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2/25

Today is one year since my last Erbitux treatment. I went in for scans and CEA test on Thursday. CEA is less than 1.0 and scans are all clear. NED continues!
Techically I have been in remission for two years now, since 12/5/2014. That is the date of my last surgery. I received monthly Erbitux treatments from February 2015 through February 2016 in hopes of killing off any remaining rogue cancer cells.
I consider myself extremely blessed. Having gone through numerous recurrences and seven surgeries. Wow, yes seven surgeries. And now NED. Thank God.
Now if I can figure out what to do about the contrast they use for CT scans??? This scan was my second time getting sick from the contrast injection. Bad stuff. I even took anti nausea medication as a preventative measure. I wonder if I'm simply allergic to the chemical? I also wonder how I managed so many other scans without vomiting? I do remember feeling nautious in the past but not to the point of actually vomiting.
Anyway. The point is I am NED!
Happy Day.
Comments
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Congrats!
Happy to hear the great news!
I've never had issues with scans (and I've had many) - until the last one. When I went to sit up after the scan, I had horrible nausea. Tech said that happens often. I hope not. I'm due again in a few months.
Hope it was a one time thing - for both of us!
J
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Contrast dye
Hi Phil64 - I have a small intestinal stricture which causes partial bowel blockages - very painful spasms that last for hours If I get one. The milky contrast that I usually drank to highlight CT scan says right on it not to have if have bowel blockage - well I was told to drink anyway and it caused a blockage. Ever since this happened, I have been insistent that I not drink this prior. Once they gave me a really terrible solution prior to an upper x-ray. Was sick for a few days - awful stuff. But, this last scan, the hospital said they had a new contrast called Telebrix (I believe it is spelled this way) - very tolerable, big glass mixed with water, and really not much of a taste - not bad at all. Did not get sick or feel bad afterwards. I wrote it down because I wanted to remember it for future scans. -
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Thank you Sandy.Canadian Sandy said:Congratulations!
Congratulations!
Thank you Sandy.
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Thanks J.db8ne1 said:Congrats!
Happy to hear the great news!
I've never had issues with scans (and I've had many) - until the last one. When I went to sit up after the scan, I had horrible nausea. Tech said that happens often. I hope not. I'm due again in a few months.
Hope it was a one time thing - for both of us!
J
Thanks J.
I hope the scans will be fine for both of us going forward.
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Thanks Bellen. I will discussBellen said:Contrast dye
Hi Phil64 - I have a small intestinal stricture which causes partial bowel blockages - very painful spasms that last for hours If I get one. The milky contrast that I usually drank to highlight CT scan says right on it not to have if have bowel blockage - well I was told to drink anyway and it caused a blockage. Ever since this happened, I have been insistent that I not drink this prior. Once they gave me a really terrible solution prior to an upper x-ray. Was sick for a few days - awful stuff. But, this last scan, the hospital said they had a new contrast called Telebrix (I believe it is spelled this way) - very tolerable, big glass mixed with water, and really not much of a taste - not bad at all. Did not get sick or feel bad afterwards. I wrote it down because I wanted to remember it for future scans.Thanks Bellen. I will discuss these options with my doctor.
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Thanks Traci. Yes I dotraci43 said:Happy day indeed!
Congratulations, you've been through a lot and it's great to hear you're NED!!!!! Maybe you have become allergic to the contrast. Isn't it iodine-based? If so, that's not that uncommon. Hope they figure it out. Traci
Thanks Traci. Yes I do believe it's iodine based. I sure hope we can explore options. Maybe one might be to skip the injection.
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And a few tears, Some sad andnateswife said:Congrats on being NED for 2
Congrats on being NED for 2 years, Phil! That is an accomplishment to be proud of. I'm sure that it took courage, dogged determination and a lot of FIGHT to get there.
And a few tears, Some sad and some happy, and a lot of support and love.
Not unlike many of my fellow soldiers on this site.
one soldier influenced me a ton. That would be Craig for those that remember him. A few things he said stuck with me. That this is a marathon, so pace yourself. And he once said "we fight because that is what we do!"
So "just do it!"
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