-
Got my first dose!
I got my first does of vaccine for covid today! It feels so good that soon I only have to worry about cancer :)
-
Dr Burzynski
Treating patients with antineoplastons any truth to this I'm curious what those more educated then me think ?
-
PET/CT Scan vs Colonoscopy
I could sure use some input. Diagnosed Stage IIIc Colon Cancer 2007 surgery and chemo PET Scan 2 weeks ago showed "Findings are suspicious for 2 areas of active malignancy in the sigmoid colon. 1st focal uptake near anastomotic site measuring at least 2.1 cm max SUV of 9.1 There is another hypermetabolic focus superior to…
-
CT scan contrast does it really matter ?
Hello , So many years ago my dad had a severe reaction to MRI contrast and ever since has been unable to take it well now the hospital is adding CT scan contrast as a allergy . However my dad has had CT scan contrast several times where he was originally treated and everything was fine . But the hospital now won't listen…
-
Mikenh and Surgery
Just wanted to start a new post for you since you are out of surgery and have many people posting to you and you replying instead of a post on the "Manifest Call" post. You should have your own post. I'm glad you are in your room recovering from surgery and that all went well. It's hard to post when you are fresh out of…
-
For men only, the post-surgical issue
I had the problem where ejaculate didn't come out the usual way and I thought it was coming out of the rear end so I got up the courage to ask the surgeon today and she said that it was likely retrograde ejaculation where it goes into the bladder because of the trauma to the nerves or urethra. She said that if there was a…
-
I'm numb they actually said hospice
So everything just came crashing down after the radiation oncologist recommended chemo the oncologist just made my heart break . The oncologist told my dad sure he could do chemo but cause my dad is prone to infection's with his urostomy bag it wouldn't be much of a life . He told my dad he can't be on antibiotics and…
-
pet scan question
Hello So this week my dad see's a ENT cause his last pet scan showed thickness at the base of the tongue and FDG uptake there also and it also said it's of uncertain malignant potiental which I took as a good thing . However someone told me that there is actually tumors that have uncertain malignant potiental in there name…
-
11 years tomorrow
Since my husband had his first surgery. The one to remove the cancer from his Colon. Who knew that would be the easiest thing he did in all of this. I wish I had made him do the mop up chemo maybe things would be different right now. I feel like everyday he seems weaker to me. he has only managed to gain back 5lbs, a non…
-
" Once more unto the breach "
So my dad has to go back to chemo and the first time he didn't have much side effects faitgue and some chemo brain was it . Anyone know if that improves his chances of having limited side effects this time ? Or can someone do good on chemo one time then the next chemo drugs do not so good ?
-
Anyone using icing of hands and feet during FOLFOX chemo to prevent neuropathy?
My cousin was just diagnosed with stage IV rectal cancer (liver mets). Will be having oxaliplatin, 5-FU, and leucovorin (FOLFOX) regimen. I've read that peripheral neuropathy is likely afterwards. I had great success with icing my hands and feet during Taxol/carboplatin chemo for uterine cancer. She's been told that this…
-
Cancer Management App
Has anyone tried any of the symptom management apps? We checked out several and decided to go with ChemoWave. There were a few stories on YouTube about its developer, a cancer patient caretaker who created the app to manage his friends symptoms and care. We just set it up and are trying to figure out how to use it. Most of…
-
Here's an odd news story
Cancer patient saw disease all but vanish after catching Covid (yahoo.com)
-
New Diagnosis, Good Prognosis-Managing Fear
I am 53 years old, was tardy on the colonoscopy, and I was diagnosed with Malignant neoplasm of hepatic flexure. This is really just a scary way to name a big ole tumor in my colon that invaded the colon wall and 2 of 50 lymph nodes. Since my surgery, I feel fantastic (if a little sore from the incisions and the port…
-
Stage 4 Colon with Mets to liver—worse 50th bday gift ever!
Hey y'all. New here and truthfully, scared shitless (no pun intended lol). Went to the Kaiser Permanente Urgent Care a week after I turned 50 with constipation and bloating that just felt "different". Three hours and one CT scan later the poor ER doc came in and with no preamble says "they found a large mass in your colon…
-
Vague CT results
I have not been on the board much lately. I’ve been lurking, keeping up with everyone but not commenting. But now I need some help. So its been 5 years since my first diagnosis, stage 3 In 2016. Radiation, APR surgery, and chemo. Recurrence in left lung 2018. VATS to remove lower left lobe, chemo. Las t week I had my 9…
-
Colostomy and diet
Any suggestion? salads? The only fried food mom eats is fish
-
No "BINGO" called yet
Hey guys..I am still here. It has been over a month since I had have the stroke like symtoms and Hawaii came to a halt.From everthing I have read, two months is average to survived this without treatment. They started me on steriods which I'll call the drug from hell. I didn't even recognize my own face .I have stopped all…
-
Hair....
So, I'm looking for advice and/or opinions based on your experience. I had significant thinning of my hair throughout chemo and radiation. Finished that all up in mid-February and am now waiting for surgery to take place in mid-May. My question is --- how long until I can return to getting my hair colored? The gray is…
-
I have a puppy. Can I make this work?
Hi. we just got a new puppy back in June. She's 8 months old and a very good dog, but as you can imagine, at times she's super energetic. am I going to be able to take care of her when I start treatment? I'm ejgher Having surgery or more than likely starting chemo in January. we love her very much. being able to care for…
-
The great run has hit a road block
I can't believe I haven't been here in so long, well I have checking in....but just not posting. I found a great support group for caretakers and am very active there. It's been 37 months now...so hard to believe that he has been fighting like a trooper. As of my last update, his meds did not change he was doing very well…
-
Update
So I started the chemo for the lung cancer, and lucky me, I've experienced almost every side effect possible. The worst of which is that I am losing my hair. It's started to come out in clumps, so tomorrow is "Shave Anne's head day". I've been pretty upbeat through the whole rectal cancer treatments and surgery. I kept my…
-
Any more info out there ?
Last pet scan showed my dad's neurofibrama in his throat had increased FDG Uptake and thickening at the base of the tongue . He's had the neurofibrama for 20 years but now I saw something in a different section about weed causing HPV related throat cancer . My dad has also smoked weed for basically his whole life so this…
-
The port
I got the port out and it feels so good!
-
Has anyone had rigors?
I got rigors today, plus a few bad reactions. I was like, it is just cold in here. All the staff freaked out. They put 4 warm blankets, a blanket that has something in it to get ot hotter than blankets. And was still rigors. So they gave me a demerol. The blankets did not help. I am hoping it is from my cold. They took…
-
"I'm back"
Hello to all, I havn't been posting for years but so happy to have a place to come back to. It is so nice to see some of the "old timers" . I mostly lurked but will try to be more supportive this time. Diagosed with Stage IIIc in 2007 ,partial colectomy surgery, chemo etc. Rough ride but beat all the odds. 2021 March Pet…
-
March Madness
Hope everyone is doing well. If you know American sports and/or colleges and recognize my forum screen name might guess that I am fully invested in college basketball right now, which brings me to the first topic, drinking alcohol. The only time I drink is when there is some kind of big time sporting event in the evening…
-
Adhesions
Wondering if anyone has been treated for adhesions from surgery? My husband had about 1/3 of his colon removed 13 months ago. Did well after the successful resection, finished 12 rounds of chemo in July. In October started feeling lots of cramping and even shooting pains in his left lower and central abdomen. He had a ct…
-
CEA Increase worried
I posted last week about my husbands back pain. He has been seeing a dr for and is currently going to a chiripractor once so far and has some medical massages on the books. In the meantime his worry that the back pain could be cancer we communicated the concern with his oncologist. She reassuringly said it is hightly…
-
FDG Uptake
So after my dad's last pet scan he has been confidently telling people that he thinks his cancer is gone . Based of the fact that his last pet scan showed uptake going down . Yet his oncologist still insists he has cancer but since his oncologist has been wrong before we just don't know . So my question is has anyone had…