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5FU oral vs intravenous?
Hello! I was diagnosed in October with Stage 3B colon cancer. My surgery and November and the ensuing recovery went very well. I'm now in my Folfox chemo treatment and have had two rounds so far. Third round is scheduled for next week. I've had a problem with terrible nauseau and reflux/heartburn (lasts 3 days with no…
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Cold all the time?
This has been an issue for me for quite some time. I'm cold almost all the time. But I can't take any real heat, either. I don't know if it started after my cancer treatments because I was still in the mop up chemo when winter came and then was in the hospital for the blood clot the rest of the winter. While on the mop up…
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My new sticker!
I posted previously about putting a sticker in the back window of my car that says 'f**k cancer'. My daughter has a friend that makes stickers and he made it the other night and gave it to her when she went to the truck club meeting she goes to every week. The other members loved it and a bunch of people want one, too. So…
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Iriinocetan
Hey everyone. About to start iriinocetan treatments in two weeks. Just wondering what everyone experienced with the side effects. Do the anti nausea and diarrhea meds help and can I drive my self from the treatments.
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CEA up after liver resection
I had a liver resection 10/27/16. My CEA was 12 right before surgery and a month after it was 6.4. In December it went up to 69. I had not started chemo yet because we were giving me enough time to heal. I just has a pet scan a week ago and i get the results on Monday. I'm going absolutely crazy. Has anyone had a similar…
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He's moved on...
I hate to come here with bad news, so it's taken me three weeks to do it... Did scans the week before Thanksgiving, things were growing, but not like fire so it was chemo time again. He asked how long the doc thought he had left and the answer he got was 1-3 years, it was hard to tell... I wish he wouldn't have asked but…
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Signet Ring Cell colon cancer survivors?
Hi, I was diagnosed with SRC colon cancer last Wednesday (3/29). T3N1M0 Stage 3. I am scheduled for surgery on Friday. I was wondering if there are any long term survivors out there. Five years or more. thanks, Paul
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Xeloda and Campostar
I am about to start chemo again. This time after having liver mets totally removed.I'm going to do Xeloda and Campostar. Anyone have any experience with these?
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Just needed to touch Base, all happening so fast
I dont know if anyone can relate to this but I started have epigastric pain, across my upper abd below the rib cage, and then came the thin yellowish discharge that burned from my rectum. UGH! So I went to see my Doctor about 6 months ago stating my symptoms and concerns. he kept thinking that it was GERD. Prescribed some…
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Stage Four Colon Cancer Survivor
Hi everybody. I just recently joined CSN and still learning to use the site. I joined because my daughter's suggestion. I wrote my story about a year ago. It's entitled "How I Beat Stage Four Colon Cancer." I posted it about four days ago and have gotten seventy reads so far. I'm totally blown away by this. I had no idea…
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Worried
Going in for annual colonoscopy this morning....Does the worrying ever subside?
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How to bring up members' blogs
Hello all - Would someone please explain how to access a specific member's blog. Not sure what site to go into. Thank you.
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CEA BLOOD TEST
Hi Everyone, I would really appreciate if ANYONE can answer this post. This is my first time posting. I am 59 and have lost 40 lobs in 10 months. I now weigh 95 lbs. My thyroid, kidney, bladder, liver, (cant remember them all) blood tests within normal range with the exception of the CEA which is 14. My neighbor had a CEA…
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A rememberance of our own members who passed in 2016
I must admit that this is a shorter list than last year, and I am thankful for that. Of course, with the nature of our forum, there are sadly many members who post, and when they pass, we do not get notified. We will remember those as well. 2016 ReadyorNot2016’s Dad - March Lilacbrroller - Spring Jen2012’s husband - April…
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To those supplement experts...
Have any of you heard of or do you use... I've been told these are impressive, all-natural, products helping with cancer prevention. The following of which have shown to literally ‘choke’ the blood supply to solid tumors without damaging healthy cells. Ave'ULTRA (powder added to water; supposedly tastes like Tang with…
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Stage IV - 5 Years NED
I have not been active on the board for quite sometime, but return to offer hope to those individuals who are knee-deep in this battle. I am now 5-years out NED since the end of treatments. I was diagnosed December 2010 as Stage IV at 46 years old with rectal cancer, with metastases to my lungs (3 tiny spots less than I…
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hello everyone
i haven't been on in a while, just to let you know finally got my port taken out yesterday. i've had it since april 2014. it sure seems good. just wish my wife was around to help me celebrate she passed last dec 21st of cancer. everyone have a good xmas
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flat stoma question
I have a friend who is being treated for colorectal cancer & had a permanent colostomy in Sept. 2016. He's having trouble getting bags to fit his stoma correctly since the stoma is now flat. Any suggestions from people with experience? Thanks so much!
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Please help
Hello All, I'm here due to my 38 year old sister. She was diagnosed with stage III, a fistula, and a bowel obstruction in early September. Prior to diagnosis, she weighed 115...now she weighs 82. She lost the majority of her weight prior to her diagnosis; however, since she still has the partial obstruction, she is losing…
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Off to Sloan Kettering
I have an appt on Jan 24 at Sloan Kettering in NYC to get a second opinion on whether I can have surgery to remove the one inch tumor in my liver and to find out if I am able to get HAI pump treatment. From what I've read, the HAI pump treatment is most effective before you have received any chemo I have had more rounds of…
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living with a colostomy
I've had a sigmoid colostomy since my colorectal cancer surgery 5 years ago. I irrigate every day. Tried going to ostomy meetings but there is no one there my age. I was 46 when diagnosed. Anybody out there?
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Found Polyps
I found this site after my 38 year old sister was diagnosed with stage 3 Rectal Cancer. Out of concern, I had a colonoscopy. During the procedure, they removed 9 polyps. I am 35, to me that it a lot. According to my husband, since I was completely sedated during the convo, I asked the doctor if I had cancer. She said, "it…
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New here-Stage 3 one year post surgery and 5 months post chemo
Hello, I am very new to this type of outreach so please bare with me. I was diagnosed with stage 3 colon cancer in November 2015 after a routine colonoscopy at age 50. I had no known risk or symptoms. I walked out of my career not knowning if I would return and underwent a colectomy 3 weeks later which resulted in the…
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Surviving
Hi, my name is Dave and I've been battling stage 4 rectal cancer for about 11/2 now after diagnosis in May 2015. Chemo is all I've been given so far. Started out with the Cisplatin regiment with an antibody agent for about 6 or so months. Things went as well as they could I suppose but the regiment stopped working and I…
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Metastatic, Terminal colon cancer with liver metastasis and bowel perforation
Has anyone ever had Metastatic, Terminal colon cancer with liver metastasis and bowel perforation? Starting chemo this week Fluorouracil (5-FU) OX – Oxaliplatin with no antibodies because of the perforated colon. Doctors in my hometown wanted to do immediate surgery and give me a colostomy bag and go to another hospital…
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New here- dad has stage 4 colon cancer and i'm away in grad school
Hi there, I'm new to this and wanted to find some people to talk to about this. I'm 24 years old, and live in Indiana. I'll get my Masters in May. My parents live in Pennsylvania. My mom was diagnosed with leukemia last year, then my sister with thyroid cancer (they're both doing well), then most recently my dad. They…
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Thanks to everyone for helping me.
I have been browsing this site since April of this year. I'd like to say a big thank you for keeping me so informed as I knew little about cancer when I came here. I was staged at 11b but have ended up at stage 1V. everything happened so fast not really sure what is going on. I'm not convinced that they know either. So…
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Newbie- Husband Stage 4 at age 35
Hey Everyone! I just wanted to introduce myself and hopefully get some support here. We got back from the hospital on Tuesday, Nov. 29th. Its almost been three weeks since we found out about the cancer. My husband is a 35 year old professional musician who is one of those "never been sick a day in his life" kinda guys. He…
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Oncologists
I'm no longer seeing the oncologist who I was seeing at the time of my blood clot, the pulmonary embolism- that almost killed me. I'm sure most of you know the story. The one who dismissed it and told me to take aspirins for the blood clots I'd been having. I didn't want to see her anymore because of her not taking that…
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So...
I attended my wife's six month routine check up. We were assigned a new oncologist due to our previous one moving on. Anyways, blood work looked good. WE got to talking to him and he indicated that NCCN guidelines have changed. In regards to being a cancer survivor... People are considered a survivor at the time of…