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Not what I wanted to hear...
Well we are leaving Houston and I did not get the news I wanted to hear. Apparently I have some lung nodules now and will need to do chemotherapy for about 3 months. UGH! I am so down right now! I thought I had this thing beat but I guess tat was kind of foolish to think that so early. My DR said this is highy treatable so…
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Trials
Hi, I am having mixed emotions tonight. I was called today by a clinical researcher from UCSF about joining in a clinical trial. I have basically been told by my onc and onc at UCSF that there isn't really much for me to do except trials. I am stage 4 with nodules to the lungs. I have already tried oxy, irronotecan with…
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good news
Last night I only messed my Depends once and now, with diligent stool management I am making cheese doodles! Life is GOOD! (I need a hobby or a job)
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I'm done with my chemo the end of June...
to those of you guys who are finished with chemo, did you guys give a gift to your onc nurses? If you did, what did you give? I'd really like to show them that they have been fabulous to work with and that they'll always be remembered. :)
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American Lung Assn just posted its 2010 State of the Air report
where you can type in your zipcode or state and get status of air and other related info about where you breathe......... stateoftheair.org
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The Reading Room: Link to CNN Article Describing a Condition Called "Anesthesia Awareness"
Here is a link to this CNN article on a topic called "Anesthesia Awareness." It describes one woman's experience with waking up during surgery but being paralyzed by the anesthesia to do anything about it. On my very 1st colonoscopy, I too, woke up during the procedure. I lifted my head up, and saw this big red looking…
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Phase I study on patients with oxi refractory/intolerant KRAS mutant CRC
announced this date by Calgary, Canada-based Oncolytics Biotech, which will consist of FOLFIRI (Leucovorin,5FU and Irinotecan)with this new thing called Reolysin (REO). For more info see www.prnewsire.com or rttnews.com Hope this helps someone
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PET/CT today
The time has come. My scan is today and I'll get the results Friday. Common sense tells me not to worry - my CEA is 2.1. And the results will be what they are whether I ignore it and wait till Friday when I find out, or if I drive myself insane with "what-ifs" until Friday. But I am nervous...can't help it.
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Pam accepted for clinical trial NCT01051596
Pam's onc hooked us up with a clinical trial at the Lombardi Cancer Center at Georgetown University. We have an appointment with the Principal Investigator on June 2nd. It's a 3+ hour drive for us but we are both excited and aprehensive, if that makes any sense. Details of the trial are here:…
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Pet Scan- Change in Plan
I met with my Onc yesterday to talk about my new plan. The PA had given me the results of my petscan last Thursday. It showed increase in size and number of lung nodules and everything else was stable. My Onc was out last week. He talked to the PA and she said that I would be starting Folfori . My Onc wanted to see me on…
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colonoscopy
hi everyone. I know this post is insignificant compared to what all of you have been through. I will be having a colonoscopy today. At the time of my sister's dx in 3/09, my PCP advised me to have a cololoscopy. I did (at aGE 40) and a cnerous polyp was removed. We had genetic testing and it was determined that the caNCER…
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Bathroom question??
So is it normal to have blood in your stool after reattachment surgery?? It has been since March 23rd when chris got reattached, and april 29th he had clear scans. Now all the sudden he is having blood in his stool.. If its not one thing its another...lol loves, Mel
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Jim is home from Loyola, thank you, thank you
Jim came home from having his liver surgery yesterday after several minor set-backs and is recovering at home. Before he left his surgeon looked him in the eye and said, "you are cancer free." We will do mop up chemo after he recovers fully from surgery, but cancer free? Really? Can they say that? I am cautiously overjoyed…
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Help with Disability
Some of you may already know that I had rectal cancer (T3) in 2008 and have lived with a stoma ever since . After recovery the doctor as well as nurses told me that I shouldn't lift anything or I could have my intestines come out of me. I tried to get on disability and was denied. That's a scary thought that could be very…
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Just because I look good
Just because I look good, doesn't mean I am back to 100%. Just because my last chemo was in August doesn't mean I am not tired. Just because my ileostomy reversal was in September doesn't mean I don't still have issues. I may look like I am fine, but I am still tired. People need to understand that my body was cut up,…
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who was talking about juicing?
I'm sorry but I don't remember in which post I read recently of juicing with carrots, spinach, apple juice etc.. She recommended a book too and was diagnosed a long time ago. Anybody know who or which post I'm thinking of? Do you all think this would be good for Jim? Thanks April aka NANA
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5 years ago today....
5 years ago, on this very day, I was in surgery to try to save my life from invasive colorectal cancer....now, my oncologist released me back to my GP!!! YEA!!!! Hugs, Kathi
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Up date on Louann
My apointment at MD Andeson will be june 14,15,16 not confirmed as of yet but they said it won't be any sooner. I am still raising the money to go. God has been very good to us and I won't give up no matter how bad I am feeling and I can't get into a pain mgt doctor until the 26th of this month. it is very sad that we have…
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Relay for Life
Did my first Friday night at Carson Park Fairgrounds. My 5 year old was graduating from pre school and it was at 7 so I missed the survivors lap, thats OK, I made the luminary walk and my kids and I walked about 5 laps..Then we sat around with our booth that we had there from our church. We did for our first time ever…
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Glutamine for chemo neuropathy?
Has anyone used Glutamine for post-chemo neuropathy (Folfox)? I was just advised to take 10 g twice a day, and was wondering if anyone has experience with this. I currently take Alpha Lipoic Acid and Vit. B6, but the neuropathy has flared again, such that walking is again painful. Thanks!
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How many chemo regiments for CRC?
I guess what I am asking is, what's next? Pam was diagnosed with CRC w/mets to liver in Dec 08. She was started on Folfox 6 w/Avastin. At first it worked great and the scans revealed shrinking tumors. Then, the Avastin caused an elevated protein level in her urine (and she also had a k-ras mutation?) and she was taken off…
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Node Out!
Dear Friends, You are the best. Kim, how kind of you to start the thread about ****. All of you, we have felt your thoughts and prayers all day. **** went into surgery at 10:00. He was in until 1:20. Dr. Genyk came out and said they got the node and margins looked good. As we thought, the node was positive for cancer. He…
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Hello again....scanaxiety here!
Hi everyone! I just wnated to check in and let you know that even though I have not posted much, I read about what is going on with everyone. It has saddened me quite a bit of the amount of people that have lost this battle to cancer on here. Therefore, because of that, I have been putting extra energy into living life day…
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Update and hospital stays
Hi All, We are at day 4 in the hospital. **** is doing well. Today he walked for 30 minutes, doing laps around and around the floor. They said he should go home (to my parent's house) on Tuesday morning. A few things I wanted to share about ****'s experience at USC. We have been very pleased with his care here. A few…
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drained emotionally
I haven't posted much in a while since my surgery. Surgery was April 6th nad today is my first day back to work. I am really confused because they told me I am "cancer free" now, but they want me to do 6 months of chemo still as an insurance policy. Is this the standard protocol?
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2 years ago today
My grandson, Andy was born. He has been the center of my recovery and faith in life. I knew something was up with me that day. I was already scheduled for a colonoscopy on the 20th. But for 4 blessed days I was a grandma (for the first time) and I could just hold him and breath in his glorious smell and kiss those rosey…
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15 months
Just got results from my 15 month scan last Monday. Bloodwork getting better (liver enzymes) and my scan was clear. My oncologist said that 2 years was a good marker so I look forward to that (hopefully clean scan) but that 14 months was the median for those that recur in the first 2 years. So, I keep taking one day at a…
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Please pray for Pat Kapper and Carrie
Carrie shared this middle of the night Saturday.Everything is quite different here at the Kapper house since my last post on Monday, 5/10. As of the very next day, the fluids were taken away and since that took place, there will be no possibiity of the laparoscopic procedure I spoke of. Tuesday morning, I woke up to Pat…
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Relay For Life
What a wonderful day. Our daughter works for Delta and they had their own booth at the event. I was signed up as a walker from 11:00 to 12:00 but my stamina was so good I walked until 1:30. I have never been so energized and felt like I was really helping out for such a good cause until today. I bought several colon cancer…
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Relay Report!
Last night was wonderful! There were so many people at the Relay for Life here. I was very proud to be able to help carry the survivor banner when we did our lap. That lap always makes me cry so much, because there are people lining the track clapping for us. There was a huge storm that came through after the luminaria…