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Childhood Cancers

Eye problems in survivors? Muscle twitching? Other neurologic issues?
Hello everyone-- I am a 27 year old survivor of Hodgkins Disease. I was diagnosed when I was 12 and have been relatively healthy ever since. However, over the past few years I have developed some undiagnosed neurological problems, and a few people have suggested that they are long term effects of chemo/radiation. So I…
Ganglioneuroblastoma
Hi, I'm new here. My daughter, age 3, was just diagnosed with Ganglioneuroblastoma. Last week they removed a large tumor the the posterior side of her chest. The finding was complete luck, I have a very through ped doc who was ruling out pnemonia because she had been vomiting. (Oncologists do not believe that the vomiting…
I have A blood disorder do you?
Why in a life time do I have to get sick I cant shower or swim i cant go to school or the mall was it like that for any of you?
grief in child cancer survivors
I am the mother of a four-and-a-half year old with neurofibromatosis type 1. She has survived an aneurysm, a stroke, brain surgery, an optic nerve glioma and 15 months of chemotherapy, from age 18mths to almost three. Her tumor was considered to be benign, but was inside the skull and growing and threatening her eyesight.…
Childhood Cancers and ADD/ADHD
I am a former childhood cancer survivor whom has also been diagnosed with ADHD. Because of a recent bout of Bells Palsy, and the MRI to make sure it was viral, Residual scarring was present. Though the doctors cannot make a "definitive" claim, they believe this could be the reason for my ADHD. I was just wondering if…
nasal pharanasal
my nephew whow is 13 was diagnosed with this cancer is there any one elses child with this form of cancer. there is not much information on this love to hear from anyone i am a stressed auntie wanting to help her nephew
Neuroblastoma kid finishing his protocol
My Niece Olivia was diagnosed with a Neuroblastoma Stage 3 at the when she was two years old. After her third chemotherapy session she had a surgery. The surgeon resected the tumor and her left adrenal gland. She finish her chemotherapy sessions and has been treated with accutane for the last 5 months. Now she is near to…
Support St. Jude's Hospital
FYI ~ I don't mean to advertise or endorse anything, but I am willing to pass along ways to support great cancer groups. On this-coming Monday, Sept 29th, Chili's Restaurants will be donating ALL PROFITS to ST. JUDE'S HOSPITAL! I think it's a worthwhile cause and a good excuse to go out to eat! Take care everyone, ~Susan…
Melanoma at 6 years old
Anyone out there have a teenage daughter who had melanoma at 6 years old, surgery removed it all, so she is 8 years without a relapse, but we have a difficult time convincing her to wear sunscreen. She says we are driving her crazy about the sunscreen. We live in south florida, so as you know, it is critical. Any…
looking ahead, after childhood
I am celebrating 50 cancer free years since my bout in 1959. I developed cancer of the larynx at six years old. I have been blessed with a long and good life. I have been treated with respect always, at school, work family and friends, inspite of my tracheotomy. I appreciate being able to live a normal life and to just fit…
Bilateral Wilms
Hello, I am looking to start a dialog with anyone who has survived and/or is currently going through the challenges associated with Bilateral Wilms. My daughter was 13 months when diagnosed and we have had 4, 3 week rounds of chemo since january 07 (week 1: V,A,D, week 2: V, week 3: V). We will be going in soon to meet…
Can't stop thinking about it!
I have had a couple of friends diagnosed with cancer and it scares me that i will get it too. i think about all the time and can't seem to get it out of my head. I wondered if anyone had any tips on how to become more comfortable with cancer and not think about it 24/7. I am only a teenager and i shouldn't be worrying…
What now?
I'm a 19 year -old cancer surivor. I was first diagnosed during my freshmen year in high school and have since then relapsed twice. Now, a junior in college, I've survived seven years of cancer experiences and am lost. My cancer has made me much more mature, as well as compassionate. But now, I'm constantly feeling lost…
when survivors leave home
i am new to this list, but not new to childhood cancers. My daughter was diagnosed in 1992 with ALL when she was 21 months old. What a struggle is was, suffereing from a near deadly fungal infection for a very long time. There are some lasting effects, but hey she is here!! Well she is getting ready to graduate from high…
Hodgkins disease survivor
I was diagnosed with hodgkins in 1991 and received radiation in my neck and chest. Six months ago I lost my hearing in one of my ears. My oncologist believes it is a result from the treatment. Has anyone else lost hearing from radiation treatment? Thanks.
Osteosarcoma
Our son was diagnosed with Osteosarcoma in September 2003. He was 14 years old at the time and is now 15 after spending his birthday in the hospital. He is receiving intensive chemotherapy and has just been through limb salvage a month ago. I would love to talk with other people with this same cancer since we have not yet…
Pediatric Synovial Cell Sarcoma
My son was diagnosed with Synovial Cell Sarcoma at 9, and after a very rough year of surgery, chemo, and radiation, he is now done with treatment and his last scans were clean. (Yay!) However, I've read so much about this particular cancer coming back, or leading to other types of cancer, so I'm not at all feeling like…
LTS infertility due to past surgeries
I was diagnosed with Rhabdo in my bladder when I was 18 months old(I am 25 now) and I've had to catheterize myself to urinate my whole life since then. About a month ago, after many tests, I learned that the only way I would be able to have children was with IVF (which is SO expensive) due to scarring in my tubes from the…
Brain tumors
Any other Ca brain tumor survivors out there? I'd really like to talk to someone else who's been thru what i have.
18/F needing some encouragment... :O)
Hello, My name is Stephanie and I'm 18. I have been recently diagnosed with having ALL leukemia...and I know I'll beat this thing till the end...with no relapses...(knock on wood). That is one of my biggest fears though I'd have to admit. I'm worried that one day when I have a family all this will come back and I'll have…
Medical Bills Assistance
Hi, I'm 25 yrs old and when I was 14 I was diagnosed w Non-Hodgkin's Lymphoma. I've been in remission for 11 yrs but unfortunately I have a lot of chronic health and dental problems which have resulted in a lot of medical bills that I cannot afford even with insurance. Does anyone know of any medical bill assistance for…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging the "Adult Survivors of Childhood" discussion board into this…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Adult Survivors of Childhood Cancers" discussion board with…
Wilms' Tumor
My 6-year-old son was diagnosed with a Wilms' Tumor in 2/01 and had the affected kidney removed on 2/19. He is in the 18-week chemo treatment plan now and is doing fine, but it has been like a rollercoaster ride for us. He was mis-diagnosed in 12/00 as having a hematoma that would heal on its own. I am interested in…
Grants or Financial Assistance for Survivors?
Hello to All! I am celebrating 20 yrs cancer free this year from a stage 3 Ovarian Germ Cell Tumor diagnosed and treated with Surgery (incl. hysterectomy) and Chemo at 12 years old. Now married for 7 years and on the "I need to be a Mom" band wagon, has anyone heard of any grants or funding that will assist with adoption…
Stress in child
Hello, My best friend's son (4 years old) was diagnosed with cancer near his large intestine and liver. After surgery, he now has his large intestine attached to right side of his rib and a pouch receiving his bodily waste. Other than loosing his hair from chemo, this has caused the boy a lot of stress as he feels…
Self-Introduction
In December 2006 I will celebrate the 35th anniversary of my first surgery. I was diagnosed with primary chondrosarcoma of the upper femur when I was 17 and was treated with cryosurgery at Memorial Sloan-Kettering. Neither chemo nor radiation would have helped in my case - and I say that now thankfully - as the long-term…
I NEED TO KNOW PLEASE
I have a daughter who will be 3 the day after christmas. on december 3rd. we noticed like a swelling behind her knee. that monday we took her to doctor he said not to worry about it. now it has gotten bigger and is from the back of her knee to the front little smaller than a baseball. there is no discoloration, and no…
hair loss as an adult-late cancer effect?
Hi there I am in my 20's and a cancer survivor for many years and just last year (2005) my hair has been thining and falling out. Strands of it fall out everytime when I shower and no one I have talked to knows why not even my doctors. Has anyone else been experiencing this? Please help.
Any adults with Wilms' Tumor?
I am a 25yr old who had Wilms' tumor 3 years ago. Had a really hard time with the treatment and have a 80% chance of it comming back. Is there anybody out there with anything to say about having Wilms' tumor, a childhood disease, as an adult?

Childhood Cancers

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