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Oncologist's Opinion....
Met with my Onc yesterday and this is what he came up with. I just had a PET/CT done at a different facility and read by a different set of doctors. I do that so I get different eyes on different tests. More than 1 opinion is important to me. The Rad Onc at St. Louis Univ read the scan and said I had a recurrence with 4…
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At hospital waiting to hear what stage my Aunt's cancer is UPDATE
My Aunt JoJo was diagnosed with uterine cancer last week. Got a call last night she's having surgery today, they're taking out all the female parts (she's 61, no worries about wanting babies) so here I sit. She is now the second in all my family to be diagnosed with cancer, with myself being the first. They are using the…
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Having trouble with bathroom stuff
I am looking for suggestions on how to help regulate my bathroom visits. I can't seem to find a happy medium. I either go all day with very small bowel movements or I am constipated. I was taking Miralax everyday but got where I was in the bathroom alot. I backed off to a couple of times a week but now I am on the…
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Anyone read Natural Cures by Kevin Trudeau?
Did anyone read this book? My sister (good intentions) bought the book for me to read. I started reading the book but the information just didn't seem to rest well with me. I did a little google searching and found that 20/20 did an expose on this Author ( http://www.youtube.com/watch?v=YN5ihrECJms). I think this guy is…
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Owner of a Lonely Heart
I've heard from one other person who has had similar experience, so I wanted to see if this is common or not. I believe in being upfront and honest about my dx, so when I meet a new lady and things start going well I let her know early on that I have Stage IV cancer. I get some typical supportive sounding noise, but then…
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Vultures on the fence
I've been fighting for two years now and the tumors in my liver are now at the smallest they've been since my dx. But still, in the past few months I've been getting people asking me if I'd leave them certain things when I die. At first I'd laugh and say "let's talk about it after that happens" but frankly it's starting to…
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re pain...again
thank you all for the feedback on my last post...update, my abdominal pain is worse everyday, had a pet scan today, waiting for results, i am changing my doctor, and going to moffit here in tampa, id never bad mouth anyone that trys to help you but after a stage 4 diagnosis and being around for 3 yrs it seems my dr has had…
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juicer vs. blender
I start my first round of chemo this coming Friday. I have read the info from the oncologist and feel fairly well prepared ( I am sure you chemo veteran's are thinking "sure you are"). I have a question, though: I am thinking of getting either a juicer or blender (have neither). Any recommendations for me? Thanks!
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Protein, appetite and chemo
Has anyone used protein powder to keep up their weight and muscle mass after surgery or during chemo? (Besides food or in addition to) I am at a weight I should be since my two surgeries but am concerned about getting enough protein before chemo starts next Friday. My appetite is better but I cant consume large quantities…
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This weekend I lived cancer free
I just sort of let it go for a few days, turned off my phone, refused to participate in society, skipped the barbeques, stopped people in their tracks who came by and insisted on talking about it (there are some people who are obsessing with helping me even when I tell them my mind is finally resting and I need a break)…
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my sister, Mary
has lost her fight and I am so relieved her battle is over. She was surrounded by the people who loved her. How lucky I was to have time with her. Judy
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vit d and curcumin improves immune function
http://www.lef.org/newsletter/2012/0529_Curcumin-Helps-Improve-Immune-Function.htm?utm_source=eNewsletter&utm_medium=email&utm_term=Help&utm_content=TextLink&utm_campaign=2012Wk22-1 More good news for diet and lifestyle. I Eat turmeric and sunbake, otherwise if I must i do the supplements. Hugs, Pete Ps take a few small…
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colonoscopy clear
Had my test yesterday. No polyps. What a relief. Now to Hawaii for a month to see daughter. Since I had rectal cancer in 08, then met to lymph nodes in 2011, should she wait til 40 for first colonoscopy? She is 28 now. Her dad just had one with 9 benign polyps. I'm wondering if she should be tested for HNPCC. LOVE TO ALL.…
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What is typical treatment for a Lung Met?
Hi All I haven't been active here in quite a while as I went about my "normal post cancer" life. Hah! A spot on my lung that we've been watching since the summer doubled in size to 1.3 cm on my scan last week. My onc said she would recommend a 12-course round of Folfox (oxiliplatin, right) and 5FU after resextion. For ONE…
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blood work
I'm having blood work today for the first time since Feb. Silly me, I'm so frightened. I've an appointment with my onc next Tues. to find the results. Lydia
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update: split chemo, radiation
Hi All, Well, a few developments. I'm supposed to be on GOLFA (Gemzar + FOLFOX + Avastin) but have had some false starts. The GEMZAR seems to hammer my platelet count, leading to tx delays. But my CEA spikes with the delay. So my onc is thinking to give me most of the Gemzar during my normal chemo cycle (he told me the %…
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I just found Expressions
Well, I guess "just found" isn't quite right, I've always seen it there. But, I did just realize that we can post pictures, stories, poems etc. so I put up a pic of my dog and one of me that was photo shopped about four years ago, two years before my dx. Pretty cool that we have something like that to share with each other.
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Memorial Day Remembrances
Memorial Day here in the USA is celebrated, on the last Monday in May, to honor all who have died in all wars. Here on the board, we have traditionally remembered those of our members who have died in the past year. Here is the list I have put together. If I have missed anyone, please post and add their name. Also feel…
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stopping treatment
I will be doing my tenth of twelve rounds this week since my last liver resection. My most recent scan was clean. Treatement has really beaten me down. I am thinking of telling my onc that i want to stop after this tenth treatment. That is what i did last time and it was 4 yearas before i had a recurrence. I have been very…
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payback
If your hospital, cancer cener, or what-ever has a colorectal support group, I would encouragee you to join it. I didn"t discover this group untill I was NED two years out, Those newly dxed with colon cancer need to hear our stories. They still think cancer is a death Projection. By meeting with them and describing their…
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NYU Cancer Institute - May 2012 presentations on CRC on YouTube
I found presentations 5 & 6 to be the most helpful. for anyone facing surgery to remove the primary tumor, lecture 5 should help you understand what is ahead...made me feel much better about my wife's likely upcoming surgery. NYU Presentations
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Postponed Hernia Surgery
They could only get me in the middle of July so I've decided to postpone the surgery until fall (nurse says he doesn't know his schedule and they could have never gotten me in within a month). Told the nurse that "I'm a golfer and I'm sure there would be restrictions and told her I know that seems lame, but would rather…
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Does the personalization ever go away or ease?
I am only two years post diagnosis and one year post treatment and surgery and currently waiting on tests as the cancer may be slowly but surely returning... I am wondering if the personalization of everything cancer related will ever go away, or at least ease? I feel like a walking pin cushion, anyone mentions cancer and…
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payback
If your hospital, cancer cener, or what-ever has a colorectal support group, I would encouragee you to join it. I didn"t discover this group untill I was NED two years out, Those newly dxed with colon cancer need to hear our stories. They still think cancer is a death Projection. By meeting with them and describing their…
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anyone familiar with fentanyl patch???
dad has had severe reaction to the fentanyl patch that the dr had increased....didnt realize that fentanyl is a derivative of heroin....love that nobody told us and i had to do my own research...anyway we told them since hes on it hes become completely not there...told them to take him off and continue with the…
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Re Holiday.
Thank you all for your positive replies for going away, if hubby feels OK we are going to go for it, his chemo which he receives every 3 weeks will mean he will have chemo 4 days later than due. I hope all of you are coping well. best wishes. Belinda.
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rssh is here
Ok so now he has a rash from the erbitux; what we want to know is - does the rash get worse each time he has the chemo?
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westie66
Thank you for the advice on my forthcoming holiday, you seem to be very similar to my husband and the treatmeant he is receiving for peritoneum, liver and lung mets. I hope you continue with all your hard work for a long time. x
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?? Anyone gone through 10 chemo treatments and still had CEA > 400 ?
oncologist chaaracterizes my wife's stage IV cancer as a stable disease with CEA at about 500 since mid March (3 tests all roughly 500) having previously bottomed at 300. Still at 500 just before lasst week's 11th treatment. one more treatment then scans and colon surgery consult and second oncologist opinion about next…
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Liver Mets and Radiation
Hi all: I have a met to my liver (as well as several to the peritoneum but am not eligible for the stripping/HIPEC surgery) and my oncologist is recommending radiation as no one will operate on it with the mets to the peritoneum. Here in Ontario they don't seem to do the SIR thing or whatever it is called. Has anyone had…