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done with exploratory
Had the exploratory done as far as I can tell everything went good except for the wait. They were running 2-1/2hrs behind.As far as I know my throat is clear I felt pretty good after and most of yesterday then started to notice my throat is hurting slightly when I swallow anything.Am hoping that it from the drugs wearing…
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FAQ about the CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Sore tongue doesn't begin to say it.
I have toncil cancer with at least 2 lymph nodes affected. I am getting 8 doses of chemo and 40 of radiation. I have had 5 chemo treatments and around 18 radiation treatments, so I am in my fifth week starting Monday. My tongue is killing me! Thanks to the radiation, I have thrush and my whole mouth is a sewer. I will lose…
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My neck is shredding
I'm half way through treatment, which means I have 19 rads to go and 3 chemos. Through a batch of different things, I had no rads for all of last week, but I kept on cooking anyway. Last Monday, I had a normal neck. Today I have a neck that has lost a lot of skin, it's shredding, the skin is coming off and it hurts a…
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Feeding tube supply surplus
Hi everyone. I had my PEG taken out for a few weeks now. I have some left over supplies such as the bags that feed the tube and the milks. Any suggestion on what to do with them? Thanks. PM
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getting ready for tounge surgey
I also am due for surgery on I also am due for surgery on Jan 30th.But on the 16th they are doing an exploratory operation .I had a petscan and just had cat scan also.Was seen by my ent doctor and he referred to a surgen that did wanted the cat and wants to the exploratory which I'm not sure why.He did talk about a trac…
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anxiety for nothing
went to see my radiation oncologist for my 4 month check up and was in and out in an hour. i thought he would be sending me for another pet scan but said he thinks i am doing fine and maybe in may when i am scheduled for my next visit schedule the pet scan. soon as i walked in the hospital i felt my heart race and the…
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Diagnosis not good
Have just seen my specialist, my tongue cancer is back but also lung cancer that is non-curable , have been told I could survive for 9 to 12 months, have to undergo 6 courses of chemo cisplatin and 5 FU, has any body had this and what is it like thanks mike
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ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted
CANCER SURVIVORS. Please enroll or check in for year 2013. WE SURVIVED! Read about us and for the newbees, hope this forum brightens your day since a great percentage overcame this dreaded disease. We have 97 folks who registered or checked back in. For those who have not checked in since January 1, 2012, you have been…
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Checking in 14 months post treatment.
Hey Freinds, Just checking in 14 months post treatment, adjusting to my new normal, still struggling with taste and swallow, hearing, and PTSD, but definately feeling better over all. I lurk on here pretty regular but only post when I feel I have something to add. Trying to get where I don't think about cancer every minute…
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Not So Garden Variety Anymore...
Other than side effects, I've been bug free for over a year. Suprisingly, I haven't had a stomach bug or cold since before my diagnosis in Nov. 2012.... That is until yesterday. OMG! I have a cold and I don't ever remember them ever being this debilitating! Is this normal for a simple garden variety cold to knock my socks…
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Alkalol
No, not alcohol! I have had sinus issues since my orbital exenteration and following sinus abcess last year. I have been on antibiotics just about monthly for sinus infections. A few months ago ENT wanted me to try something else so I wasn't on antibiotics so much. Alkalol is an old formulation that is over the counter. I…
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Moh's
You would think that all of the 'c' would have been cooked out of me! Yesterday I had Moh's surgery for skin cancer, just regular old scc. They must think that I am crazy to be happy with garden variety scc and not my rare spindle cells and perineural involvement! Time to heal. Don't forget your regular derm appointments.
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My doggie died...stupid cancer
My sweet Bubba died yesterday. He woke up very sick and was strange all morning. We took him to the vet and his bloodwork came back horrible....they sent him to the 24 hours animal hospital. After an ultrasound and more tests we learned that a tumor in his stomach had ruptured spreading cancer through his body. There was…
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PET Scan
I like Phrannie had an early morning Pet Scan today (6 month) and although it is one of many I went through already it will still play games with my head for 8 days 14 hours and 1 minute until I get the results from my surgeaon. But who's counting? Like anything, you can what if it to death spending precious time worrying…
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Jim update and fishing news
Jim continues to lose energy and his breathing is declining as well. He now gets short of breath and wheezes, especially at night. The cold weather has kept him from fishing which depresses him. He was able to go these last two mornings so his spirits are up and he is smiling. We go to the oncologist on Tuesday afternoon.…
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What a difference
What a difference a week makes. I woke up this morning feeling on top of the world and full of energy. I think this is because I doubled my water intake a week ago as the doc thought my low blood pressure was dehydration. I feel more confident about going out and about, I feel as if a weight has been lifted. I,m hoping…
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Is this normal? Or possibly the new normal ;)
Hi friends! Pat has been out of radiation now for about a month and a half. He seemed to be doing remarkably well, almost, dare I say... finding a "new normal", until yesterday . Starting yesterday, he says he feels like he's just coming out of rads again. He is nauseas, very low energy, drainage...everything he dealt with…
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Anyone have pain a week after the feeding tube was out?
I do not know if this is normal, but it feels like a pulling, stabbing pain when I reach up or accross. It is wierd as I was sore for only 2 days after having the g-tube out last Monday, and then fine until Sunday when wow the pain brought me to my knees a couple of times. I do not know if it is musclular or what but it…
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ROLL CALL & MIA (Missing in Action) threads
Aloha all, There appears to be confusion on where to post an update. There are two rosters. The first is the ROLL CALL roster listing all those who enrolled or checked back in year 2013. If you are listed in this roster, please update your status here or if enrolling for the first time. The MIA thread is a roster of those…
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The war with canker sores -SOLVED- UPDATE!
Hi All, Wondered if anyone is/has battled canker sores after tx. Kreg has been out of tx for a year and has been battling canker sores ever since. He usually has 1 or 2 at a time, but this week he has 3 and they are worse. Really is hard to eat and be comfortable with them. He has tried almost every suggested rememdy out…
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Peg Tube formulas
Radiation and chemotherapy is over but still getting strong nausea that results in throwing up at least once a day. Spoke to oncologist and they said chemo is out of system so it can't be chemo. Then what is it? Been on peg tube from July, still can't swallow, working with therapist but gets exteme nausea which prevents me…
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Dental check
Had onc team dental check this week. the dentist didn,t like the scarring and deformed lip that I,m continuously biting. he,s getting a second opinion from his dental surgeon. The only thing he could do to help to stop the biting is to take the back teeth out. I,m not chewing or swallowing still (blockage in throat) but…
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One year jitters
Well I am getting ready for my one year go round. Next week I start off by seeing my radiation doc, then make the appointment for the scan, then the ENT AND AFTER ALL that THE DENTIST. Well it's been a year and this is where I am at 1- voice is raspy and still can't tolerate very cold weather as throat gets sore easily 2-…
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Day 1 of 2nd go round
Had my CT scan and Hohn cathether, instead of port, put in yesterday. Showed up for 7 hour chemo today but the back-up doctor was nearly 2 hours late! We had 10 inches of snow 3 days ago but roads good enough for her kid's school to be in session today. She claimed her 15 minute trip, to drop off kids, took nearly 2 hours.…
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General Information for ROLL CALL.
Please do not enroll or update your status in this thread. Please update or enroll in the ROLL CALL 2013 THREAD. THANK YOU. It is provided for information only. We started Roll Call a few years ago. It is a voluntary enrollment. H+N patients have had a very high survival rate and the enrollment/reporting would provide…
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Adxs11-001 clinical trial. Anyone done this?
Hi all, I am from the gyn boards. I have cervical cancer. I was wondering if anyone on the head and neck boards have taken part in the clinical trial using adxs11-001. It is a theraputic HPV vaccine and since cervical cancer and some head and neck cancers are a result of this virus, I thought maybe someone here has taken…
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Neuropathy
I'm over 4 months done with chemo/rad. From time to time and today ALL day my feet will tingle. It doesn't hurt and I can walk just feel weird like they are falling asleep. I remember being warned about neuropathy. We were mostly worried about my hands because I play guitar. ANy experience with this and does it eventually…
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Past Posts
A few weeks ago someone shared the name of a protien drink their doc recommended. It wasn't the usuals such as Ensure, Boost, or the like. Also, a while back, someone said they were using a Sensodyne remineralizing toothpaste that could not be ordered from the US. I have been searching and searching the forums for these 2…
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Trach and treatment update
Had trache on Monday. They also did diagnostic scopethreat throat and esophagus. Cancer board metyesterday and the doc and his team came by last night. Surgery is the best treatment. Voice box comes out. Lower throat comes out. Upper esophagus comesan out and is rebuilt from forearm skin flap. Nearby lymph nodes come out.…