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radiation in toddlers
Need advice from someone who's been there. My three year old son is about to start craniospinal radiation. dx: ALL, relapse in CNS after 1 year of chemotherapy
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Survivors in NW Alabama
Any NW Alabama interested in forming a physical support group in the area, email me if anyone is interested enova99@yahoo.com
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Need Help
I've hit rock bottom. I've spent my entire Sunday unable to sleep. I was diagnosed with prostate cancer at four, and I am now 27 years old. Despite how I deceive myself, I have not worked through all the mental scars that cancer gave me. I have problems with drugs and alcohol. I am extremely guarded, and I think that…
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secondary malignancy?
Hi, I am a 31-year old woman. I went to the doctor a few weeks ago because I was having pain near my tail-bone. I thought I had injured it while biking. Well, an MRI revealed a soft-tissue mass in that area. I had a cat scan yesterday, and the doctors told me that there is a soft-tissue lesion both in my gluteal muscle and…
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Any ALL survivors out there?
This is my 1st time writing, I was diagnosed will ALL when I was 4 years and am now 28. I do not remember a whole lot about being sick-except of course the most tramatic parts! I have recently become really interested in the disease and Cancer in general. My mother and grandmother both have passed away from cancer- so it…
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Whats the length of 5 Chemo rounds?
Hi. I have a loved one with synovial sarcoma and she has had her surgey and has done 2 weeks of radiation and still has 4 weeks left. Next she will be doing 5 rounds of chemo whats the length of this 5 months?? i dont know anybody please tell me. Thank-You.
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What to do from here??
My daughter who just turned 8, has an extremely swollen lymph node in her belly, doctors tried a few different things ( antiboiotics and acid reflux meds)nothing has helped, and now think she has leukemia, if she does, what are we to do, i'm confused, depressed and lost.... any help i would appreciate it
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Has anyone taken Xeloda for pancreatic cancer?
Around Christmastime of 2004 my father was diagnosed with pancreatic cancer. Needless to say, we were devastated. Luckily we caught it early enough when it was only 1.5cm. He had turned yellow with jaundice because the tumor had blocked his bile duct. He had Whipple surgery and came through with flying colors. He even left…
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Social effects during adult years
My name is Natalie and I had Chronic Myelogenous Leukemia at age 4 and now just minor problems, such as chronic breathing problems and seizures. I'm 18 now, and after and during all of these illnesses, I seemed to be very timid, paranoid, terrified of rejection, seem like an outcast, and I have minor depression which is a…
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no voice..
Hi all..I was 12 years old when I got cancer in my voice box. Im now 25. and still have alot of sadness. But do well most days. Anyone want to talk..Im here.
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Looking for new friends to share with
I am 22 and have been thankful to be cured of leukemia for the past 15 years now. Though 15 years seems like a lot i still remember everything as it was yesterday and i feel that it is an important part of my past that i need to revisit. I have tried to do so alone but it simply doesn't work, so i let my fingers do the…
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growing pains or something more?...
My son was diagnosed with Wilms when he was 16 months old. He went through chemo and is doing great now. It has been 2 years since his diagnosis. For the past month he has been complaining that his leg hurts. It wakes him up crying in the middle of the night, and sometimes during the day. It is primarily in just his right…
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3 year old daughter diagnosed with Rhabdomyosarcoma
Hi everyone! I am new to this group, but not the site. I am usually in the breast cancer group, as I am a survivor, but now my 3 year old daughter was diagnosed with Rhabdomyosarcoma. She just had surgery 2 weeks ago and is now having her lymph nodes biopsied tomorrow. She will soon be starting chemotherapy. I would love…
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How do you tell a child?
How do you tell a child about what they have been thru when they really know nothing about it? My son was only 4 1/2 mos. old when he was diagnosed and went thru almost 5 years of chemothearpy and he still does not know why he only knows he went to the hospital alot. How do I tell him without scaring him to death? He is…
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This is my first time.(please read and respond)
I am a 20 year old suvivor of cancer. I was diagnosed with it when I was only 17mo. old. I had no idea about tjis website. I was just browsing. I just want to share with others just like me.
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Montana?
Anyone here been to Camp M ake a Dream in Montana? There is a Young Adult Cancer Surivors Conference in May anyone here planning on attending or know someone who is??
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Relay for Life in Russellville, Alabama
Hey, if any survivers come to the relay in Russellville, Alabama on May 6th. I would love to meet you. My Name is Kevin Poston, There is two booths you can ask for me. One is Somer Hood, with Gorden, Vicki, and Abbi Hood. Or the booth for James, or Joeann Hallman. God Bless!!
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What's next?
These are some longtime feeligs of mine that I just need to get off my chest. Ignore them, read them, respond to them, It matters not. Here goes for the first time. I was diagnosed with ALL at the age of 2 then again at 8 I am now 22. Since my remission I have been trying to figure out whats next. how to put this, so hard.…
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Whats next
These are some longtime feeligs of mine that I just need to get off my chest. Ignore them, read them, respond to them, It matters not. Here goes for the first time. I was diagnosed with ALL at the age of 2 then again at 8 I am now 22. Since my remission I have been trying to figure out whats next. how to put this, so hard.…
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Psychosocial affects of teenage cancer
Hi all, I am a survivor of hodgkin's disease. I was diagnosed and treated when I was 19, I am now 32. My life since HD has been very difficult. I have never been happy with what I am doing - I've always disliked my jobs and I've often been very depressed. Currently, I am losing my marriage. Is there anyone else out there…
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Relay For Life
We are looking for survivors for our Relay For Life in Anaheim, CA. Please contact for info. Dates for the relay are July 16,17 2005
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OUR DAUGHTER AT 8 MONTHS OLD WITH A.M.L. LEUKEMIA
OUR DAUGHTER AT 8 MONTHS OLD WAS DIAGNOCED WITH AML LEUKEMIA WITH THE HELP OF GOD SHE IS STILL HERE AND SHE IS 3 NOW SHES BEEN IN REMISSION FOR 2 AND A HALF YEARS NOW SO WEVE BEEN DOWN THAT SCARY ROAD IF YOU NEED SUPPORT IM HERE ..
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insurance question
Hello Fellow Survivors, I am a 20-year-old college sophomore who was diagnosed w/ thyroid cancer when I was 14. I will be entering the work force shortly and was wondering about the whole insurance coverage thing. Have those of you who have jobs now run into any problems with insurance companies denying you coverage or…
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osteosarcoma in the humerous
My daughter, 11, was diag with osteosarcoma in her right humerous. We are still going over the options for surgery and was hoping to get input on which way to go. There are pros and cons to both the cadaver and metal rod, but personal experience would be very helpful. Also anyone out there have a hard time clearing the…
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Pediatric AML Just Diagnosed in 18 Year Old
A young friend of mine has just been diagnosed with AML. He and his family and friends are still in shock. Collectively our faith in God's plan (whatever that may be) is strong. Nick entered college this year as a freshman and his AML diagnosis is sure one big detour. Please send words of encouragement and your stories.…
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helpful website...
if you are feeling frustrated from a lack of response to this site, want more info or be connected with other survivors i have great news. there's is an online list just for you! http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=lt-survivors&A=1. or go to the main page www.acor.org and you can choose from many groups to…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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17 year old male- ALL leukemia
Hello, my name is Tyler and I was diagnosed with ALL leukemia at the age of 13. I am currently in good health and I would like to talk with some people who have, or are going through some similar events as I have. I would love to talk with anyone about their experiences, just email me at tylerklain@hotmail.com .
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Childhood Cancer Survivors Study-Volunteers Needed!!
Hello. My name is Lauren. I am a survivor of childhood leukemia. Currently I am working on a research grant at the University of Southern California (USC)that is studying childhood cancer survivorship. If you are between the ages of 18-39 now and were diagnosed before the age of 21 and would like more information about the…
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Project about ALL
Hi. We are 6 students from the Danish University of Pharmateutical science who are making a project about ALL and children. Normally courses are concerned about the chemistry and biology in medicin but in this project we concentrate on human aspects. If you would like to help us with our project we would be very thankfull.…