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Cancer with kids
Should we keep our 16 month old daughter out of classes and other group activities this fall/winter to minimize the chances of her bringing a contagious illness home to my wife? She (my wife)just started chemo.
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Feeling Hopeless
Well Jack has been home for little over a week, he was in the hospital because his port got a bacterial infection, so he is feeling better, but we can not start any new treatment until the antibotics are done and I think we have to wait for them to get out of his system so it is really depressing that we just have to sit…
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New here.
Hi all, I'm new to the board. I'm 39 years old and caring for my mother who is in her last few months of life after several battles with different cancers. She is in hospice care in my home right now and some days are just so tough. I have 6 children and am 4 1/2 months pregnant. I've read that my situation is called the…
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New Here......I feel so helpless!
My husband was diagnosed in April with mixed small cell with glander tissue, adenocarsonama feature, he was given 6 months to live. The doctor said he was going to give him 6 rounds of chemo to try and prolong his time. He just finished his last round of chemo, and they say there will be no more treatment, that when the…
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Tumors in brain and Decadron
Hello all you veterans and comrades... My mother-in-law has 3 tumors in her brain causing swelling and was given Decadron to reduce the swelling (this helps reduce confusion and gives her more time). Has anyone heard of this medicine and about how much more time would she have??? The doctor said that without the Decadron…
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is it possible to "prepare yourself"
My mom is nearing the end of her 3rd battle with cancer. Unfortunately despite her 2 previous victories, she's will lose this war. My mom is amazingly strong so on one hand its almost impossible to fathom that the end could be so near. But as I've seen a shift in her recently, I am sort of forced to bring those thoughts…
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Access to information pertaining to a patient
Anyone know of any reason why a doctors administrative staff would be slow to repond to a request for copies of a patients file material? Lab reports etc.
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Final home
Jack was discharged today, I am so happy, he is feeling better, the plan is to be on antibotics for 14 days and then I guess we look for the next treatment, I did not realize how tired I was till I sat down on the computer, Looking forward to no doctors appointment this week A week off of cancer would'nt that just be nice,…
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Day three at the hospital
Well they removed the port and he is feeling so much better, his pain level is down to a 2 which it has not been less than a 6 for months, He is feeling so good it brings peace to my heart, he has to stay in a couple more days I believe to clear up the bacterial infection, but they did a CT scan and it showed the cancer…
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Doctor Refusal???
Looking for your feedback, advice.... Mother-in-law is in the hospital because of breathing problems and I thought that one good thing was that she would be seen by the medical oncologist that we were referred to. That means that she would have started with him today and not a few weeks from now whenever they fit her in…
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still in the hospital
Still in the hospital, they removed his port because it was infected, so they are trying to see what kind of bacterial infection he has, They also had to do another Ct of the lungs they are not sure what they spots are it could be the cancer, infection or a touch of pnemunion so we have to wait and seem not sure when he is…
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Thank you
I would like to thank every one here for all your words of support and prayers. On August 19,2009 my husband Sean lost his battle with cancer. He was able to come home from the hospital night before last and pass away in our bed this evening. Again thank you one and all. Sonya,aka,seanslove
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Rollercoaster
On April 6th, my husband of 17 years, was diagnosed with metastatic colon cancer in his left lung and in 4 lymph nodes next to his treacea. His treatment is chemo every other week. His doctor stated he would be on chemo as long as he was responding and as long as he could take it. And it is for life extention, they do not…
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back in the hospital
Well Jack is back in the hospital I feel we are going backwards, We were waiting to start a Trial study and his WBC came back elevated, so they did blood cultures and we got a call today to go straight to the hospital, he has a bacterail infection, and his port is infected, I have been telling the doctors for weeks that he…
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Co-Caregiver in Denial
My mother-in-law went to the hospital with breathing problems. I expected it would be because of fluid in the lungs (pneumonia) and there is fluid - but the doctor said it is likely the cancer crowding her lungs and making it difficult for her to breath. Doctor suggested to take her home and help her to be comfortable and…
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Posting for the first time
My husband was diagnosed with an inoperable Gr IV Glio in March. He went through radiation and chemo and is now on a maitenance chemo. He had an MRI on the 17th and will see his MD on 25th. We have been told a year or less, but I hear many stories of patients that are living out much longer than a year. Is it because their…
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does anyone have any suggestions
I am having a hard time dealing with the sedation of Jack's medication, We are having a hard time keeping his pain uncontrol ups and down, it either not enough or it is so much he is sedated, His pain level never can get under a 5 , I feel alone when he has his days of being sedation, I know that sounds selfish, I just…
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My husband is battling back
Hello everyone. I have been away from the boards for awhile. A few weeks ago, my husband, who is stage iv lung cancer with mets, woke up in the middle of the night, like he always does, and I got up to help him, like I always do. Within five minutes he was gasping for air and just collapsed. When the emt's arrived, they…
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A Full time Job, that you have to do with Love.
When Jack was dx a year ago I was working full time, an now I am still working but 24/7 , Jack has head and neck cancer which has met to his liver and lungs, but we are still fighting the fight, Jack just got out of the hospital again he had to have a trachea, and I watch everyone who came in his room, the nurses to do his…
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Problem with contrast after mri
My husband is having a reaction to the contrast when he has mri's. He can feel the injection going through his leg muscles and then has tightness for up to three weeks. It takes away the strength in his legs and causes pain due to the tightness. He has brain cancer and has to have the contrast. His doctors have never heard…
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Why do I feel ungrateful?
Ok...first I love my husband and will do anything for him. Since his diagnosis, his ex whom I might add hadn't spoken with him except to ask for money for his kids for over a year all of a sudden feels the need to "help out" (ok maybe from her own guilt of being a b**** the last year and half since we got engaged)? Mind…
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Be Careful with Medical Supply Deliveries
Just a quick word of advice and note of what happened to us this week. The hospital has a medical supply company deliver feeding supplies for my husband (he was to get an IV pole, syringes to flush the tube, feeding bags and jevity 1.5). The delivery came but then they also shipped 2 cases of jevity by UPS. Well the boxes…
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i don't think we realize how absorbed we get
Since March I have been dealing with my husband's diagnosis, actually in March I thought he was "cured" until we came home from our honeymoon in June and the tumor decided to join us. Anyway, I "thought" I was doing a good job at "doing it all" -- taking care of the home, his medical bills, his food, running back and forth…
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Need Recipes/Ideas
I'm running out of ideas for pureed foods. Anyone got good recipes? I made a turkey, spinach walnut mousse last night that my husband said was good - it was a nice change from all the cold smoothies he's been drinking.
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suggestions for birthdays???
Ok -- my husband's birthday is Friday - how to celebrate? He feels like crap - just had a PEG inserted yesterday. He's on a purely liquid diet. But other than that I think the issue I am having is since he feels like crap and is so down, etc how do you say "Happy Birthday" when he's not "happy"?
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New to site
Not sure how to get around this site, if anyone can throw me some help, that would be great, Been living with cancer for a year now as the caretaker, and some days I jsut feel lost and I have my friends but don't really understand, they are just looking in from the outside, I was looking for some support who understands…
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My journey not yet started
Well 7 weeks ago I had a whole husband. Since then he has beed diagnosed with colon cancer, rushed to surgery for a colostomy, and facing chemo. I am still reeling from it all. He will start chemo on the 14th of September. I know knowledge is power but when I read about how it will be for him I become so afraid. It makes…
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Hi everyone
Hi everyone, just a note to say i am feeling better today. Sun is shinning and no work, nowhere to go, just me time. i am loving it. hope all is well with everyone. What is being planned for the weekend? any fun things happening? take care of yourselves
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This is beginning to burn me out! Too much! Family doesnt help much! Mom in distress all the time! A
OMG! The stress is beginning to get to me, my spirit, my everything. I never thought it was going to be this hard. I am usually able to manage and be under a lot of stress but now I feel like I can't do this anymore. I have so much going on, I need some guidance. My mom was diagnosed with multiple mulerian ovarian cancer…
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Losing hope and patients
I am my mom's caregiver and I am losing it! She has been going through chemo since February. She has lost 56 pounds, she won't eat! Her chemo keeps her from eating anything cold so everything has to be hot or room temperature. I am literally having to force food into her. Then she gets mad at me for doing it. I figured it…