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Esophageal Stretch
Has anyone needed an esophagel stretch almost two years after the last one? My neck feels tight like someone has their hands around me, not strangling, just lightly squeezing. I have no problem swallowing (choking on the other hand...the curse of chocolate!) I was first introduced to "NED" in Oct. 2011 and as of Dec. 2013…
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Treatment is over!
Hello, I have finished treatment 32 rads and 1 cisplatin and 4 rounds of erbitux. Now comes the healing part. I really hope that my taste comes back, because right now everything tastes like chalk. I am pushing myself everyday to do as much as I feel I can. The attitude is still positive considering how awful the last…
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will there be another tumor in my body!
Tomorrow i have MRI for Sinus & Skull, CT scan for Head, Neck and Chest. And Pet CT... Im sure all of you here went through this in a way or another. But for me its still so overwhelming!! April 3 I had my first surgery ever, thinking that it’s nothing! Then I found out I had Olfactory Neuroblastoma, a rare tumor… and…
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Skiffin heading home today 5/4
Well, I am finally able to post this good news !!! John is supposed to be sprung today and heading home by this afternoon...... YIPPPPEEEEEEE.
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neck lump
Hello, my 43 year old son discovered a lump on the right side of his neck. A trip to the Dr put him on antibiotics for 2 weeks. After 2 weeks the lump was still there. He was then sent to a specialist who did a biopsy and took cat scans. The cat scans showed nothing else anywhere in his body but the lump biopsy came back…
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Sunshine
Just seen some comments(tongue in cheek) about the UK weather, it's been really warm for the time of the year for a while now, in fact the tempertures have been above average for a couple of months. I sat in the sun today until I got too hot and had to come inside. I had my big brim sun hat on. I live in the south so…
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skin discoloration
Well still dragging through radition. today is 24 of 38. so far lost 32 lbs mouth so sore can barely talk. also skin has become very dark along side of face.. not just a speck but a rather large area of the face. Hair is dropping out like crazy and not feeling like I have much bounce in my step. Any ideas on what to put on…
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Update on Friend's Husband
Hi all: Been to Chatt. for best friends' and hubby' house warming and blessing over the weekend. It was wonderful. But the best news is Steve's CT of chest, abdomen and pelvis showed no changes and even better the MRI of his head showed the lesions on brain had shrunk and they have released him for 3 months. Praise the…
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mikemetz
HI all I read on Mike's blog that his 12 hour jaw surgery went weil and he is in ICU till at least today. He was in an induced coma to make him lay still and so the graft could heal. He had "free flap" surgery for the ORN issues he's had for many months. Keep him in your thoughts. All the best, Steve
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Skiffin on Skiffin
Just a quick thank you for everyone here, their thought, prayers, caring and compassion for my family (Shelley and myself)... Im still in the hospital and on the mend.., on schedule and hope to go home sometime this weekend. Continued prayers and and thoughts for Shelley and I are always welcome.. With the the pain meds…
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Pics of post op
I read a post on which someone wanted to see pics of dissection op I found mine on page 20 titled 8 weeks from op. This isn't to scare but to show how quick you recover. The op looks gruesome but I had no pain.
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Pics of post op
I read a post on which someone wanted to see pics of dissection op I found mine on page 20 titled 8 weeks from op. This isn't to scare but to show how quick you recover. The op looks gruesome but I had no pain.
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What's going on with my tongue???
Hi everyone! My name is Kelly and my cancer (Sqaumous cell carcinoma) started on my tongue. It spread to lymph nodes and I've had bilateral neck dissection, chemo and radiation. My last "sunshine hour" was on Valentine's Day and I've been slowly getting better. I'm so glad I found this support group because I feel so alone…
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Bilateral neck dissection swelling
Hey everyone! Like many, I had the neck dissection to remove cancerous lymph nodes. I had 2 cancerous nodes and they took out over 100 on each side. Better safe than sorry?! Anyhow, I have horrible swelling above my incision site. I have taken herbal lymphatic drainage supplements but I still have swelling. I visitied my…
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Radiation Therapy Help?
I wonder if anyone could help me. I'm trying to do research so as to better inform myself to the best available options for radiation therapy. I've looked at IMRT but am wondering if there is an even more advanced system that would help limit the side effects and, or damage to sensitive areas that do not require…
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Oil Pulling
Hi, folks! I've been quiet lately, but still visiting several times a week to check in on everyone. I'm doing just fine--had my slightly early two year check-up last week and got the word NED again, which was great news! I'd had breathing problems a couple months ago that were scary (and of course, my first thoughts went…
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cleaned my own stoma/prosthesis
I cleaned my stoma/prosthesis yesterday but didn't do it right. I couldn't see the prosthesis so i never go the brush in it to clean it. I cleaned the stoma and prosthesis again today and I did it right! I know I did, because I actually saw the prosthesis!! my caregiver showed me where to point the brush and there it was!…
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Condolences for Guzzle
I think the worst thing for Guzzle as he gets into the treatment for his affliction is to do so on the heels of a loss by his beloved Liverpool football team. I have just watched Liverpool playing Chelsea and was rooting all the way for Liverpool and Guz, alas LFC did not win, they suffered a loss of 2-0. This game had…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Checking in...
Hi all. I haven't posted in a while, and finally had a few minutes to myself today to sign in. I am so sad to read of some of the losses, recurrances and new battles with the dreaded "c" word that some of you are going through now. Every one of you helped Pat and myself get through some of the roughest days of our lives.…
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late effects of cancer treatment
Almost four years out from his successful cancer treatment, Jim had a (minor) setback last weekend. Although happily ensconced at home again, last Sunday they strapped a DNR bracelet on his wrist. Jim has developed anaplastic anemia subtype pancytopenia as a result of his chemotherapy and radiation. This is otherwise known…
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Sunshine - How to handle it if I am that lucky
Friends, we are rapidly approaching Brit summertime. It is quite possible we may actually see the the sun (although not guaranteed obviously). I know that some of you live in parts of the US and further afield which can get pretty hot. I am an outdoors person and will also travel in Europe post treatment where it is fairly…
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My new path
So after almost two years of follow up from my last cancer, I have a recurrance. Its not curable, being right in the path of two previous radiation therapies, so I'm now officially on the palliation path. As before, my cancers tend to be fast growing ones, so I went from totally without symptoms, to some real problems in a…
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Septoplasty & Balloon Sinuplasty
Hi All. Stage four, nasopharengeal carcinoma, cancer survivor. I am four years post treatment. I have chronic sinusitis and my ENT is recomending that I have a Septoplasty & Balloon Sinuplasty performed. All I can find online are horror stories about the septoplasty. Has anyone ever had either of these procedures? What was…
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Husband has sores in mouth
My husband has NPC he was in the hosptial for a week 5 days of treatment Cisplatin and 5FU. He also went through treatment last summer eurbitux and gamma knife well it didn't work and tumor grew a cm. So his onoclogist now is giving him 5 in hospital treatments. They put a port in. I am also very worried because he is very…
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Good Vibes needed
After several months of anticipation and wishing there was another option, I'm having my jaw resection on Thursday. And, none too soon. I have another bone shard on the brink of coming out, which would leave very little of my left jaw intact, and open to easy fracture or a break. I am as ready as I can be for the long…
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need help swallowing
Just a quick note about me...tongue cancer with two lymph nodes affected. Have had surgery, 37 radiation treatments and six Erbitux chemo treatments. Treatments ended almost six months ago. Recent PET scan shows that the cancer is gone! YEAH! But, I'm still living on a g-tube and am getting so discouraged. The only things…
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Waiting to meet NED, not so sure after PET
Hello all, Had my PET/CT with FDG Tuesday 4 1/2 months after radiation and surgery and today finally got ahold of my radiation oncologist with some results. He said it showed "abnormal hypometabolic activity" along the neck muscle where my neck dissection was done. He was reassuring and said he thought it was the muscle…
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Father has a big surgery tomorrow.. Need your prayers
My father has had Oral SCC that refuses to go away. He had an 18 hour surgery long time ago which rendered him unable to eat from mouth due to removal of Upper and lower Jaw on one side of the mouth. The refuses to leave after nuerous treatments chemo radiation surgery clin trials. He also had a PEG tube placed when this…
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Update on swallowing problem
At my last check up I was shown a photo of my blockage in my throat the feeding tube part of it, it's fully closed. The surgeon said it was the radiation and in rare cases this can happen. My options we're wait a few months to see if it would improve as they think it could still be swollen if not to go through my peg tube…