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Colorectal Cancer

Looking for Chemo tips/tricks
My name is Emily and I am 34 years old. I was diagnosed with Stage 3 Colon Cancer in early January. I'll be starting the Cap-Ox treatment soon and am wondering if anyone has tips or tricks I should know? * Do you use any mouthwash to prevent mouth sores? * Any lotions to prevent hand/foot syndrome? * Are there any diet…
Leak at the anastomosis? So lost and scared
Im sorry I havent replied to anyones posts yet, I read them but we are on a roller coaster now with my dad. Has anyone had a problem with a leak at the anastomosis after their resection? My dad has been back in the hosptial for 4 days now. His bowel resection was on 1/20, came home on 1/22, went to the ER on 1/24 because…
1 year after colonoscopy
Hello, It seems not so long ago but 27th of January, one year ago, my dad had his colonoscopy that diagnosed him with cancer. I remember that day. I couldnt sleep because I wanted to do my neurology exam to go well (at the end I failed by one point my favorite subject). I was not worried. Yes the previous treatments were…
Updated please help family is in crisis
Sorry if I been posting to many forum topics not sure if that's against the rules or what not . Just I have been really worried and so has the rest of my family . See my dad's last pet scan showed alot of hypermetabolic activity . 3 new mass's and enough hypermetabolic activity in his adominal wall for them to say it's…
11 year rectal cancer survivor. multiple trips to bathroom daily. looking for solutions via food &
My husband had chemo, radiation & surgery in 2001. His intestines are often blocked or just the opposite. He takes mineral oil or Imodium depending on the situation. When he has too many trips to the bathroom in a day, the pain sets in. The pills he takes for the pain ease that problem, but cause others. I'm looking for an…
Sharing the strangeness in this new covid world .
My dad has struggled with body image issues ever since he had his ostomy and urostomy bags something happened that made him happier then I have seen him in a long time . He run into a old friend who he hasn't seen in a while and she gave him a hug . Now a hug from a woman made him feel like a man again his words not mine…
AHHHHHHHSTOMY
Well, my dad did have a leak. Some type of special contrast confirmed it. Why they didn't do that contrast before as he sat in the hospital for days I don't know. Can anyone share their experience with ostomy and reversal. I searched a little on here but all I see are problems that people posted. Maybe it's just not that…
Stage III, what now?
Dad just called and said they told him "T2 stage 3, it was in 1 lymph node". I don't know how many lymph nodes they took. Does it matter? I'm so shocked and scared now, we hoped so much it was stage 2. He is devastated. He didn't do the Nagourney (functional profile assay) testing like I begged him to, manly because the…
Covid Vaccine for MSK patients age 65+
Through MSK, as an active patient, I was able to schedule my Covid vaccine for Monday, Feb. 1. If you are in Active treatment (i.e. seen an MSK provider recently) and over 65, you might be eligible. I'm getting mine at the Westchester site. Go through the portal to get info.
Covid Vaccine
Do y'all plan on getting it when your "group" is eligible? I was thinking today how terrified I get when someone without a mask comes close, and then I worry for 10 days, and how extraordinarilying fabulous it is going to be to have that anxiety lifted from my shoulders! I will still wear a mask until we get the all clear,…
Problems after bowel resection
So, dad had bowel resection on 1/20. It took almost 11 hours, he has a small pelvis and dense tissue. The surgeon said she ended up removing just a small part of the sigmoid and a little bit of the rectum, instead of the whole sigmoid. He passed gas in the hospital the very same night and all seemed good. We brought him…
Lumps in abdomen UPDATE
On my 4 1/2 year colon cancer ct scan and 2 1/2 year kidney cancer ct scan.....they have found 2 small lumps on the right hand side of abdomen. They are only 1/2 millileter so to small to biopsy at the moment. I will be having another scan in February followed by a biopsy if they are big enough then. This has really thrown…
Can chemo cause swollen lymph nodes ?
Can chemo cause swollen lymph nodes a year after chemo ? My dad was having pain where he had a hernia repaired they did ultrasound . My dad's PD told him he has swollen lymph nodes there and that its from chemo so I am wondering could that happen a year later . Or could this mean my dad has cancer in his lymph nodes which…
Panitumumab--Has anyone currenyly on or tried this med?
I was just put on Panitumumab (Vecix) which I started yesterday becuase my CEA shot up to 600 even though all scans are clear. Like all of us, I dont want to be on any infustion, but I want to see if anyone hs any success or no anyone who has success with this medication.
Surgery and HAI pump coming soon...HELP!!!
Greetings...I'm so glad that I found this site! I was diagnosed June of 2019. I'm in NJ so I wound up at MSK for treatment. Long story short I had Chemo followed by chemo/radiation then a resection in August, 2020. This left me with a temporary illiostomy. I had the reversal a little over a month ago in early November. All…
Dad is in surgery
Just dropped dad off. It feels so cruel that they won't even let one person wait or be there when he gets out. Even though one of us (me) had COVID and one of us (my sister) has been vaccinated... he was so nervous. I know so many of y'all are old pros at surgery. I'm trying to let that comfort me. Sorry for Comments or…
No resection
Well at Penn State yesterday I got some good news and some bad news. My liver and lungs are responding to the chemo but with nodules on my lungs I can not have a liver resection. Oh well, I'll see my Onc on the 13th and see where we are going. I do feel really good though. Taking it day to day. I am an ex wrestler and…
Surgery Wednesday...
So, I'll be going under the knife on Wednesday the 13th to get the little lump of demon cancer removed from my breath bags.... Not eligible for VATS because of where it's at... Darn the luck... I'm on my way out to find some pj's with a button up top (who actually wears those?) and get my nails undone... I'm more upset…
Heart Breaking news from Northern Ireland
This truly breaks my heart. https://www.bbc.com/news/uk-northern-ireland-55760914 Tru
So the break didn't last long
Hello So while my dad was doing the wait and see approach with his onc the radiation onc called so the break was kind of short . We went to see the radiation onc and he said my dad could be a canidate for radiation on his tailbone expect one spot in the front of the pelvis worried him . The radiation onc said he thought…
Update on Richard
Back in the summer there was a lymph node in the liver area that showed up during a scan. Then Richard has a liquid biopsy, which confirmed cancer cells in the blood. The liver surgeon at MD Anderson wanted to go ahead and do needle biopsy on the lymph node and an endoscopic ultrasound on the liver. we flew down to Texas…
daily steroids
Hi All- I am currently undergoing my second round of chemo. I have a lot of pain from my rectal tumor and it hurts the most when I am sitting in a chair. This has lead to me missing a lot of work. I take morphine, acetominiphine, and gabapentin every day but they only make the pain manageable for staying home and laying on…
Appt. last friday with oncologist
Had my year and 1/2 check up last friday the 8th. The oncologist did bloodwork........he said it was perfect. My CEA was 1.8. He ck'd my Covid antibodies and they were 175. Next checkup will be a PET scan at the 2 yr. mark. One question, l still have phtom pains on the side(right) where they took my ascending colon.…
Your Oncologist is NOT a nutritionalist
I was just reading an article about Leaky Gut Syndrome. At the end of the article, it mentions talking to your Doctor before starting any supplemental regime. That led me to think about some of the comments I have read on various forums, including here. Folks upset with their Oncologist because they were not told what they…
I am at a loss
I don't feel like I can say this anyplace but here I try not to say much on Facebook because my husband hates his business out there. I think he might be dying. He had a stent replacement before halloween and they could barely advance the scope, but they did. They removed and replaced two stents. within a week he was very…
CEA decreased but onco says cannot continue treatment...
My mom was diagnosed with MET colorectal last year which had Metastasized to liver, bilobar. Her CEA at that time was 1600, her first line treatment went well, but within 3 months we were back to square one. At this time her CEA dropped to 800. With second line chemo the recent PET scan showed that the size of the cells…
12 Years Ago
Wow, it's been 12 years since diagnosis. It was the day before Thanksgiving for me to have my first colonoscopy, and that is when they discovered the tumor that my doctor thought was a hemorrhoid. That was the hardest Thanksgiving of my life as the news was kept from my 8 children so they were able to enjoy their day. My…
Appendix Cancer
I am looking for others that have been diagnosed with Cancer Of the appendix or better none as a Goblet Cell Carcinoid. I have had a tough time finding information on this type of Cancer. I have completed Chemo and I am now cancer free but with this being such a rare form I would like to talk with others about there…
Dad's Update: Liver Mets Confirmed, Chemo Started and Visit to Surgeon
Hello All, Just a quick background, my father was diagnosed with colon cancer with liver mets August 2019 and completed FOLFOX in April 2020. Scans right after his last therapy showed elevated CEA. CT scan of liver coupled with liver biopsy revealed infection but “NO lesions”. The blood culture-confirmed the growth of…
The
is there a place where I can read About more people who have survived this? I exhausted the too few survivorship stories that come up when you search them like on fox chases website and cancer coalition.

Colorectal Cancer

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