-
Pam accepted for clinical trial NCT01051596
Pam's onc hooked us up with a clinical trial at the Lombardi Cancer Center at Georgetown University. We have an appointment with the Principal Investigator on June 2nd. It's a 3+ hour drive for us but we are both excited and aprehensive, if that makes any sense. Details of the trial are here:…
-
Pet Scan- Change in Plan
I met with my Onc yesterday to talk about my new plan. The PA had given me the results of my petscan last Thursday. It showed increase in size and number of lung nodules and everything else was stable. My Onc was out last week. He talked to the PA and she said that I would be starting Folfori . My Onc wanted to see me on…
-
colonoscopy
hi everyone. I know this post is insignificant compared to what all of you have been through. I will be having a colonoscopy today. At the time of my sister's dx in 3/09, my PCP advised me to have a cololoscopy. I did (at aGE 40) and a cnerous polyp was removed. We had genetic testing and it was determined that the caNCER…
-
Bathroom question??
So is it normal to have blood in your stool after reattachment surgery?? It has been since March 23rd when chris got reattached, and april 29th he had clear scans. Now all the sudden he is having blood in his stool.. If its not one thing its another...lol loves, Mel
-
Jim is home from Loyola, thank you, thank you
Jim came home from having his liver surgery yesterday after several minor set-backs and is recovering at home. Before he left his surgeon looked him in the eye and said, "you are cancer free." We will do mop up chemo after he recovers fully from surgery, but cancer free? Really? Can they say that? I am cautiously overjoyed…
-
Help with Disability
Some of you may already know that I had rectal cancer (T3) in 2008 and have lived with a stoma ever since . After recovery the doctor as well as nurses told me that I shouldn't lift anything or I could have my intestines come out of me. I tried to get on disability and was denied. That's a scary thought that could be very…
-
Just because I look good
Just because I look good, doesn't mean I am back to 100%. Just because my last chemo was in August doesn't mean I am not tired. Just because my ileostomy reversal was in September doesn't mean I don't still have issues. I may look like I am fine, but I am still tired. People need to understand that my body was cut up,…
-
who was talking about juicing?
I'm sorry but I don't remember in which post I read recently of juicing with carrots, spinach, apple juice etc.. She recommended a book too and was diagnosed a long time ago. Anybody know who or which post I'm thinking of? Do you all think this would be good for Jim? Thanks April aka NANA
-
5 years ago today....
5 years ago, on this very day, I was in surgery to try to save my life from invasive colorectal cancer....now, my oncologist released me back to my GP!!! YEA!!!! Hugs, Kathi
-
Up date on Louann
My apointment at MD Andeson will be june 14,15,16 not confirmed as of yet but they said it won't be any sooner. I am still raising the money to go. God has been very good to us and I won't give up no matter how bad I am feeling and I can't get into a pain mgt doctor until the 26th of this month. it is very sad that we have…
-
Relay for Life
Did my first Friday night at Carson Park Fairgrounds. My 5 year old was graduating from pre school and it was at 7 so I missed the survivors lap, thats OK, I made the luminary walk and my kids and I walked about 5 laps..Then we sat around with our booth that we had there from our church. We did for our first time ever…
-
Glutamine for chemo neuropathy?
Has anyone used Glutamine for post-chemo neuropathy (Folfox)? I was just advised to take 10 g twice a day, and was wondering if anyone has experience with this. I currently take Alpha Lipoic Acid and Vit. B6, but the neuropathy has flared again, such that walking is again painful. Thanks!
-
How many chemo regiments for CRC?
I guess what I am asking is, what's next? Pam was diagnosed with CRC w/mets to liver in Dec 08. She was started on Folfox 6 w/Avastin. At first it worked great and the scans revealed shrinking tumors. Then, the Avastin caused an elevated protein level in her urine (and she also had a k-ras mutation?) and she was taken off…
-
Node Out!
Dear Friends, You are the best. Kim, how kind of you to start the thread about ****. All of you, we have felt your thoughts and prayers all day. **** went into surgery at 10:00. He was in until 1:20. Dr. Genyk came out and said they got the node and margins looked good. As we thought, the node was positive for cancer. He…
-
Hello again....scanaxiety here!
Hi everyone! I just wnated to check in and let you know that even though I have not posted much, I read about what is going on with everyone. It has saddened me quite a bit of the amount of people that have lost this battle to cancer on here. Therefore, because of that, I have been putting extra energy into living life day…
-
Update and hospital stays
Hi All, We are at day 4 in the hospital. **** is doing well. Today he walked for 30 minutes, doing laps around and around the floor. They said he should go home (to my parent's house) on Tuesday morning. A few things I wanted to share about ****'s experience at USC. We have been very pleased with his care here. A few…
-
drained emotionally
I haven't posted much in a while since my surgery. Surgery was April 6th nad today is my first day back to work. I am really confused because they told me I am "cancer free" now, but they want me to do 6 months of chemo still as an insurance policy. Is this the standard protocol?
-
2 years ago today
My grandson, Andy was born. He has been the center of my recovery and faith in life. I knew something was up with me that day. I was already scheduled for a colonoscopy on the 20th. But for 4 blessed days I was a grandma (for the first time) and I could just hold him and breath in his glorious smell and kiss those rosey…
-
15 months
Just got results from my 15 month scan last Monday. Bloodwork getting better (liver enzymes) and my scan was clear. My oncologist said that 2 years was a good marker so I look forward to that (hopefully clean scan) but that 14 months was the median for those that recur in the first 2 years. So, I keep taking one day at a…
-
Please pray for Pat Kapper and Carrie
Carrie shared this middle of the night Saturday.Everything is quite different here at the Kapper house since my last post on Monday, 5/10. As of the very next day, the fluids were taken away and since that took place, there will be no possibiity of the laparoscopic procedure I spoke of. Tuesday morning, I woke up to Pat…
-
Relay For Life
What a wonderful day. Our daughter works for Delta and they had their own booth at the event. I was signed up as a walker from 11:00 to 12:00 but my stamina was so good I walked until 1:30. I have never been so energized and felt like I was really helping out for such a good cause until today. I bought several colon cancer…
-
Relay Report!
Last night was wonderful! There were so many people at the Relay for Life here. I was very proud to be able to help carry the survivor banner when we did our lap. That lap always makes me cry so much, because there are people lining the track clapping for us. There was a huge storm that came through after the luminaria…
-
Need Advice on taking Ativan
Hey Everybody! I am going thru a tapering schedule to get me off the Oxycodone. My Onc has added Ativan to the withdrawal procedure but I am confused when I am suppose to take it. EXACTLY...what is it suppose to do??? Maybe then I can figure best time and how often to take it. Onc said it would help get me thru the periods…
-
doctors response to mucus
Thank you for the responses.My rectum is still in place because although the cancer was low they tried to save the rectum.After 5 years of loose bowel movements and wearing a diaper I gave up and had a colostomy.This radically changed things for the better,but now I have this terrible mucus.My doctor wants to do something…
-
How good's your memory?
I was talkihg with some people earlier and one guy claimed he could remember being baptized! Another guy said he recalled being circumsized on his eighth day of life!! The third man claimed he remembers going to the dance with his father and coming home with his mother!!!! Can you beat that? Have fun.....steve
-
It's The Little Things That Bring Joy
With all of the enormous physical and mental changes and challenges we deal with in our day-to-day lives, we have found that it's the little things which bring us joy and happiness. As if a window has opened and the view of life is more vivid. Let's share what "little things" we find in our lives that are uplifting or…
-
hey Rob
love the new photo! It is so cute.
-
MD Anderson update on Louann
Well I am 2nd or 3rd on the review list and should hear something by weeks end and I am still trying to raise the money to go and stay for the 8 days they say it will be and my husband lost his job 2 days ago so he thinks God plans for him to go and be with me. It will cost 500 to stay in a motel for a week and food well…
-
concern about atropine
I recently started on a chemo regime of Irinotecan and Vectibix. During the last round of chemo they gave me atropine to slow down my gut as diarrhea is one of the major side effects of iriontecan. So far diarrhea hasn't been a problem for me but, my dr doesn't want it to become a problem, so the atropine. The problem is…
-
chemo holiday
Has anyone ever gone on a chemo holiday and what did that look like? I've been doing chemo for about 3.5 years. I was on folfox originally for 8 cycles. Then when recurrence happened I went on folfiri + Avastin,(12 cycles) then maintenance of xeloda and avastin for 10 months, then folfox and avastin for 8 cycles and now…