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Project about ALL
Hi. We are 6 students from the Danish University of Pharmateutical science who are making a project about ALL and children. Normally courses are concerned about the chemistry and biology in medicin but in this project we concentrate on human aspects. If you would like to help us with our project we would be very thankfull.…
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AfterCare
What have you found are your needs for after treatment? How would you like these needs addressed?
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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survivor of Wilm's Tumor
Hi. My name is Leslie and i am a survior of Wilm's Tumor. I was diagnosed at when I was 10 months old and given only a few months to live. Eventhough the tumor was the size of a grapefruit, my parents never gave up on me and went through every possible resource to save my life. I had two major surgeries which removed all…
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Hello! I really want to talk to you!
I'm cancer survivor, and I'm from Japan. when I was 13 years old, I got cancer, now I am 24 years old.I was hurt by cancer.Now I'm fine but I cannot make up my mind to understand my situation yet.It's so heavy for me to take it.If I had conversation partner who is people with cancer or cancer survivor, I would want to talk…
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Alabama Cancer Survivers
I have started a Yahoo group for cancer survivers in Alabama and surrounding areas. I will put the link below. All survivers, all ages are welcome to join. http://health.groups.yahoo.com/group/Alabamacancersurvivers
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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ex abusing 3 yr old who has brain cancer
I need your help. I have a three year old son with brain cancer and a family law judge that has given his abusive father unsupervised visitation with him in the hospital which resulted in the father emotionally the child during visits. The judge has confirmed that the father has engaged in domestic violence and has ordered…
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Ostiosarcoma
I was diagnosed in october of last year and i would really like to talk to some one who knows what i am going through. please email me if you want to talk. all i want is a friend right now, someone who knows that contrary to popular belief kids do get cancer. PheonixTears_655@hotmail.com
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hair for turbans
Does anyone have a hair liner or hair for turbans or hair secret they dont need anymmore?
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Endodermal Sinus Tumor
My daughter was diagnosed at 12 mos. old (stage 4), was treated for one year and is now 10 years old and healthy! Contact me if your child has the same or similar diagnosis
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New website for long-term survivors
A group of long-term survivors (and their friends) have gotten together and launched a new website, specifically for long-term cancer survivors. It includes information on getting appropriate health care after cancer treatments, a reading list, a Q&A, a list of providers specializing in cancer survivors, etc. I hope you…
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Life Planning
I'm a 24 year old survivor of stage 4 rhabdomyosarcoma (diagnosed aged 11). I have a degree and good job prospects and sometimes just want to be "normal" and have a life, career etc like my peers. However I find it difficult to plan ahead for the future. This is because I don't imagine myself growing old and have an…
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Making my new family understand
I am a 22 woman that has been in remission for about 18 years. Recently I got married to a wondereful man that has always been very supportive. My husband had told his parents of my childhood ordeal when we first started dating and that was that. But 4 months ago I gave birth to my first child, a healthy and beautiful son.…
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Relay For Life - Massapequa, New York
My name is Chris and I am a 15 year childhood cancer survivor. I was diagnosed with a brain tumor when I was 12. I learned about the Relay For Life last year and am now volunteering on the Survivorship Committee for the Massapequa, New York, Relay For Life. The event takes place on June 12-13, 2004 from 7:00 p.m. to 7:00…
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Young Cancer Survivor Board
Hi there is a new board for cancer survivors, check it out.
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Support Group please help
Hi all I was wondering if someone can help me find a support group in Missouri where I'm from for those who are younger (in their 20's and 30's) a years of age that are survivors of childhood cancers. If anyone can help please respond. I would really appriciate it. Caty
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chronic pain
Hi all, I am looking for other survivors who might suffer from chronic pain. I have chronic pain in my neck and shoulders which I think was caused by rads but it is hard to find doctors to confirm this. Any others out there. Please write to me at zame@earthlink.net Thanks, Linda
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Cardio Myopathy from Adriamyocin
Hi, i'm new at this, am a 24 year survivor of Ewings Sarcoma. I just had a baby and during pregnancy found out about Cardiomyopathy induced by Adriamyocin..want to talk to others w/cardiomyopathy from adriamyocin.
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Gilda's Club
Hi all - I am aa volunteer at Gilda's Club (named for Gilda Radner) where anyone touched by cancer can go for social and emotional support. They are involved in the Revlon Run/Walk for Women taking place on Saturday, May 1 in NYC- raising money to help fight women's cancers. They need 40 more people to volunteer to help…
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osteosarcoma
Two months ago my son was diagnosed with osteosarcoma on the lower end of the fibula bone just above the right ankle. He is undergoing chemotherapy now. It seems that this disease mostly occurs either on the tibia below the knee or on the bone above the knee but not near the ankle. He will have surgery to remove the tumour…
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Limb Salvage/ Total Knee Replacement Complications
Hello Everyone! I just stumbled upon this page through a tv commercial, it's a good thing I was paying attention. Well let me quickly introduce myself. My name is Leeann, I'm 20 years old, and I'm also a survivor of osteosarcoma. I was diagnosed when I was 11 and recieved chemo and underwent a limb salvage surgery. I feel…
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ever wondered what its like for him/her?
I am a 19 year old leukemia survivor and I am very interested in getting as many stories, experiences, and perspectives as I can, so please visit my site and well talk www.topica.com/ subject-cancerkids
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Physical effects from radiation
I had a Wilms tumor in 1960 when I was six years old. I'm almost 50 and doing very well. I was treated at the Boston Children's Hospital where my left kidney and spleen were removed. I also had chemotherapy and radiation. Issues have been infertility, osteoperosis, kidney stones, a non-malignant lump in my breast and…
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Survivor's spouse
Greetings everyone, I am the spouse of a long term ALL survivor and I am hoping to get some info and feedback from the spouses of other long term ALL survivors. My wife has some specific complaints and I need some direction so I can help her cope with these problems. Thanks!!!
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My 5 year old daughter was diagnosed with stage IV Neuroblastoma
Getting ready for stem cell transplant, just 1 week of radiation and 1 round of chemo...then we go to City of Hope for transplant. I am starting to get 'burnt out' ... Crying jags etc... we are approaching the six month mark... Other parents tell me it's a stage everyone goes thru, but how do I get out of it??? Denise
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Support Group
My name is Kevin Poston and I am trying to get a support group started for Teen, and young adult cancer survivers in the North West part of Alabama, if you live in that area and know someone who may be interested please email me at krp@hiwaay.net
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bone marrow transplant for ALL
Our 11 year old with ALL is in need of a bone marrow transplant. What is the best facility...who have done the most procedures with the most success??? HELP!!!!!!!!!!!!!!!!! NEEDED QUICKLY. THANKS
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Long-term effects of chemo
Can anyone tell me if they have had long-term side effects from their cancer treatments? I had a right nephrectomy followed by chemo and radiation for a Wilm's Tumor at the age of 18 months. Just wondering if there are long-term effects I should be thinking about. Thank you.
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LOOKING for Survivors Facing the SAME effects
My domestic partner (Michael) is a 45 year old man whom suffered from Hodgkin's Decease when he was 17 years old. He underwent removal of his spleen and received radiation treatments and lived a cancer free life and was very active even managed to complete 21 marathons, and was a coach/trainer with The Leukemia & Lymphoma…