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scan results not great - bone mets
Got my PET scan results this morning. Not so good. I have bone mets. Five (neck, rib, hip, pelvis, lower back). The good news is they are tiny. My onc wants to do a biopsy. He suspects my cancer has mutated (hence the rising CEA, when CEA has never been a good indicator for me before - not at initial diagnosis or with any…
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Prayers Needed
Hi All, I always know where to go when I need help and support. I got a call from my daughter yesterday, she said that she went to her doctor because of some bleeding when she went to the bathroom, she of course told him about me and my history. So she is scheduled for a colonoscopy on May 14, 2010. She is only 18 and she…
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scared and hurt
Tomorrow I go for a pet scan to see if after four years my rectal cancer has returned. My CEA went from 2.2 to 5.8. I have had to wait just over a week for the exam and in that time I have lost five pounds. I know my wife says its just stress and maybe she is right. Tomorrow will tell us nothing, we won't know until the…
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How many are still on dial up
Hey Phil, I just read on another post of yours “remember dial up”. What, am I the only one still on dial up??? We are lucky to have internet at all down here. The best speed I can get is 26K. What drives me nuts is you high speed folks sending me video files. I use outlook and when I see over a meg coming in, I have to…
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Missed You All
Hi All: I hope you have all been well. It’s been awhile, but wanted to let you know all what has been going on. First, I would like to express my condolences to those we lost on the board since I posted last. My heart goes out to the families and friends. I’ve been looking at some posts but not very many. I was getting…
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possible mets to spine
I am not new to this site but I do not post often. I read some of the posts and my heart goes out to each and everyone of you both patients and caregivers because it is only when someone is touched by this monster do we know what it really is like. I am a caregiver and would like to know if anyone has had experience with…
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My morning
Hi, everyone. I had a nice morning. I was invited to a local elementary school to speak about being a cancer survivor. It was just a short talk to some 2nd graders. The school does a mini Relay for Life each year. When the kids came out to hear me speak, they had all brought money to put in a bucket. The PE teacher, who…
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ANC 28%, No chemo,
Hi, yall How worried should I be? I have crazy met growth and spreading, mostly i look and feel great, only complaints are more tired, and neck and back pain, On a side note, had a great art show wt hubby and been hard at work trying to fill orders. question 2. Anyone else have advice on how to tell spouse things with out…
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My husband
Hello everyone,I joined because I am afraid my husband has cancer. He goes for a colonoscopy and endoscopy this Monday,May 3rd. He has been having thin,flat bowel movements for about 6 weeks. I am expecting a cancer diagnosis but I've not told him that.He had a heart attack in Nov. 2004 and had a stent put in. He is not on…
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Scans in
Hi, you are the ones I turn to when the disappointment hits. Got my scan results today. They aren't bad, the spots I had have grown some and there were some new ones (on my lungs) but no other spots anywhere else. I have been 12 weeks with no treatment, so now we know what happens! I have to wait for the onc at UCSF to…
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JUICING RECIPES!
hey all you awesome semi-colons! Are you prepared to Rock Your World with your new juicers??? First off I want to say how happy happy happy I am that you all are doing this! You won't regret it. You body will thank you. Juicing veggies helps to keep your body alkaline which in turn helps to either heal your cancer or keep…
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Neulasta after Folfiri and Avastin
I just had my third round of chemo last Friday. After the first round, I was horribly sick for a few days, but bounced back quickly. After the second round, I was not nearly as sick, but it took almost 2 weeks to feel better. I had only 3 good days that time. My onc said it was because my wbc was low-- 3.2 at the chemo…
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Erbitux - has anyone been given this after chemo is done?
Hi, I have had a recurrence of Stage III colon cancer last May. After surgery, radiation and chemo they tried me on Erbitux. After 10 cycles of 5FU, levaflurin and irenitican, they said it wasn't working for me. The tumor is unresectable. I had one treatment of the Erbitux and I had alot of side effects. One was a terrific…
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having PET/CT scan Thurs pm & bloodwork results
Hi, Just an update on me- I just found out today that my PET/CT scan will be tomorrow (Thursday) at 3:00 pm. This is the first time I'll be having the scan done in the afternoon. I was told I can have a very light breakfast, as long as I have nothing except water after 8 a.m. I just made arrangements for the kids to be…
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Thought of Today
“Remember that very little is needed to make a happy life.” ~ Marcus Aurelius
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antidepressants
Is anyone here taking either lexapro or prozac? Just wondering what kind of side effects, if any, you were experiencing? Have the meds caused any problems with diarrhea or weight gain?
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slow connections with the CRC network?
Hi, Has anyone else been having problems with connecting to this site or posting/answering a question around this time every night. I'm in Ca and it's 9:30. This site slows down so much that Sometimes I just quit and go to bed. I know it's not my network because I can go on all other sites without a problem, and I have a…
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update on blood in urine
My husband saw a Urologist today, not the one the ER recommended, I didn't like the tone or attitude of the receptionist on the phone, so I called his family doc and he recommended a doc. Doc did a scope in the office, bladder checked out fine, no masses. Thank God. We sat in his office and looked up his last CT scan in…
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Question of the week ~
Last time you got stopped by a cop or pulled over?
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Sensitive teeth to cold
My teeth have been sensitive since chemo (FOLFOX, stopped 2 years ago) and neither the Sensodyne toothpastes nor the prescription Prevident 5000 toothpaste is helping. It's mostly an issue when I rinse my mouth, if the water is cool, or if I bite into cold foods. Anyone else have this problem? Any solutions that I might…
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The Cancer Cure?
I was watching Extra this afternoon, and they had an interesting discussion with a dr. about this machine that cures cancer. Could this be the hope? Check it out, I don't know much about it, but thought it was pretty interesting. Check out this link: http://extratv.warnerbros.com/2010/05/cancer_cure.php Hugsss! ~Donna
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New CSN Chat
Hi everyone, The new CSN chat was launched this afternoon. Hope you like it. :-) Greta Your CSN staff
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Anyone heard from Roger (Crow 71) lately...
Hope Roger is recovering ok...just thinking of him and his family. Sending recovery sparks.
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Restaging after surgery
Anyone been told their stage has changed due to preop TX plus surgery? That after surgery a "YP" staging is done?.......steve Y=had surgery/treatment before P=pathology
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Just want answers
I need help I have cancer in the right lobe of the liver in the bile duct of the liver and head of my pancres and have been told the surgery is not an option it is to risky and I would die on the table chemo is the only thing I can do . Going to see ONC friday morning and port is suposed to be out in that afternoon but I…
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Scans on Monday
Well, I was wondering why am I walking around aimlessly today. Why do I keep looking out the window? I feel like Wacko Woman today. It dawned on me. Scans on Monday!!! These are the first scans I have had since treatment started. I finished treatment 4/14/10 and so this is making me crazy. I have tried to keep busy but…
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As we now all know the importance of a colonoscopy, it should come as no surprise that a study by Ma
concluded: "A shorter daily shift schedule for endoscopists, the physicians who perform colonoscopies, avoids a decrease in the polyp detection rate as the day progresses....." Their endoscopists work a three-hour shift per day An interesting statement was :"Its known already that longer colon exam times during endoscope…
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Kanzius now in FIRST PLACE- please vote!!
www.refresheverything.com/kanziuscancerresearch
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Cindyz's update on Stephen :-(
Trying to figure this thing out by cindyz » Wed May 05, 2010 7:33 am I can't remember when I have been so tested. I don't think there's been a time. I'm trying to figure out what to do, how to be, how to think beyond today without Stephen, and I cannot. Things have been progressively getting worse, and after getting all…
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Old timer..high CEA....freaking out
Dear Ones: I'm a very old timer. Diagnosed Dec 2002 with Stage III rectal cancer. Initial treatment in 2003. Since then I have had 3 recurrences. All single mets in lung, treated with surgery + chemo. I've been NED for almost 2 years. (Had a 'false alarm' last summer - talk about nerve wracking! A delightful reprieve....).…