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Colorectal Cancer

Update
For me this has been a rollercoaster ride. After feeling like my oncologist of four years was giving up on me, I sought a second and third opinion. I am now being treated at City of Hope, and have met with thoracic surgeons. I am currently on my 8th round of Folfiri and it has reduced the size of all three of my nodules on…
Happy Birthday MaryCarol5
I know you haven't been on the forum for a whle, but I still would like to wish you a great Birthday and let you know we are thinking of you. Have a super day. TRU
Long term chemo brain ?
When my dad was on chemo the worse side effect was chemo brain like it was bad he didn't know even how to get home sometimes . Now he's a few years away from chemo and I am noticing that he still struggles to find the right word sometime . Also he forgets names and he struggles to remember sometimes and really has to think…
Liquid Biopsy Question?
Hi Everyone, Just as a recap, my wife had colon cancer diagnosed in Aug 2019. Had tumour removed, then did 4 chemo treatments with FOLFOX, then they discovered 2 small liver mets in October 2019. They removed those and then she did another 8 chemo treatments with FOLFOX. Her last chemo was May 2020. She has had 2 NED scans…
My CEA jumped and I am panicking a little
My CEA jumped from 3.3 to 5.9 in 2 months, and I am so horribly panicked.
Getting nervous
Hello, it's been awhile since I have been on here. I guess after going through everything with my husband it was hard to keep seeing stuff about cancer but it's always there like now. My husband started having some back pain, he has always had some back pain due to a fusion he had on his lower back in 2006 but it was after…
Hoarseness
My husband is experiencing increasing hoarseness since he has started his chemo - FU5, Oxy, Avastin every two weeks and then has the home pump for 46 hours.. He is gargling 3-4 times a day with a salt/baking soda mixture even on the days between treatment He has no mets to the esophagus area. I am also making sure he has…
How do they compare scans?
So, this whole time, I have been thinking that they measure the tumors on the new scan, then compare it to the typed out notes from last radiologist. But this scan makes me wonder, are they looking at this one AND the last scan, measuring both, and making their own findings for both scans?
CA-19
Good Afternoon! I am brand new to this system. I have colorectal cancer and finished with chemo. What is a good CA 19 reading?
Covid Vaccine and false Cancer tests
Interesting! https://abcnews.go.com/Health/wireStory/swelling-covid-19-shots-cancer-false-alarms-76280958?cid=clicksource_4380645_3_heads_hero_live_headlines_hed
About to ditch my ostomy supply company!
For those of you with ostomies who order supplies online- what company do you use (U.S. only) and are you happy with that company? Thanks- Kelley
Fighting Dragons or Letting Go
Those of you who have followed me know I am as real as I can be. I wear my emotions openly for the most part...too much pretense and fear in the life. I wanted to reach out and just ramble. The steroids are keeping things at bay. I hate taking them but I'm just waiting for my oldest daughter to return from the Hawaii trip…
NED Again!
I had my blood work and CT Scan done this past week, and a visit with my Oncologist yesterday. He came in, beaming from ear to ear, with the good news that my scan was clear. It must be so nice, as an Oncologist, when he sees his Stage IV patients surviving. I can't comprehend how awful it must be to be in a profession…
About those scans...
Well, the whole body nuclear bone scan can back as " no evidence of osteoblastic metastatic disease", the spine and lumbar MRI just appears to have visualized skeletal structures and found spondylolisthesis of L4 on L5 due to degeneration, and the CT PET with tumor imaging from the skullbase to the upper thighs said " no…
BRCA 2
So today we meant with genitics doctor and they let us know my dad's tumor did have a BRCA 2 gene mutation and no one told us . There running more tests on my dad to figure out exactly what it means but I am curious has anyone had experience with the gene mutation or know about it ? Does it make my dad harder to treat or…
Recovery 2nd liver surgery
Hello, My dad is already home from his 2nd liver surgery. They got it out, it was 3,5cm big and I have the high suspicion that it was there at the beginning but not visible on CT and MRI or USG. I dont know what the doctors suspect. But they are careful. My dad said that he has a highly aggressive tumory maybe because it…
33 treatment
Had my 33rd treatment today. Even though I handle it all well, how long does this go on? My blood works, good Cea is in normal range 3.9. There will be no liver resection thanks to the lung nodules. Have anyone else had this many treatments?
Naturopathic Doctors do what ?
So my dad and his oncologist still can't get on the same page about treatment or even if my dad still has cancer . Dad doesn't seem to want to change doctors seems to be pretty okay with the wait and watch it approach as you all can guess I'm not so okay with the wait and watch approach .Since it is not my choice however…
An update
My husband started a probiotic which strangley enough has made a huge difference in his constant time in the bathroom. He was even able to leave the house a bit. His appetite is fabulous he is eating his goal of 2800-3000 calories a day. It doesn't seem he is gaining any weight at all though. That's very concerning. His…
Dad and me been talking
My dad and me been talking his last pet scan showed what there calling a " highly suspicious " for malignancy mass in his pelvis . It didn't grow since last pet scan and FDG uptake actually went down slightly so the radiation oncologist was stumped . He still wanted to do radiation but he admitted he couldn't say 100…
Second opinion or not ?
So I just called my dad's new onc had some questions found out that his new onc and his old onc are both the cancer treatment centers of west michigan . We thought different hospitals meant completly different but they are the same place so my question is this a true second opinion ? My dad is really bothered by this cause…
New scans? CEA and Ca19-9? What could it mean?
Hello lovelies. Sorry I don't reply to my posts but your replies mean the world to me. Can't even remember where I left off but my father had an abscess near the anastomosis after his resection so he was admitted to the hospital and put on IV antibiotics. After a few days the surgeon decided to give him a (hopefully)…
2nd liver surgery
Hello, My dad had his second liver surgery yesterday. He feels much better than with the last one. It is a good sign when he calls my mom after surgery. So he was not too exhausted. Last time he lost blood and was weak for a feww days. The surgeon cut away one liver metastases. He looked and looked but could not find the…
Why can't chemo cure cancer without surgery?
I am not a surgical candidate, so it makes me so sad that chemo alone can't get us to NED. I believe that one day it will be possible, and I am hopeful it will come in time for me. But it just makes me so sad that they always say you can't be "cured" without surgery. I am mostly positive, but I just found out my friend who…
Perineural invasion
Hello, I just want to know if someone had a perineural invasion in their report. My dad had it and they got it out but if you look it up there is not a lot of it in the www and if it is most of the time a bad prognosis. But then I am thinking if it has a bad prognosis because it is hard to operate to get out? My dad is…
A bit worried about my dad
Hello everyone. This is my first post on this forum. I usually post on behalf of my dad in the head and neck section (as he's a cancer survivor). But he's been having some issues the last few months that made me worried it's related to colorectal cancer. He has been experiencing excessive amount of burping. When I say…
New. Scared. Merry Xmas.
Hi. My name is Susy and I was just diagnosed with rectal cancer yesterday. Staging next week. My doctor says she guesses probably 2 or 3. I'm scared, of course. Trying to manage a somewhat normal xmas. I go between anxiety and disbelief. i just wanted to say hi. And merry Xmas ?
Anyone ever had or heard of this ?
So we meant with the radiation oncologist and got my dad's newest pet scan results and there confusing as always. There is still something highly sususpicious for cancer in his pelvis but the confusing part is that the FDG Uptake has went down since last pet scan and the " mass" isn't getting any bigger . Anyone else ever…
New to this board.
Hi. My mother, aged 48, was recently diagnosed with stage IV colon cancer. It's been incredibly overwhelming, as I'm sure you all know. She went in for stomach bloating and they realized she has ascites and from there came more tests until we landed at this diagnosis. She has mucinous adenocarcinoma of the hepatic flexure.…
Good to still see some familiar names! I am now 5 years in.
I haven't checked in for a while on here, so I thought I would catch up a little. I had a couple years NED according to my PET scans, but I found out in the summer of 2019 that my cancer was just hard to detect, not gone. I had my third surgery in August that year and there are 40 some tumors that are only visible when you…

Colorectal Cancer

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