Head and Neck Cancer

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Discussion List

  • User: "thennies61"
    Hey guys..went to the doctor today and everything is healing nicely.He probed around tounge then down throat and send looks good nice and pink.Wants me to start to eat more and move towards alittle so…
    66 views
    9 comments
    0 point
    Started by thennies61
    Most recent by debbiejeanne
  • User: "Ingrid K"
    Just a quick update on our bud, John. He coninues his recovery, but has developed some sort of infection that they are culturing so they can find the right antibiotic. in the meantime, he has been suf…
    22 views
    18 comments
    0 point
    Started by Ingrid K
    Most recent by debbiejeanne
  • User: "CherriBlossom"
    I am 2 years out of treatment for NPC and still can't open my mouth big enough to eat a sandwich. I was aware trismus comes with the rad treatmeant so I exercise daily with a TheraBite device but not …
    1 views
    4 comments
    0 point
    Started by CherriBlossom
    Most recent by patricke
  • User: "VivianLee5689"
    I just celebrated two years without David and my second anniversary would have been on Monday. Each day without him is getting a bit easier. For those who haven't heard I moved to Lexington, KY. Wells…
    22 views
    13 comments
    0 point
    Started by VivianLee5689
    Most recent by Jan Trinks
  • User: "ahollie"
    yall are getting close to being finished with radiation right? been praying for yall...i am sure there are more but you two for some reason have been on my mind..my hunny finished friday and is on the…
    56 views
    23 comments
    0 point
    Started by ahollie
    Most recent by Guzzle
  • User: "Goyca"
    Hello all, hope you are all doing well :) Happy Mother’s day to all mums here, even if it’s a bit late. Good news: The PET scan, CT scans, MRIs all came clean no other tumor anywhere else :) Bad news:…
    24 views
    11 comments
    0 point
    Started by Goyca
    Most recent by KTeacher
  • User: "sweetgammy"
    I have done tons of research on the best doctor and the best medical facility to have this procedure done. I have very strong opinions about this but hoping not to offend anyone would be willing to sh…
    353 views
    50 comments
    0 point
    Started by sweetgammy
    Most recent by sabriene
  • User: "wolfen"
    Hello All, I am still here in the shadows watching over each of you. Today was a rather "blue" day for me as I recalled what I was doing on this day last year. Tomorrow at 9:17 AM, it will be one year…
    28 views
    9 comments
    0 point
    Started by wolfen
    Most recent by hwt
  • User: "Purplemountain"
    Hello everyone. Has anyone experience neck stiffness with muscles being very tight like beef jerky? Any advise or solution to the cure or management? Thanks. PM
    64 views
    17 comments
    0 point
    Started by Purplemountain
    Most recent by mJack
  • User: "Kent Cass"
    I went to the Dentist today for a cleaning, and mentioned that I'd noticed part of a problem tooth appeared to be gone. Yep- another Crown at $957 is in the works! And they're talking about the need f…
    42 views
    26 comments
    0 point
    Started by Kent Cass
    Most recent by donfoo
  • User: "thennies61"
    Hi guys Only two more days of radiation and done and 4 weeks of erbitux.Anyway over the last week or so started to get what I thought was acne on the back of my neck.But seems that my trach coller has…
    39 views
    10 comments
    0 point
    Started by thennies61
    Most recent by Guzzle
  • User: "osmotar"
    I'm 5 weeks out from a total knee replacement , all is going well, PT 3 days a week...since my office is quite a drive away my surgeon only wants me to go in 2 days a week for 4 hours each day, the ot…
    1 views
    6 comments
    0 point
    Started by osmotar
    Most recent by Greg53
  • User: "JanANem"
    My Mom has been diagnosed with scc oral cancer (after finding some red sores in the back of her mouth where her back teeth use to be) biopsy and ct scan determined it was Stage 0. Surgeon wants to do …
    2 views
    15 comments
    0 point
    Started by JanANem
    Most recent by debbiejeanne
  • User: "Bunnymom"
    my treatment starts in June 8th. They are telling me it will be 5 days in patient, 9 days home which will repeat 4-6 times. I'm not sure which it will be but am hoping for 4 cycles. So, total is 8-12 …
    43 views
    15 comments
    0 point
    Started by Bunnymom
    Most recent by Guzzle
  • User: "jackflash22"
    I was refused MRI scan because I have a feeding tube. I thought it was all plastic but was told there may be metal on the inside. My tube is all plastic outside with a white triangle with a blue clip …
    617 views
    13 comments
    0 point
    Started by jackflash22
    Most recent by Hondo
  • User: "HAWVET"
    On this special day, we should spend a few moments to remember and give thanks to the many moms on this forum. There are many Mothers Day songs, but looking at another direction, I think the below son…
    8 views
    3 comments
    0 point
    Started by HAWVET
    Most recent by debbiejeanne
  • User: "Ingrid K"
    Well John is having a bit of a hard time getting comfortable at home. He has had a fever (got antibiotics for that); has had some acid reflux issues (got meds for that), still having some nausea. This…
    18 views
    22 comments
    0 point
    Started by Ingrid K
    Most recent by Noellesmom
  • User: "Guzzle"
    Friends, end week three and bit of a sore throat. Been issued with co codemol (don't need just yet) but also benzymadine and gel clair which are a mouth wash and something that put a coating on your m…
    11 views
    6 comments
    0 point
    Started by Guzzle
    Most recent by Guzzle
  • User: "Cruerocks"
    My Brother-in-law had an extraction surgery about 3 weeks ago. He was able to begin eating and chewing food in the last 8-9 days. When he chews he is getting a shooting pain that goes from his ear int…
    3 views
    4 comments
    0 point
    Started by Cruerocks
    Most recent by Cruerocks
  • User: "Cruerocks"
    Hi, My brother-in-law was diagnosed with Oropharyngeal Cancer about a month ago. Stage 4 and spread to the surrounding Lymph Nodes. The Oncologist did an 8 hour surgery to remove as much of the tumor …
    27 views
    14 comments
    0 point
    Started by Cruerocks
    Most recent by Cruerocks
  • User: "KTeacher"
    Going north to Portland, Oregon for awhile. My daughter is having surgery, she has lost 133 lbs. and the extra skin has been causing infections. We will be able to help with 20 month old granddaughter…
    3 views
    9 comments
    0 point
    Started by KTeacher
    Most recent by Guzzle
  • User: "PJ47"
    Met with R/O today and now have written report from radiologist. Anyone ever have this result? "Abnormal hypermetabolic activity along the course of the sternocleidomastoid." Could be related to radia…
    11 views
    13 comments
    0 point
    Started by PJ47
    Most recent by Guzzle
  • User: "thennies61"
    Hi everyone well I'm down to my last 4 radiation treatments but wondering about something.My mouth just filling up with thick slivia.It gets worse the more I try to talk.Have been hoping it would kind…
    24 views
    12 comments
    0 point
    Started by thennies61
    Most recent by thennies61
  • User: "ahollie"
    He will finish up all his rads and chemos tomorrow we hope..they mentioned maybe some more chemo after because the node isn't shrinking like they would like it..but we will cross that bridge if we hav…
    36 views
    13 comments
    0 point
    Started by ahollie
    Most recent by donfoo
  • User: "Bunnymom"
    I need help! 1. Has anyone done chemo out patient? How did that work out? 2. Please tell me the chemo drugs that were used for you. 3. Has any one gone to the University of Chicago Medical Center, and…
    3 views
    8 comments
    0 point
    Started by Bunnymom
    Most recent by donfoo
  • User: "Bunnymom"
    well....today I met with the "team"....THE TUMOR BOARD. The surgeon, medical and radiation oncologists. People, I never in my life thought I'd ever meet. After my neck dissection last week, it was fir…
    14 views
    11 comments
    0 point
    Started by Bunnymom
    Most recent by donfoo
  • User: "Ladylacy"
    My husband has been complaining of nerve ending pain in his feet and now his arm. Our hospice nurse has been trying to get him to give Neurontin a try to see if that helps. Has anyone taken this medic…
    6 views
    8 comments
    0 point
    Started by Ladylacy
    Most recent by MarineE5
  • User: "Grandmax4"
    to Skiff, hope you're mending well and behaving..the weather in Ohio is finally getting nice, my son & D-I-L-caught about 15 perch last weekend at Lake Erie. Just a small sample of things to come, I h…
    12 views
    1 comments
    0 point
    Started by Grandmax4
    Most recent by jim and i
  • User: "ptom"
    Has anyone needed an esophagel stretch almost two years after the last one? My neck feels tight like someone has their hands around me, not strangling, just lightly squeezing. I have no problem swallo…
    1 views
    2 comments
    0 point
    Started by ptom
    Most recent by KB56
  • User: "Coldinohio"
    Hello, I have finished treatment 32 rads and 1 cisplatin and 4 rounds of erbitux. Now comes the healing part. I really hope that my taste comes back, because right now everything tastes like chalk. I …
    1 views
    11 comments
    0 point
    Started by Coldinohio
    Most recent by phrannie51