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19/F I have Bone Cancer,
Hi everyone, My name is Shelly. I was diagnosed with bone cancer. I am half way through my chemo treatments, and just finished my radiation treatments. I would love to speak to any and all cancer patients and survivors! So write to me and we can share our stories! Shelly:o) Skippy6270@aol.com
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new forums
Hi all I am Tom a lung cancer surviver and I just started a very good forum for myself and others.It is a survivor forum I call csf so feel free to drop in and tell us your stories about your cancer so that others may learn.go to www.chatarea.com/csf to sign in and post.I will be adding a chat room later.CSF = Cancer…
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Survivors conference
The NCI (national institute of cancer) is sponsoring a conference that will focus on cancer survivors. The conference will be June 16th-18th and will include patient advocates as well as medical professionals. For more information you can visit the web site for the conference. http://www.blsmeetings.net/2010/index2.cfm I…
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Intro
Hi! My name is Leslie, I am 20 years old and a seven year survivor of Hodgkin's Disease stage 4. Although I am cancer-free, I still have some lasting effects from chemo. 4 years ago I was diagnosed with tachycardiya in my heart. My doctors swear this is genetic, but I have read up on it and I think it's from adriamyacin. I…
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follow-up guidlines
For those of you concerned about late effects the Children's Oncology Group has just published very extensive guidelines for follow-up care for survivors of childhood/adolescent cancers. They are fairly easy to use and a very good resource to share with primary care physicians when in doubt about current health issues and…
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Our Lil Maddy IS 1 Year Cancer FREE!!!
Hello there, My name is Julie, At 13 months my daughter was dx with wilms tumor, they removed her rt kidney and she went through chemotherapy also. It was a horrible nightmare, but I can say we had her 1 YEAR CANCER FREE CELEBRATION last saturday!!! Any questions, concerns or if you need a shoulder to lean on, email me.…
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Vincristine side effects
My 22 month old just started vincristine treatments several very large tumors that are on her face and neck connected to the skin. She has already developed what looks like mouth sores (tumor in mouth hard to see) she also doesn't want to eat much. Any tips from anyone going through this? Thanks
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neuroblastoma
Hi everyone I am new here. I am 23 years old and I am a survivor of neuroblastoma. I was wondering if anyone here is also a survior? For those who know of children that have it I wish them any and all support I can give to you right now. Feel free to send me a message at the site if you have any information on…
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Wanna chat?
Hello,I was wondering if anyone out there would like to exchange details/stories/fears/success stories/make friends/ANYTHING! I was diagnosed 6 months ago with a rare childhhod tumour at 21. Pretty strange huh! The way things have worked out, I have been unable to chat with anyone in a similar situation and feel kinda…
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20/F bone cancer survivor
Hi, I'm new to this. I've never actually discussed my illness before. But I do think that I would benefit in learning about others stories, in comparison to mine. i'm just interested in how others feel about their experiences. Well if you need to talk i'm here. e-mail me @ TheMetalGirl@hotmail.com thanx Leslie
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Will I ever feel normal after surviving Childhood Cancer
I was dx with ALL when I was 8. I'm now 16. I feel like I don't belong in any group at school and like no one will ever understand or even except me. I feel like I'll never be the same person I was when I was 8. I feel like I've missed out of a lot of life and I can't go back but its holding me back from being a normal…
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16/m ALL leukemia
Hi my name is Tyler, im 16 and i was diagnosed with leukemia when i was 13. i would like to talk to anyone who has gone through something similar and tell me if life can become normal afterwards or anyone who would just like to talk.
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JAMA article
Hi all, Here is a link to a new article in JAMA intended for survivors of childhood/adolescent cancers. http://jama.ama-assn.org/cgi/content/full/290/12/1583 The entire article is available on-line and provides a good deal of helpful information. It is also the kind of article you can share with a primary care physician…
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IOM Report
Hi all, The Institute of Medicine has just released a very long report on childhood/adolescent cancer survivors. The report has a good deal of information that will be helpful to long term survivors. You can read the report on-line in a PDF file or order your own copy at the URL below.…
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Patients of LIJ
I am looking for any survivors that were a patient at LIJ during the early 70's.
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Adult Survivor of Childhood Cancer sound off. Just think!!!
Don't you wonder why know one help long term survivor. Why the medical community will not help. O' Let me guess they don't read The Cancer Survivor Network Message Broad. I know big talk if you are a survivor well I not, I have a deep believe in God and I'm a guinea pig, no longer a human and I have try to start a…
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Wilm's Tumor-Chemotherapy
Hi. I am new to this website. I am now 24 years old and was diagnosed when I was 3. I have never had a relapse, but there is a big mystery I can't solve. In the past 2 years, I have been dealing with strange illnesses that don't go away. My family doctor is confused because every test comes back negative, but luckily some…
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Question about long term effects
Hi, my name is Cheryl. My son nicholas was diagnosed with T-cell NHL stage 4 when he was 4 yrs old. He is fixng to be 8 next month and is in remission. Nicholas under went chemo and cranial radiation. They had dicussed with me that there might be some problems with learning and attention span as a long term effect of the…
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Message for Frantik
Hi Thanks for your post. I didn't receive your email. Want to send it again? cpetersen_wells@yahoo.com thanks!
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Hodgkin's Disease
I am a childhood survivor of Hodgkin's Disease. I am willing to share any insight I may have to parents or diagnosed individuals of this cancer.
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Adult Survivors of childhood cancer needed
I am an adult survivor of childhood cancer (Acute Lymphocytic Leukemia diagnosed 1975) and am contucting my graduate research on adult survivors of chidhood cancer. Our research team has created a website, www.childrencancercoping.com , with our survey and flyer for those who are interested. We are grateful for those of…
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E-mail me
I am 18 yrs of age I am not a survivor nor do I have cancer that I am aware of, I was just writing to say that I pray for all you people who have cancer and for you to not get discouraged no matter what! If you need me to pray about anything or if you just want to chat then e-mail me at christy27288@hotmail.com I will be…
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newspaper article
Hi, I'm a writer for our school Newspaper in Holland, Michigan. I'm going to do an article around Relay for Life. I did relay last year, and I know it's a great activity. I really want to get more students involved in it. After talking to my teacher we found the best way to publicize it would be to get a personal story…
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13/f with AML
Hi my name is Amanda and in November of 2001 I was diagnosed with AML and I've been in the hospital ever since. I'm currently on chemo and looking forward to getting a bone marrow transplant soon. I'm just looking for someone to talk to that I can relate with. My e-mail address is Tw0cute4yew@aol.com
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight.
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight.
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NEW CANCER SURVIVOR'S NETWORK!
Hi everybody, my name is Connor. I am a cancer survivor of 5 years. Throughout these past 5 years I have been devoted to helping the cause for a cure. I have participated in the Penn State Dance Marathon, a year-long money raising event for kids with cancer, and other cancer related activities. Now, I am trying to start a…
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more active discussion group
Hi all, I noticed that some of you wish there was a more active discussion group. Well there is! It is part of the ACOR (association of cancer online resources) support groups. It is called the LTS discussion group for long term survivors. I started the group in 1998 with a handful of other survivors of Hodgkin's Disease.…
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survivor of bone cancer
Hey Everyone. My name is Melissa and i was dx w/ osteogenicsarcoma at the age of 12. Im 20 now and have been cancer free for 7yrs and 11months. Plz feel free to e-mail me @ dpinn98300@aol.com
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Great Website!
Hi Everyone- My name's Jen. I'm 19 and an 8 year survivor of osteosarcoma. I'm sure you all know how helpful it was to meet other people who were going through a similar experience, because I guess you really can't understand what it's like to go through it unless you've actually been there. With this in mind, 4 friends…