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***UPDATE***.........Sorry to Complain but I need advice.... My chest hurts...****UPDATE***
Why is it always something??????? I have been feeling great but now this weird crap is going on and I don't know what it is. I am having this pain in my chest...right between my boobs....behind that big center bone. It feels like someone is squeezing me. It gets worse when I stand and I have to bend over til it subsides.…
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Chemo starts tomorrow
Dear Friends, Thank you for your support as we figured our next steps. After we sat on it for a few days **** decided to start Folfori + Avastin tomorrow. They are going to monitor him very closely. He had a CAT without contrast on Saturday to get a baseline (I don't know why they didn't use the CAT with contrast from 2…
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Seen new Naturopath Doc
Oh my gosh.... I love her!!! I feel this new inner "hope"...a new path...another option. I have always had this in the back of my mind....always pay close attention to the juicers and ALL "other" methods. Now I am becoming one... and I loving it so far. Doc wants to start slow until I rid my lungs of the pnemonia. She has…
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lost caregiver
I have been married to my husband for 23 years, he is my best friend , we have 3 beautiful daughters ages 21,18. We found out that he has cancer alittle over a month ago, we were a really good team, he had 2 surgeries and tons of tests done then about a week ago we found out he was stage four,after that he has been pulling…
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skin reactions or lack there of due to folfox?
Chemo sucks, chemo really really really sucks. She got mouth sores, fatigue and hair shedding...but no more itchy skin. But has anyone had this type of reaction due to folfox? My mom has extremely sensitive and itchy skin especially during the winter time. But now her skin doesn't itch. I just thought this was interesting.
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Keith's first day at school and folfox 7# today
Feeling happy and sad about my Son Keiths first day at school. My daughter went back yesterday, and we played a little trick on Keith. He was all dressed up yesterday and he looked so grown up in his uniform. We all went to school, all the kids were happy to be back. all the parents are super friendly and caring and say…
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brenda passed away
Brenda passed away about 1:00 am this morning. I was with her when she died. She seemed and peace and it was not a difficult death. My heart is breaking. Have lost my very closet friend and has left my 15 year old neice without a mother and an alchoholic father. We just got home froam the hospital at 4:00 am. My neice…
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Please Allow Me To Clarify Things
Oh my how things have gotten way out of hand and my how things have been said on both sides of the fence that should not have been said, myself included. Winter Marie I should not have said you are going to Hell if you don't believe in Jesus Christ. Although I can prove my point with the use of the bible and scripture I…
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Rare colon cancer.
My boyfriend was diagnosed with stage IV signet ring mucinoid adenocarcinoma of the colon almost two years ago. He went through chemo and was in remission for a while, but we recently found out that the same cancer metastasized to the kidney. This is such a trying time, and I'm wondering if anyone else has had this and can…
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For colostomates, issues about food, what to eat!
Hello, I'm just curious if you had issues with food after having a colostomy. I was dx with rectal cancer last aug 2010 and had an APR last nov 11. I'm wondering if you had the same experiences with re food. I found out that I could not tolerate fatty foods and have a hard time digesting them and had bloating after intake.…
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Colon Infection
Hello, I have currently been doing chemo since 8/09. My cancer is now in my liver. I was having bad pains in my right side this weekend and went to the er. Doctor there said that my colon has an infection and put me on steroids and pain meds. He said I also need to have another colonosopy. My colon has been clear since…
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politics
this should not even be discussed on here...shame on anyone that makes anything on oneside or the other!!!
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Does anyone notice anything different?
One of my two new looks! I'm preparing myself for the possibility of bad hair days with the Irinotecan... and if it turns out that I don't have particularly noticeable hair loss, I'll still have two fabulous looks for when one just wants to get dolled up :D The second look is completely different, but that one is getting…
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Two lovely ladies
I can't express what I am feeling. My mother died this morning 2 days after her 90th birthday. She has been in a nursing home since last April battling uterine cancer. She's had many bouts with colon cancer and had an ileostomy many, many years ago. She was a petite, beautiful woman and I will miss her dearly. I am…
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Taking a break
Just wanted you to know that I'll be taking a break from the board for awhile to spend some much needed quality time with my husband, kids and grandkids. All of you will continue to be in my thoughts and prayers daily and if you pray, please pray for me as well. This group is so wonderful and has always been there when it…
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Results of a phase III trial of adjuvant chemo of irinotecan, leucorvin and 5FU..........
reported today at www.biomedicalcentral.com/1741-7015/9/10/abstract with conclusions being:"Irinotecan added to weekly bolus 5FU plus LV did not result in improvement in disease-free or overall survival in stage II or III colon cancer but did increase toxicity...." Also, www.empowerher.com/print/10441871 just posted "An…
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Power Port Flushing Disaster.....ER Visit!
On Friday I went to my Oncology Office for a routine Port Flush. This was my first flush since finishing Chemo three months ago. The nurse had me in a chair and was trying to get a blood draw from the Port. As usual...no blood. She put some heparin in the Port and walked around the corner to see if the Doc wanted to get…
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Just another day in Paradise........
This is not a religious tale...simply one of my mood swings about simply life as it was and as it is...How did and do I really feel? At first, like a pissant in a whirlwind, I was lost, confused, thought I was gonna die, tomorrow. My only thoughts were my wife and kids and have I done enough to make sure they will be ok…
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At the end of treatment
Hello, my husband is nearly at the end of his 6th cycle then only 2 more to go! At the end of the chemo treatment for stage 3b colon cancer dx aug 2010, he will be having a ct and colonoscopy, we are both so scared of the cancer reoccuring.
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New kid needs info please
Hello, I am a 47 Y/O female, with stage 4 colon cancer. I had a sucessful bowel resection in December 2010. Tomorrow I go for my first chemo treatment.My chemotherapy will consist of FU-5, Leucovorin, Oxaliplantin and Avastin. The questions I have are; 1. I have heard that after people have tumors removed, that there is a…
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Tired, but Happy
I got on my motorcycle yesterday, after a whole year of not riding. It felt great to kind of get back to doing the things I love. And enjoy a day out with friends. I strapped on my hernia girdle and my helmet, off I went...woooohooo...LOL. We rode 120miles from Katy,TX to Brenaham. Stopped at an airstrip, ate lunch and…
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Great op-ed in the NYT today
http://www.nytimes.com/2011/01/25/opinion/25sloan.html?_r=1&src=me&ref=homepage
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Weather update
G'day all, Well after all of our floods we have just had a week of beautiful sunshine , including Wednesday,Australia day ,our National day. Now we are under the threat of three cyclones. To the uninitiated ,cyclones are the same as hurricanes ,they just spin in the opposite direction. West Australia has had one roaming up…
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Woo Hoo I broke outta there!
Hey! Honey, I'm home .... Ya can't keep the mean ones down too long ... LOL Had a fun ol' time in the hospital .. NOT. Glad to be home so maybe now I can get some rest. They kept waking me at 3:30am for labs, then again at 4:40 for vitals ... and it just never ends there. Good news is I got a bunch of scans and everything…
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What is next?
I am 51 and went into hospital for severe anemia; I was 5.5 when they checked me in and found microscopic blood in my rectal exam in ER. 7 days later on 1/14, I had a 2.5 cm x 3.5 cm invasive adenocarcinoma tumor removed along with about 1/4 of my colon. I guess the best news was that the 32 lymph nodes were negative for…
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PET results not good
Well after a year and a half of NED the cancer has spread to my liver, small lessions on both side so no surgery right now. I am going back an Xeloda and Avastin. Onc also metioned another coctail but he is going to wait and consult with the CT radaiologist, my oncologist thinks we may be able to treat with…
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Saturday's almost over....and it was a BEAUTIFUL day!
We left the house this morning while it was still dark, and headed to North Holland. Another swap meet...lol! It has turned VERY cold here, never reaching above freezing, even during the day. But the sunrise was MAGNIFICENT!!!! There was so much water in the air, and on the frozen ground, that a mist hung just above the…
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CP9 Location is Chicago
Dates and hotel info to come in the next month or so. We were due to have one in the upper middle part of the US so Windy City here we come! It will be in the fall probably Sept or Oct before it gets too cold and after the heat of the summer has gone. I can say that we will avoid the Canadian Thanksgiving weekend so maybe…
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Stage IV Good News
I had an appointment with my oncologist today to get the results of last week's CT scan. While we met with the nurse to go over the health questions, I became teary in anticipation of seeing the doctor. When my oncologist walked in the first thing she said was, "the scan looks good." I asked her about recurrence…
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CT SCAN
Well guys this Monday Jorge is having his ct scan at 2pm and I'm feeling very sick about it can't get it out of my mind. that its not going to be what we want to be . Please think of us on Monday thanks so much hugs Tina