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Radiation & Teeth Hyperbaric Oxygen
my treatment starts in June 8th. They are telling me it will be 5 days in patient, 9 days home which will repeat 4-6 times. I'm not sure which it will be but am hoping for 4 cycles. So, total is 8-12 weeks. Chemo each day and if it's 4 cycles, rad 2x per day. If it's 6 cycles, its rads 1x per day. If I'm correct 30-40 rad…
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PEG feeding tube
I was refused MRI scan because I have a feeding tube. I thought it was all plastic but was told there may be metal on the inside. My tube is all plastic outside with a white triangle with a blue clip against my stomach with a plastic pipe coming out. I don't know what is inside. Is there anyone who knows the answer. I have…
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Happy Mothers Day
On this special day, we should spend a few moments to remember and give thanks to the many moms on this forum. There are many Mothers Day songs, but looking at another direction, I think the below song is appropriate for this occasion. http://tiny.cc/hm9nfx Although it was meant for the man above, the first verse can also…
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Skiffin Update 5/7/14
Well John is having a bit of a hard time getting comfortable at home. He has had a fever (got antibiotics for that); has had some acid reflux issues (got meds for that), still having some nausea. This was major surgery so it is going to take a while to get his old abi-normal self back. So... some more good mojo is needed.…
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Benzymadine/Gelclair
Friends, end week three and bit of a sore throat. Been issued with co codemol (don't need just yet) but also benzymadine and gel clair which are a mouth wash and something that put a coating on your mouth for ulcers. Any knowledge of these products? Cheers, G.
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Symptoms after tumor removal
My Brother-in-law had an extraction surgery about 3 weeks ago. He was able to begin eating and chewing food in the last 8-9 days. When he chews he is getting a shooting pain that goes from his ear into his jaw. The pain starts just before he puts offd in his mouth and stops about 8-10 min. into eating. It is on the side of…
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Oropharyngeal Cancer
Hi, My brother-in-law was diagnosed with Oropharyngeal Cancer about a month ago. Stage 4 and spread to the surrounding Lymph Nodes. The Oncologist did an 8 hour surgery to remove as much of the tumor as possible. It was large and difficult to remove. He said the surgery was very invasive. He said he was able to get most of…
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Away for a bit
Going north to Portland, Oregon for awhile. My daughter is having surgery, she has lost 133 lbs. and the extra skin has been causing infections. We will be able to help with 20 month old granddaughter :) . Hopefully it will be spring, my husband has a lot of honey do's for her house. Just wanted to let you know I won't be…
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Update on Abnormal PET/CT
Met with R/O today and now have written report from radiologist. Anyone ever have this result? "Abnormal hypermetabolic activity along the course of the sternocleidomastoid." Could be related to radiation therapy and/or surgery. Not possible to exclude tumor infltration. SUV values exten up to 5. This was the side of my…
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my mouth and radition
Hi everyone well I'm down to my last 4 radiation treatments but wondering about something.My mouth just filling up with thick slivia.It gets worse the more I try to talk.Have been hoping it would kind of ease up but have had this problem even before the operation.Makes it even harder to try and talk with slobbing all…
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Tomorrow is my hunny's last day!!!
He will finish up all his rads and chemos tomorrow we hope..they mentioned maybe some more chemo after because the node isn't shrinking like they would like it..but we will cross that bridge if we have to then...its been a long tough road and our baby girl graduates from college on Saturday...prayers please that he feels…
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2nd Opinion? In Patient / Out-Patient Chemo
I need help! 1. Has anyone done chemo out patient? How did that work out? 2. Please tell me the chemo drugs that were used for you. 3. Has any one gone to the University of Chicago Medical Center, and if so how was your treatment? 4. When it came to chemo recommendations, were your drugs tailored to you specifically or…
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THE TUMOR BOARD! Hard Day
well....today I met with the "team"....THE TUMOR BOARD. The surgeon, medical and radiation oncologists. People, I never in my life thought I'd ever meet. After my neck dissection last week, it was first to the surgeon who removed the drain and told me that it was one lymph node. An adjacent lymph node was fine. I was…
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Neurontin
My husband has been complaining of nerve ending pain in his feet and now his arm. Our hospice nurse has been trying to get him to give Neurontin a try to see if that helps. Has anyone taken this medication and what problems did you have with it. When reading the side effects it scares me especially when it talks about…
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Shout out
to Skiff, hope you're mending well and behaving..the weather in Ohio is finally getting nice, my son & D-I-L-caught about 15 perch last weekend at Lake Erie. Just a small sample of things to come, I hope. I'm ready for some Walleye fishing and eating..take care
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Esophageal Stretch
Has anyone needed an esophagel stretch almost two years after the last one? My neck feels tight like someone has their hands around me, not strangling, just lightly squeezing. I have no problem swallowing (choking on the other hand...the curse of chocolate!) I was first introduced to "NED" in Oct. 2011 and as of Dec. 2013…
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Treatment is over!
Hello, I have finished treatment 32 rads and 1 cisplatin and 4 rounds of erbitux. Now comes the healing part. I really hope that my taste comes back, because right now everything tastes like chalk. I am pushing myself everyday to do as much as I feel I can. The attitude is still positive considering how awful the last…
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will there be another tumor in my body!
Tomorrow i have MRI for Sinus & Skull, CT scan for Head, Neck and Chest. And Pet CT... Im sure all of you here went through this in a way or another. But for me its still so overwhelming!! April 3 I had my first surgery ever, thinking that it’s nothing! Then I found out I had Olfactory Neuroblastoma, a rare tumor… and…
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Skiffin heading home today 5/4
Well, I am finally able to post this good news !!! John is supposed to be sprung today and heading home by this afternoon...... YIPPPPEEEEEEE.
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neck lump
Hello, my 43 year old son discovered a lump on the right side of his neck. A trip to the Dr put him on antibiotics for 2 weeks. After 2 weeks the lump was still there. He was then sent to a specialist who did a biopsy and took cat scans. The cat scans showed nothing else anywhere in his body but the lump biopsy came back…
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Sunshine
Just seen some comments(tongue in cheek) about the UK weather, it's been really warm for the time of the year for a while now, in fact the tempertures have been above average for a couple of months. I sat in the sun today until I got too hot and had to come inside. I had my big brim sun hat on. I live in the south so…
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skin discoloration
Well still dragging through radition. today is 24 of 38. so far lost 32 lbs mouth so sore can barely talk. also skin has become very dark along side of face.. not just a speck but a rather large area of the face. Hair is dropping out like crazy and not feeling like I have much bounce in my step. Any ideas on what to put on…
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Update on Friend's Husband
Hi all: Been to Chatt. for best friends' and hubby' house warming and blessing over the weekend. It was wonderful. But the best news is Steve's CT of chest, abdomen and pelvis showed no changes and even better the MRI of his head showed the lesions on brain had shrunk and they have released him for 3 months. Praise the…
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mikemetz
HI all I read on Mike's blog that his 12 hour jaw surgery went weil and he is in ICU till at least today. He was in an induced coma to make him lay still and so the graft could heal. He had "free flap" surgery for the ORN issues he's had for many months. Keep him in your thoughts. All the best, Steve
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Skiffin on Skiffin
Just a quick thank you for everyone here, their thought, prayers, caring and compassion for my family (Shelley and myself)... Im still in the hospital and on the mend.., on schedule and hope to go home sometime this weekend. Continued prayers and and thoughts for Shelley and I are always welcome.. With the the pain meds…
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Pics of post op
I read a post on which someone wanted to see pics of dissection op I found mine on page 20 titled 8 weeks from op. This isn't to scare but to show how quick you recover. The op looks gruesome but I had no pain.
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Pics of post op
I read a post on which someone wanted to see pics of dissection op I found mine on page 20 titled 8 weeks from op. This isn't to scare but to show how quick you recover. The op looks gruesome but I had no pain.
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What's going on with my tongue???
Hi everyone! My name is Kelly and my cancer (Sqaumous cell carcinoma) started on my tongue. It spread to lymph nodes and I've had bilateral neck dissection, chemo and radiation. My last "sunshine hour" was on Valentine's Day and I've been slowly getting better. I'm so glad I found this support group because I feel so alone…
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Bilateral neck dissection swelling
Hey everyone! Like many, I had the neck dissection to remove cancerous lymph nodes. I had 2 cancerous nodes and they took out over 100 on each side. Better safe than sorry?! Anyhow, I have horrible swelling above my incision site. I have taken herbal lymphatic drainage supplements but I still have swelling. I visitied my…
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Radiation Therapy Help?
I wonder if anyone could help me. I'm trying to do research so as to better inform myself to the best available options for radiation therapy. I've looked at IMRT but am wondering if there is an even more advanced system that would help limit the side effects and, or damage to sensitive areas that do not require…