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Really bad day today
Hi. I was supposed to get FOLFOX#7 yesterday but, we waited a day to let my platlets come up some more. Then this moprning I went in to have my infusion. About 1/4 way through the oxy (monster) I had a very severe reaction and almost passed out completely. The doc stopped the oxy and I was sent home with my 5FU having…
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folfox #7 great service downunder, port neddle almost popped off today
its been so hot that the dressing that holds to chemo port neddle onto my skin just completely came off this morning. Luckily that needle just seems really stuck into the port. I am on the 5fu bottle for 46 hours. so after dropping the kids to school and breakfast I went to local hospital and thought I try out their chemo…
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Thrilled with this invention!! :)
I don't know how many are like me with severe arthritis, pretty much everywhere. The worst places seem to be my knees (most common), my feet (who knew?) and my lower back. There are other joints but those three areas are the worst. Chemo, especially the oxy aggravated the arthritis so fast that I think it aged the…
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Thrilled with this invention!! :)
I don't know how many are like me with severe arthritis, pretty much everywhere. The worst places seem to be my knees (most common), my feet (who knew?) and my lower back. There are other joints but those three areas are the worst. Chemo, especially the oxy aggravated the arthritis so fast that I think it aged the…
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OK, gotta share this little secret...Its a spring special ......
Last spring I got out in the yard as I normally do when my bag starts gassing faster than the vent can let it out...and I noticed this time that the smell didn't run up under my shirt as it usually does and make my nose hair burn. I saw that it actually rode with the wind SOOOO it turns out its time to experiment with wind…
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Robinvan
For those of you that remember Robinvan (Rob in Vancouver/Rob Pollock) he is having some pretty serious surgery this week. It will take place over 2 days. If so inclined, go over to his blog, eblogger, A Cancer Journal, you can find in if you search and you can read about the surgery and if so inclined, leave him a note of…
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Folfox and Avastin
Well today was my discussion day, I learned that chemo will start on Valentine's Day, lucky me. I got my port in Monday and that went well. Today I learned that I will be receiving Folfox and Avastin and will get them every other week for 3 days. I am very nervous as the side effects list was huge. Please anyone that has…
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Irinotecan & Erbitux
We found out today my husband's CEA had gone from 31 late Oct to 200 and he will start Irinotecan and Erbitux next week. He did 13 treatments of folfox w/avastin last Jan-Sept. and responded well to it. I've read all the side effects of these new meds but I really wanted to know from the people who have been there, done…
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Let's lighten up people :)
It seems like I miss a lot of "stuff" that's half gone now, thank goodness. I didn't come here for opinion's on religion or no religion. Whatever happened to selective hearing/reading. Most of us know how to do this gracefully. I think we should all just get along like the good adults we know we can be. Remember…
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hokey doodle oxy eyes
well I just came in from shovelling my darlings.....a fresh foot and a half and the banks are so high you cannot throw it up any longer.....the wind is out of the north east and drifting...our town is shut down and shut off....no highways open ever since oxy if I go out in the cold I get thousands of little hot needles on…
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Happy Year of the Rabbit
It's "New Year's Eve" in Hong Kong -- much excitement as we head into a four day weekend for Lunar New Year. Because of the holidays, my chemo got bumped back a week (i.e. I have three weeks between treatments this time, instead of two) -- yeeha!! A wonderful gift for me.... It is a wonderful holiday here -- filled with…
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Knew it was just a matter if time...But lets try to save it from going any further
There is a section on religion,spirituality-meditation that was created when this first came about ...Yeah, I was in on it too. I have then come to realize that Religion, and yes I am religious, it does have it place as everything else...and yes there is a fine line that we all walk, to try and accomodate all that come in…
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Treatment 7 ...I think
If anyone out there is more aware of what treatment we are on feel free to chime in...I'm a little confuzzled after all the changes...(o; Anyway... I think we are on treatment 7. Second treatment without the Oxal, just the 5fu. Jack is doing good....only complaint is fatigue and his "system just isn't right". I write that…
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plh4gail.....
Gail had Treatment #5 today lets send her some positive vibes.......comin atcha gail.
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First day of Chemo
Today was the first day of my husbands chemo, ended up being a good day so far. YEAH!
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funny but extremely painful symptom
I have pancreatitis caused by a met pressing on my pancreas. The pain is frequently unbearable. The only respite I've been getting is when I stand up for long period of time. Sitting doesn't offer any reprieve and laying down actually magnifies the pain. I've rigged a couple of pieces of furniture together and am squeezing…
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This is a reply from Johnnybegoods mom (let me clarify things post)
Did not want anyone to miss it so we can send positive thoughts or prayers or both Jonny's way February 1, 2011 - 7:02am Well Said Emily, This is so well said. Since beginning to read this board in October 2008, I have seen this situation so many times. I am Johnnybegood's mother. I discovered this site filled with caring,…
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erbitex and iritecan (sp)
HI! I just wanted to know if anyone has had any history or experience with the combo of erbitex and iritecan (spelling). My oncologist just informed me that we are doing that as our next course of treatment. Just ooking for some information. Sherry
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Update on ****
You are wonderful in your love and support. After getting that very hard news last Thursday we are settling in for a plan. I can't believe how absolutely shocking it is to hear that the cancer is back. Those first days were so hard. We met with the oncologist here yesterday and spoke to Dr. Lenz. Both agree that ****…
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Looks like it's getting hot
in the religious forum lol. Btw I think I can understand why we stick to the forums were we feel we can relate too and not move to others. I had colon cancer hence I come here to be happy,sad,angry whatever. Wish we could all get along like they do in the other forums more so the breast cancer forum (sigh)
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Leaving the forum...goodbye to my friends!!
Just want to say that i won't be taking part in this forum again. I come here often. I try to read most posts. If there were any posts which i disagreed with (i must say that i respect others opinion so there rarely is) but if there were i would just not continue reading. i would look at the next post. I cant believe that…
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Pepebcn??
Did I miss a post/topic that Pepe said he was going to be away for awhile? I just realized I haven't seen any new posts of his lately and although I don't have the time to weed through all the off topic discussions, I haven't seen Pepe's name pop up in the "new" posts to any discussion. I'm hoping everything's ok and that…
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Was I just not paying attention?
It seems to me that cancer (as a whole or generic) is being mentioned more and more. Seems like I can't pick up a novel without one of the character's having had or being related to someone who had cancer. Even on the tv...was just watch a rerun of Law and Order and what was it about...Cancer patients. Anyone else notice a…
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PET/CT today
I've made it through 8tx of FOLFIRI and Avastin. Not quite as hard on me as FOLFOX, but I've had a pretty rough time with this cocktail too. I'm surprised to realize I've gotten through 8 already. The whole experience is different when not trying to sprint to a finish line. It actually seems to go faster... My last PET was…
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Latest weather update
Hello all, For those that have not followed this thread,I have been relating the circumstances of the recent floods in Queensland ,australia. Then a few days ago we were hit by tropical cyclone anthony. It was a catergory 2 storm crossing the coast at Bowen with 160km an hour wind gusts and heavy rain. It caused minor…
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Asparagus Not good for reconnection or Ileo
Last night the scary old woman cooked up some asparagus as a veg with dinner. Talk about your MPS all night. It was still getting me at 4 pm. Not good. Ask my buddy Brooks. He blew out a ileo bag with asparagus. As you all know we live deep in the Missouri woods. We have been busy all day hunkering down for this ice/snow…
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Treatment plan - need your wisdom
Hi everyone, We have been waiting for Dr. Lenz and our Hawaii onc to talk. We sent the PET and CAT disks to USC and their radiologists read them. Dr. L advice is for **** to go back on Folfori + Avastin. He said that there was no growth in the lungs until **** went off this. Also, we saw shrinkage in the node (but it did…
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Depression and being tired
I had my first chemo on Wednesday and they removed it on Friday, now today Sunday, I'm feeling tired and depressed. Is this normal?
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Look out Europe, here comes Sonia, Kathi, and Kathy
Well the week has finally arrived, I leave this coming Thursday for my trip to London! And it is going to be amazing! Somehow all the planets have aligned and Sonia, KathiM and I are all going to meet face to face in London! Sonia will be traveling my train and KathiM is going to fly in from Holland! I never thought I…
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The world is a mystery
Ok firstly I had got up 5.25am after three hours of sleep (don't sleep much these days). Saw the post about pray etc, and I logged on my laptop to reply. Press send and low and behold the inernet crashes on me. Divine intervention, just a glitch who knows the world is a mystery itself to even fathom why the internet…