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Update
So I started the chemo for the lung cancer, and lucky me, I've experienced almost every side effect possible. The worst of which is that I am losing my hair. It's started to come out in clumps, so tomorrow is "Shave Anne's head day". I've been pretty upbeat through the whole rectal cancer treatments and surgery. I kept my…
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Any more info out there ?
Last pet scan showed my dad's neurofibrama in his throat had increased FDG Uptake and thickening at the base of the tongue . He's had the neurofibrama for 20 years but now I saw something in a different section about weed causing HPV related throat cancer . My dad has also smoked weed for basically his whole life so this…
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The port
I got the port out and it feels so good!
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Has anyone had rigors?
I got rigors today, plus a few bad reactions. I was like, it is just cold in here. All the staff freaked out. They put 4 warm blankets, a blanket that has something in it to get ot hotter than blankets. And was still rigors. So they gave me a demerol. The blankets did not help. I am hoping it is from my cold. They took…
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"I'm back"
Hello to all, I havn't been posting for years but so happy to have a place to come back to. It is so nice to see some of the "old timers" . I mostly lurked but will try to be more supportive this time. Diagosed with Stage IIIc in 2007 ,partial colectomy surgery, chemo etc. Rough ride but beat all the odds. 2021 March Pet…
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March Madness
Hope everyone is doing well. If you know American sports and/or colleges and recognize my forum screen name might guess that I am fully invested in college basketball right now, which brings me to the first topic, drinking alcohol. The only time I drink is when there is some kind of big time sporting event in the evening…
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Adhesions
Wondering if anyone has been treated for adhesions from surgery? My husband had about 1/3 of his colon removed 13 months ago. Did well after the successful resection, finished 12 rounds of chemo in July. In October started feeling lots of cramping and even shooting pains in his left lower and central abdomen. He had a ct…
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CEA Increase worried
I posted last week about my husbands back pain. He has been seeing a dr for and is currently going to a chiripractor once so far and has some medical massages on the books. In the meantime his worry that the back pain could be cancer we communicated the concern with his oncologist. She reassuringly said it is hightly…
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FDG Uptake
So after my dad's last pet scan he has been confidently telling people that he thinks his cancer is gone . Based of the fact that his last pet scan showed uptake going down . Yet his oncologist still insists he has cancer but since his oncologist has been wrong before we just don't know . So my question is has anyone had…
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Update
For me this has been a rollercoaster ride. After feeling like my oncologist of four years was giving up on me, I sought a second and third opinion. I am now being treated at City of Hope, and have met with thoracic surgeons. I am currently on my 8th round of Folfiri and it has reduced the size of all three of my nodules on…
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Happy Birthday MaryCarol5
I know you haven't been on the forum for a whle, but I still would like to wish you a great Birthday and let you know we are thinking of you. Have a super day. TRU
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Long term chemo brain ?
When my dad was on chemo the worse side effect was chemo brain like it was bad he didn't know even how to get home sometimes . Now he's a few years away from chemo and I am noticing that he still struggles to find the right word sometime . Also he forgets names and he struggles to remember sometimes and really has to think…
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Liquid Biopsy Question?
Hi Everyone, Just as a recap, my wife had colon cancer diagnosed in Aug 2019. Had tumour removed, then did 4 chemo treatments with FOLFOX, then they discovered 2 small liver mets in October 2019. They removed those and then she did another 8 chemo treatments with FOLFOX. Her last chemo was May 2020. She has had 2 NED scans…
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My CEA jumped and I am panicking a little
My CEA jumped from 3.3 to 5.9 in 2 months, and I am so horribly panicked.
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Getting nervous
Hello, it's been awhile since I have been on here. I guess after going through everything with my husband it was hard to keep seeing stuff about cancer but it's always there like now. My husband started having some back pain, he has always had some back pain due to a fusion he had on his lower back in 2006 but it was after…
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Hoarseness
My husband is experiencing increasing hoarseness since he has started his chemo - FU5, Oxy, Avastin every two weeks and then has the home pump for 46 hours.. He is gargling 3-4 times a day with a salt/baking soda mixture even on the days between treatment He has no mets to the esophagus area. I am also making sure he has…
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How do they compare scans?
So, this whole time, I have been thinking that they measure the tumors on the new scan, then compare it to the typed out notes from last radiologist. But this scan makes me wonder, are they looking at this one AND the last scan, measuring both, and making their own findings for both scans?
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CA-19
Good Afternoon! I am brand new to this system. I have colorectal cancer and finished with chemo. What is a good CA 19 reading?
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Covid Vaccine and false Cancer tests
Interesting! https://abcnews.go.com/Health/wireStory/swelling-covid-19-shots-cancer-false-alarms-76280958?cid=clicksource_4380645_3_heads_hero_live_headlines_hed
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About to ditch my ostomy supply company!
For those of you with ostomies who order supplies online- what company do you use (U.S. only) and are you happy with that company? Thanks- Kelley
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Fighting Dragons or Letting Go
Those of you who have followed me know I am as real as I can be. I wear my emotions openly for the most part...too much pretense and fear in the life. I wanted to reach out and just ramble. The steroids are keeping things at bay. I hate taking them but I'm just waiting for my oldest daughter to return from the Hawaii trip…
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NED Again!
I had my blood work and CT Scan done this past week, and a visit with my Oncologist yesterday. He came in, beaming from ear to ear, with the good news that my scan was clear. It must be so nice, as an Oncologist, when he sees his Stage IV patients surviving. I can't comprehend how awful it must be to be in a profession…
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About those scans...
Well, the whole body nuclear bone scan can back as " no evidence of osteoblastic metastatic disease", the spine and lumbar MRI just appears to have visualized skeletal structures and found spondylolisthesis of L4 on L5 due to degeneration, and the CT PET with tumor imaging from the skullbase to the upper thighs said " no…
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BRCA 2
So today we meant with genitics doctor and they let us know my dad's tumor did have a BRCA 2 gene mutation and no one told us . There running more tests on my dad to figure out exactly what it means but I am curious has anyone had experience with the gene mutation or know about it ? Does it make my dad harder to treat or…
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Recovery 2nd liver surgery
Hello, My dad is already home from his 2nd liver surgery. They got it out, it was 3,5cm big and I have the high suspicion that it was there at the beginning but not visible on CT and MRI or USG. I dont know what the doctors suspect. But they are careful. My dad said that he has a highly aggressive tumory maybe because it…
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33 treatment
Had my 33rd treatment today. Even though I handle it all well, how long does this go on? My blood works, good Cea is in normal range 3.9. There will be no liver resection thanks to the lung nodules. Have anyone else had this many treatments?
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Naturopathic Doctors do what ?
So my dad and his oncologist still can't get on the same page about treatment or even if my dad still has cancer . Dad doesn't seem to want to change doctors seems to be pretty okay with the wait and watch it approach as you all can guess I'm not so okay with the wait and watch approach .Since it is not my choice however…
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An update
My husband started a probiotic which strangley enough has made a huge difference in his constant time in the bathroom. He was even able to leave the house a bit. His appetite is fabulous he is eating his goal of 2800-3000 calories a day. It doesn't seem he is gaining any weight at all though. That's very concerning. His…
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Dad and me been talking
My dad and me been talking his last pet scan showed what there calling a " highly suspicious " for malignancy mass in his pelvis . It didn't grow since last pet scan and FDG uptake actually went down slightly so the radiation oncologist was stumped . He still wanted to do radiation but he admitted he couldn't say 100…
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Second opinion or not ?
So I just called my dad's new onc had some questions found out that his new onc and his old onc are both the cancer treatment centers of west michigan . We thought different hospitals meant completly different but they are the same place so my question is this a true second opinion ? My dad is really bothered by this cause…