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Results of PET/CT scan
I had my PET/CT scan yesterday (Monday, 7/18) & had my onc appt to go over results today (Tuesday). Yesterday after the scan, I came home and popped the CD into my computer and what I saw depressed me- so many red blobs in every spot of my lungs & some brighter on my liver than I remembered seeing last scan in March. When…
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decision has been made
Dear all, Thank you so much for all of your support in the past few days when I was extremely devastated, losing hope, losing focus and didn't know what to do. After several discussions with the oncologists, surgeon, my mum has made her decision yesterday. Even though she knows the success rate is less than 10 percent, she…
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OT: Thank goodness I called the train company!!!!
called to check on our trip from Zwolle to Hamburg, just to confirm seats, etc.... And found out that I had checked a box when reserving that was only for dutch people with year passes on the train. Bottom line, we did not have tickets for the train for the dutch part of the trip. Silly American! I should know better!!!!…
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Phoenix - Haboob - Bob Dylan
Flew to Phoenix for a business trip yesterday (did a group presentation with the Winemaker this morning). First time traveling on a full chemo week (Irinotecan and Erbitux) so I was not quite sure how it would go, and it turned out pretty well. Phoenix is not an ideal place to visit in the summer. While it stayed under…
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Twin Cities CRC gathering July 21
We are having a gathering this Thursday, July 21, for colorectal cancer patients/survivors, caregivers, and community (medical or nonprofit involved with CRC). This is an informal meet & greet at the Mall of America, 4th floor, east side, in the restaurant at Cantina #1. We start at 4PM, and will go a bit late because of…
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Does your body start to reject chemo after awhile?
My dad has stage 4 colon cancer with mets to liver. He has been doing chemo every 2 weeks since October 2010. He was on Oxyplatin until Feb when he had a bad reaction. Then doc switched him to fu5, lecuvorin, and avastin. He has been doing really well on that. He actually has his life back. He does almost all his regular…
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Cancer, Dental Issues, Possible Solutions *updated*
So, I'm pretty sure from discussions I've read, I'm not the only one with dental issues, unaffordable dental issues. I won't be able to have dental work for about 3 months as I've just gotten off of Avastin. But.... apparently my poor husband will be my experiment. He went to the dentist and they informed him to put his…
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New with a question
Hi all, What is the difference (or is there a difference) between a liver lesion and a liver tumor? I was recently diagnosed with a recurrence of my colon caner, and told there was a lesion on my liver. Thanks, Jen
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irinotecan + avastin
Dear all, My mum's oncologist will give her this regimen if she decided to have more chemo... I did ask him why not Folfiri, he said due to my mum's past history of severe diarrhea, he will not add 5-FU to the second line regimen. Does anyone of you have this combination before? Will it be less effective compare to…
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Sibling same as me
Hello all. I am a 4 1/2 year colon cancer survivor (NED) Am one of those that used to come in here all the time, read and posted for 2 years. Now I just come in and read occassionaly. I just felt I needed to get away from cancer. My sister was just dx'd with colon cancer in the same place I had it, ascending colon. How…
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Do you know of any support groups in Massachusetts?
Just wondering if there are any support groups in Masschusetts. It would be winderful if it was North of Boston. It would be nice to talk about what we're all going through and find comfort in knowing we are not alone. Maybe there is something on-line? God Bless, Tracy
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goodbye fiji, hello sydney, back to juicing and vegetable soup.
is this the eye of the cyclone or a long term calm? regardless, i am so grateful for the best family overseas holiday ever. the kids loved fijian culture and the waterslid at sofitel. my wife loved the massages. i loved the scuba diving and the healthy local produce was so tasty. i did gain 2 kg over the last 3 weeks away…
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Pete, Buck, where the hell are you ?
Just tell us some of your nice stories!.
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Saying Goodbye
Yesterday was the funeral for my Relay For Life friend. Oh, my goodness. I cried so much. The love and tenderness from her family was so touching. Her 2 sons spoke, and it was obvious (as we already knew) that Gail had been the center of her family and doted on the boys, her husband, and really all her extended family. One…
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Ammonia Levels in Liver
My Mom had her liver surgery last Tuesday. She is recoverying and her vitals are good, she is in ICU waiting for another bed to become available on another floor. She has very hi levels of Ammnoia in her liver, which have caused her to have personality and behavior changes, confusion and tremors in her hands. The Drs are…
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Appendix Cancer
I am looking for others that have been diagnosed with Cancer Of the appendix or better known as a Goblet Cell Carcinoid. I have had a tough time finding information on this type of Cancer. I have completed Chemo and I am now cancer free but with this being such a rare form I would like to talk with others about there…
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HAI pump - which oncologists in Southeast, Midwest, work with MSKCC??
Hi. I am going to have an HAI pump implanted at Sloan-Kettering. I am trying to work out the travel and logistics. I live in GA (atl), but am willing to relocate to anywhere in the SE or Midwest, or possibly NE where an oncologist has worked with Sloan-Kettering. I will need systemic chemo as well. Anyone out there who…
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Genetic Testing For Cancer
Since my dad had bladder cancer, mom had colon cancer, my maternal grandma had ovarian cancer, my paternal grandma had lung cancer, and my great aunt had lung cancer, plus a host of cousins that had cancer, my ob/gyn recommended that I have genetic testing to mitigate for any risks. She said that my insurance would pay for…
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PET/CT moved to today... UPDATE: **** GOT RESULTS****
This was scheduled for Friday but they called yesterday and said they scheduled it for today instead. I will also get results today. I love getting scans done at this facility just because I get results same day AND its not my regular Onc so this 2nd and very different opinion is a good thing. Anyway..... I will post an…
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tessa is home!
I am home from my 9 hour surgery. The Dr. removed all of my colon and took out 43 lymph nodes and all were negative of cancer. I did not have to have the illeostomy, my small intestines were attached to my rectum. My bum is so sore from going to the bathroom every fifteen minutes. I wonder if this will ever go away. any…
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Happy Birthday Johnnybegood!!
Everyone please join me in a Happy Birthday wish for my beautiful Johnnybegood. Of course my greatest wish is that you will soon be NED again. I hope you have a wonderful birthday and I wish so much I could be enjoying it with you. Love you, Mom & Ron
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My CEA went down some- PET/CT scan on Monday
Hi, As some of you know, I had been concerned because my CEA had been rising up and up lately & was at a high of 317 two months ago. I was really starting to sweat it. When it was checked again a month ago, it had gone down slightly from 317 to 305. Today I got the results of the CEA blood draw from Tuesday. It went down a…
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WHOOOOAAAA Nellie!!!!
Ok, before my initial surgery last year, I was topping off the scales at around 280 lbs. After 5 weeks in the hospital I was at about 190 and my surgeon was worried silly. I had to work HARD to get that body built back up. So, I've worked hard to get built back up, and now then I realize that while last year I was going…
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irinotecan and the sweats
Hi, My friend gets a dose of irinotecan every other week and for the first night after his infusion, just breaks out into a real icky sweat and just feels disgusting. Does anyone have any ideas on how to mitigate this? Thanks so much, Amy
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My son said... " Dad, You're the stongest man I know...It gave me a tear.....!!
Two years ago...And after many chemo's...I asked my son to help me with some chores,(He always helps me).... I said..."Dad just isn't as strong as he once was....My son said..."Dad, your the strongest man I know"... I said..."Not anymore"....He then said..."No Dad...what all I've seen you go through with cancer makes you…
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Going to see my mom tomorrow (GrannySmith)
Going to see my mom tomorrow. Sure do miss her. She had a treatment yesterday (on her 67th birthday). I think she's been a little depressed lately. Hope we have a good visit. I think she will have one more treatment then have a PET scan to see if this medication is working. Please pray that it does. Love you mom. FM
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Praying for everyone
I am so glad I came across this support group. Everyone on this site are helpful and you all are awesome both cancer patients and caregivers. I have learned a lot about treatments options, etc. I will be praying for every one on this site. We have all got to stick together and find a cure for this.....cancer should not…
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"Research reveals that significantly more genetic mutations lead to colon cancer", than previously t
at:newswise.com/articles/view/578736?print-article "Researchers at UT Southwestern Medical center say there are at least70 genetic mutations involved in the formation of colon cancer,far more than scientists previously thought." and implications pertaining to treatments........
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Ready for this one? "Cancer gene therapy from camels"
at:medicalxpress.com/print229858695.html involving the cancer marker Mucin-1, connected to breast and colon cancer, states the brief article.....You never know.......
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Sad day
Today was very sad for me. My dear friend, also named Gail, also a colon cancer survivor, diagnosed the same year as I was, passed away today. She had been in a hospice home for about a week and a half. I went to see her several times, and she was not able to really respond, but I wanted to see her and spend time with her…