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Long-term effects of chemo

kanpat
kanpat CSN Member Posts: 4
edited March 2014 in Childhood Cancers #1
Can anyone tell me if they have had long-term side effects from their cancer treatments? I had a right nephrectomy followed by chemo and radiation for a Wilm's Tumor at the age of 18 months. Just wondering if there are long-term effects I should be thinking about.

Thank you.
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Comments

  • mariaru
    mariaru CSN Member Posts: 6
    #2
    A great book that can help you is "Childhood Cancer Survivors: a practical guide to your future" - by Nancy Keene, Kathy Ruccione and Wendy Hobbie. I found it through someone else on this site, it is an excellent resource regarding "late effects" of treatment.
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  • karen12
    karen12 CSN Member Posts: 2
    #3
    the book childhood cancer survivors a practical guide to your future is a great book
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  • frantik
    frantik CSN Member Posts: 20
    #4
    I'm not sure if you have had your questions answered, but I'd be happy to talk with you by e-mail. I also was also diagnosed with Wilms Tumor at 18 months and treated with surgery, chemo and radiation. A year later the cancer had spread to my lung and I had intensive chemotherapy and radiation.

    I am now 31 years old. I have had many late effects, but from what it sounds like, I had much more radiation and chemotherapy than you did.

    Let me know if you still are searching for information and I'd be happy to talk with you. The book that others have recommended (Childhood Cancer-A Practical Guide to your Future) is amazing. I just found it myself and have learned so, so much.
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  • kerrie
    kerrie CSN Member Posts: 12
    #5
    I had ALL when i was 3 years old. i had high amounts of chemo and radiation. I have a learning disability in math and a slight disability in spelling. I don't know what you had for treatment but I hope this helps. Kerrie.
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  • sorcharose
    sorcharose CSN Member Posts: 15
    #6
    kerrie said:

    I had ALL when i was 3 years old. i had high amounts of chemo and radiation. I have a learning disability in math and a slight disability in spelling. I don't know what you had for treatment but I hope this helps. Kerrie.

    Hi! I as well had ALL when I was three years-old. I had high amounts of chemo and radiation. Like yourself, I too have learning disabilities in math concepts, short term memorie ablities, and spelling. I am now 24 and have my A.S.S degree and working toward my B.A. degree. Our stories were just to similar for me to pass by without leaving you a message. Please feel free to drop me a line. sorcharose............. (It's nice to meet a fellow earlie childhood survivor :)
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  • auntb950
    auntb950 CSN Member Posts: 4
    #7
    Hi, I'm a 47 year survivor of Wilms having it in 1956 at the age of 11 months. There are a group of Wilms survivors having radiation and/or chemotherapy that could give you some information that you are looking for. If you'd like to join us in our online discussion group go to www.acor.org and click on mailing list, then scroll down to LT-Survivors group and join us. You can also read my story on my website at www.homestead.com/brenspages We hope to see you in our group. Bren H.
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