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Caregivers

I think that Jack will be going home soon
Well I see the signs of the last stage he sleeps all the time and does not want to eat, he is so onfused at times, I did go to the bookstore and bought 2 books about heaven, I need to know Jack will be at peace where he goes, He woke up last night so worry that I had no money or food and would not be taken care of, I had…
Peaceful Passing
My husband passed very peacefully in his sleep this morning.
transition phase
I THOUGHT I HAD POSTED SOME OF THIS YESTERDAY, BUT CAN'T FIND IT. SORRY IF IT'S A REPEAT. I AM TYPING THIS WITH ONE HAND BECAUSE I'M HOLDING MY HUSBAND'S HAND WITH THE OTHER. MY HUSBAND ENTERED WHAT THE ON-CALL HOSPICE NURSE CALLED THE TRANSITION PHASE. HE SLEEPS MOST OF THE TIME, CAN NO LONGER GET OUT OF BED, AND CAN ONLY…
The first stage of hospice
The final word from the onoclogist today, They told us there is nothing they can do for Jack , all now is to keep him comforable and give him the best quality of what is left of his wonderful live They told us it could be months at the most, It was a very quiet ride home, So we in the first stage of hospice, We have to go…
Caring for a parent with PC
Hi. I'm new to this site but have been reading through many entries. I'm writing because I have been caring for my mother who has stage iv pancreatic cancer. She was diagnosed in August after a summer of ER visits to find out the source of the pain and nausea that seemed to come on suddenly. Once we found out the…
Decadron
Hello, I have been searching for months for a discussion board like this! My husband was diagnosed December 19, 2008 with Stage IV Adenocarcinoma of Unknown Primary with Metastis to his bones and liver. At that time he was given 3 to 6 months...well he fooled them! His cancer was first detected in his left hip and the…
Here but not quite
I know I should be thankful that in spite of a grim prognosis my husband is still around 8 months after diagnosis but I miss the man he used to be. His tumour was in his frontal lobe and that together with him being on dexmethasone has meant all sort of personality changes. I also worry about our girls (aged 9 and 3)…
Quality over Quanity
Well today was a good day for Jack, he even got up and helped his dad make breakfast, I figure it out it takes me a good 3 hours to get Jack started , he got a nice hot shower today and back rub that always makes him feel better, it is just so hard how each day changes from day to day, I told him today I will cherish days…
Final Trip
My husband and I took our final trip to Yosemite Wednesday. We stayed in the Ahwahnee Hotel for two nights. On our trip home from the dr.'s appointment when he told us that there was nothing more they could do, I asked my husband if there was anything he wanted to do. He told me he had always wanted to go the the Ahwahnee…
Mom's degenerative arthritis is as evil as her cancer!
Jest stopping in to vent... I am so jealous for mom, of all the folks living with cancer, that find some of what they need to get through it by working, going to meetings, running in marathons, and being able to maintain that physical fitness. Don't get me wrong, I can imagine that their efforts are not without pain and…
A Roller Coaster Ride
My husband was diagnosed with lung cancer almost five years ago and is currently on an experimental drug. He has lost 35 pounds since June and appears to be deteriorating both physically and emotionally. Every day there seems to be more and more responsibility put on me to help him with his care and I find myself getting…
My heart is just breaking
My heart is just breaking, I read the hospice book and I see what is happening, I see him disconnecting from me,they say that is his body way of moving on, He stays away about 6 hours out of a 24 hour period, We have to go the the onoologist to see if there are any other options, or do we just stay on hospice, the…
Post Surgery
My husband had colon resection and colostomy three weeks ago. He had some complications with blood clots in his lungs but the surgery went well and he has been home a little over a week. My question is that in the evenings around dinner time 6:00 pm he begins to feel very weak and tired and can barely make it to his bed.…
Abuse / Spammers
There has been some visits by spammers who post messages that contain links... these messages have nothing to do with the string that they are posting in and the links freeze your computer. I keep flagging them as offensive but would like to report them so that they can be blocked altogether - is that possible and does…
New Stage?
My husband finished the first 8 rounds of chemo for metistatic colon cancer in his lung and in his lymph nodes next to his wind pipe. We were told chemo (FulFox with Avastin and oxioplatin every other 8 rounds) will go on until the cancer stops responding or he can't take it anymore. He has had round 9 without the…
Hospice brought in
Well Jack was sent home and said there was not much more they can do for him, we will go see his regular oncologist next friday so hopefully we will have some answers, They sign him up for hospice, they made there first visit today, it was sad, I am num right now, not sure what do to or how to feel, Is this just a set back…
What do I do Now?
Hello to all who read this... I am at a place in life I never wanted to be, like all of you. Well,maybe not like you. I don't know, everyone feels different and I am so darned confused, hurt and scared and any other emotion you can think of, that I just can't get to come out of my fingers on this keyboard. On 9/17/09, the…
End Stages??
My husband is battling head and neck cancer (diagnosed in 9-07) which has metastized to his bones, liver, lungs, kidneys. . . He weight has gone from 215 to 169. He sleeps 24 hours a day, just gets up for doctor appointments and to get his medicine or milkshakes. He is now hallucinating and his stomach is large and firm.…
since being put on Hospice
Since Jack was put on Hospice it seems like he is giving up, all he does is sleep, His oncologist has not def told him there are no other options just the hospital doctors, so he has been home for 2 days and maybe been up a total of 8 hours, I dont know what to do to get his fighting spirit back, Is this a process they go…
worried,
I just can't understand how Jack crashes so fast, he is having a good day and then all of a sudden he gets lightheaded and his blood pressure drops, his sister is a nurse and she said he is having what they call Fasal Vogal Episodes ( fainting spells when his pressure drops, ) and I read up on it and it happen when a…
Board Fixed!!
Looks like we are in the clear. We can start posting new topics without interference. To bring the most current postings to the top of the board...click on "created", then click the grey arrow next to it. Trish
Don't rely on docs re: drug interactions
I've learned something very important that I want to share with all of you. My husband see's multiple doctors and I'm always concerned when each of them prescribe medications to my husband without consulting with each other. I've seen side effects from my husband that had me very concerned so I found a web site that will…
Good morning
My partner of 15 years has stage 4 renal carcinoma with mets in his lung and brain, and so far I have been able to be the caregiver he needs and the caregiver i knew I could be, which has been great. A # of weeks ago I was rushed into emergency surgery for a tumor on my small intestine, and as a reult was given a diagnosis…
Survivors and alcohol abuse
My wife went through nine months of breast cancer and I was her primary caregiver. We got through it successfully and she is 2 years from dx. She is NOT on any drugs (i.e. Tamoxofen) but meets with oncologist every 3 months for another year or two, then every six months for a vew years, then every year to her 10-year…
Hurting as a caregiver
My mom was diagnosed with cancer (larynx) in early February. We are now at the last tree days of radiation, chemo, and herbatux, and needless to say it has been the hardest and most trying period of our life. I am normally a very strong individual, I have gone through a lot in my life. I thought I would be able to handle…
dealing with the tiredness
My husband has stage IV colon cancer ( it's in his liver and abdominal wall). We just found out in Oct. He has been getting chemo every two weeks. We have to wait until Jan. 4th for his next scan, but I feel like he is doing so much better. He had gotten to the point that he couldn't eat or rest because of the pain before…
Losing friends since mother's diagnosis
Has anyone else dealt with losing friends? I am disabled so I stay home a lot. Most of my communication is through email or IMing. Since I have told them nobody returns my emails. I sent an email saying that I understand the difficulties, that they might not be comfortable talking about cancer. I told them that i would…
First time to reach out for help.
My father is 86 years old and had a ERCP this past Friday while in the hospital. Doctor gave me the news that it is Cancer. My dad has no medical insurance other than Medicare and has been paying on medical bills for the past 3 years for a long stay at the hospital's ICU in 2006. He has refused to go to the ER on numerouse…
New and Tired
Hello to all my wife has lung cancer and had 47 treatments of radiation and 4 chemo in July of 07 . The treatment did a number on her she never got her taste buds back and ate like a bird. In Oct. she stopped walking so I took a leave of absence I have not worked in a month . Caregivers is a full time job without much…
Mother of young adult daughter diagnosed with cancer looking for emotional support from same.
I am looking for emotional support from other Mothers who are care givers to young adult daughters. My daugther was diagnosed in 2006 with stage III primary peritonel cancer, (a rare ovarian cancer). She was 21 years old at the time of her diagnosis. She has had a full hysterectomy as well as chemotherapy. My daughter is…

Caregivers

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