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Immunotherapy question
So do they try immunotherapy for anyone who is MSS? I was looking up trials the other day and they all had to do with mutations or MSI (of which my dad does not have). From what I understand being MSI or having mutations is more rare so I'm just wondering why so many trials? I mean, of course if it means cures for those…
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Happy Birthday myAZmountain
May your day be filled with many joys. Family, Friends & Food . Tru
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Will Covid exposure cancel it ?
So at church this morning we were informed there has been a covid outbreak at the church we don't know for sure my dad was exposed cause we don't know who has it for sure cause of privacy issues . But it is very possible dad was exposed has no symptoms and has been vaccinated for months but I am wondering if this will stop…
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It grows and grows and grows
Hey, My dad is now after 2nd liver surgery, had CT and MRI this week. The cancer is again in the liver. I dont know how big the lesions are, they were probably too small to be detected during the PET. Now they are big enough to identify. For now surgery is not on the table. On Tuesday they will discuss about other…
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14 years since diagnosis
14 years ago today I was diagnosed with Appendix Cancer. I've been through multiple (8) major surgeries (3 since July, 2020, alone!), systemic chemo: intravenous, oral, and intraperitoneal. I had a temporary colostomy. I've been through a lot. It's been a hell of a rollercoaster ride, but I'm still kicking and enjoying…
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Not News I Wanted...Plans Have Changed In A Big Way
This is not a post I ever wanted make but have to before I lose to ability. I was driving and talking with brother today and my speech slurred. I immediately pulled over, hung up on him and dialed 911 ..Long story short, after a trip to the ER, I learned I have a pretty big lesion on my brain. The swelling is causing the…
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Not what I expected
Hi, Everyone. I don't know if there's anyone here who remembers me. I haven't participated in this board regularly for awhile now. I was diagnosed with colon cancer in 2007. I was fortunate enough to be Stage 1, and I have been clean for many years now. Until now... A trip to the ER last week for what was thought to be an…
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19 Years Later!
Hello CSN Friends! Just wanted to share hope and inspiration to anyone starting this journey. My surgery was 19 years ago today! Diagnosed Stage 3C Rectal Cancer with 10 positive Lymph Nodes at age 40. Looking back I remember how scared I was as I had a young son age 10. Now my son is all grown up and getting married this…
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Keytruda news and some kras inhibitors
Seems Keytruda is becoming important for extending life in MSI patients, as the FDA has approved another use for the drug https://www.evaluate.com/vantage/articles/news/trial-results/surprise-keytruda-approval-and-what-it-means-biotech As you can see at the link, there are several succeses, perhaps not important to us in…
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TACE ahead of us
So, During this week we good a new information how they want to treat my Papafurther and prolong his life. Cure is not an option anymore unfortunately. I thought I am used to it due to his MS but this is more scary. According to my dad there are 5 to 6 liver metastases there. They were not visible during PET scan at the…
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Back again
Update, had another major recurrence in the liver, five tumors this time, mostly small but one large one. Highest recorded CEA of 13. No idea regarding treatment recommendations at this point as the team hasn't conferred with each other. Will probably hear tonight. I would imagine chemo is back on the table but I've shown…
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Dreaded blockage
((sigh)) I've been doing so good lately. Then last week I lost my mind and actually ate an apple... Peel and all. I know better, it just sounded so good and darn it, it did! Thursday afternoon I started vomiting and it was nonstop until Friday at the ER. And the dreaded NG tube. Ugh. Just awful. The doctor called the…
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21st Century Cures Act
I see that this has a law that went into effect this month here in the USA. I am mostly hoping it means my scan results will be online a day earlier. :) I am not entirely sure what the law about being able to get the info means, as I do get my results eventually. I just have doctors who want me to see them first to get…
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biopsy
I am kind of in a funk. Been trying to get appointment with mayo cancer center in AZ. I have a medicare advantage insurance United Healthcare/Optum Care. I have received approval from insurance to go to Mayo for 2nd opinion. Talked with them today... I am a Stage IIIc cancer survivor since 2007. I had a pet scan that shows…
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Cologuard Thoughts on a positive finding?
Cologuard Thoughts on a positive finding?
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Got my first dose!
I got my first does of vaccine for covid today! It feels so good that soon I only have to worry about cancer :)
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Dr Burzynski
Treating patients with antineoplastons any truth to this I'm curious what those more educated then me think ?
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PET/CT Scan vs Colonoscopy
I could sure use some input. Diagnosed Stage IIIc Colon Cancer 2007 surgery and chemo PET Scan 2 weeks ago showed "Findings are suspicious for 2 areas of active malignancy in the sigmoid colon. 1st focal uptake near anastomotic site measuring at least 2.1 cm max SUV of 9.1 There is another hypermetabolic focus superior to…
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CT scan contrast does it really matter ?
Hello , So many years ago my dad had a severe reaction to MRI contrast and ever since has been unable to take it well now the hospital is adding CT scan contrast as a allergy . However my dad has had CT scan contrast several times where he was originally treated and everything was fine . But the hospital now won't listen…
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Mikenh and Surgery
Just wanted to start a new post for you since you are out of surgery and have many people posting to you and you replying instead of a post on the "Manifest Call" post. You should have your own post. I'm glad you are in your room recovering from surgery and that all went well. It's hard to post when you are fresh out of…
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For men only, the post-surgical issue
I had the problem where ejaculate didn't come out the usual way and I thought it was coming out of the rear end so I got up the courage to ask the surgeon today and she said that it was likely retrograde ejaculation where it goes into the bladder because of the trauma to the nerves or urethra. She said that if there was a…
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I'm numb they actually said hospice
So everything just came crashing down after the radiation oncologist recommended chemo the oncologist just made my heart break . The oncologist told my dad sure he could do chemo but cause my dad is prone to infection's with his urostomy bag it wouldn't be much of a life . He told my dad he can't be on antibiotics and…
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pet scan question
Hello So this week my dad see's a ENT cause his last pet scan showed thickness at the base of the tongue and FDG uptake there also and it also said it's of uncertain malignant potiental which I took as a good thing . However someone told me that there is actually tumors that have uncertain malignant potiental in there name…
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11 years tomorrow
Since my husband had his first surgery. The one to remove the cancer from his Colon. Who knew that would be the easiest thing he did in all of this. I wish I had made him do the mop up chemo maybe things would be different right now. I feel like everyday he seems weaker to me. he has only managed to gain back 5lbs, a non…
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" Once more unto the breach "
So my dad has to go back to chemo and the first time he didn't have much side effects faitgue and some chemo brain was it . Anyone know if that improves his chances of having limited side effects this time ? Or can someone do good on chemo one time then the next chemo drugs do not so good ?
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Anyone using icing of hands and feet during FOLFOX chemo to prevent neuropathy?
My cousin was just diagnosed with stage IV rectal cancer (liver mets). Will be having oxaliplatin, 5-FU, and leucovorin (FOLFOX) regimen. I've read that peripheral neuropathy is likely afterwards. I had great success with icing my hands and feet during Taxol/carboplatin chemo for uterine cancer. She's been told that this…
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Cancer Management App
Has anyone tried any of the symptom management apps? We checked out several and decided to go with ChemoWave. There were a few stories on YouTube about its developer, a cancer patient caretaker who created the app to manage his friends symptoms and care. We just set it up and are trying to figure out how to use it. Most of…
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Here's an odd news story
Cancer patient saw disease all but vanish after catching Covid (yahoo.com)
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New Diagnosis, Good Prognosis-Managing Fear
I am 53 years old, was tardy on the colonoscopy, and I was diagnosed with Malignant neoplasm of hepatic flexure. This is really just a scary way to name a big ole tumor in my colon that invaded the colon wall and 2 of 50 lymph nodes. Since my surgery, I feel fantastic (if a little sore from the incisions and the port…
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Stage 4 Colon with Mets to liver—worse 50th bday gift ever!
Hey y'all. New here and truthfully, scared shitless (no pun intended lol). Went to the Kaiser Permanente Urgent Care a week after I turned 50 with constipation and bloating that just felt "different". Three hours and one CT scan later the poor ER doc came in and with no preamble says "they found a large mass in your colon…