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My Magnificent Craig
All It is with tears in my eyes and a trembling hand that I have to break the news to you all that my partner Craig passed away last Monday. The end was very swift and peaceful and just 3 hrs after we arrived at our local Hospice, originally for a blood transfusion. Craig was talking almost to the very end and we had no…
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Strange reaction to port removal
The great news is that my port was removed last Tuesday. The procedure was easy, but I felt like I had a hangover, a little shaky on Wed, then worse on Thursday. Today I'm still shaky and my feet are more numb than usual. Maybe it's in my head, but has anyone experience a chemo like reaction after getting their port…
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had a day in hospital
Is it just me or does everybody else get sick and tired of tests. I have just been laying flat on my back for seven hours after a kidney biopsy. I really hate kidney biopsies ,at least with the liver they have a reasonable target. He managed to hit it two out of three so there should be enough for pathology. They are just…
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I'm half way home
I just got my CT scan results and I am still NED! I have gone 2 1/2 years now so I figure I am half way to being cured assuming that 5 years NED means you are cured. I don't know if its the program I am following or I am just lucky. I asked my Onc if he had any statistics on when recurance happens for stage 4 colon cancer.…
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Hepl me explain
I work at Mental health facility serving Deaf and Hard of hearing people. Had a consumer recently be diagnosed with colon cancer. Meeting with surgeon and parents on Friday. Person is hard of hearing and mentally ill. Where can I find some info that will help him understand. Thanks
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Having colostomy moved I think.
Hi I have not been here for a wail but I would like to know if any one ever had a colostomy moved and what you went through after surgery? Mine is low med - section and have had 2 surgerys after the first one on March 26 2009 it is flat tried all kinds of supplies so it won't leek under the barrier it gets sores and red…
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hey guys
Hey guys just wanted to say hello hope everyone is doing well hugs to you all Tina
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Those who had lung mets
Hi Everybody, As always I've been reading your post and been noticing that some with lungs mets have had procedures to remove them such was RFA or wedge resections. My oncologist stated that I cannot have my mets removed. So my questions to those who have had mets removed are were both lungs involved, who decided you could…
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Had new MRI July 6.
Found out on July 7th that there are 30 lesions in my liver as opposed to the 15 that I was told were there originally. My Onc and his assistant were on vacation July 4th week so I didn't get to speak to the assistant until the 11th. What I thought was bad news turned out to be very good news. She told me the first…
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Ode to My Hair (otherwise titled WomanHood)
Who's hair is this that I run my fingers through? Who's?!? It's on my head but it isn't mine it's too thin, it's gotten shorter somehow. What straw like hair, do I feel going through my fingers? Surely not my silky golden Locks, No, this cannot be MY hair is soft, so soft to the touch My pride and joy, it so defines me So…
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Motorcycle Mama
Watch out world, about to go get my new little toy next week!! Had my first motorcycle when I was 14 a cute little Yamaha 250 (my dad was a dealer for Yamaha back in the 70's and I waittressed my butt off to get it, at wholesale of course)now you have to remember I was raised in Alaska, you could waitress (I worked at the…
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"Metastatic Coloretal Cancer: Management Challenges and Opportunities" at cancernetwork.com
somewhat lengthy discussion which includes statistics (heavy on stats )as well as options...... cancernetwork.com/display-cme/article/1065/1902212?pageNumber=1
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Mom has two more treatments with Erbitux
Mom has two more treatments with Erbitux then they will do a PET scan to see if it's working. If it is she will continue it every week for the rest of her life. Asking for prayers. Love all you guys....you have been so helpful. FM
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3 months after AP resection
Hello all... I finally became a member of the site after reading stories and situations for a long time... I had an AP resection April 21 2011 at the age of 41 due to rectal cancer. before that they tried to shrink the tumor with radiation and chemotherapy. It shrunk but the surgeon thought the best thing to do was to take…
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Small lump by collar bone, can this be problem with port?
My dad (stage 4 colon with mets to liver) just noticed a lump by his collar bone, near the middle. Naturally he is worried. He does have a port and I was wondering if it could have anything to do with that? I cant think of anything (lymph nodes, ect) else it could be and I want to comfort him til he can see the doc on…
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BUZZ are you fine any news to share?
Hugs and praying for you!
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CT scans
I just came back from my CT scan. When got into the room I was curious because no one asked me to take off my bra as was done in the past. I asked the tech. how come. He said onc. didn't order CT of chest, abdomen only. He said chest has been clear so no reason to scan it and they want to minimize radiation exposure to the…
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admittedly difficult to comprehend yet sounds promising:curcumin and Dasatinib.......
7thspace.com/headlines/389794/combination_of_dasatinib_and_curcumin_eliminates_chemo_resistant_colon_cancer_cells_.html 7thspace has interesting but difficult to understand articles on CRC at times......
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Results of PET/CT scan
I had my PET/CT scan yesterday (Monday, 7/18) & had my onc appt to go over results today (Tuesday). Yesterday after the scan, I came home and popped the CD into my computer and what I saw depressed me- so many red blobs in every spot of my lungs & some brighter on my liver than I remembered seeing last scan in March. When…
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decision has been made
Dear all, Thank you so much for all of your support in the past few days when I was extremely devastated, losing hope, losing focus and didn't know what to do. After several discussions with the oncologists, surgeon, my mum has made her decision yesterday. Even though she knows the success rate is less than 10 percent, she…
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OT: Thank goodness I called the train company!!!!
called to check on our trip from Zwolle to Hamburg, just to confirm seats, etc.... And found out that I had checked a box when reserving that was only for dutch people with year passes on the train. Bottom line, we did not have tickets for the train for the dutch part of the trip. Silly American! I should know better!!!!…
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Phoenix - Haboob - Bob Dylan
Flew to Phoenix for a business trip yesterday (did a group presentation with the Winemaker this morning). First time traveling on a full chemo week (Irinotecan and Erbitux) so I was not quite sure how it would go, and it turned out pretty well. Phoenix is not an ideal place to visit in the summer. While it stayed under…
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Twin Cities CRC gathering July 21
We are having a gathering this Thursday, July 21, for colorectal cancer patients/survivors, caregivers, and community (medical or nonprofit involved with CRC). This is an informal meet & greet at the Mall of America, 4th floor, east side, in the restaurant at Cantina #1. We start at 4PM, and will go a bit late because of…
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Does your body start to reject chemo after awhile?
My dad has stage 4 colon cancer with mets to liver. He has been doing chemo every 2 weeks since October 2010. He was on Oxyplatin until Feb when he had a bad reaction. Then doc switched him to fu5, lecuvorin, and avastin. He has been doing really well on that. He actually has his life back. He does almost all his regular…
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Cancer, Dental Issues, Possible Solutions *updated*
So, I'm pretty sure from discussions I've read, I'm not the only one with dental issues, unaffordable dental issues. I won't be able to have dental work for about 3 months as I've just gotten off of Avastin. But.... apparently my poor husband will be my experiment. He went to the dentist and they informed him to put his…
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New with a question
Hi all, What is the difference (or is there a difference) between a liver lesion and a liver tumor? I was recently diagnosed with a recurrence of my colon caner, and told there was a lesion on my liver. Thanks, Jen
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irinotecan + avastin
Dear all, My mum's oncologist will give her this regimen if she decided to have more chemo... I did ask him why not Folfiri, he said due to my mum's past history of severe diarrhea, he will not add 5-FU to the second line regimen. Does anyone of you have this combination before? Will it be less effective compare to…
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Sibling same as me
Hello all. I am a 4 1/2 year colon cancer survivor (NED) Am one of those that used to come in here all the time, read and posted for 2 years. Now I just come in and read occassionaly. I just felt I needed to get away from cancer. My sister was just dx'd with colon cancer in the same place I had it, ascending colon. How…
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Do you know of any support groups in Massachusetts?
Just wondering if there are any support groups in Masschusetts. It would be winderful if it was North of Boston. It would be nice to talk about what we're all going through and find comfort in knowing we are not alone. Maybe there is something on-line? God Bless, Tracy
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goodbye fiji, hello sydney, back to juicing and vegetable soup.
is this the eye of the cyclone or a long term calm? regardless, i am so grateful for the best family overseas holiday ever. the kids loved fijian culture and the waterslid at sofitel. my wife loved the massages. i loved the scuba diving and the healthy local produce was so tasty. i did gain 2 kg over the last 3 weeks away…