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Colorectal Cancer

Fighting Dragons or Letting Go
Those of you who have followed me know I am as real as I can be. I wear my emotions openly for the most part...too much pretense and fear in the life. I wanted to reach out and just ramble. The steroids are keeping things at bay. I hate taking them but I'm just waiting for my oldest daughter to return from the Hawaii trip…
NED Again!
I had my blood work and CT Scan done this past week, and a visit with my Oncologist yesterday. He came in, beaming from ear to ear, with the good news that my scan was clear. It must be so nice, as an Oncologist, when he sees his Stage IV patients surviving. I can't comprehend how awful it must be to be in a profession…
About those scans...
Well, the whole body nuclear bone scan can back as " no evidence of osteoblastic metastatic disease", the spine and lumbar MRI just appears to have visualized skeletal structures and found spondylolisthesis of L4 on L5 due to degeneration, and the CT PET with tumor imaging from the skullbase to the upper thighs said " no…
BRCA 2
So today we meant with genitics doctor and they let us know my dad's tumor did have a BRCA 2 gene mutation and no one told us . There running more tests on my dad to figure out exactly what it means but I am curious has anyone had experience with the gene mutation or know about it ? Does it make my dad harder to treat or…
Recovery 2nd liver surgery
Hello, My dad is already home from his 2nd liver surgery. They got it out, it was 3,5cm big and I have the high suspicion that it was there at the beginning but not visible on CT and MRI or USG. I dont know what the doctors suspect. But they are careful. My dad said that he has a highly aggressive tumory maybe because it…
33 treatment
Had my 33rd treatment today. Even though I handle it all well, how long does this go on? My blood works, good Cea is in normal range 3.9. There will be no liver resection thanks to the lung nodules. Have anyone else had this many treatments?
Naturopathic Doctors do what ?
So my dad and his oncologist still can't get on the same page about treatment or even if my dad still has cancer . Dad doesn't seem to want to change doctors seems to be pretty okay with the wait and watch it approach as you all can guess I'm not so okay with the wait and watch approach .Since it is not my choice however…
An update
My husband started a probiotic which strangley enough has made a huge difference in his constant time in the bathroom. He was even able to leave the house a bit. His appetite is fabulous he is eating his goal of 2800-3000 calories a day. It doesn't seem he is gaining any weight at all though. That's very concerning. His…
Dad and me been talking
My dad and me been talking his last pet scan showed what there calling a " highly suspicious " for malignancy mass in his pelvis . It didn't grow since last pet scan and FDG uptake actually went down slightly so the radiation oncologist was stumped . He still wanted to do radiation but he admitted he couldn't say 100…
Second opinion or not ?
So I just called my dad's new onc had some questions found out that his new onc and his old onc are both the cancer treatment centers of west michigan . We thought different hospitals meant completly different but they are the same place so my question is this a true second opinion ? My dad is really bothered by this cause…
New scans? CEA and Ca19-9? What could it mean?
Hello lovelies. Sorry I don't reply to my posts but your replies mean the world to me. Can't even remember where I left off but my father had an abscess near the anastomosis after his resection so he was admitted to the hospital and put on IV antibiotics. After a few days the surgeon decided to give him a (hopefully)…
2nd liver surgery
Hello, My dad had his second liver surgery yesterday. He feels much better than with the last one. It is a good sign when he calls my mom after surgery. So he was not too exhausted. Last time he lost blood and was weak for a feww days. The surgeon cut away one liver metastases. He looked and looked but could not find the…
Why can't chemo cure cancer without surgery?
I am not a surgical candidate, so it makes me so sad that chemo alone can't get us to NED. I believe that one day it will be possible, and I am hopeful it will come in time for me. But it just makes me so sad that they always say you can't be "cured" without surgery. I am mostly positive, but I just found out my friend who…
Perineural invasion
Hello, I just want to know if someone had a perineural invasion in their report. My dad had it and they got it out but if you look it up there is not a lot of it in the www and if it is most of the time a bad prognosis. But then I am thinking if it has a bad prognosis because it is hard to operate to get out? My dad is…
A bit worried about my dad
Hello everyone. This is my first post on this forum. I usually post on behalf of my dad in the head and neck section (as he's a cancer survivor). But he's been having some issues the last few months that made me worried it's related to colorectal cancer. He has been experiencing excessive amount of burping. When I say…
New. Scared. Merry Xmas.
Hi. My name is Susy and I was just diagnosed with rectal cancer yesterday. Staging next week. My doctor says she guesses probably 2 or 3. I'm scared, of course. Trying to manage a somewhat normal xmas. I go between anxiety and disbelief. i just wanted to say hi. And merry Xmas ?
Anyone ever had or heard of this ?
So we meant with the radiation oncologist and got my dad's newest pet scan results and there confusing as always. There is still something highly sususpicious for cancer in his pelvis but the confusing part is that the FDG Uptake has went down since last pet scan and the " mass" isn't getting any bigger . Anyone else ever…
New to this board.
Hi. My mother, aged 48, was recently diagnosed with stage IV colon cancer. It's been incredibly overwhelming, as I'm sure you all know. She went in for stomach bloating and they realized she has ascites and from there came more tests until we landed at this diagnosis. She has mucinous adenocarcinoma of the hepatic flexure.…
Good to still see some familiar names! I am now 5 years in.
I haven't checked in for a while on here, so I thought I would catch up a little. I had a couple years NED according to my PET scans, but I found out in the summer of 2019 that my cancer was just hard to detect, not gone. I had my third surgery in August that year and there are 40 some tumors that are only visible when you…
Appetite
So my dad has been maintaining a good weight for a while now and now with his pet scan coming up monday he seems to be losing his appetite . Not totally he eats just not like he was eating usually just kind of picks at his food or eats half of it I don't know if it's scanxiety or maybe a bad sign that the cancer has spread…
My mom was diagnosed with Stage 4 Colorectal Cancer - What indicators should I be tracking?
Hello, My mom was diagnosed with stage 4 colon cancer in September. The news is still setting in and I have been doing my best to stay positive and keep it together but these last few weeks have been tough, my mom transitioned out of her previous care due to an insurance change and since then, she has had more bad days…
Birthday celebrations for our SophDan2 on Friday
I hope your day is filled with wonderful things - all the important things in life, like family and friends and food. All the F's. Tru
Top cancer centers in or near michigan ?
So my dad's oncologist has been all over the place from telling my dad he is stage 4 with lifelong chemo needed to telling my dad he is stage 3 with so little cancer left on his tailbone it can't be seen on a scan . It honestly just seems like the oncologist is in over his head cause of my dad's NF disease . With another…
Vectibix and moving forward
Found this forum tonight. First post !!! Got a miraculous type result from my recurrence stage 4 non-curable cancer from Folfiri chemo and Vectibix combination. Treated from July to December. After late December PET scans, oncologist is moving forward with Vectibix every 4 weeks. There is a patient in his practice with a…
9 Years NED Today
To All, Today is my 9 year NED from stage 3 signet cell colon cancer. Also known as my "other" birthday. There are no words to express how I truly feel. Lucky doesn't do it, blessed doesn't even do it, if I can give hope to someone currently going through this difficult time then I will take that. I remember when I was…
There's always something new right around the corner. . .
How Scientists Shot Down Cancer's 'Death Star' (yahoo.com)
Thyroid Ultrasound
Hello. I'm new here but have been creeping around this discussion board for maybe a year. I was originally diagnosed with colon cancer in February of 2018. I've had several surgeries and have been through chemo and radiation. My most recent surgery was in November of 2020 to remove a nodule on the lower part of my left…
Looking for advice - radiation side effects
Hi all. I'm here looking for some advice on side effects from my radiation. I have stage 4a rectal cancer, diagnosed in August 2020 at age 49. I've completed 8 rounds of FOLFOX and am now doing radiation with Xeloda orally. I go to radiation five days a week, Monday-Friday, and take the Xeloda each radiation day (3900…
Chasing Sunrises
Happy Sunday! I stay in the shadows and look in to see where everybody is often. For the new ones here, I was diagnosed Stage IV in 2018..sigmoid tumor and 2 huge tumors on my liver. I went thru chemo, lost half of my liver,gallbladder and part of my colon. I refused mop-up chemo and my oncologist found spots scattered…
What to expect from FOLFOX & 5-FU?
Hi all, I started Chemo (FOLFOX & 5-FU) on Dec 14th 2020. So far, the side effects they've told me about are: * Cold sensitivity * Neuropathy * Nausia * Fatigue What I have experienced so far: * Cold sensitivity - Pretty bad after the treatment, but fades over the next week to 10 days. * Neuropathy - Minimal so far, I only…

Colorectal Cancer

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