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Colorectal Cancer

6 minutes on elliptical
I am not sure how many of you know that I have been trying to get started with cardio thinking that it will help with the dismal fatigue and maybe even help fight the cancer. Well, I know most people won't understand how proud I am of a mere 6 minutes at an incline on the elliptical. But was thinking some of y'all might…
Sorry to say
My dear hubby Jim, succumbed to this God awful disease 2 days ago. They had him off of chemo temporally for the colostomy and that stupid ulcer and it just grew so fast. Last week we were supposed to enter a clinical trial, but instead his liver went into failure. God bless the man, he worked up until the end. Thursday he…
Need advice about surgery, and reconnection
Hello All I’m seeking insight and advise about having a colon resection, reversal, the ostomy bag and the side effects. Most particularly the side effects of having the surgical reversal (reconnecting your colon). I apologize if this is post contains a little too TMI…. I was diagnosed this past August with stage 3B…
Signatera & when was your first follow up scan?
As much as I initially felt confident in dad doing 6 treatments of FOLFOX instead of the 12 his oncologist recommended, now that he has finished it's so scary. His oncologist has made a few comments about the studies not being clear that 6 treatments is enough and such, but it doesn't matter, dad is dying to have his…
Surviving financially
I'm a new member on this forum. I've worked in an environment in which I'm exposed to carcinogens for the the past 15 years. My question is, are all cancers covered under medicaid? My fear is of getting a form of cancer that is not covered under medicaid or medicare or is not advanced enough so that I end up being drained…
colon cancer and prostate cancer
Im looking for a treatment center near rochester ny that can deal with bolth cancers Colon grad 3 and prostate gleason 3+4 also have Lynch Syndrom
Imugene
I have been following a company called Imugene and their clinical trials seem to be really promising . They are starting their 2nd human trials. I really hope they continue to have good results. if this treatment works it will totally change how cancer is treated. no more chemo and radiation for many people. fingers…
Hair loss and next week
So, My Papa is loosing his hair now either due to the irinotecan or the avastin. It will be strange to come back. Papa already had thinning hair due to his age but now it will be more. It will be strange to see him again without hair, eyebrows or eyelashes. Otherwise Papa feels good. The MS is here and there but otherwise…
Back ache during scan
Am I the only one that gets a piercing sharp pain in my mid back when I take a deep breathe and hold during a scan? The first few times I thought, do I have a new tumor, but I have had a lot of scans since the first time, and now I am just worried I will mess up the scan. Any hints on holding breath without backache? :)
HAPPY BIRTHDAY beaumontdave!
You are a rock, here on the forum. Your wisdom and friendship are without doubt, appreciated. We all wish you the best day, as you celebrate another year, regardless of the thing they call age. Happy day, my freind. T
Thoughts on NSAID's ?
Hello So with my dad's biopsy not until friday I been deep into research and came across NSAID's used to help with cancer . Some of the research seems to be good some bad so I wondered what everyone here thinks about them ? My dad recently went off blood thinners so we been thinking about trying aspirin or Ibuprofen . At…
Medicare/Medicaid Issues
I live in Nevada and there are no Comprehensive Cancer Treatment Centers here that take my insurance. I have a prior authorization to Mayo Clinic in AZ and hopefully UC Irvine Comprehensive Cancer Center. Mayo wont see me unless I have a biopsy showing cancer. These are for 2nd opinion. I understand that if they have the…
Anyone else have a pten gene mutation ?
Hello So we just got back for a meeting with the genetics doctor and talked alot about my dad's pten mutation in his cancer and I am wondering does anyone else have this ? Research on how to treat it seems to be rather limited the genetics doctor mentioned MTOR inhibitors would be good treatment in " theory " whatever…
Reovirus studied
Therapeutic Approach to KRAS Mutated Colorectal Cancer (meddocsonline.org)
Recent doctors letter
Hello, I asked my family to send me the doctors letter they just got. It was quite long but informative. I am a 5th year med student and feel not prepared to become a doctor after reading this... First of all the dates and info was really a mess because they talked about the 1st TACE at the 29th April but then how the…
mRNA technology and introducing myself
Hi everyone, I'm new here to the forum although I have been reading since December, 2020. My 50 year old husband was diagnosed with stage 4 colorectal cancer in December due to a small MET in the liver. We found out he had cancer during a colonoscopy on November 17, 2020 and it was staged in December after many tests. He…
Seeking new doctors
Hi Everyone, I'm new here. I think I accidentally posted this on another thread. My apologies. I am currenttly waiting on results to see if my stage 3 colon cancer has returned after 3 years and spread to my liver & spleen. I live in the greater Philadelphia area and originally went with the Crozer system. My site had a…
The very latest on my condition
So after 15 months, chemo, radiation, pill chemo, planned surgery, cancelled surgery -due to mets to 2 local lymph nodes- and now chemo again, my rectal tumor still has not shrunk. They have sent my biopsy to a special lab for genetic testing to see if they can find something that will make it shrink. Meanwhile I am still…
PARP inhibitors what do you know -updated with new question
So I been doing my research and found out that PARP inhibitors are used to treat cancer's with BRCA mutations . My dad has BRCA mutations but yet his oncologist told us targeted drugs won't work on my dad which has me confused . Anyone know anything about this PARP Inhibitors are they for rectal cancer ? Are they only for…
And it's back ...
A recent scan was misread by local radiologists, and what they deemed as free from cancer casually stored new lymph node involvement, when reviewed by experts at my cancer center (Memorial Sloan Kettering in NYC. ) surgery is no longer an option; chemo has had no effect. We don't yet know where to turn. My Dr is doing…
CT scan and results
I'm two years and 4 months past finishing my chemo. All the check-ups and blood work have come back normal. We were doing an annual CT scan so when I brought it up to my oncologist he said my numbers didn't warrant a scan. So we talked a few more minutes nd he said "what the heck, we're talking about it so let's do one if…
Targeted Therapy I'm confused
Hello So as we wait for the biopsy my dad saw his oncologist and I brought up targeted therapy and he said he run a test and targeted therapy wouldn't work . So I'm confused cause I thought targeted therapy could work on any cancer so my question is why wouldn't targeted therapy work is it my dad's brca mutation ? Or his…
Rectal cancer treatment guidance
Hi, I’m about 6 weeks out from diagnosis with stage 3 rectal cancer. Mayo has classified my cancer as T3N1M0 (Per imaging done on 1/30). My tumor is about 7.5cm from the anal verge. I’ve gotten opinions from 4 institutions so far and broadly, treatment seems to break down as below. I’d welcome experience (especially 2+…
Newly diagnosed rectal cx
I am posting for a friend who was just diagnosed on Friday with rectal cancer. she was diagnosed during a colonoscopy. She had a ct scan which was unremarkable. The doctor is advising her to have radiation first to shine the cancer than surgery. I would like to know questions for the oncologist. For example are there any…
Gin-Gins Chewy Ginger Candy
I felt Nausous most of today (but got a ton of work done) and stopped off at Whole Foods on the way home. I picked up some ginger root that I plan to slice and put in tea and a bag of Gin-Gins. Gin-Gins come in a few flavors and in chewy or hard candy. I was looking for the low sugar version. I tried one and it cleared up…
I’m 25 and I just found out my dad has colorectal cancer
Hi. I don't really know where to start this. My dad is my best friend and really the only person I feel I have in this life. I just graduated college and have been working and found out that he's been hiding colon cancer from me. He found out 2 years ago... he says that it was lower colon and there were no tumors just…
Older members please shout out
Hello all! I joined in May 2013 and went straight into the battle against colon cancer- restaged 3C. I have not checked in here for quite some time but hold all fellow fighters and survivors in my thoughts, prayers, and heart. If you are just beginning this journey, stay strong, be brave, and know that at this very moment,…
Coulda Woulda Shoulda
Feeling a bit bummed lately. As my dad nears the end of his 6 rounds of FOLFOX, its hard not to feel overwhelming anxiety about whats next. He has had such a hard time on the chemo, even took an extra week break before round 5. This experience has brought out a side of him that just makes me so sad. Its hard not to get too…
Nanoknife Ablation and HIPEC maybe a option ?
Hello I recently came across nanoknife ablation and HIPEC looking for info about those from those who either know about them or have had them . Do they use these two for rectal cancer that has spread to the abdominal lining ? Are the procedures a major surgery ? Is the outcome of these procedures better then just standard…
Confused doctors
So last week we got another bad information. The oncologist said that he does not feel confident in TACE alone and that he doesnt know what kind of tumor Papa actually has. There are just some irregularities in Papas history that confuse him. I will mention them now: * 2-3years before the diagnosis Papa had a colonoscopy,…

Colorectal Cancer

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