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Just wanted to say sorry
I just wanted to say sorry to each and every person that sees this post. I found out my wife has cancer today and my whole world stopped spinning. After reading so many posts and replies I just wanted to express my admiration to all that have been on this website. I fully understand there is no level of measurement to say…
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Pain and discomfort
Is it normal to feel some light pain or discomfort from surgeries that are 10 months ago. Sometimes I feel discomfort on both my sides left side would be colon surgery and right the liver. Of course my mind runs wild fearing the worst. Any thoughts??? Bobby
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My wife was just diagnosed with cancer. What do I do? (I posted this a few minutes ago before seeing
My wife Kim (Kimmy) has had blood in her bathroom visits for awhile and major cramping and diarrhea for awhile. First verbal diagnosis was stomach infection possibly before doing a throat and anal test. Sorry if at this point I am not up to par with medical terms. I dropped her off and upon returning with my 7 year old son…
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CT scan results and plan of action
I have a few new mets that are going to require action soon. I still have the met in the portacava cavity. It has gotten a little larger and is pressing on the top of my pancreas. That is the pain I've been experiencing. Pancreatitis is no joke. It is very painful and very resistant to pain meds. I have a new met near my…
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Hello ladies and gentlemen it's FRIDAY here! anything interesting to do this weekend ?
Just cinema , dinner with our sister in law , an lunch with my mom! what about you?
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2nd Treatment Question
My Mom has her 2nd Treatment on the 1st of Feb. Her 1st Treatment went very well and hopefuly this will continue along the way. She had her appt. today to check her counts which where good, but she did loose a few pounds so the Drs will keep an eye on that. My question . . . at the next Treatment and going forward she will…
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Anyone ever heard of Dr Stanislaw Burzynski in Houstin?
Someone just told us we should consider going to this clinic in Houstin and I just wondered if anyone out there has ever heard of him. I checked him out online a little and it looks pretty interesting. Dr. Stanislaw Burzinski Any thoughts? http://www.burzynskiclinic.com/ Thanks, April
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Scan today**************Update*******
I have a scan today at 10:40 to see how just the Vectibix is working the past 3 months. Results with the doc at 11:40. I'm praying for good results! *********Update***********4:00 Scan results show stable. Yea! This was a wet read so I don't have the written report yet but doc is upbeat. We will continue with just…
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I'm back!
Just wanted to check in with everyone. I'm back and in a little worse for the wear. That 2 1/2 week hospital stay was a real piece of work, but they took pretty good care of me. Of course, when I got home there was a snow storm and I've been without power for the past 15 hours so I've been staying at my mom's house while…
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Lori-S is in the hospital
Hi everyone, I just heard from Lori. She is in the hospital with an obstruction and all the treatment that goes along with it. She is having pain, but says they are medicating her regularly. Let's send her prayers, good vibes, positive thoughts, and everything else we can find. I told her to get ready for a rush of…
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For colostomates, issues about food, what to eat!
Hello, I'm just curious if you had issues with food after having a colostomy. I was dx with rectal cancer last aug 2010 and had an APR last nov 11. I'm wondering if you had the same experiences with re food. I found out that I could not tolerate fatty foods and have a hard time digesting them and had bloating after intake.…
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Personality adjustment (joke)
So, on1/6 I went in for my personality adjustment. I had the a-hole removed. Now, I can still be a ****, but that option is up to me.
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Mass in colon ? What do I do ?
I have just got out of Hospital and was told that I have a mass in my colon . They told me that they hope to be able to remove it . I just am wondering if there are options out there and what they are . I really dont have a clue about where to look for answers . Can anyone help me with this ?
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clean scan...now what?
This post fulfills a promise that was offered by Cynthia, aka LivinginNH. Today I took the ride down to Dana Farber to meet with Dr. David Rosenthal, Medical Director, Zakim Center for Integrative Therapies. Dr. Rosenthal talked about a "three legged stool", that is 3 issues that I need to address in minimizing the…
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DID YOU KNOW !!!
Did you ever wonder why there are no dead penguins on the ice in Antarctica? - Where do they go ? Wonder no more ! ! ! It is a known fact that the penguin is a very ritualistic bird which lives an extremely ordered and complex life. The penguin is very committed to its family and will mate for life, as well as maintaining…
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Petscan or CT scan
Ok so here's my question. As you all know I just finished up my 12th round of chemo and I also had colon and liver surgeries in the last 10 months. My CEA number was 26 at it's highest point and was 2.0 at my last chemo. I am due to have a CT scan on Feb 1st and a colonoscopy on Feb 26th. My Onc says he like to start with…
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Therasphere (not sure about spelling)
Just wondering if anyone out there is familiar with this option to treat liver mets. It entails inserting a catheter into the liver and shooting beads of radiation to the tumors. My doctor has suggested this procedure, so I wanted to know if any of you have heard of it or experienced it.
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Chemo questions
I have some questions regarding chemo such as what some of the side effects are and what to expect. I just found out that I will be receiving chemo and radiation treatments for 6 months. I was told that I would most likely lose my hair. I go Monday to get a port put in and I am curious about that as well such as if it is…
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Stereotactic Radiation update-good news
Hello all Yesterday was my last day of 1 to 1.5 hrs of being sucked down under plastic on a mold on a table while a machine out of some Marvel comic strip beams multiple times at me for what sometimes seems like an eternity. No, this was no walk in the park; however, it is having good results. The doc says I am having an…
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Friends, Romans, Colostomates
New to the bag thing, and looking for suggestions: 1. It is a well done colostomy, above the waistline and to the left of my Belly Button 2. It sticks out ~one inch 3. I am comfortable looking at it, emptying the bag, and cleaning the stoma Currently using Hollister two piece with drainable pouch. Questions: 1. How often…
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Hats for Men
Just a quick question. My brother just started Chemo and I heard that he is losing his hair. ( His ex-wife says he is shedding like the dog ) Is a regular baseball style cap comfortable after the hair loss? I want to try to order some hats for him to wear, but want to know if there are any tips that anyone can share. He…
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Prayers and positive thoughts - UPDATE
Hello - I have not posted much lately but I do read daily. I get my scan results today so I am just dropping in to ask for an extra prayer/postive thoughts my way. I had my scan last Friday and I am meeting with my Oncologist this afternoon. I am a little worried because my CEA went from 3.1 to 6.1 from November with my…
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PET scan results today
I will be getting my PET scan results this afternoon...i am really not too axious about the results but would like the time tomday to go by quickly so I can find out what the scan shows...if anything. I will keep you posted on my report. Thanks to all who have prayed form me and I will continue to pray for each of you.…
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Picked up My College ID
My onc asked when I wanted chemo, I told him on Fridays since that's the only day off I have from college. He then asked me why I decided to go to college. I said, "Well, hell, since I'm going to live, I figured I might as well be further educated while enjoying my old age." He laughed, and said he was sure I was going to…
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Wierd thoughts...making an impact on my life....handling the end of my life...(NOT now...!!!!!)
OK, so it's a bit early (or late, depending), so that may be part of this post. It's just rambling...don't waste your time if you have better things to do.... I have, as you have seen my posts, been trying to make sense of all of the losses as of late that have been in my life. NOT my own, thank goodness...I continue to be…
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Viagra and the single man......and yes its cancer related cause it makes ya forget it for a minute..
Yep back in tha day when I was a young lad and single I had 2 girls that would visit me occasionally whenever I felt as though I needed companionship and it was a mutual agreement so no harm no foul, until one weekend feeling good and frisky I decided to call both of them over for an all weekend hulabaloo....I went to tha…
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Chicago Already???
Heck, I must be thinking about Chicago pretty hard. I turn on this TV station called news at 9:00, but they were talking about this horrible weather, calling it pretty good with highs in high 20's, lows in low 20's, and I'm think where the heck is this place? They had their web site on there, called WGN9 tv station. Looked…
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Join a Live Chat! Dr. Laura Porter, Stage 4 Survivor and Colon Cancer Alliance Patient Advocate
Join Us For a Live Chat! Update from ASCO GI Cancer Conference presented by Dr. Laura Porter, Stage 4 Survivor and Colon Cancer Alliance Patient Advocate In January, over 2,000 healthcare professionals from around the world met to discuss breaking news, research advances, and emerging therapies on various gastrointestinal…
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Cancer takes another good man
I was notified today that one of the best cops I worked with for over 25 years died yesterday of his cancer. He taught me a lot and was one of the first k-9 handler/trainers. He was old school but knew how to deal with people. It would have taken a lot to bring down Dave-damn cancer!
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bad scan - very sad
Dear Friends, Wow that was a slap in the face. We were hoping that ****'s scan would clear him for flying. Instead we are fighting for "more time." He had his CAT yesterday and he has about 16 small nodes total in both lungs. Also a 5 cm mass up near his aorta. Also numerous small to med size lymph nodes. It's back. We…