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haven't posted in awhile
Thought I would post something about my husband Keith's condition. Last time I posted we were just starting out on this-what seems to be the longest trail of our life. He has been a trooper through everything. Within weeks he had a port, imaging, aspiration biopsies, an ileostomy and a ton of tests. We have covered the…
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Just whistle a happy tune
You older folks know where the subject line comes from. I know some of you think that you can’t be positive all the time. It takes practice to keep your focus on the positive note. Practice that is very rewarding for you and everyone around you. It is clearly your choice. Hell I even get down. The difference is I will not…
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broke my heart, met face to face with a real long term survivor
I went to my cancer general cancer support group yesterday. only about 12 turned up. one other guy who happended to have colorectal sat next to me. small world. we sit in a circle and share for about 2 hours, weekly. but I can go only once a fortnight as it clashes with chemo day. this is not related to the bowel cancer…
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Clinical trial success stories needed!
I am creating this page for my husband, Tony. In March of 2010 he was diagnosed with stage IV cancer of the small intestine during a hernia operation (which turned out to be cancer causing the hernia). We chose Vanderbilt as our hospital. At that point, the CT/PET showed tumors on the small intestine, colon, liver,…
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MRI of brain this moring ~ UPDATE ~
Wish me luck on fitting my fat head into one of them MRI thingy's!! Brooks Everything seemed to be fine and my head did fit into the MRI. Why do them things need to be so loud? Anyways after I was finished the guy wanted to know if I had any family history of MS? I told him not that I know of and drove away wondering why…
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Good News? Bad News? Right News?? Wrong News??? Daaang!!!!!
Well... I am just confused on news I got today. As many of you know my CEA was dropping steadily since my Cyberknife and I had a PET/CT a few weeks back to clarify if Cyberknife was successful and if I was NED. St Louis U did the Cyberknife and PET and said area where Cyberknife was performed was clear but on another area…
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update on Brenda 3_16
Hi everyone: Brenda is at the hospital on hospice care. She couldnt get out of bed yesterday and was taken by ambulance to the hospiatel (was supposed to have onc appt) They did scans in er. All much worse. She was losing blood and she has what they called a "bleed on the brain" she is either asleep or unconscious. not…
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feeling helpless with my dads condition
I wish i could hug you all and make all ur suffering better, but i can't. "I feel just as helplesss with my dad". i just don't know how to make things better!! i wrote him this and it inspired him. i hope it helps any of u too. I remember all of you in my prayers.....i know most of u live very far away from gibraltar but…
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My new avatar-another Dutch adventure!
This is from a city named Utrecht, in The Netherlands. We visited 2 museums that day...one, my fav (I collect music boxes), is the music box museum "MUSEUM SPEELKLOK". It is housed in an old church, complete with the church organ and many beautiful dance organs. The other museum, the train museum "SPOORWEG MUSEUM", is the…
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Chemo Starts again
Had a nice visit with my onc, today. Starting on the Xeloda and Avastin on Friday, every 3 week regime again, at least no oxy. My CT Scan came back nothing showing up on liver or lungs!!! We were worried about the lung situation, it's looking good!!! So working on getting rid of any possible cancer cells that may be…
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abdominal bloating
Just a quick background...I am being treated for reoccurrence of colon cancer. The tumor was removed Aug 30, 2010 low agressive just like the last one four years prior. But this time three localized nodes involved. No apparent spread. I have been on folfox for 7 treatments and every treatment brings a new discovery in bad…
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colonoscopy how soon
Hey there everyone just wondering how quickly everyone had a follow up colonoscopy after surgery. I had my surgery back in March 2010 and then had one in April of 2010 to see if they got it all after the surgery. The surgeon said at that time we would do one in April of 2011 but he has now said we could skip to 2012 if I…
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Just rambling, not a useful post, best to just skip it
So my friend and neighbor is lost at sea. That makes 11 people that volunteered at my benefit last year that have died since Feb 2010. There were 126 volunteers that help cook, serve, deliver, and then clean up. Now 11 of those people are dead. All were young and in good health. I remember them all praying for me and…
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“Pain and Suffering” – A Close Examination of Our Feelings as We Walk With Cancer
Pain and Suffering. Two words, that in the course of our journeys, will help to define who we are and what we have endured to reach this stage of our lives. Annabelle (Kim) had opened a post a few months back and was talking about a “magic pill” that could take away our pain and bad memories, so that we would not have to…
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brenda 3_16
Hi everyone Have notposted in a long time. Brenda stated becomming jaundiced in November and December. She went to Sloan on 12/27 and had a stint placed in her liver to drain the fluid that is making her jaundice. Procedure went ok but she is still yellow and biliruben is still creeping up. It is around 25. She has a…
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Need some uplifting today
Hey there everyone I was just reading some of the post and of course as always some are good and others not so good. I am having one of those down moments right now as the devil has got a hold of my head. Making me doubt myself and my future and God I hate when I get like this. It's been a while since I felt this way but I…
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chemo every 5 weeks ...
Dear all, I know as a caregiver, I really shouldn't complaint. Like Bobby, I'm now in one of my lowest days... I even though of dying with my mum. I'm very tired, exhausted and feeling very down. My mum has IV, non-operable liver met, plus KRAS-mutated. To make her situation worse, she has the worse side effects patients…
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how is everyones folfox going ?
hope everyone is having a good cycle. my folfox has been ok except the diarrhea was acting up, so i went in and got a couple of litres rehydrated at the chemo ward Friday. mainly as prevention. i think the 2xcodiene and the 2xgastrow stops are working ok for me. I also had a bulky diet and backing off on the volume of veg…
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Lost at sea
Please pray for my neighbor Andy Murray and his family Jim and Steve Sanders currently considered lost at sea. They were in a small boat in big seas. It is very cold and if still alive will have been subject to the weather for three days. Andy is 34 and has been very helpful to me and my family through the years. I haven't…
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FOLFOX #7 Delayed
So my WBCs, Plts, and RBC are all down so no #7 for me. I was so sick this weekend, running a low grade fever (got up to 100.4 and 100.5 is when I'm suppose to call in), diarrhea (woo hoo), nausea and fatigue fatigue fatigue. Spent most of yesterday in bed and was told at the clinic today to go back to bed so .... just…
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Cancer fighting cookbooks
Hi all, Does anyone have any recommendations for a few good "cancer fighting" cookbooks? We have "The Cancer Fighting Kitchen" cookbook, but it seems to have more soups than real entrees in it. Any suggestions would be appreciated! :-) Cynthia
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What is the deal with the Colon Club Message Board
I have tried to register several times and emailed the administrator several times and never get reply emails. They also make it almost impossible to post as a guest. It drives me batty. There isn't much I want to respond to but when I do, I want it to work! UGH. Whatever, I like this place much better though. This is just…
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In the last week or so
Hello everybody… Sorry I haven’t posted in a few but I’ve been back in hotel “Salem Hospital” for a few days then had an appointment with a Neurologist yesterday. The hospital stay was from the 18th and they let me out on the 21st. I went in with the same problem as the last few stays (blockage) but this time it was more…
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Confused1 (Colleen Wilkie) passed away
I was about to wish her Happy Birthday and saw dozens of notes from friends and family missing her. She died June 29th, 2010. I loved her profile picture. She was a very lovely person.
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Folfox #4 today
4 down 4 to go. Sub-zero temperatures here in Boston for a few days. Not easy for this type of chemo. You guys up in CANADA BURRRRRRRRR. We do it cause we have to not cause we want to thats for sure. Onc cut the dose on oxy by 20% because of the buning pain in my toes. Side effects seam to be more bearable so far but its…
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yo buzz
we meet with the surgeon...will know more on friday...have a feeling they are going to choose radiation, over surgery anythoughts by you mean alot tried to pm u no luck i will try again love your input!!!!!
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Hope!
I thought this article might give hope to those going through dark days: http://www.dailymail.co.uk/femail/article-1349105/Told-terminal-cancer-little-weeks-live-miracle-survivors-club-proved-doctors-wrong.html If you scroll to the bottom you'll find an inspirational lady who was told she had terminal colon cancer in 1963…
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my dad chemo update (info needed pls) :)
My dad started his chemo on wed. four days on and his only side effects have been tingling (pins and needles) in his hands. apart from that he has a great appetite and looks and feels very well. he always has an afternoon nap but doesnt feel especially tired. he has noticed that he wakes up more often though. when is it…
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Jan 20th BEST DAY EVER!!!!!
Jan 20th at 3:48pm Chris and I became Nana and Papa to William(Will) Hunter Udink. He weighed 8 lbs 4 oz 19 1/2 long.. He is amazingly perfect!!!! Loves, Mel
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One (of many) items coming from current ASCO GI symposium :if practical,don't delay chemo after surg
For best results,adjuvant chemo should "begin as soon as practical after surgery," within four weeks if possible....."{T}he benefits of chemotheraphy that begins more than three months after surgery are uncertain....." For complete story:www.medpagetoday.com/MeetingCoverage/ASCOGI/24512 Other reports coming from this…