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One year later still in pain...
It has been almost a year since I had a right hemi-colectomy and I still have lots of lower abdominal pain. Bentyl helps sometimes. I am on stool softeners twice a day. Anyone else had this problem. I go for my one year colonoscopy next week. Please pray for a negative report. Getting a little discouraged as I usually…
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good news on pet scan
Ok got my results from pet scan yesterday,some cancer tumors are gone,and the rest are shrinking,after 4 chemos,7 more to go,Bless all of you for your support.Love you all Doris
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MD Anderson for Colon Cancer?
I just posted about my brotherr Mark who has stopped on the second clinical trial because it was too hard on his body. I would like to know if anyone has been to MD Anderson, and if that might be an option for him. Thank you
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To share and ask for thoughts
I wrote this group a couple of months ago about my brother, Mark, and I just need to share and ask for your thoughts. In a nutshell, Mark has been fighting colon cancer over three years. He had surgeries and chemo treatments, and yet there are cancer spoots in his rectum, lung, liver, lymph nodes, and abdomen. Within the…
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Thank you
Thank you all for all the good wishes on my 5 year anniversary!!! I am honored that there were 26 responses. I sometimes have felt guilty posting good news over the years. But I wanted to hear survivor stories when I was diagnosed. I have also posted many times when I needed help from some of the others, especially in my…
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new question
Thank you everyone for all your responses to my questions up to this point. I now have another one and hope that all with the prior experience can help. I went through chemo/rad, then had surgery 1 week ago. I now have an ileostomy. My surgeon told me he will check in 4 weeks to see if it is healed and can at that point…
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Happy Birthday
Happy Birthday to me :) I turn 44 today (30 June) and feel GREAT! I have been NED for two years!! When I turned 40, I considered birthdays over. Not because I was 40 or felt old, but because I had everything I wanted in my life, a GREAT HUSBAND and LOVING SON and felt no need to celebrate, but after being DX with colcn…
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Follow up
I would like to hear from anyone with Stage 3B Colon Cancer what their follow up protocol was after completing chemotherapy. My Oncologist plans to see me 30 days after completing chemo, and not again for 6 months. I am worried that this may not be soon enough. He also mentioned that he usually just does lab work at 6…
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chemo powers
Is chemo ever powerful enough that no further surgery is needed?!?
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1st Follow up
Hi everyone, I am going for my 1st follow up after my ileostomy reversal (stage 3 colon cancer). Any suggestions on questions I should be asking? I'd really appreciate any feedback. Thanks, Pearl
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Good CT scan for a stage 4 guy
Even though I sometimes feel guilty writing this with so many people suffering. I did get my 3 month CT scan yesterday at Stanford and there remains NED. This now makes it 9 clean months after my lung lobectomy in 11/07 which is a small step but it feels good. It makes it amost 1.5 years with a clean liver which is pretty…
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Howdy
Hi to All. It's been a while since I've been on this site, and I just wanted to see how everyone is doing. Has anyone heard how Tara's surgery went yesterday? Personally, I continue to gain weight and now resemble the Michelin balloon that terrorized everyone in "Ghostbusters." I can't seem to stop eating since I quit…
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Another question
My mom passed away from ovarian cancer. The surgeon did remove my ovaries during my 1st surgery, but I still have my uterus. Is there anyone out there with the same issues and what are the concerns/risk factors from the radiation/chemo? I still have my port and I don't know if I should have it removed. Thanks for any help,…
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thank you & caretaker response
I can't say thank you enough for those of you who are willing to share your story with the rest of us. You all know about far more than just drug combos, side effects, etc. You have the street credentials for dealing with life's curve balls and I'm very glad you share so much. It really eases my mind to read about those of…
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SPONGEBOB
Okay I know I can't this years gathering in San Fransico, but if by chance, could we try really, really, hard, with sugar on top, to have it back on the Eastern portion of the US next year, 2009? PLEASE !!!!!!!!!!!!!!!!!!!
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Great Book!
After receiving my 4th copy of Lance Armstrong's book from well meaning pals, I was completely over "cancer books." BUT! I just found an awesome book that I think any woman and/or gay man will LOVE. Its called Crazy Sexy Cancer Tips by Kris Carr. Funny, uplifting, and very practical. I about spit water out my nose when I…
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Neuropathy from Chemo in hands and feet
I have colorectal cancer and the chemo damaged nerves and I now have neuropathy in my hands and feet/ankles. I read one of the reponses about pineapple juice, I'll try anything. I am on Lyrica currently which does give me some relief, but my quality of life has been greatly impacted. Does anyone have any other suggestions?…
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How do you take care of the caregiver?
Have this on my blog, hoping to get some new ideas 1. Make sure they get plenty of rest. 2. Guide them so they allow time for themselves. 3. It's the small things in life that count: A. Send a 'Thinking of you' card B. A promise of a "vacation day" away from you C. A hug D. Appreciate, Appreciate, Appreciate E. A simple…
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cancer and radiation treatment
I am a long term anal cancer survivor. I was diagnosed and treated in 1998-1999. I had 5FU and Mytomycin-C and 5 weeks of radiation treatment. Now I have muscle pain, stiffness and limited range of motion in all of the areas that were radiated. Has anyone else experienced this type of situation? Please reply. I am very…
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Friday Riddle Answer
RIDDLE: I am the black child of a white father, a wingless bird, flying even to the clouds of heaven. I give birth to tears of mourning in pupils that meet me, even though there is no cause for grief, and at once on my birth I am dissolved into air. What am I? ANSWER: Smoke
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Results from recent CTscan
On wed, June 25th, I had a CTscan. Today we found out the results. A little background -- orginally dx in 5/06 with rectal cancer. chemo/radiation, rectal resection, then folfox regimine. cancer came back in my lung and liver 7/07. started folfiri, had ablation of met on liver, lung surgery to remove met, then finished…
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pet scan results
My husband recently had his first 6 month pet scan (every 3 months for 2 years) it still seems to light up due to inflammation in rectal area. He has had several biopsies all have been negative. He has had a lesion show up on his liver but the MRI came back clear. Also an infection in his parotid gland still lights up…
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Surgery went well - thanks
Thanks to all for your warm words, prayers and best wishes for my surgery on Tuesday. It went really, really well. The surgeon was able to do a wedge (lung) using VATS (like laproscopy). I am feeling GOOD and I might be going home today -- if not, tomorrow. Yea!! I 'm looking forward to starting walking again but also have…
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5 years WOOOHOOOO
5 years ago today I was drinking fleet phosphosoda as a prep for my surgery the next day. I was so scared and so sick from the prep. I was vomiting and had such diarrhea. It probably didn't help that I had a couple of beers as part of my prep. They are clear liquids, aren't they? We had to drive an hour to the hotel where…
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No haircolor or regular razors? Did you?
My chemo nurse said I should switch to an electric razor while on chemo. I can do that, but is a razor nik that dangerous? I do cut myself every single time I put a new blade in. I was also told not to color my hair. That means it will be December before I can color my hair. I haven't seen my natural haircolor since I was…
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Friday Riddle
RIDDLE: I am the black child of a white father, a wingless bird, flying even to the clouds of heaven. I give birth to tears of mourning in pupils that meet me, even though there is no cause for grief, and at once on my birth I am dissolved into air. What am I?
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My Check-up
Hello all, I just had my second Onc check-up since chemo (8 months ago). The doctor said blood work was great and I talked him into not coming back for 6 months! He said usually he sees patients every 4 months (for 2 years) but if I promised to call him (if anything is wrong) then he'd go 6 months! (plus I will have had a…
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Just a scare
I wrote a couple of weeks ago about lymphadenopathy discovered at my 3.5 yr follow-up visit. I had more blood work and a CT last week, and just back from seeing the onc again. Everything came back clear--NED, so he's not concerned. Whew!!! Howard
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ct results etc...
My mom recently had her 1st ct after 12 rounds of folfox + avastin. Scan shows no new mets, and no disease progression. She had nodules on her liver before surgery, but doc says again no disease progression. Why wouldn't he be more concerned with nods on liver? He also mentioned that you can't rely on just one test. DX in…
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A Big Week
Hi All, Just checking in. This past week was quite big for me. It was exactly a year ago that I finished up chemo for stage III rectal cancer. Our counties Relay for Life was last Saturday. I was interviewed on the radio and on the front page of the paper sharing my story. My mother is a very talented watercolor artist and…