago and it almost gone out of me. However, it made me lost so much weight where I am back to where I was when I just finished my treatment. I've been out for one and half month now. Recovery was doing well until the flu took me all the way back. I…
-
radiation where it isn't supposed to be
Is it common to have radiation burns in places where the radiation is not supposed to be going? My radiation should be confined to my neck and lower jaw, but I have burns on my breast and on my back. Not happy about that.
-
something happened after the exploratory
Hi guys I posted earlier about how well the exploratory went and it did.Saturday felt good and very hungry but nor sure if I over did it or ate the wrong foods.Sat nite I ate some chicken and washed it down with cranberry juice.The juice stung some but thought well maybe because where pricked and probed was still very…
-
Toothpaste
I finally looked into OCF and read about Biotene. It sounds like the "New and Improved" formula doesn't have what we need in it. I can't handle any other mint toothpaste, burns tongue and mouth and lips. What are you using for toothpaste that doesn't burn and has the enzymes that we need in it?
-
done with exploratory
Had the exploratory done as far as I can tell everything went good except for the wait. They were running 2-1/2hrs behind.As far as I know my throat is clear I felt pretty good after and most of yesterday then started to notice my throat is hurting slightly when I swallow anything.Am hoping that it from the drugs wearing…
-
FAQ about the CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
-
Sore tongue doesn't begin to say it.
I have toncil cancer with at least 2 lymph nodes affected. I am getting 8 doses of chemo and 40 of radiation. I have had 5 chemo treatments and around 18 radiation treatments, so I am in my fifth week starting Monday. My tongue is killing me! Thanks to the radiation, I have thrush and my whole mouth is a sewer. I will lose…
-
My neck is shredding
I'm half way through treatment, which means I have 19 rads to go and 3 chemos. Through a batch of different things, I had no rads for all of last week, but I kept on cooking anyway. Last Monday, I had a normal neck. Today I have a neck that has lost a lot of skin, it's shredding, the skin is coming off and it hurts a…
-
Feeding tube supply surplus
Hi everyone. I had my PEG taken out for a few weeks now. I have some left over supplies such as the bags that feed the tube and the milks. Any suggestion on what to do with them? Thanks. PM
-
getting ready for tounge surgey
I also am due for surgery on I also am due for surgery on Jan 30th.But on the 16th they are doing an exploratory operation .I had a petscan and just had cat scan also.Was seen by my ent doctor and he referred to a surgen that did wanted the cat and wants to the exploratory which I'm not sure why.He did talk about a trac…
-
anxiety for nothing
went to see my radiation oncologist for my 4 month check up and was in and out in an hour. i thought he would be sending me for another pet scan but said he thinks i am doing fine and maybe in may when i am scheduled for my next visit schedule the pet scan. soon as i walked in the hospital i felt my heart race and the…
-
Diagnosis not good
Have just seen my specialist, my tongue cancer is back but also lung cancer that is non-curable , have been told I could survive for 9 to 12 months, have to undergo 6 courses of chemo cisplatin and 5 FU, has any body had this and what is it like thanks mike
-
ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted
CANCER SURVIVORS. Please enroll or check in for year 2013. WE SURVIVED! Read about us and for the newbees, hope this forum brightens your day since a great percentage overcame this dreaded disease. We have 97 folks who registered or checked back in. For those who have not checked in since January 1, 2012, you have been…
-
Checking in 14 months post treatment.
Hey Freinds, Just checking in 14 months post treatment, adjusting to my new normal, still struggling with taste and swallow, hearing, and PTSD, but definately feeling better over all. I lurk on here pretty regular but only post when I feel I have something to add. Trying to get where I don't think about cancer every minute…
-
Not So Garden Variety Anymore...
Other than side effects, I've been bug free for over a year. Suprisingly, I haven't had a stomach bug or cold since before my diagnosis in Nov. 2012.... That is until yesterday. OMG! I have a cold and I don't ever remember them ever being this debilitating! Is this normal for a simple garden variety cold to knock my socks…