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I made it to my birthday
Yay, me! It's my birthday today. I don't like the number that represents my age these days, but I'm perfectly willing to accept it. After the events of last November, ALL birthdays are good. Happy day to everyone! Gail
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Friday Riddle / Teaser - ANSWER
RIDDLE: Hello there! I am a living animal. You may not see me with your eyes, But though I'm very, very small, I'm a tough nut for my size. I do not fear the arid desert, Nor the frigid cold and snow. I can rest comfortably in the mountains high Or in the ocean far below. You may find me in the cold of space Or by a…
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Chat option
Hello I have seen posts from people about the chat on this site. I have a temporary solution while this site gets theirs up and running again. I have been looking for a way that would be user friendly but also secure. Google talk I think will allow for this. Group chats can happen through contact lists. You have to be…
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CPT 11 Vs 5 fu
My wife was getting fluorouracil 4oomg plus a 1200mg bottle infusion over 2 days, bevacizumeb 5mg and leucovorin 400mg. The last two treatments she developed mouth sores. The last treatment they elemionated leucovorin and reduced flourouracil to the 1200 mg bottle over 2 days and still sores. Actually the last episode was…
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upcoming surgery
Hi everyone, I've been pretty busy lately running around from doctor to doctor getting second opinions, it is so easy to start second guessing everything you do. I've finally decided that my first choice for surgeon is the best and I have my scope this monday and then surgery on tuesday. He is doing a LAR…
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Friday Riddle / Teaser
I think I found one that will actually be hard :) RIDDLE: Hello there! I am a living animal. You may not see me with your eyes, But though I'm very, very small, I'm a tough nut for my size. I do not fear the arid desert, Nor the frigid cold and snow. I can rest comfortably in the mountains high Or in the ocean far below.…
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Macrobiotics Question
Hello, First of all, thank you to all of you who were so supportive of me when I was first diagnosed (only 1 week ago today officially). I've been reading a lot about this Macrobiotic diet and how cancer survivors are saying how beneficial it can be. I know that a few of you here have made the switch, but I want to hear…
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Bowel movements with an ileostomy
OK, this may be a bit gross, but I'm pretty sure everyone on this board has been through some pretty gross stuff. I am 4 weeks post surgery - lower anterior bowel resection. Waiting to start chemo. Last Saturday, my lower (I thought disconnected) bowel started rumbling and I was passing air, gas or something. Nurse at the…
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Oasis of Hope--great place!!
hello Semi-colons! I received this this morning and am passing it on per her request: Hi again! I have been trying over and over again to post a reply concerning Oasis, and I don't know if it's my computer, or the Mexican server, or a problem with CSN. I tried to even email it to the two people that asked about Oasis, and…
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Need Advice
My husband had a pet scan may 21st. He was scheduled the following week May 28th for the results. The doctors office called and cancelled the appointment on the 28th the doctor was out of town. So I finally called on Tuesday the secretary said he didn't like to give results over the phone so I had to make an appointment…
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standard lab testing
Good morning, this is Valerie, stage 3, 1 positive node. I had my standard bloodwork before my scheduled chemo today. My platelets and other blood tests came up lower than the last test. Haven't had a chance to talk with dr. yet to see why, or if they will cancel my chemo for today. This is only my second chemo treatment…
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Erbitux ?'s
Has anyone had much experience with Erbitux? I just started it and the rash and itching are just awful. I asked for a prescription for an acne medication as my sister found an item that says that it will help. The Dr. gave it to me, but I just started so don't know if it will help. Also, got the Lindi skin products. My…
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Erbitux
I don't know how to reply to a message but I just wanted to tell apache that "Proactiv" as seen on t.v. apparently works on the Erbitux rash. Good luck, Fiona.
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HAPPY BIRTHDAY JANA!
Today is our dear Jana's birthday (jana11)! Everyone, please join me in wishing Jana a very happy day! Happy Birthday to you, Happy Birthday to you, Happy Birthday, Dear Jana! Happy Birthday to YOU!!! ......and many more...... Hugs, Jana! You are an amazing woman and I consider myself blessed for knowing you. Katie
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clinical trial
I mentioned in my post below that I took part in a clinical trial after the completion of my standard treatment (chemo, radiation, surgery, more chemo). Some of you asked to hear more about it so I thought I would summarize it here. The trial is based out of Duke University but there are twelve participating hospitals…
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two years...
I received my diagnosis of stage four colorectal cancer two years ago today. And after thirteen rounds of folfox, radiation, surgery and a vaccine/immunotherapy clinical trial I have been NED for over a year. I have since passed the CA bar exam, started an amazing job, moved back out on my own, and am extremely happy. So I…
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Genetic diagnosis!!
Hi, Valerie again, stage 3 1 positive node, had surgery and now on chemo. I read some wonderful stories of survival and NED's. I was wondering if any one of you have been more concerned than other survivors because you come from a family such as mine that has a family history of colon cancer; and the stats suggests that we…
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Another question about CEA levels
Hi, Just have a question. I know CEA levels are not the be all end all thing but I seen here on the site people with CEA in the hundreds. My husbands was 1.1 pre surgery and then 0.5, 0.5, 0.4,0.6, 0.4 and now its 0.2 which is 1 1/2years later. 1.1 seems real low to me and just wonder if it's best to just not put all our…
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Newly Diagnosed...Rectal Cancer
Hello. My name is Jeannette and I am new here. It's very hard for me to be here, though, because I'm extremely scared. I'm 35, and went in for a colonoscopy after having some rectal bleeding for about two months. Apparently I have a 2cm lesion 15cm up that has come back as a cancer. I had a PET/CT scan yesterday, and today…
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COLONPALOOZA 6!!!
ColonPa-WHAT-za??? ColonPalooza, my SemiColon friends! I know many of you already know about ColonPalooza, but for those of you who don't, ColonPalooza is an event that was the brain child...or should I say brain fart (totally in the good way)...LOL...of a few members here at CSN, who thought it would be great to meet in…
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Friday Riddle / Teaser - ANSWER
CONGRATS to moesimo who is this weeks winner :) :) :) !!! RIDDLE: I have hands that wave at you, Though I never say goodbye. It's cool for you to be with me, Especially when I say, "HI." What am I? ANSWER: Electric Fan
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Advice Needed! Chemo or Not
Hello everyone, My wife, age 40, was dx 4-08 with stage 1 cc. 3cm tumor of sigmoid colon. Preop CEA .6 Colon resection 5-08. Path T2NOMO - G4 LVI Met w/ onc today. 1st appt. after surgery. We are confused as what step to take next if any. The onc. laid out the statistics but wouldn't recommend or not recommend chemo. We…
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4 years today!!!!!!!!!!!!!!!!!!!!
hello semi's, well today is my 4th anniversary since being dx with stage 11 colon. there have been bumps along the road, the oldies know what i am saying. the newbies it does get better, there is light at the end of the tunnel. to all thank you for all of the support, i couldn't have made it without all of you. newbies…
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Hi All and a Big Hug
Been a while and so glad I'm able to get back to this site . I've been having computer issues and think I found the problem, but soon need to get new computer. For those of you who know me, we had a great time on the cruise and will cherish the memory always. Bob, my husband, is doing very well but will have some "minor"…
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Good CT
Whew this time I was worried, my husband Dennis is a Stage IV Rectal Cancer Survivor. Diagnosed 1/5/06, with surgery 7/13/2006. Last Wed had all his Ct Scans and Friday had colonoscopy. They removed a growth from his colon (Scared). We went yesterday and the scans were all clear and the growth tested negative for cancer.…
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Update on Mom
Hi all...just wanted to give you an update on my mom...Last post about 3wks ago...brief hist: 78 y/o dx'ed in 03 colon ca...3 recurrences...last yr NED...5/08 mets to liver, pancreas, nodes...She had her port installed last week and we went today to have it checked...everything's ok...then had an appt w/onc...she'll be…
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It's been awhile...
Greetings all... Here's my story, white male, 46 years old, married with one kid. On Dec 04 dx w/crc and liver mets. Jan 05 started chemo, folfox, w/in 3 doses the 3 spots on liver seemingly disappeared. May 05, had colon resection. End of July thru August finished chemo and 5wks of radiation. Oct 05, declared NED. Feb…
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Friday Riddle / Teaser
RIDDLE: I have hands that wave at you, Though I never say goodbye. It's cool for you to be with me, Especially when I say, "HI." What am I?
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Mouth Sores 2 times Help
My wife has had mouth sore the last 2 chemo treatments. she's been on chemo since July with no mouth sores till April 15 treatment. Onc. gives hydromorphine for pain and 14 days of valtrex. This second bout was real bad. It occured evenn though they stoped the leucovorin. I need suggestions for the sores and any other…
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1st post
I found this board the day after I found out I have rectal cancer. Reading it has been a great source of information and a greater source of comfort that I am not alone. I had my surgery and went into renal failure, so I ended up in the hospital for 2 weeks. Dr also took out my ovaries and gall bladder. One lymph node came…