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Hi & thank you!
Hi all i am 28 y/o female who has undergone treatment for esthesioneuroblastoma. I have been a (quiet) member on here since last year during treatment. I wasn't really In the right head space for posting but reading everyone's posts helped me sooo much. all the tips etc and just knowing so many others are going through…
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First scan results
had my monthly check up this morning my MRI scan( first one since rads) was clear and so was my scope this morning. He said my throat looked better than last time. He talked about my throat blockage and said I could have a double endoscopy going through my PEG tube upwards that would be one team, he would be going down the…
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Hello I am new to this group
I completed radiation (no chemo) for tongue cancer on Tuesday (7/15/2014). I just found this board and appreciate it very much. Doctors can tell you a lot, but those who have expierenced it can tell you much more and in terms you can understand easier. I will be back soon. Thanks Bill
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orn
what are the symptoms of ORN. I never got my teeth removed before rads, I hear occcasionally of this gum/jaw problem how do you know if you've got it. My teeth look fine at present, I've had three check up and been told my teeth are white and healthy. Is it something that happens often in the future after rads if you don't…
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I've had a 419 scam private message here!
Do we know about this? It looks extremely suspicious to me. It's much easier to simply donate money to a chosen charity than to go through all this palaver! I've got no idea who this person is. I did post the message in here, so people could see what she said, but I've been told to remove it, so I've taken it out. Sorry, I…
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blood streak phlegm after NPC treatment - common?
I was diagnosed with NPC stage 3 cancer in Mar this year. Since then, I completed 3 rds of chemo and 33 RT sessions. I am 8 weeks out of my treatment and today, I woke up with the sickening blood streaked phlegm again. Is this recurrence? Will be going to see my doctor first thing tomorrow but wanted to post here to ask…
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First Check Up
And Doctor says all is well so far. YIPPEE! G.
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Brother
Need some prayers for my older brother Roy in England, afraid he's getting to the final stages of his fight with stomach cancer. Denis
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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New :) Oral tongue SCC. T2N2BMX England.
Hiyah, I was diagnosed with tongue cancer on 6th November 2013. T2N2BMX, poorly differentiated. On 27 December I had a hemiglossectomy, radial forearm flap and abdo graft, modified radical neck dissection, temporary tracheotomy. I had a PEG tube put in, then 30 sessions of radiotherapy February/March 2014. I had got over…
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Hospitalized for cellulitus in cheek
Went in Sunday and got home at 9pm last night. I got so anxious waiting for release but he had two emergency trachs so they needed him more than I did. Hoping under control now. Lots going on. Good news is that bone scan a week ago indicates fibula used to reconstruct jaw in 2012 is still viable. There is an exposed spot…
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Hi, I'm new
Hello to all, I have looked around here from time to time over the past couple years. My father was diagnosed two years ago with squamous cell carcinoma on the base of his tongue (5/2012). He lived through a whole summer of rad and chemo, and he just celebrated his 60th birthday last week. What I am seeking from all of you…
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Post surgery sloughing in the mouth
Well my tongue surger went well. The took part of my tongue and had clear margins. I also had the neck disection to remove some lymph nodes. This happened on Friday July 11. I am having to learn how to swallow all over again. So I feel weak, puny and beat up. I am also suffering from post surgery sloughing in my mouth to…
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NED......................however......
These "howevers" we've been seeing lately are getting old. NED on the NPC.....They did see a couple new things in my scan. She read all the medicalese and I really couldn't make much sense of it. They saw two "possible small cysts" in my submadublar salivary gland....5 milimeters or less. And then there was something about…
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wondering about the return to work
Well been feeling really good and my short term disablitly is running out so looking forward to going back to work.Will need my doctor to sign a release form which hoping he will but he does everything in baby steps leaving trache tube in longer then normal things like that.I would like to have the peg tube removed also .I…
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Well, this sucks (literally)...
...12 rads in and I can barely chew any solids without exquisite pain from under the sides of my tongue. Throw in the taste buds just about shot and eating has already become a chore. Have the magic mouthwash, the xylitol pills, the pain pills but not helping much on the eating front. Swallowing doesn't hurt (yet) but…
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post surgery , radio , and work ?!
Hello guys, hope all is going at its best. As you know I'm recovering from the craniofacial surgery that I had on June 17. My surgeons said I can go back to work next week. and my appointment with the radio-oncologist is next week. so I wanted to ask you guys, if I started radio and went back to work is it ok? Or I should…
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First Post Treatment Appt.
I saw my RAD ONC today, she said that I look great after the treatments and that there is "no evidence of disease". Of course I know that I must wait for the PET scan for a better defined diagnosis. I will take all good news I get these days. Mike
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Head and chin wrapped
Just wondering if anyone has had this done.My chin and along sides of chin where swollen.Made me look like Fred Flitstone.Was told it was lliquid that forms there and since the lymph nodes would help move it along to other parts of the body.While going to the speach specialist also started to go to a guy and he would…
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TREND SETTERS AT LAST
Well, it has finally happened, we tube feeders in the network have finally become trend setters in the world of weight management! Last night I was sock knocked off while watching the news on WPLG Channel 10 here in sunny/rainy tropical South Florida, when they aired a story about a doc in town who has brought from…
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Anyone had what looked like decay on upper teeth?
Been examining my mouth extensively for months now and just noticed what looks like decay on the bottom edges of my two front teeth. Wierd. Anyone else experience this one? PJ
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Teeth Removal
My radiation and cemo treatment for neck cancer ended about a year ago and I’m now faced with another issue. I broke a tooth in December last year and was going to have it removed along with some other dental work this past January. I was going to start capping some teeth. Well my dentist did not want to pull the tooth and…
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Cured
Just back from the cancer institute. Met with the ENT, he scoped the throat and said it looks awesome, and then said, "your throat cancer is now cured" good words to hear. It's been 5 years since trestment ended (last rad and cisplatin June 17th 2009). It can be done, feeling real good about this, he said to not make an…
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updates
Hello everyone, Well the brother's completed all the tx's. And the peg was pulled today. He's around a month out already. Thrush rears it's ugly head, but the drs. are staying on top of it for him. Now it's healing time. First scan will be in Sept., CT w/contrast. Then a PET/CT 6 mo's out. Wonderful ENT very experienced…
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released by the oncologist
Happiest of news yesterday! Four years after successfully completing what the oncologist called a 'brutal treatment', Jim was released by the oncologist. For anyone starting or working their way through their cancer treatments, we are with you in thought and prayer. Remember, it can be done and we hope for good outcomes…
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New jaw bone not attached
dr Garvey at md Anderson is my plastic surgeon. Heres the current problem. 3 years ago had part of mandible replaced with fibula bone And secured in place with titanium plate, Everything went fine and no cancer so far however. The new bone has not grown together with the original jaw bone. It is at 45 degree angle. It also…
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Checking In
Hi all: Back from NC. I had a good time in spite of the snakes, my mother-in-law getting a bad case of the shingles and having to watch out for the neighbor's dog that has taken to biting if anyone gets too close to her puppies; but other than that it was grand time! As I have mentioned before my mother-in-law does have…
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Remind me...
...to never date any girls named PEG(GY) ever again. The date I had with her on Friday left me extremely sore and tired...and not in a good way...I'm still recovering...
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Antidepressents/anti-anxiety meds....
Is anybody taking these post treatment? I'm almost two years out, and I'm thinking of talking to my Onc about taking something again....I took them during treatment...if they helped or not, I couldn't tell. p
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IMRT Radiation Therapy
In early August, my husband will start 6 weeks of IMRT (possibly proton if the insurance company approves the appeal) of his tracheal area at MD Anderson in Houston. The on-site hotel there does not offer a monthly rate and is $120/night, so I am looking at alternative lodging with shuttle service to the hospital. My…