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Colorectal Cancer

Future of colonoscopes?
Kimball Electronics and Avantis Medical Systems have developed a device they call "the Avantis third Eye Retroscope" which is "a revolutionary new catheter-based camera device that works in conjunction with existing colonoscopy equipment." This will allow the doctor "an additional retrograde (backward) view of the colon…
Post-chemo Anemia?
I finished my chemo (Folfox) in April, and went in for an exam, port flush and labs yesterday. Today the oncologist's office called and said I was anemic. They want me to come back in for more lab work needed to get an injection approved, and they want me to have the injection before I go for the PET/CT scan that is being…
Any advice?
Mom is still having problems with an ileus/obstruction in her small intestine after her retal resection surgery 5 weeks ago. She still cant eat or drink (other than a few sips of water) without throwing up. She is on IV nutrition (TPN) and just feels so weak. Her dr. said they usually always work out on their own and are…
My youngest at his prom look on my expressions page
Just thought I would share this milestone with everyone. This is my 17 year old. My youngest boy. 12 years ago they told me to get my things in order. I only had a couple times where I thought this beast had me, it was when I let fear take over. Now 12 years later and mostly fearless, I still have check ups every three…
Got a pet? PUGS are the best!!!!
This post started on a different post but it needs it's own post so here it is. PUGS are the best!!!!
Xeliri vs Folfori ?
Can anyone give me any information about Xeliri vs Folfori. My onc wants to start me on Folfori. I have an appointment with him tomorrow to discuss this due to my pet scan showing increase in lungs. I have been on Xeloda alone since 9/09 and Xeolda with Avastin since 10/09. I have had very minimal side effects with Xeloda.…
Cured???
Are there any active members on here that are cured?? I don't mean NED for a year or two. I mean over five years with no reccurence OR treatment. I know Emily is but who else? How long (over five years) and what was your treatment course? What do you credit, your treatment, your will, luck, God, lifestyle, or unknown???…
Xeloda vs. Folfox
Hi Everybody, Haven't posted in a while but have been lurking. Just to update you, I've finished 8 tx with Folfox but had 2 postponements due to low platelet count. Dr. cut dosage of Oxali twice but the side effects were still the same. I'm now contemplating stopping my infusion all together and going on Xeloda for the…
AFTER LIVER RESECTION
Anyone who had a liver resection can you tell me about afterwards. I am 6 weeks after resection and went back to work already, but i am so tired, I mean TIRED. I have never allen asleep when typing on computer. Are yousuposed tp eat alot of proteins? I am not having pain to much from liver but my shoulder and nect on the…
Healing Journeys Conference - Charlottesville, VA and Knoxville, TN.
I attended the "Healing Journey's" Conference in Greenville after my colon resection and before chemo. I highly recommend it. Lizzy ---Director's Reflections - by Jan Adrian, MSW Dear Friends, I had another reminder this week of what a difference one person can make. I’ve written about Robin Davenport before. She was…
Not what I wanted to hear...
Well we are leaving Houston and I did not get the news I wanted to hear. Apparently I have some lung nodules now and will need to do chemotherapy for about 3 months. UGH! I am so down right now! I thought I had this thing beat but I guess tat was kind of foolish to think that so early. My DR said this is highy treatable so…
Trials
Hi, I am having mixed emotions tonight. I was called today by a clinical researcher from UCSF about joining in a clinical trial. I have basically been told by my onc and onc at UCSF that there isn't really much for me to do except trials. I am stage 4 with nodules to the lungs. I have already tried oxy, irronotecan with…
good news
Last night I only messed my Depends once and now, with diligent stool management I am making cheese doodles! Life is GOOD! (I need a hobby or a job)
I'm done with my chemo the end of June...
to those of you guys who are finished with chemo, did you guys give a gift to your onc nurses? If you did, what did you give? I'd really like to show them that they have been fabulous to work with and that they'll always be remembered. :)
American Lung Assn just posted its 2010 State of the Air report
where you can type in your zipcode or state and get status of air and other related info about where you breathe......... stateoftheair.org
The Reading Room: Link to CNN Article Describing a Condition Called "Anesthesia Awareness"
Here is a link to this CNN article on a topic called "Anesthesia Awareness." It describes one woman's experience with waking up during surgery but being paralyzed by the anesthesia to do anything about it. On my very 1st colonoscopy, I too, woke up during the procedure. I lifted my head up, and saw this big red looking…
Phase I study on patients with oxi refractory/intolerant KRAS mutant CRC
announced this date by Calgary, Canada-based Oncolytics Biotech, which will consist of FOLFIRI (Leucovorin,5FU and Irinotecan)with this new thing called Reolysin (REO). For more info see www.prnewsire.com or rttnews.com Hope this helps someone
PET/CT today
The time has come. My scan is today and I'll get the results Friday. Common sense tells me not to worry - my CEA is 2.1. And the results will be what they are whether I ignore it and wait till Friday when I find out, or if I drive myself insane with "what-ifs" until Friday. But I am nervous...can't help it.
Pam accepted for clinical trial NCT01051596
Pam's onc hooked us up with a clinical trial at the Lombardi Cancer Center at Georgetown University. We have an appointment with the Principal Investigator on June 2nd. It's a 3+ hour drive for us but we are both excited and aprehensive, if that makes any sense. Details of the trial are here:…
Pet Scan- Change in Plan
I met with my Onc yesterday to talk about my new plan. The PA had given me the results of my petscan last Thursday. It showed increase in size and number of lung nodules and everything else was stable. My Onc was out last week. He talked to the PA and she said that I would be starting Folfori . My Onc wanted to see me on…
colonoscopy
hi everyone. I know this post is insignificant compared to what all of you have been through. I will be having a colonoscopy today. At the time of my sister's dx in 3/09, my PCP advised me to have a cololoscopy. I did (at aGE 40) and a cnerous polyp was removed. We had genetic testing and it was determined that the caNCER…
Bathroom question??
So is it normal to have blood in your stool after reattachment surgery?? It has been since March 23rd when chris got reattached, and april 29th he had clear scans. Now all the sudden he is having blood in his stool.. If its not one thing its another...lol loves, Mel
Jim is home from Loyola, thank you, thank you
Jim came home from having his liver surgery yesterday after several minor set-backs and is recovering at home. Before he left his surgeon looked him in the eye and said, "you are cancer free." We will do mop up chemo after he recovers fully from surgery, but cancer free? Really? Can they say that? I am cautiously overjoyed…
Help with Disability
Some of you may already know that I had rectal cancer (T3) in 2008 and have lived with a stoma ever since . After recovery the doctor as well as nurses told me that I shouldn't lift anything or I could have my intestines come out of me. I tried to get on disability and was denied. That's a scary thought that could be very…
Just because I look good
Just because I look good, doesn't mean I am back to 100%. Just because my last chemo was in August doesn't mean I am not tired. Just because my ileostomy reversal was in September doesn't mean I don't still have issues. I may look like I am fine, but I am still tired. People need to understand that my body was cut up,…
who was talking about juicing?
I'm sorry but I don't remember in which post I read recently of juicing with carrots, spinach, apple juice etc.. She recommended a book too and was diagnosed a long time ago. Anybody know who or which post I'm thinking of? Do you all think this would be good for Jim? Thanks April aka NANA
5 years ago today....
5 years ago, on this very day, I was in surgery to try to save my life from invasive colorectal cancer....now, my oncologist released me back to my GP!!! YEA!!!! Hugs, Kathi
Up date on Louann
My apointment at MD Andeson will be june 14,15,16 not confirmed as of yet but they said it won't be any sooner. I am still raising the money to go. God has been very good to us and I won't give up no matter how bad I am feeling and I can't get into a pain mgt doctor until the 26th of this month. it is very sad that we have…
Relay for Life
Did my first Friday night at Carson Park Fairgrounds. My 5 year old was graduating from pre school and it was at 7 so I missed the survivors lap, thats OK, I made the luminary walk and my kids and I walked about 5 laps..Then we sat around with our booth that we had there from our church. We did for our first time ever…
Glutamine for chemo neuropathy?
Has anyone used Glutamine for post-chemo neuropathy (Folfox)? I was just advised to take 10 g twice a day, and was wondering if anyone has experience with this. I currently take Alpha Lipoic Acid and Vit. B6, but the neuropathy has flared again, such that walking is again painful. Thanks!

Colorectal Cancer

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