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mRNA technology and introducing myself
Hi everyone, I'm new here to the forum although I have been reading since December, 2020. My 50 year old husband was diagnosed with stage 4 colorectal cancer in December due to a small MET in the liver. We found out he had cancer during a colonoscopy on November 17, 2020 and it was staged in December after many tests. He…
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Seeking new doctors
Hi Everyone, I'm new here. I think I accidentally posted this on another thread. My apologies. I am currenttly waiting on results to see if my stage 3 colon cancer has returned after 3 years and spread to my liver & spleen. I live in the greater Philadelphia area and originally went with the Crozer system. My site had a…
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The very latest on my condition
So after 15 months, chemo, radiation, pill chemo, planned surgery, cancelled surgery -due to mets to 2 local lymph nodes- and now chemo again, my rectal tumor still has not shrunk. They have sent my biopsy to a special lab for genetic testing to see if they can find something that will make it shrink. Meanwhile I am still…
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PARP inhibitors what do you know -updated with new question
So I been doing my research and found out that PARP inhibitors are used to treat cancer's with BRCA mutations . My dad has BRCA mutations but yet his oncologist told us targeted drugs won't work on my dad which has me confused . Anyone know anything about this PARP Inhibitors are they for rectal cancer ? Are they only for…
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And it's back ...
A recent scan was misread by local radiologists, and what they deemed as free from cancer casually stored new lymph node involvement, when reviewed by experts at my cancer center (Memorial Sloan Kettering in NYC. ) surgery is no longer an option; chemo has had no effect. We don't yet know where to turn. My Dr is doing…
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CT scan and results
I'm two years and 4 months past finishing my chemo. All the check-ups and blood work have come back normal. We were doing an annual CT scan so when I brought it up to my oncologist he said my numbers didn't warrant a scan. So we talked a few more minutes nd he said "what the heck, we're talking about it so let's do one if…
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Targeted Therapy I'm confused
Hello So as we wait for the biopsy my dad saw his oncologist and I brought up targeted therapy and he said he run a test and targeted therapy wouldn't work . So I'm confused cause I thought targeted therapy could work on any cancer so my question is why wouldn't targeted therapy work is it my dad's brca mutation ? Or his…
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Rectal cancer treatment guidance
Hi, I’m about 6 weeks out from diagnosis with stage 3 rectal cancer. Mayo has classified my cancer as T3N1M0 (Per imaging done on 1/30). My tumor is about 7.5cm from the anal verge. I’ve gotten opinions from 4 institutions so far and broadly, treatment seems to break down as below. I’d welcome experience (especially 2+…
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Newly diagnosed rectal cx
I am posting for a friend who was just diagnosed on Friday with rectal cancer. she was diagnosed during a colonoscopy. She had a ct scan which was unremarkable. The doctor is advising her to have radiation first to shine the cancer than surgery. I would like to know questions for the oncologist. For example are there any…
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Gin-Gins Chewy Ginger Candy
I felt Nausous most of today (but got a ton of work done) and stopped off at Whole Foods on the way home. I picked up some ginger root that I plan to slice and put in tea and a bag of Gin-Gins. Gin-Gins come in a few flavors and in chewy or hard candy. I was looking for the low sugar version. I tried one and it cleared up…
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I’m 25 and I just found out my dad has colorectal cancer
Hi. I don't really know where to start this. My dad is my best friend and really the only person I feel I have in this life. I just graduated college and have been working and found out that he's been hiding colon cancer from me. He found out 2 years ago... he says that it was lower colon and there were no tumors just…
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Older members please shout out
Hello all! I joined in May 2013 and went straight into the battle against colon cancer- restaged 3C. I have not checked in here for quite some time but hold all fellow fighters and survivors in my thoughts, prayers, and heart. If you are just beginning this journey, stay strong, be brave, and know that at this very moment,…
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Coulda Woulda Shoulda
Feeling a bit bummed lately. As my dad nears the end of his 6 rounds of FOLFOX, its hard not to feel overwhelming anxiety about whats next. He has had such a hard time on the chemo, even took an extra week break before round 5. This experience has brought out a side of him that just makes me so sad. Its hard not to get too…
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Nanoknife Ablation and HIPEC maybe a option ?
Hello I recently came across nanoknife ablation and HIPEC looking for info about those from those who either know about them or have had them . Do they use these two for rectal cancer that has spread to the abdominal lining ? Are the procedures a major surgery ? Is the outcome of these procedures better then just standard…
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Confused doctors
So last week we got another bad information. The oncologist said that he does not feel confident in TACE alone and that he doesnt know what kind of tumor Papa actually has. There are just some irregularities in Papas history that confuse him. I will mention them now: * 2-3years before the diagnosis Papa had a colonoscopy,…
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Immunotherapy question
So do they try immunotherapy for anyone who is MSS? I was looking up trials the other day and they all had to do with mutations or MSI (of which my dad does not have). From what I understand being MSI or having mutations is more rare so I'm just wondering why so many trials? I mean, of course if it means cures for those…
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Happy Birthday myAZmountain
May your day be filled with many joys. Family, Friends & Food . Tru
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Will Covid exposure cancel it ?
So at church this morning we were informed there has been a covid outbreak at the church we don't know for sure my dad was exposed cause we don't know who has it for sure cause of privacy issues . But it is very possible dad was exposed has no symptoms and has been vaccinated for months but I am wondering if this will stop…
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It grows and grows and grows
Hey, My dad is now after 2nd liver surgery, had CT and MRI this week. The cancer is again in the liver. I dont know how big the lesions are, they were probably too small to be detected during the PET. Now they are big enough to identify. For now surgery is not on the table. On Tuesday they will discuss about other…
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14 years since diagnosis
14 years ago today I was diagnosed with Appendix Cancer. I've been through multiple (8) major surgeries (3 since July, 2020, alone!), systemic chemo: intravenous, oral, and intraperitoneal. I had a temporary colostomy. I've been through a lot. It's been a hell of a rollercoaster ride, but I'm still kicking and enjoying…
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Not News I Wanted...Plans Have Changed In A Big Way
This is not a post I ever wanted make but have to before I lose to ability. I was driving and talking with brother today and my speech slurred. I immediately pulled over, hung up on him and dialed 911 ..Long story short, after a trip to the ER, I learned I have a pretty big lesion on my brain. The swelling is causing the…
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Not what I expected
Hi, Everyone. I don't know if there's anyone here who remembers me. I haven't participated in this board regularly for awhile now. I was diagnosed with colon cancer in 2007. I was fortunate enough to be Stage 1, and I have been clean for many years now. Until now... A trip to the ER last week for what was thought to be an…
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19 Years Later!
Hello CSN Friends! Just wanted to share hope and inspiration to anyone starting this journey. My surgery was 19 years ago today! Diagnosed Stage 3C Rectal Cancer with 10 positive Lymph Nodes at age 40. Looking back I remember how scared I was as I had a young son age 10. Now my son is all grown up and getting married this…
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Keytruda news and some kras inhibitors
Seems Keytruda is becoming important for extending life in MSI patients, as the FDA has approved another use for the drug https://www.evaluate.com/vantage/articles/news/trial-results/surprise-keytruda-approval-and-what-it-means-biotech As you can see at the link, there are several succeses, perhaps not important to us in…
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TACE ahead of us
So, During this week we good a new information how they want to treat my Papafurther and prolong his life. Cure is not an option anymore unfortunately. I thought I am used to it due to his MS but this is more scary. According to my dad there are 5 to 6 liver metastases there. They were not visible during PET scan at the…
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Back again
Update, had another major recurrence in the liver, five tumors this time, mostly small but one large one. Highest recorded CEA of 13. No idea regarding treatment recommendations at this point as the team hasn't conferred with each other. Will probably hear tonight. I would imagine chemo is back on the table but I've shown…
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Dreaded blockage
((sigh)) I've been doing so good lately. Then last week I lost my mind and actually ate an apple... Peel and all. I know better, it just sounded so good and darn it, it did! Thursday afternoon I started vomiting and it was nonstop until Friday at the ER. And the dreaded NG tube. Ugh. Just awful. The doctor called the…
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21st Century Cures Act
I see that this has a law that went into effect this month here in the USA. I am mostly hoping it means my scan results will be online a day earlier. :) I am not entirely sure what the law about being able to get the info means, as I do get my results eventually. I just have doctors who want me to see them first to get…
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biopsy
I am kind of in a funk. Been trying to get appointment with mayo cancer center in AZ. I have a medicare advantage insurance United Healthcare/Optum Care. I have received approval from insurance to go to Mayo for 2nd opinion. Talked with them today... I am a Stage IIIc cancer survivor since 2007. I had a pet scan that shows…
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Cologuard Thoughts on a positive finding?
Cologuard Thoughts on a positive finding?