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Childhood Cancers

ex abusing 3 yr old who has brain cancer
I need your help. I have a three year old son with brain cancer and a family law judge that has given his abusive father unsupervised visitation with him in the hospital which resulted in the father emotionally the child during visits. The judge has confirmed that the father has engaged in domestic violence and has ordered…
pregnancy after cancer/ovarian failure
Hi. I had CML and a bone marrow transplant at age 12. The radiation I had put me in ovarian failure/menopause. I was told I could not have children. I was put on hormone replacement therapy. On June 3, 2000, i was married and on June 30, I found out that I was pregnant with our little miracle and honeymoon baby, Randy. I…
going back to college
I am a long term survivor, 37 years. I am seriously thinking of returning to college at some time in the future. Are there any other survivors out there that have also done this and what where your experiences. Was it harder or easier the second time around. Did you find the system to accomidate you regarding late effects?…
Dating; when/how do you tell?
Is there any easy way to tell someone that you have had cancer, or at least to bring it up? I feel that I am getting to the point where I should tell, but I am hesitant and nervous to do so. I was sick during my late teens "prime dating-age" and needless to say miss some of the knowledge you would ordinarily gain. I know…
Rhabdo Survivor
Hello, everyone. This is my first time chatting as a "cancer survivor", but I have found that the disfigurement caused by my treatment has left me with more scars than the cancer itself. Please contact me if you have had a similar experience.
21 year survivor
Hey, new to the room but by no means new to the wrath of cancer. Faced with the question; "Who would cancer hurt more? A child that hasn't lived life yet; or an adult who has experienced most of what it has to offer and will lose what he/she is accustomed to?" I'm one sided on the answer, diagnosed with cancer at 12 months…
stressing that i can't remember
hi everyone, this is my first post here and i'm so grateful to have found this site as i don't have anyone to talk to that could possibly understand. i hope someone here might be able to help. I had a stage four Wilm's tumour when i was three, and have now been clear for nearly eighteen years. i've never really given being…
Adult Survivors Of Childhood Cancers Group in Houston
It well be survivor help survivor. People who understand what it like ti be a survivor. Please no Doctor or medical person or parent. You input please. Your long term survivor 38yr.
Childhood Cancer Survivors Study-Volunteers Needed!!
Hello. My name is Lauren. I am a survivor of childhood leukemia. Currently I am working on a research grant at the University of Southern California (USC)that is studying childhood cancer survivorship. If you are between the ages of 18-39 now and were diagnosed before the age of 21 and would like more information about the…
PTSD???
After I Got Out Of treatment I started suffering from Post tramatic stress disorder. It has been almost 5 years but I Still have it. I ahve been to Therapy and things like that but it doesnt seem to help. Has anyone esle who had PTSD been able to get over it? i would love to know if i will be able to overcome this.
Hospital records
Hi Phil, and others, decided to start a new thread, easier to get to and the topic had changed: I suppose even though there are so many of us out there, the problem is that everyone is different and the advances in treatment don't make things easier. But as you say, if we stick together then the chances of get decent…
Anyone with heart problems?
I am a 30 year old survivor of Ewings Sarcoma. Have been in remission for 18 years. Shortly after I was diagnosed with a tumor in my left arm at age 9, we found that it had spread to my lungs - and the doctors told us I had 6 months to live. Since normal treatment wasn't working, we signed on for experimental treatments…
Wilm's Tumor - (really) late term effects in lungs??
Hello I am new to this website but I think it's great! By introduction, I am a 34 year survivor of Wilm's Tumor. I had it at 3 and it recurred at 5. I have been disease free since. I am in the process of getting a new kidney (I only had a small piece of one kidney left after going through all that and it is pooping out). I…
CALL FOR INTERVIEWEES
February 13, 2002 My name is jen krawitz and I am currently an undergraduate student at Smith College in Northampton, MA. I am in the process of compiling research for my senior Honors Thesis project. I am a survivor of Hodgkin's disease and have chosen to focus my thesis on how the experience of surviving childhood cancer…
young adult survivors of childhood leukemia
I am 22 yers old and had all when i was 3 and a half. I was womdering if there was anyone out there who had the same thing i did and would like to talk.does anyone know of any support groups for young adult survivors? please write.
Rhabdomyosarcoma-my 23 month old diagnosed with it
Hi, looking for parents, survivors, etc of this cancer. my whole family was crushed when my baby was diagnosed with embryonal rhabdomyosarcoma of orbit, cranial extension. the doctors said surgery was "impractical" because of the location, it was like behind the bone that hold the eye, also some extension into the brain…
anyone who has had or knows someone with osteosarcoma...
looking for anyone who has delt with osteosarcoma....my 11yr old son was diagnosed Jan 2009, he had his surgery in May, is having a hard time with the chemo...would be great for him to know someone who went through or is going through the same thing that he is now...
Anaplastic Astrocytoma
A little girl two and a half years old has Anaplastic Astrocytoma WHO Grade 3. She underwent radiation treatment together with chemotherepy. Upon conclusion of treatment the tumor has shrunken 75% The proposed plan for now is 10 cycles of chemotherepy (Tamador) 5 days per month. Please, can anyone share with us their…
Siblings effects on children with cancer
I am looking for answers from anyone willing to give them. An infant was just diagnosed with Cancer. He has had surgery to remove the tumor and other infected areas and is currently undergoing a low regimine of chemo for 4 months. He has been allowed to return home. However the situation is that he is from a split home…
15 Year Old Survivor of a Ganglioglyoma
Hey everyone. I am a 15 year old girl. I had a ganglioglyoma when I was a week old. It started by my carotid artery in my throat, hit the 7th nerve in my mouth, behind my nasal cavity, and went left behind my left eye. I am blind in my left eye and I can't breathe through my nose, so when I talk, it always sounds like I…
6 year old Diagnosis with Acute Myeloid Leukemia
Our 6 year old son was diagnosis with AML on July 17th. Last week we found out that his cytogenetics came back showing FLT3-ITD. Which means that he will need to have a bone marrow transplant in order not to relapse when he is in remission. We are at a hospital that is 90 miles from our home town, and our younger son is a…
All of the needle pokes
Hello, My name is Susan, and I am visiting from the Ovarian Cancer section (I am just finishing up 3rd set of chemo). I just wanted to share a little advice for the precious children & others who are suffering through so much; including repeated, uncomfortable needle-sticks. I have a Porta-cathe, and my Dr. gave me numbing…
Relationships & Ferility
Hi everyone, I had ALL when was a little girl; I was five. I am now 23 and hardest things I am dealing with is relationships and ferility. I have zero experience when it comes to dating. No guy has ever asked me on a date and I've never had a boyfriend and its so hard to deal with the fact that you are 23 years old and…
I'm just a Mom
Good Afternoon All, I'm just a Mom named Joey, I have 4 Children. My oldest son is almost 11, I have an angel that passed at birth, he would have been 9 in November, I have a Daughter that is 7, and a son who is 2. My 2 year old has Neuroblastoma. He was diagnosed in December at 15.5 months old. He completed 5 rounds of…
late effects of radiation
My 31 yr. old daughter had a brain tumor, radiation and chemo when she was 16. Currently, she is suffering from "episodes" where her speech becomes slow, sounds "retarded" (forgive my use of that word)and frequently feels extremely tired. Are these symtoms that you recognize? These symptoms were diagnosed as "seizure"…
Juvenile granulosa sex cord stromal tumor of the ovary
My 12 year old daughter has just been diagnosed with this rare form of ovarian cancer in young girls. Anyone else out there have any experience with this? Diane
13inch wilms tumor at 23 years old
This past year, after misdiagnosis, I had a wilms tumor thirteen inches long and seven inches around. I had my kidney removed and subsuquently had to abort my four month pregnancy and go through chemo. I probably had it from a young age but was able to live with it for twenty three years and I am only 5'1 and weigh about…
Survivors of Knee Cancer
Hi I am currently 31 years old and I have been cancer free for over 15 years. I wanted to know are there any other people out there that are survivors of knee cancer and how they are doing emotionally, and physically. Just wanted to compare notes because some days (even after all this time) are harder then others. If you…
Childhood leukemia memories
Hello, I'm 28, I had ALL leukemia when I was 6. For a very long time, I didn't want to talk about it and didn't want anybody to mention it. But now, I love talking about it, but I often don't dare, because I think it's not something that people expect you to talk about. I think that one isn't really supposed to talk about…
16- Year Anniversary!!
So April 10, 2009 which is also Good Friday, marks my 16 year Cancer-Free Anniversary!!! What a day to shed some relief and show some pride!!! God bless all!!!

Childhood Cancers

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