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interesting Friday
I had one of my stupid fainting episodes again- this is getting so annoying! It's all related to having to adjust my blood pressure medication because of going on Avastin again. I was volunteering at my 10 yr old daughter's school Friday for "Pioneer Day". I was working at the candle making station with another mom…
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where i get my inspiration!!!
good morning semi's, i would like to tell you where i get my inspiration from. her name is denise and she is my suster in law. she has just faced and beaten her 4th time with cancer. 2 times breast, 1 rectal, now lung. when i was dx she would tell me she got her inspiration from me because i went thru all the surgeries and…
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recurrence??
I no with sad regret many of you have had recurrences of your colon cancer. I am just wondering what the symtoms are?? As I last told you chris had blood in his stool so we went to the dr on Thurs.. This is not his only symtom. He is SO fatigued its a chore to get out of bed for a week now. He never had nausea through this…
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Post-FOLFOX vein pain
I've found that since my FOLFOX treatments, my veins have been painful, such that having blood drawn or an IV placed (for CT scan, for example) is quite uncomfortable - separate from the "sticking" part, when the canula/needle is in place. One of my fears of my upcoming surgery is of how I'll tolerate an IV on an ongoing…
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Anything I should be aware of: having port removed later on?
After all I've been thru this should be nothing as surgeon who put it in a year ago and did colostomy will be removing it at 10:30 AM when he's wide awake and alert (he took a minivacation prior to my surgery-I love this man!!!!)I might not ask all I should (and even when I write things down, I then forget where I put…
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A note from Brooks
Hey Everybody, I’m back!! First of all I want to thank everybody for the prayers and for wishing me a fast recovery. I got home for my hospital stay yesterday early evening and was so tired I couldn’t even write this quick note. As most of you know I’ve been having a hard time with my iliostomy reversal that was on April…
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My thoughts.....
When I first started out, I was so scared, and it was this sight that helped me calm down. No question or comment was too stupid. As I continued on this journey I have become the parent, grandparent, the great grandparent and as people come on to this board, they slowly take our place in the lineage. We can never forget…
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Newbie, but been around the block a time or two
For starters, Hello to everyone stricken with CRC, Im from northeast missouri, i was diagnosed with stage 1 colorectal cancer on April 13th2009 after a routine scope for low hemoglobin levels, I went to Barnes Jewis Hospital which has excellant doctors and staff, I started Chemo Xeloda and radiation right away, after 18…
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Surgery delayed....This isn't easy :(
We had the MRI yesterday, four weeks after the PVE. Surg. onc. disappointed the liver had not overgrown as much as he had expected. He gave the MRI info to the rad. dept to measure volume of liver. They actually did the pre-op (bloodwork, chest x-ray, etc) and the original date is still available, first week in June,they…
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Patrick Kapper
I received a caring bridge update from Pat's wife Carrier that Patrick lost his battle this morning at 6:30 a.m. Rest in pease my friend. Tina
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It's my birthday and I'll cry if I want to, need to vent!
So if I've come to my online family, this has to be the worst birthday I have ever had apart from my mum dying or last year being on chemo. Maybe it's not so bad if you look at it that way. Ok where do I start husband filed for divorce on the 13/5 only got told on the 18/5. Doctors and psychatrist say I'm in no fit state…
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Friday Riddle Answer
This weeks winner is PGLGreg. CONGRATS!!!!!!!!!!!!!!!!!!!! RIDDLE: RIDDLE: Four couples spend an evening together. Their first names are Elizabeth, Jeanne, Mary, Anne, Henry, Peter, Louis, and Roger. At a given time... Henry's wife is not dancing with her husband, but with Elizabeth's husband. Roger and Anne are not…
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we're back
Just wanted to say, we are back from vacation. It went by way too fast, but doesn't something you can't wait for always fly by. I have read a few posts since we came back on Tuesday and just wanted to say Hi to everyone. I have posted a few pictures on my expressions, one of them is my husband at the pool in Margaritaville…
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Had surgery again
Hi I have not been here much do to computer problems but I am so glad to be back. I was in the hospital 3 times in 2 months and I had a blockage.On the third time on April 26TH I had to have major surgery do to radiations treatments it had damaged my small intestine the DR took 20" out and a lot of adhesion's I went in the…
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Xeloda Rash Treatment Questions and General Support Needed
My husband has developed, after 9 days of Xeloda treatment, a serious itchy rash on his extremities. He has completed four months of 5FU, Avastin, and made it through four Oxi treatments with calcium-magnesium infusions before neuropathy resulted in that treatment being removed. He was switched from the 5FU to Xeloda to…
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TEETH, NEED WORK
hI all Been absent lateley, lots of back pain, but not what i want to know abou Does anyone else have teeth that are going bad its like I am a crack addit getting bad spots at the gum lines and it is happenin fast, I can't offord to go to the denist and are you allowed to have dental work while on chemo I really need to do…
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Stats, 5-FU toxicity and new drug, as per Medicalnewstoday:
"The National Institues of Health estimate that 275,000 patients in the United States undergo 5-FU therapy annually and 1,300 die from accidental overdoses or poor drug clearance. While no antidote for 5-FU overexposure has been approved by regulatory authorities, uridine triacetate (formerly known as vistonuridine) has…
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6 years ago today
good morning semi's. 6 years ago today i was dx with stage 2 colon cancer. it was a tough journey but one i made with the help of everyone here and the man up above. to celebrate my 6 years of survival i am going on a cruise with my family. i want to thank everyone here for being here to help me. yes i did have a…
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Interesting Article
Here is link to an interesting article about getting our immune systems to fight off cancer cells that are roaming about. Find it here: http://www.cancercompass.com/cancer-news/article/33475.htm?c=NL20100519 Take care, Jan
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Life has to go on even if it sucks
Life doesn't stop when you have cancer, things happen every day that you don't want or plan for. Even though you are in the fight of your life, things areound jsut keep on going, good or bad. I have ( and have most of you as well) one hell of a year and a half. I spent the time focusing in getting better and I think I have…
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Camptosar?
Hi All, My onc changed my treatment from ox to camptosar as I was having so many problems. I am still takeing it every two weeks for 10 more treatments and will still get the 5FU. I would love any feed back on this med. and any information about the side effects. The onc told me the most common are diarrhea, nausea and…
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Hi from Crow71
Hey everyone. I haven't posted since my surgery, but I've been keeping up with everyone. I tend to turn inward when things get rough, and things have been fairly rough in the past several weeks. I don't like to be a complainer. I am healing well. Some things have gone badly, like the icision getting infected and turning…
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To Each His Own
Thought I'd throw this out there regarding some recent posts.... To Each His Own I cannot change the way I am, I never really try. God made me different and unique, I never ask him why. If I appear peculiar, There's nothing I can do You must accept me as I am, As I've accepted you. God made a casting of each life, Then…
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colon cancer surgery: kindly share your experiences and guide me
Hi group, Last week I was diagnosed with colon cancer (7 cm long). I am due for surgery coming wednesday (May 26th). This is a shock of my life. I am a 51 yr old man. Otherwise very healthy. Everything else in my body as shown by CT scan, x-ray showed normal. Doctors say, I do need to stay about 5 days in hospital. Luckily…
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Help!! Stopping treatment
I have a question to all. What happens if you stop treatment after only a few treatments?Doesyou just go back to feeling normal or are there bad side effects from stopping? Does anyone know or has anyone quit? I am having a hard time with the side effects and I am currently cancer free. I also found out how expensive the…
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Three is a charm? Going to start 3rd clinical trial
After a good 4 month run on my 2nd clinical trial, the recent CT scan shows a mixed result. Most of the lung mets and lymph nodes are stable. Some of the liver mets did grow a little, some shrink a little. But my CEA shoot up a lot. So my onc think it is about time that I quit this trial and try something else. She has a…
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Reading Room - True Story - Washing for My Hero -(She decided not to have chemo.)
Washing for My Hero by William Thompson Sylvia and I were at a very good point in our lives in November, 2004. Having just returned from my father’s funeral, we were proud of moving to El Paso, Texas and starting our own business so we could provide 24-hour care during his 2 years of illness. Sylvia wrote poetry, and I was…
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phillieg
hi phil, just wondering about your new photo. It is cute. Who is it? Amy
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Brooks in hospital ** UPDATED
Brooks was admitted to the hospital with a blockage. His daughter posted a note on Facebook. If you remember, he had his colostomy (?) reversed a few weeks ago and has been having problems ever since. ♥ Wishing you well, Brooks! ♥ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Alex posted this tonight: hey everyone…
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people with no clue
Yesterday I had one heck of a day. I work with my sister, whom thinks she has more on her plate than anyone and is more stressed than anyone. She truly is a great person, she has a dog rescue group and family and works full time and is actually my boss. I am the person she seems to complain to and I usually just listen…