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Appetite
So my dad has been maintaining a good weight for a while now and now with his pet scan coming up monday he seems to be losing his appetite . Not totally he eats just not like he was eating usually just kind of picks at his food or eats half of it I don't know if it's scanxiety or maybe a bad sign that the cancer has spread…
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My mom was diagnosed with Stage 4 Colorectal Cancer - What indicators should I be tracking?
Hello, My mom was diagnosed with stage 4 colon cancer in September. The news is still setting in and I have been doing my best to stay positive and keep it together but these last few weeks have been tough, my mom transitioned out of her previous care due to an insurance change and since then, she has had more bad days…
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Birthday celebrations for our SophDan2 on Friday
I hope your day is filled with wonderful things - all the important things in life, like family and friends and food. All the F's. Tru
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Top cancer centers in or near michigan ?
So my dad's oncologist has been all over the place from telling my dad he is stage 4 with lifelong chemo needed to telling my dad he is stage 3 with so little cancer left on his tailbone it can't be seen on a scan . It honestly just seems like the oncologist is in over his head cause of my dad's NF disease . With another…
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Vectibix and moving forward
Found this forum tonight. First post !!! Got a miraculous type result from my recurrence stage 4 non-curable cancer from Folfiri chemo and Vectibix combination. Treated from July to December. After late December PET scans, oncologist is moving forward with Vectibix every 4 weeks. There is a patient in his practice with a…
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9 Years NED Today
To All, Today is my 9 year NED from stage 3 signet cell colon cancer. Also known as my "other" birthday. There are no words to express how I truly feel. Lucky doesn't do it, blessed doesn't even do it, if I can give hope to someone currently going through this difficult time then I will take that. I remember when I was…
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There's always something new right around the corner. . .
How Scientists Shot Down Cancer's 'Death Star' (yahoo.com)
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Thyroid Ultrasound
Hello. I'm new here but have been creeping around this discussion board for maybe a year. I was originally diagnosed with colon cancer in February of 2018. I've had several surgeries and have been through chemo and radiation. My most recent surgery was in November of 2020 to remove a nodule on the lower part of my left…
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Looking for advice - radiation side effects
Hi all. I'm here looking for some advice on side effects from my radiation. I have stage 4a rectal cancer, diagnosed in August 2020 at age 49. I've completed 8 rounds of FOLFOX and am now doing radiation with Xeloda orally. I go to radiation five days a week, Monday-Friday, and take the Xeloda each radiation day (3900…
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Chasing Sunrises
Happy Sunday! I stay in the shadows and look in to see where everybody is often. For the new ones here, I was diagnosed Stage IV in 2018..sigmoid tumor and 2 huge tumors on my liver. I went thru chemo, lost half of my liver,gallbladder and part of my colon. I refused mop-up chemo and my oncologist found spots scattered…
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What to expect from FOLFOX & 5-FU?
Hi all, I started Chemo (FOLFOX & 5-FU) on Dec 14th 2020. So far, the side effects they've told me about are: * Cold sensitivity * Neuropathy * Nausia * Fatigue What I have experienced so far: * Cold sensitivity - Pretty bad after the treatment, but fades over the next week to 10 days. * Neuropathy - Minimal so far, I only…
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More heartbreaking news
Just found out my dad's urologist Dr Brain Lane has terminal cancer and the news is actually heartbreaking to me even during my dad's surgery he had the cancer and was in remission but it came back and has spread . I literally have tears in my eyes he was so kind and explained everything to me after my dad's surgery . He…
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Pet was a good decision UPDATE Surgery
Hello, The PET of my dad was a good decision. It found 2 small liver tumors. We dont know if they were there at the beginning, just too small to detect, or if they are new and grew in the last weeks. So, we have no idea of it was always there or if it is a relapse. He is now 2 mpnths without chemo so I think they are…
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Some Good News! re: Pet scan results!
Well we wnet to hopkins yesterday and found out the opposite of what we were told last week (that thechemo wasn't working/something showed up). Truth is the tumor in hubby's liver DID Shrink! by 1/3. Next step is NO CHEMO for 2 month then surgery to remove it! We still have a chance at a CURE! After all this last week of…
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Cancer is becoming a plague on my family
First my dad then my aunt got beast cancer now my uncle has lymphoma and my other uncle the doctors are talking cancer to . All but one of my dad's relatives appears to have cancer and it's blowing my mind is this common ? Also does anyone know if this could mean my dad's family has a genetic mutation ? If so should I be…
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Looking for Chemo tips/tricks
My name is Emily and I am 34 years old. I was diagnosed with Stage 3 Colon Cancer in early January. I'll be starting the Cap-Ox treatment soon and am wondering if anyone has tips or tricks I should know? * Do you use any mouthwash to prevent mouth sores? * Any lotions to prevent hand/foot syndrome? * Are there any diet…
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Leak at the anastomosis? So lost and scared
Im sorry I havent replied to anyones posts yet, I read them but we are on a roller coaster now with my dad. Has anyone had a problem with a leak at the anastomosis after their resection? My dad has been back in the hosptial for 4 days now. His bowel resection was on 1/20, came home on 1/22, went to the ER on 1/24 because…
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1 year after colonoscopy
Hello, It seems not so long ago but 27th of January, one year ago, my dad had his colonoscopy that diagnosed him with cancer. I remember that day. I couldnt sleep because I wanted to do my neurology exam to go well (at the end I failed by one point my favorite subject). I was not worried. Yes the previous treatments were…
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Updated please help family is in crisis
Sorry if I been posting to many forum topics not sure if that's against the rules or what not . Just I have been really worried and so has the rest of my family . See my dad's last pet scan showed alot of hypermetabolic activity . 3 new mass's and enough hypermetabolic activity in his adominal wall for them to say it's…
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11 year rectal cancer survivor. multiple trips to bathroom daily. looking for solutions via food &
My husband had chemo, radiation & surgery in 2001. His intestines are often blocked or just the opposite. He takes mineral oil or Imodium depending on the situation. When he has too many trips to the bathroom in a day, the pain sets in. The pills he takes for the pain ease that problem, but cause others. I'm looking for an…
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Sharing the strangeness in this new covid world .
My dad has struggled with body image issues ever since he had his ostomy and urostomy bags something happened that made him happier then I have seen him in a long time . He run into a old friend who he hasn't seen in a while and she gave him a hug . Now a hug from a woman made him feel like a man again his words not mine…
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AHHHHHHHSTOMY
Well, my dad did have a leak. Some type of special contrast confirmed it. Why they didn't do that contrast before as he sat in the hospital for days I don't know. Can anyone share their experience with ostomy and reversal. I searched a little on here but all I see are problems that people posted. Maybe it's just not that…
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Stage III, what now?
Dad just called and said they told him "T2 stage 3, it was in 1 lymph node". I don't know how many lymph nodes they took. Does it matter? I'm so shocked and scared now, we hoped so much it was stage 2. He is devastated. He didn't do the Nagourney (functional profile assay) testing like I begged him to, manly because the…
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Covid Vaccine for MSK patients age 65+
Through MSK, as an active patient, I was able to schedule my Covid vaccine for Monday, Feb. 1. If you are in Active treatment (i.e. seen an MSK provider recently) and over 65, you might be eligible. I'm getting mine at the Westchester site. Go through the portal to get info.
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Covid Vaccine
Do y'all plan on getting it when your "group" is eligible? I was thinking today how terrified I get when someone without a mask comes close, and then I worry for 10 days, and how extraordinarilying fabulous it is going to be to have that anxiety lifted from my shoulders! I will still wear a mask until we get the all clear,…
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Problems after bowel resection
So, dad had bowel resection on 1/20. It took almost 11 hours, he has a small pelvis and dense tissue. The surgeon said she ended up removing just a small part of the sigmoid and a little bit of the rectum, instead of the whole sigmoid. He passed gas in the hospital the very same night and all seemed good. We brought him…
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Lumps in abdomen UPDATE
On my 4 1/2 year colon cancer ct scan and 2 1/2 year kidney cancer ct scan.....they have found 2 small lumps on the right hand side of abdomen. They are only 1/2 millileter so to small to biopsy at the moment. I will be having another scan in February followed by a biopsy if they are big enough then. This has really thrown…
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Can chemo cause swollen lymph nodes ?
Can chemo cause swollen lymph nodes a year after chemo ? My dad was having pain where he had a hernia repaired they did ultrasound . My dad's PD told him he has swollen lymph nodes there and that its from chemo so I am wondering could that happen a year later . Or could this mean my dad has cancer in his lymph nodes which…
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Panitumumab--Has anyone currenyly on or tried this med?
I was just put on Panitumumab (Vecix) which I started yesterday becuase my CEA shot up to 600 even though all scans are clear. Like all of us, I dont want to be on any infustion, but I want to see if anyone hs any success or no anyone who has success with this medication.
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Surgery and HAI pump coming soon...HELP!!!
Greetings...I'm so glad that I found this site! I was diagnosed June of 2019. I'm in NJ so I wound up at MSK for treatment. Long story short I had Chemo followed by chemo/radiation then a resection in August, 2020. This left me with a temporary illiostomy. I had the reversal a little over a month ago in early November. All…