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Oasis of Hope--great place!!
hello Semi-colons! I received this this morning and am passing it on per her request: Hi again! I have been trying over and over again to post a reply concerning Oasis, and I don't know if it's my computer, or the Mexican server, or a problem with CSN. I tried to even email it to the two people that asked about Oasis, and…
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Need Advice
My husband had a pet scan may 21st. He was scheduled the following week May 28th for the results. The doctors office called and cancelled the appointment on the 28th the doctor was out of town. So I finally called on Tuesday the secretary said he didn't like to give results over the phone so I had to make an appointment…
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standard lab testing
Good morning, this is Valerie, stage 3, 1 positive node. I had my standard bloodwork before my scheduled chemo today. My platelets and other blood tests came up lower than the last test. Haven't had a chance to talk with dr. yet to see why, or if they will cancel my chemo for today. This is only my second chemo treatment…
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Erbitux ?'s
Has anyone had much experience with Erbitux? I just started it and the rash and itching are just awful. I asked for a prescription for an acne medication as my sister found an item that says that it will help. The Dr. gave it to me, but I just started so don't know if it will help. Also, got the Lindi skin products. My…
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Erbitux
I don't know how to reply to a message but I just wanted to tell apache that "Proactiv" as seen on t.v. apparently works on the Erbitux rash. Good luck, Fiona.
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HAPPY BIRTHDAY JANA!
Today is our dear Jana's birthday (jana11)! Everyone, please join me in wishing Jana a very happy day! Happy Birthday to you, Happy Birthday to you, Happy Birthday, Dear Jana! Happy Birthday to YOU!!! ......and many more...... Hugs, Jana! You are an amazing woman and I consider myself blessed for knowing you. Katie
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clinical trial
I mentioned in my post below that I took part in a clinical trial after the completion of my standard treatment (chemo, radiation, surgery, more chemo). Some of you asked to hear more about it so I thought I would summarize it here. The trial is based out of Duke University but there are twelve participating hospitals…
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two years...
I received my diagnosis of stage four colorectal cancer two years ago today. And after thirteen rounds of folfox, radiation, surgery and a vaccine/immunotherapy clinical trial I have been NED for over a year. I have since passed the CA bar exam, started an amazing job, moved back out on my own, and am extremely happy. So I…
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Genetic diagnosis!!
Hi, Valerie again, stage 3 1 positive node, had surgery and now on chemo. I read some wonderful stories of survival and NED's. I was wondering if any one of you have been more concerned than other survivors because you come from a family such as mine that has a family history of colon cancer; and the stats suggests that we…
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Another question about CEA levels
Hi, Just have a question. I know CEA levels are not the be all end all thing but I seen here on the site people with CEA in the hundreds. My husbands was 1.1 pre surgery and then 0.5, 0.5, 0.4,0.6, 0.4 and now its 0.2 which is 1 1/2years later. 1.1 seems real low to me and just wonder if it's best to just not put all our…
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Newly Diagnosed...Rectal Cancer
Hello. My name is Jeannette and I am new here. It's very hard for me to be here, though, because I'm extremely scared. I'm 35, and went in for a colonoscopy after having some rectal bleeding for about two months. Apparently I have a 2cm lesion 15cm up that has come back as a cancer. I had a PET/CT scan yesterday, and today…
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COLONPALOOZA 6!!!
ColonPa-WHAT-za??? ColonPalooza, my SemiColon friends! I know many of you already know about ColonPalooza, but for those of you who don't, ColonPalooza is an event that was the brain child...or should I say brain fart (totally in the good way)...LOL...of a few members here at CSN, who thought it would be great to meet in…
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Friday Riddle / Teaser - ANSWER
CONGRATS to moesimo who is this weeks winner :) :) :) !!! RIDDLE: I have hands that wave at you, Though I never say goodbye. It's cool for you to be with me, Especially when I say, "HI." What am I? ANSWER: Electric Fan
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Advice Needed! Chemo or Not
Hello everyone, My wife, age 40, was dx 4-08 with stage 1 cc. 3cm tumor of sigmoid colon. Preop CEA .6 Colon resection 5-08. Path T2NOMO - G4 LVI Met w/ onc today. 1st appt. after surgery. We are confused as what step to take next if any. The onc. laid out the statistics but wouldn't recommend or not recommend chemo. We…
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4 years today!!!!!!!!!!!!!!!!!!!!
hello semi's, well today is my 4th anniversary since being dx with stage 11 colon. there have been bumps along the road, the oldies know what i am saying. the newbies it does get better, there is light at the end of the tunnel. to all thank you for all of the support, i couldn't have made it without all of you. newbies…
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Hi All and a Big Hug
Been a while and so glad I'm able to get back to this site . I've been having computer issues and think I found the problem, but soon need to get new computer. For those of you who know me, we had a great time on the cruise and will cherish the memory always. Bob, my husband, is doing very well but will have some "minor"…
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Good CT
Whew this time I was worried, my husband Dennis is a Stage IV Rectal Cancer Survivor. Diagnosed 1/5/06, with surgery 7/13/2006. Last Wed had all his Ct Scans and Friday had colonoscopy. They removed a growth from his colon (Scared). We went yesterday and the scans were all clear and the growth tested negative for cancer.…
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Update on Mom
Hi all...just wanted to give you an update on my mom...Last post about 3wks ago...brief hist: 78 y/o dx'ed in 03 colon ca...3 recurrences...last yr NED...5/08 mets to liver, pancreas, nodes...She had her port installed last week and we went today to have it checked...everything's ok...then had an appt w/onc...she'll be…
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It's been awhile...
Greetings all... Here's my story, white male, 46 years old, married with one kid. On Dec 04 dx w/crc and liver mets. Jan 05 started chemo, folfox, w/in 3 doses the 3 spots on liver seemingly disappeared. May 05, had colon resection. End of July thru August finished chemo and 5wks of radiation. Oct 05, declared NED. Feb…
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Friday Riddle / Teaser
RIDDLE: I have hands that wave at you, Though I never say goodbye. It's cool for you to be with me, Especially when I say, "HI." What am I?
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Mouth Sores 2 times Help
My wife has had mouth sore the last 2 chemo treatments. she's been on chemo since July with no mouth sores till April 15 treatment. Onc. gives hydromorphine for pain and 14 days of valtrex. This second bout was real bad. It occured evenn though they stoped the leucovorin. I need suggestions for the sores and any other…
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1st post
I found this board the day after I found out I have rectal cancer. Reading it has been a great source of information and a greater source of comfort that I am not alone. I had my surgery and went into renal failure, so I ended up in the hospital for 2 weeks. Dr also took out my ovaries and gall bladder. One lymph node came…
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Cancer Treatment Centers of America or Oasis of Hope
My brother has been battling colon cancer for the last three years. The cancer is in his abdomen, lung, liver, lymph nodes, and rectum. He is now going to USC Hospital for clinical trials. The first trial did not help (25% growth) so he is preparing for the next option. He also has made a n appointment with an immunologist…
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Lung Surgery ..6/4/08..
I am scheduled to have the nodule that is growing in my left lung removed on 6/4/08. I am Stage 4 which had already spread to my liver when diagnosed, I had primary tumor removed 3/7/06 and liver resection 5/27/06 and have been feeling fine since. Cat scan shows that nodule in left lung has almost doubled in size since…
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"Stand Up to Cancer"
Dear Friends, I took my kids to Dodger Stadium to watch them get womped on by the Cardinals on Saturday. It brought tears to my eyes as I remembered how big Dodger Stadium is. It seats 50,000 people. That is the same number of beautiful, American men and women that die EACH YEAR due to colorectal cancer. I believe we can…
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Picking your brain...CRC forum....
I am on a panel in September in California to get the word out about Colorectal Cancer. I am the 'survivor' representative. I have been asked about a 'goodie bag' that we could give to survivors (both in and past treatment). I need some help! (Just for ideas...not for donations...lol). I have thought about including a…
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Occasional glass of wine?
Hi, Val here, stage 3 colon cancer. I was wondering during any of your chemo treatments did you enjoy an occasional glass of wine? My doc. says it's OK but I'm hesitating>
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ANother Qestion re: treatment for my brother
In the post I made just a minute ago, I said that my brother has made an appointment with an immunologist recommended to us by Patrick Quillin, author of "Beating Cancer With Nutrition", thank you again Emily. I hope that this helps to get my brother on the right track toward proper nutrition as he battles this terrible…
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Want to help my brother & less confused but more questions about treatment?
Hello all, Some of you may recall that I wrote in for my brother who has been battling colon cancer for the last three years. He has been going through clinical trial treatments at USC Hospital as the cancer is in liver, lymnph nodes, lung, abdomen, and rectum. The first trial only resulted with a growth of 25%, he then…
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COLONPALOOZA-6 11/05-11/09 SAN FRANCISCO
OK... it's official...We're locked into the 11/05-11/09 dates for ColonPalooza-6 (CPVI). We will be at the Handerly Hotel in beautiful downtown San Francisco, CA (http://www.handlery.com/sf/). Katie (USAKat) will call today and get us a block of 10 rooms. We should be able to grow that block if we get more interest, but…