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New scans? CEA and Ca19-9? What could it mean?
Hello lovelies. Sorry I don't reply to my posts but your replies mean the world to me. Can't even remember where I left off but my father had an abscess near the anastomosis after his resection so he was admitted to the hospital and put on IV antibiotics. After a few days the surgeon decided to give him a (hopefully)…
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2nd liver surgery
Hello, My dad had his second liver surgery yesterday. He feels much better than with the last one. It is a good sign when he calls my mom after surgery. So he was not too exhausted. Last time he lost blood and was weak for a feww days. The surgeon cut away one liver metastases. He looked and looked but could not find the…
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Why can't chemo cure cancer without surgery?
I am not a surgical candidate, so it makes me so sad that chemo alone can't get us to NED. I believe that one day it will be possible, and I am hopeful it will come in time for me. But it just makes me so sad that they always say you can't be "cured" without surgery. I am mostly positive, but I just found out my friend who…
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Perineural invasion
Hello, I just want to know if someone had a perineural invasion in their report. My dad had it and they got it out but if you look it up there is not a lot of it in the www and if it is most of the time a bad prognosis. But then I am thinking if it has a bad prognosis because it is hard to operate to get out? My dad is…
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A bit worried about my dad
Hello everyone. This is my first post on this forum. I usually post on behalf of my dad in the head and neck section (as he's a cancer survivor). But he's been having some issues the last few months that made me worried it's related to colorectal cancer. He has been experiencing excessive amount of burping. When I say…
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New. Scared. Merry Xmas.
Hi. My name is Susy and I was just diagnosed with rectal cancer yesterday. Staging next week. My doctor says she guesses probably 2 or 3. I'm scared, of course. Trying to manage a somewhat normal xmas. I go between anxiety and disbelief. i just wanted to say hi. And merry Xmas ?
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Anyone ever had or heard of this ?
So we meant with the radiation oncologist and got my dad's newest pet scan results and there confusing as always. There is still something highly sususpicious for cancer in his pelvis but the confusing part is that the FDG Uptake has went down since last pet scan and the " mass" isn't getting any bigger . Anyone else ever…
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New to this board.
Hi. My mother, aged 48, was recently diagnosed with stage IV colon cancer. It's been incredibly overwhelming, as I'm sure you all know. She went in for stomach bloating and they realized she has ascites and from there came more tests until we landed at this diagnosis. She has mucinous adenocarcinoma of the hepatic flexure.…
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Good to still see some familiar names! I am now 5 years in.
I haven't checked in for a while on here, so I thought I would catch up a little. I had a couple years NED according to my PET scans, but I found out in the summer of 2019 that my cancer was just hard to detect, not gone. I had my third surgery in August that year and there are 40 some tumors that are only visible when you…
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Appetite
So my dad has been maintaining a good weight for a while now and now with his pet scan coming up monday he seems to be losing his appetite . Not totally he eats just not like he was eating usually just kind of picks at his food or eats half of it I don't know if it's scanxiety or maybe a bad sign that the cancer has spread…
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My mom was diagnosed with Stage 4 Colorectal Cancer - What indicators should I be tracking?
Hello, My mom was diagnosed with stage 4 colon cancer in September. The news is still setting in and I have been doing my best to stay positive and keep it together but these last few weeks have been tough, my mom transitioned out of her previous care due to an insurance change and since then, she has had more bad days…
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Birthday celebrations for our SophDan2 on Friday
I hope your day is filled with wonderful things - all the important things in life, like family and friends and food. All the F's. Tru
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Top cancer centers in or near michigan ?
So my dad's oncologist has been all over the place from telling my dad he is stage 4 with lifelong chemo needed to telling my dad he is stage 3 with so little cancer left on his tailbone it can't be seen on a scan . It honestly just seems like the oncologist is in over his head cause of my dad's NF disease . With another…
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Vectibix and moving forward
Found this forum tonight. First post !!! Got a miraculous type result from my recurrence stage 4 non-curable cancer from Folfiri chemo and Vectibix combination. Treated from July to December. After late December PET scans, oncologist is moving forward with Vectibix every 4 weeks. There is a patient in his practice with a…
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9 Years NED Today
To All, Today is my 9 year NED from stage 3 signet cell colon cancer. Also known as my "other" birthday. There are no words to express how I truly feel. Lucky doesn't do it, blessed doesn't even do it, if I can give hope to someone currently going through this difficult time then I will take that. I remember when I was…
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There's always something new right around the corner. . .
How Scientists Shot Down Cancer's 'Death Star' (yahoo.com)
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Thyroid Ultrasound
Hello. I'm new here but have been creeping around this discussion board for maybe a year. I was originally diagnosed with colon cancer in February of 2018. I've had several surgeries and have been through chemo and radiation. My most recent surgery was in November of 2020 to remove a nodule on the lower part of my left…
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Looking for advice - radiation side effects
Hi all. I'm here looking for some advice on side effects from my radiation. I have stage 4a rectal cancer, diagnosed in August 2020 at age 49. I've completed 8 rounds of FOLFOX and am now doing radiation with Xeloda orally. I go to radiation five days a week, Monday-Friday, and take the Xeloda each radiation day (3900…
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Chasing Sunrises
Happy Sunday! I stay in the shadows and look in to see where everybody is often. For the new ones here, I was diagnosed Stage IV in 2018..sigmoid tumor and 2 huge tumors on my liver. I went thru chemo, lost half of my liver,gallbladder and part of my colon. I refused mop-up chemo and my oncologist found spots scattered…
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What to expect from FOLFOX & 5-FU?
Hi all, I started Chemo (FOLFOX & 5-FU) on Dec 14th 2020. So far, the side effects they've told me about are: * Cold sensitivity * Neuropathy * Nausia * Fatigue What I have experienced so far: * Cold sensitivity - Pretty bad after the treatment, but fades over the next week to 10 days. * Neuropathy - Minimal so far, I only…
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More heartbreaking news
Just found out my dad's urologist Dr Brain Lane has terminal cancer and the news is actually heartbreaking to me even during my dad's surgery he had the cancer and was in remission but it came back and has spread . I literally have tears in my eyes he was so kind and explained everything to me after my dad's surgery . He…
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Pet was a good decision UPDATE Surgery
Hello, The PET of my dad was a good decision. It found 2 small liver tumors. We dont know if they were there at the beginning, just too small to detect, or if they are new and grew in the last weeks. So, we have no idea of it was always there or if it is a relapse. He is now 2 mpnths without chemo so I think they are…
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Some Good News! re: Pet scan results!
Well we wnet to hopkins yesterday and found out the opposite of what we were told last week (that thechemo wasn't working/something showed up). Truth is the tumor in hubby's liver DID Shrink! by 1/3. Next step is NO CHEMO for 2 month then surgery to remove it! We still have a chance at a CURE! After all this last week of…
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Cancer is becoming a plague on my family
First my dad then my aunt got beast cancer now my uncle has lymphoma and my other uncle the doctors are talking cancer to . All but one of my dad's relatives appears to have cancer and it's blowing my mind is this common ? Also does anyone know if this could mean my dad's family has a genetic mutation ? If so should I be…
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Looking for Chemo tips/tricks
My name is Emily and I am 34 years old. I was diagnosed with Stage 3 Colon Cancer in early January. I'll be starting the Cap-Ox treatment soon and am wondering if anyone has tips or tricks I should know? * Do you use any mouthwash to prevent mouth sores? * Any lotions to prevent hand/foot syndrome? * Are there any diet…
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Leak at the anastomosis? So lost and scared
Im sorry I havent replied to anyones posts yet, I read them but we are on a roller coaster now with my dad. Has anyone had a problem with a leak at the anastomosis after their resection? My dad has been back in the hosptial for 4 days now. His bowel resection was on 1/20, came home on 1/22, went to the ER on 1/24 because…
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1 year after colonoscopy
Hello, It seems not so long ago but 27th of January, one year ago, my dad had his colonoscopy that diagnosed him with cancer. I remember that day. I couldnt sleep because I wanted to do my neurology exam to go well (at the end I failed by one point my favorite subject). I was not worried. Yes the previous treatments were…
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Updated please help family is in crisis
Sorry if I been posting to many forum topics not sure if that's against the rules or what not . Just I have been really worried and so has the rest of my family . See my dad's last pet scan showed alot of hypermetabolic activity . 3 new mass's and enough hypermetabolic activity in his adominal wall for them to say it's…
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11 year rectal cancer survivor. multiple trips to bathroom daily. looking for solutions via food &
My husband had chemo, radiation & surgery in 2001. His intestines are often blocked or just the opposite. He takes mineral oil or Imodium depending on the situation. When he has too many trips to the bathroom in a day, the pain sets in. The pills he takes for the pain ease that problem, but cause others. I'm looking for an…
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Sharing the strangeness in this new covid world .
My dad has struggled with body image issues ever since he had his ostomy and urostomy bags something happened that made him happier then I have seen him in a long time . He run into a old friend who he hasn't seen in a while and she gave him a hug . Now a hug from a woman made him feel like a man again his words not mine…